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Scared out of my mind
Well, it's 5:30 in the morning and I haven't been to sleep yet. At 4:00 in the morning the night before I was having so much stomach pain that I husband took me to the ER. I have been to two doctor visits in the last six weeks complaining of nausea, bloating and stomach pain, but last night it seemed worse. After cat…
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DR. VISIT
Well, my doctor visit yesterday proved to be successful AND hopeful. My CA125 has stablized these last two months at 10 (was 8 during my 6 rounds of chemo). The HIDA scan showed NO gall stones. The CT scan showed NO blood clot in the gonadal vein and NO EVIDENCE OF DISEASE! I must admit I still have a few aches and pains…
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Dr Visit Update
Hi Everyone, yesterday at my clinic visit we went over the ctscan. My ca125 is at 11 and the ctscan shows that the cancer has shrunk in size. The Avastin/Cytoxan really did help. I am on a chemo break(a little nervous)for 3 months. We are very grateful that the tumors have shrunk, but I guess a little part of me was hoping…
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topotecan
Has anyone used topotecan as parat of their cancer treatment?
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treatment or not for 89 year old mom ovarian cancer, Stage IIIC?
Is there anyone out there who can tell me what, physically, will happen, if no treatment of any kind is given to my 89 year old mother who, based on recent CATSCAN, I'm told has a 13.9 cm complex thinly septated ovarian cyst, most likely malignant (assume it is malignant). We're awaiting CR125 results. She has other…
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carboplatin with taxotere vs carboplation with topotecan
In Jan 2005 I was diagnosed with sage III ovarian cancer. I had surgery followed by IP theopry with sisplatin, taxol, doxel(?). I went into remission after 3 treatments but finished 6 treatments in Oct 2005. Sept 2006 a pet scan and a bipsi showed that ovarian cancer had reacurred in my chest wall and 2 llymph nodes in my…
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SOME GOOD NEWS
Hello everyone. I don't post a lot, but I do read them. You all have helped with so much information. In case anyone has forgotten, I'm the daughter and chief caregiver of a Mom who is now 90. At the age of 89 she was diagnosed with ovarian cancer. In late June of 2005 she had a huge surgery. She was bleeding at the time…
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recurrence of ovca
I was dx stage 3c in June 04. Had six carbo/taxol and ca125 was 5. In Jan 06 ca125 went up to 40 and had recurrence in the pelvis. I went on a clinical trial of carbo/alimta had 10 treatments and my ca125 went down to 9 and then started to rise again. It is now 20 and pet scan shows liver mets (new). Dr suggests doxil and…
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ovarian link to breast cancer
My mother is a 18 year survivor of breast cancer. She underwent a mastectomy. She has also had 2 bouts with colon cancer but is in remission on both. I was diagnosed with ovarian and uterine cancer in April of 2005. I was told that it was most likely the genetic link with my mother's breast cancer. I have had a total…
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Anyone have complex cyst on US turn out to be cancer?
Hello Dear Ladies. Hope all of you are doing well. I posted a message a month or so ago about some of the things I have been suffering from. Thank you all for your responses. They helped me out a lot and caused me to be more pushy with my doctor. I finally got to see my GP and was able to talk him into a CT scan of my…
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Update on my journey...
Hi everyone, I saw the gyno on Friday and he believes that I have Adenomyosis which is endometriosis of the inside of the uterine wall. The mass that was found on my ultrasound was an adenomyoma. This is his opinion based on the transvaginal ultrasound he performed. My options are to try and control this with birth control…
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Test results from Ultrasound are back...
Hi everyone, just wanted to update you on my ultrasound results. I went back to my family dr. on Monday and insisted on getting some answers to my symptoms that I have been experiencing. My family dr. insisted that maybe I had a pinched nerve in my back. I refused to settle with that diagnosis. She then said that she would…
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birth control pills and ovarian cancer
I am new to this chat room. My mother and aunt both passed away from ovarian cancer and I am trying to get advice on birth control and getting my ovaries removed. I was on birth control pills for 15 years and recently got off of them. I was tired of being on hormones and am also concerned about the risk of breast cancer. I…
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CAT scan showed significant growth - Started Doxil today
Hi everyone, Just wanted to let everyone know that my CAT scan came back and it showed that the desease has increased significantly since the CAT scan I had in May. When I finished chemo in January my CA125 was 7.8. It started to go back up and was as high as 247.7. They started me on Topotecan in June. My numbers started…
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A joke from the Colorectal Cancer board...
I am an active poster from the crc board...survivor of rectal and breast cancer....I posted this joke there...hope it sends a giggle for you all, too! A nurse was on duty in the Emergency Room, when a young woman with purple hair styled into a punk rocker Mohawk, sporting a variety of tattoos, and wearing strange clothing,…
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Help...Don't know what to do update...
