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ca-125
Hi everyone, I had a draw for ca-125 on Thurs. I'm praying that it has stayed the same or went down. I am going to get the results before my Onc calls me...I know I shouldn't but if I know in advance it give me a chance to digest the news and ask the appropriate questions. Instead of being shell-shocked does anyone know…
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Hexalen oral capsule
Any info on this chemo? Like "shortstuff" of 12/29, I'm facing my 4th recurrance of o.c. and would very much like to hear if anyone has taken this drug and how bad the nausea is? I'd like to be able to travel and the thought of weekly treatments of Topotecan is Very restricting. Thank you and all the best to this…
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OVARIAN CANCER TO LIVER
For those of you out there who have experienced ovarian cancer that spread to the liver, I have a few questions: 1. What stage of ovarian did you have? 2. What were the symptoms of liver cancer before it was confirmed? 3. What types of treatments have you or are you receiving for the liver cancer? My CA125 is rising and I…
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MY CA125 IS RISING ALSO
Seems like many of us are dealing with this right now. Just to recap: I had levels of 10 all through chemo, went down to 9 after chemo, last month up to 12, this week up to 13. Pain? A little in the area where I had OVCA before (lower right pelvic area), even though pain was never indicative for me. It's always been the…
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Carboplatin allergic reaction
Hello everyone. Yesterday when getting my carboplatin, I started having a sneezing fit, then felt my hands stinging, then noticed that my palms were bright red. The nurse got the doctor, and he had her start me on a Benadryl IV. He said if it happened again, I could never have carboplatin again. Has anyone else had this…
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-a-ie; stem cells, which could very well bring the cure to all cancer. Vote with your ovaries in mind.. The politics of cancer can kill you..of over 10,000 grants from the…
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Hexalen
Hi. I'm new to this network. I've just been diagnosed with my fourth reoccurence of OC and the Dr. wants me to start on an oral chemo called Hexalen. Has anyone experienced this drug? Just wondering about side effects. I would appreciate any help. Thanks
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Some Sad News
Hello to all my friends on the board. Tonight I have some sad news to share with all of you. Mom passed away on Friday morning at the age of 90. It was not the cancer that hurt her, it was simply being old and tired. Her heart just stopped. After all that she had gone through and conquered I though she might just live to…
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Sad news
Dear Friends, my mother's 14 year battle with Stage 3C Ovarian Cancer (which she valiently fought), has ended today. At 1:15 this afternoon, my beautiful mother (Sandra Goodman of Enfield, CT) passed away. She was a strong advocate for Ovarian Cancer Awareness. She helped plan and participated in Survivors Day, and walked…
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Doxil
Well last month my ca-125 started back up so today my doctor said I may start doxil Wed. I was on taxetere. I will know what my numbers are tomorrow. I really thought I would get through these 6 treatments and be through, I had 3 of taxetere before my numbers started back up. Sounds like several people have been on doxil.…
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Positive thoughts and prayers
My Mother has Stage III OC. She has couragously been battling this disease NON-STOP for 13 years. She is the most amazing person I know. She has been a source of strength, admiration and hope for so many women. She has had three major surgeries and 9 different chemo regimens - lasting from 6 months - 10 months each as well…
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Good news today!
