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Ovarian Cancer

Afraid for my Mom---she is in ICU and everyday is more bad news
My Mom was dx with Ovarian cancer in June. On July 31, she had her hysterectomy and debulking. She had convinced herself that it would just be the ovary and that would be that---bring on the chemo. It was anything BUT that. They found extensive cancer in her abdominal area. Her spleen was removed, cancer was "caked" on the…
Long road ahead
I am on my second round of Carbo/Taxatore ...md cut it back by ten percent as I was very ill for two weeks. My numbers are way down and my Prt showed signigicant reduction. My balance is much better..don't need walker..use ankle weights. Lost some weight..have thrush every month. Stindoors. Most of time..flu season. My…
Next clinical trial info recieved
I just wanted to share some information on the next clinical trial my Onc is suggesting for me. It is a phase 2 evaluation of a drug called Dalantercept, a novel soluble recominant activin receptor-like kinase1 (alk-1) inhibitor recepter-fusion protein. Thats a mouthfull. It's also known as ACE-041 and was created by…
3 month check up today
I had a 3 month check up today and all went well. Everything is normal... My CA 125 went up a few points but doc is not worried because I was getting over a stomach bug and had a bit of a cold when I had it done so we are going to re do it in a month. She said see you in 3 months... I was a wreck about this appointment. It…
The beginning of my Mum's story.
Hello, I'm new here and like all of you I have found my way here under the most awful of circumstances. My beautiful angel of a mother has been suffering accutely with what she has been told was IBS for some months now. On Monday Nov 26th she was rushed into hospital where she had emergency surgery to deal with a blockage…
To chemo again or wait
Hello everyone just wondering if you gals have had similar experience. My ca 125 is on the rise. 20Aug,49dec,73january. Doc says its up to me when I wanna start chemo. She says a study showed it didn't make much difference if I waited till I had symptoms or start chemo now. Ct scan only showed slightly enlarged periaortic…
ROLL CALL - DECEMBER 2012
Someone suggested roll call to keep track of all teal sisters on this board. I think it's a great idea. Please post a short status report of where you are in your journey. Dear long-term survivors! If you are just lurking please post too to give us newbies some hope and motivation. Thank you ladies,
Can someone please tell me what tests suspected your cancer?
Hi! I've been recently having tests for many symptoms of ovarian cancer and feel as if something is being missed along the way. I don't know if the drs have performed all proper tests or if they just don't do anymore because ovarian cancer is so hard to detect? I amallergic to ct scan dye so I had Pelvic/ abdominal mri Tv…
Hair Loss
How did everybody deal with hair loss(if you even lost your hair at all) when you started chemo did you wait to get wigs, scarves and hats before you started chemo or once you started losing your hair. My NP told me i should get wigs before my first treatment. I mean is it for certain that i will lose my hair. Did you let…
Roll Call - PPC
Following on the roll call of Ovarian Cancer sufferers I am asking if PPC sufferers could do the same please on the Peritoneal Cancer board. So often when I go to find out details of a postee there are no details there. I have started this on the PPC board and ask that as many as possible of you please also give your…
Surgical removal of the lymph node in neck confirms OVCA again...
As I posted last week I had a lymph node in my neck surgically removed last week. It came back OVCA. I will meet with my oncologist Monday as he is working on a treatment plan. I had 9 months of complete remission. I assume he will probably order another PET before I begin treatment. I HATE THIS DISEASE!! I am so thankful…
Next clinical trial
I was wondering if anyone has been put on a clinical trial that includes an injection? My first trial didnt work, and am already having a re-occurance while I was recieving a low dose taxol every month. I didnt get all the information yet, so not sure what its even called. The nurse said its a sub-cutaneous injection and…
Anyone ever have cancer spread to underarm lymph nodes?
My recurrance so far has been limited to my lymph system (1 enlarged lymph node in my pelvis; a tiny one behind my stomach; and a painful node in my arm pit.) The metastisis to the underarm really seemed to surprise all 3 of my oncologists. Is it unusual for a gynecologic cancer to travel to the underarm nodes? None of my…
PET scan questions
I was hoping for some insight on a PETscan I recently had. Since I've been having ongoing bowel obstruction symptoms and a SLOW rising ca125 my surgeon wanted me to have a PET/CT. The CT scan was clear but the PETscan showed one hotspot on my colon. The oncologist said it would unusual to have only ONE hotspot on a PETscan…
aortocaval lymph node first recurrence OC