Thank you to all that replied to my first post. I did demand that my family Dr. have an ultrasound done and that was completed this past Wednesday, now I am waiting for my results. It has been agony this week with the cramping and now yesterday afternoon I began spotting again. I am going on three weeks with severe…
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CT Scan results...need help
First a little backround. i was dx. 11/04 stage 3c OVCA. Went through 6 tx. carb/taxol was told my ct scan clear,numbers were low. So I had a sls where it could be seen that I still had more ca inside, also all 15 biopies came back positive for OVCA. So I had 6 tx. of Doxil finished that in 1/06 and once again told I was…
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Second treatment not working
Hi everyone...I am back for more support..Just a refresher..I was diagnosed in Aug '05...After surgery, did 6 rounds of Carboplatin and Taxotere. Finished 1/30/06...CA125 was down to 7.8....Got a call from my oncologist, in May, that my numbers started to go up...After CAT scan, more tests, meeting with another specialist,…
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Clear cell - IC
I have been diagnoised with IC oc. I had talked to my dr, he said the cure free for this one is 50-65% and if it recurs then the life expectancy is 5-6 years. This is really scares me. I will be starting on chemo from monday. please share your experience
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new diagnosis/first ride
Hi...I'm brand new. Just found out a week ago, after removal of a suspicious, comples cyst we were watching through US and 1 CT scan, that I have adenocarcinoma. I had outpatient, laparascopic surgery done by my gyno. The cyst was found by accident during my yearly gyno exam. She (doc) didn't think it was anything but a…
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Possible ovarian cancer?
Hi everyone. My name is Lindsey and I'm 21 years old. I had an unplanned pregnancy at 18 which resulted in miscarriage and that's when the fun began! I was diagnosed with endometriosis and uterine fibroids when I was 19. I've been on tons of hormonal birth control to control my endo symptoms since - and took Lupron for 3…
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Help...don't know what to do!!!!!
Hello, over the past few weeks, I have suffered from constant lower back pain, nausea, fatigue, bloating, and pain on both sides of my abdomen. A couple of years ago, I experienced the same bloating and back pain, however, didn't have the nausea and stomach pain with it. At that point, I was having very heavy periods and…
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Simple Cysts After Menopause
I am 43 years old. My mother died from Ovarian Cancer at the age of 53 - one week after her diagnosis. She also had two brothers with colon cancer. My doctor does a transvaginal ultrasound on me every year followed by a regular exam and CA-125 six months later. I have been having some worrisome symptoms for a few weeks now…
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afraid of recurrance
Is anyone else in the limbo of remission, watching that ca 125 and wondering what now, what next, and what's normal? The pain of neuropathy in the feet is slowly subsiding but the numbness at 3 mos after chemo, is persistant. I pray, eat supplements, walk, have joined a group, do visual imagery and read about diet and…
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Symptom details
Hello everyone! Hope you are all doing well today. I have been looking all over the web for answers to my question and haven't been able to find anything. I finally ran across this site and hope that someone who has experienced this horrible disease may be able to help me. I have trouble getting my GP or ob/gyn to listen…
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Hysterectomy aftereffects
I am a 28 yr old woman who had a hysterectomy because of ovarian cancer. I was wondering if anyone was experencing any effects of loss of feeling like a "woman" because of the surgery? I am and I totally feel alone in this matter and I feel scared. If anyone could offer help and support please feel free. Thank you,…
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Thanks for the welcome
I would like to thank all the kind ladies who welcomed me...hopefully I won't be looking at a recurrence. I am having a CT Scan 10/02 so we'll see. Lately I've been having a pain on my right side, sometimes it's sharp and other times it's a dull ache...it hurts to breathe in at times. So I'll be happy to do this CT…
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Ovarian cancer
My sister was told 6 months ago she had cancer on her left ovary (I just found out) nothing has been done to treat this so far. I have taken her to another Doctor and he has offered the following: remove the left ovary through the vagina in an outpatient center and her recovery will be 7-10 days!!!! All help is apprectiated
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ca125 result
Hi Everyone, I just wanted to share the amazing news. My ca125 is at 10 now. It has not been at 10 since 2003. Do you believe it? I have one more avastin treatment and a couple weeks of the daily cytoxan and then I am finished with treatment. October 26th will be my next appt with gyn/onc and ctscan. Just had to share the…
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HELLO to all, I'm new here
Hi everyone, I'm new to this group. I was dx. 11/04 with OVCA stage 3c. I have had 12 chemos-6 carbo/taxol and 6 Doxil for refractory disease. My last chemo was 1/06 and my ca-125 in 3/06 was 5.1. Now however it is going back up, last ca-125 was 15.8 which is my highest ever except for pre-surgery when it was 204.…