Hello everyone, Well, I couldn't wait to get home and report my good news to my friends! My CA-125 has stayed at 17!!!!! I couldn't believe it! You all know how happy I feel. My doctor said that all of the rest of my tests are normal. And, he said: "You're too healthy to be here." Ha. Anyway, he did remind me that he is…
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ESSIAC TREATMENT
Hello everyone. I hope all is well. My mother is still battling vaginal cancer. It has spread to her lungs and liver. It is in the advanced stage, and she is receiving palliative care. I was wondering if anyone had tried the Essiac Tea treatment. If so, how was your experience? Please respond as soon as possible. Thank you…
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treatment again
I was diagonosed with ov c111 Jan 2005. I had IP chemo for 6 treatments. The end of Sept 2006 they found something on my ct scan above the liver dome. My ca125 was normal at 12. In fact in July it was up to 18 due to an enffected tooth. Went down to 13 by Sept. and in Oct down to 12. A pet scan showed tumors in the chest…
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This is MichaelaMarie, aka Keelie
Hello everyone! I've had major computer problems, so had to re-register with CSN, as I lost all of my settings, etc. I had to use a different name and e-mail address also. So, I wanted all of my friends to know that I am now officially Keelie, for this site. I'm doing okay, will probably know more tomorrow, if I keep my…
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CA125 WENT UP
Well, Bonnie and everyone, my level had gone down last month from 10 to 9, now it's up to 12. I know that's not much, but to me that's quite a jump considering I had been at 10 for 4 months then went to 9. Oh well, guess I'll TRY not to worry too much. I just lost a friend to ovarian cancer, so it will be hard not to let…
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CA125 going up
I had a port flush and CA125 done this week. Unfortunately my ca125 has gone up. But the good news is 29 isn't a bad number. The Avastin had brought my markers down to 10 and we had hoped it would cause everything to stay quiet. My next appointment at the U is at the end of January. I have another port flush just before…
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Merry Christmas & Happy Hanukkah
Merry Christmas and Happy Hanukkah to all of my friends on this board. I hope that you are able to have a day pain free with family and friends. God Bless all of you! Jami
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Drug induced liver damage
Has anyone who has had treatment for cancer, ended up with liver damage? I had six rounds of carboplatin/taxol for stage 3a ovarian cancer. I now have non-alcholic steatohepatitis. I am on a waiting list to see a specialist for this. I have read everything I can get my hands on, but can't seem to find what the prognosis is…
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Understanding CA 125 Levels
I have a copy of a brochure from the Gynecologic Cancer Foundation that explains CA 125 levels really well. It's available to print (from a pdf) at http://www.thegcf.org/pubs/CA125Levels_brochure.pdf It's 12 pages, and of course, you can just read it online if you want.
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over 1 yr survivor & recur
Hi, I have not been on here for a while, but I have been thinking of it. I was dia with oc stg 3 in May of 2005. With surgery and chemo, I have been in remission for 1 year in Sept this yr. I feel great and I have been living life so differently than I was BC. Now the cancer has come to pay another visit. 2 spots on the…
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topotecan or taxotere
I have reoccuring ovarian cancer in the chest wall and am being offered a choice of two regiments. topetecan and carboplatin or taxotere and carboplatin. Have any of you taken any of these 3 drugs. Please let me know how effective they were and what side effects you had. I need to make a decision by next week. thanks for…
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Instant Ocean baths
Bonnie, you said to start the baths after the 7th day of infustion or start right from day 1?
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Follow up ovarian visit/skin cancer?
Had my latest followup visit this a.m. All looks fine other than waiting on CA125 results. Have a bump on my nose that they want checked and they are setting up an appointment. I'm hoping it is negative. If not, can anyone tell me what to expect?
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IPT
What is this and how does it work. I have Stage 3C OC. Operated on in 10-05, 9 cycles of carbo and taxotere, back on chemo with carbo and gemsar. Does anyone know what this is and who can get it
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taxotere and carboplatin
Has anyone taken taxotere and carboplatin combination? are either alone? What side effects did you have? I am suppose to start the taxotere and carboplatin regiment and have heard bad things about taxotere. Would appreciate any input. Eleen
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Could stress cause this..
Hi Everyone, I have a question,most of U know about my Sister.Well, she stopped taking the treatments about a few months ago.She said she couldn't take anymore,couldn't handle it,and that since they got all of the cancer during surgery and she had had 3 treatments before surgery,3 after, then she was suppose to take more…
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Weight Gain
Has anyone experienced weight gain with the chemo. I thought you were to lose weight. Also, has anyone experience a rise and fall in your CA125 during chemo? Is this normal? or is there anything normal about cancer
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As a friend I want to help
My close friend was recently diagnosed with ovarian cancer. She had hysterectomy and has now started chemo with radiation to follow. She is very discourged and I don't know what to do to help her. What do I say to her when she cries and says that she doesn't believe the fight is worth it? The radiologist told her the…
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NO MORE CHEMO!
I just returned from my post chemo follow-up with my doctor. I received the 'ALL CLEAR' according to the test results, blood tests and exam. CA125 is holding at 8. I hereby have a reprieve - no more chemo! I'm so happy, so is my family. One thing did show up, however, on my CT scan - a blood clot in the vein that used to…