The OC is returned as a aortocaval lymph node. I am taking chemo carbo/taxol. Chemo treatment started with CA125 of 129. After the first cycle of chemo treatment CA 125 went down only by 7 points. This is the first recurrence for me. The recurrence after 9-months of chemo treatement (after the surgery). OV cancer stage 3B,…
No blood supply to a cyst and node, can it still be cancer? Clear cyst as well.
I was wondering if anyone knows anything about this? This is what I have been told about my cyst and the feeling was that because there was no blood supply to the cyst and node that since cancer needs that to grow then it isn't cancer. The cyst and node are growing but just slightly and the feeling is that it is just a…
I thought this may help someone- everyone has been so kind to me
http://www.gynoncology.com/ca-125/
Help Please
I have a friend with ovarian cancer and it has now spread to her lungs. She now has a breathing tube but they sent her home, she is suppose to start a new chemo next week. Is this pallitive care or am I just thinking the worst? Any info would be helpful. I am from BC forum. Don't know much about ovarian cancer and how it…
HAPPY NEW YEAR!
To everyone on this board - patients, survivors, caregivers, family, friends - may 2013 bring you health, joy and renewed strength. And may we continue to be able to meet here to share, uplift eachother, and discover hope and friendship. (((HUGS))) & PRAYERS TO YOU ALL, Monika
Good news
I may be taking my last carbo treatment for my first recurrance that did not respond to Doxil. I am allergic to it so I have to have it in the hospital and get desensitized. Takes about 24 hours but works well. My CA 125 is 11! The Dr would like to give me a couple extra treatments as it works so well but on the other…
My brother passed away yesterday from Cancer
Hello everyone....Below is what I posted on facebook about my brother. My brother passed after a hard 9 month battle with Acute Panamyelosis with Mylofribrosis. His body finally gave out. I informed everyone about 9 months ago that my brother was diagnosed with a very rare blood cancer. He underwent a bone marrow…
Mom waiting for chemo to start - very sick - is this normal
My mother was dx last week. We are still waiting final biopsy results, they won't start tx until they recieve it. It has been 10 days since tenative dx. She is sooooo uncomfortable, w/ nausea, and now pain, and seems very weak (maybe the pain meds?). SHe is so bad, I am afraid she is going to die before she even begins…
CA 125 Question
Hi ladies Tomorrow after work I go for a ca125 test for my 3 month ck up on Friday. This is the first time I have been sick before a test. I have a slight head cold but I also have had some sort of stomach bug the past couple days. No big surprise since I work in a high school health office and both of these were going…
Bucket List
I just read an article about this 47-year-old woman in England with terminal bowel cancer and 6 months' prognosis, who posted her “bucket list” on Facebook. With the help and donations from friends and strangers she is going through her list, which included things like: Go to music festival, Learn to salsa, Limo ride with…
What could this be?
Hello, had my right ovary taken out last April, of course, menopause kicked in with a vengeance so I started HRT first of August. Everything has been fine. I did start an anti-anxiety med about 1 month ago. About 2-3 weeks ago I started to have sharp pain in the lower pelvis (about where my ovaries are) - they only last a…
Pain
Has anybody experienced a lot of pain due to the extent of their disease while still being treated? My mother has a lot of uppe ab pain/pressure - and I am hoping that if/when chemo shrinks things, the pain will subside, and her appetite will increase.
Tethys
Hi there I don't know how to send messages to individuals so I had to give you a shout out. I'm going to see a new naturopath the 27th. The other one is just too far of a drive and I am just getting iscador from him. Now that my ca is on the ris(49). I'm ready to try to get on board with this diet stuff. My oncologist is…
Has anybody had an experience like this?
My mom was dx w/ stage 4 on Dec. 2. She completed her first round of taxol/carboplatin 10 days ago - and has been in the hospital ever since. Her nausea and pain and pressure(upper abdomen ) are awful. She really isn't eating and has been on and off of IV fluids. Also, had NG tube for a few days. She gags a lot, and vomits…
To IP Port or Not IP Port - any feedback?
My mother is currently facing the decision of whether or not to have an IP port installed when her debulking surgery takes place in two weeks. We are grappling with this decision because her first 4 chemo treatments (via IV with Carbo/Taxil - not sure if I'm spelling that correctly) went great. Her numbers came way down…
Confused - CA125 increased after debulking
My Mom was diagnosed with cancer in November 2012. Her CA 125 was 5,338 November 24, 2012 after a tumor was discovered in her abdomen from a CT scan. She had ascites, too, and had 3.5 liters drained (red color). She had surgery the last week of November and had 95% of the cancer removed and another 4 liters of ascites…

Ovarian Cancer

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