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Clear cell - IC
I have been diagnoised with IC oc. I had talked to my dr, he said the cure free for this one is 50-65% and if it recurs then the life expectancy is 5-6 years. This is really scares me. I will be starting on chemo from monday. please share your experience
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new diagnosis/first ride
Hi...I'm brand new. Just found out a week ago, after removal of a suspicious, comples cyst we were watching through US and 1 CT scan, that I have adenocarcinoma. I had outpatient, laparascopic surgery done by my gyno. The cyst was found by accident during my yearly gyno exam. She (doc) didn't think it was anything but a…
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Possible ovarian cancer?
Hi everyone. My name is Lindsey and I'm 21 years old. I had an unplanned pregnancy at 18 which resulted in miscarriage and that's when the fun began! I was diagnosed with endometriosis and uterine fibroids when I was 19. I've been on tons of hormonal birth control to control my endo symptoms since - and took Lupron for 3…
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Help...don't know what to do!!!!!
Hello, over the past few weeks, I have suffered from constant lower back pain, nausea, fatigue, bloating, and pain on both sides of my abdomen. A couple of years ago, I experienced the same bloating and back pain, however, didn't have the nausea and stomach pain with it. At that point, I was having very heavy periods and…
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Simple Cysts After Menopause
I am 43 years old. My mother died from Ovarian Cancer at the age of 53 - one week after her diagnosis. She also had two brothers with colon cancer. My doctor does a transvaginal ultrasound on me every year followed by a regular exam and CA-125 six months later. I have been having some worrisome symptoms for a few weeks now…
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afraid of recurrance
Is anyone else in the limbo of remission, watching that ca 125 and wondering what now, what next, and what's normal? The pain of neuropathy in the feet is slowly subsiding but the numbness at 3 mos after chemo, is persistant. I pray, eat supplements, walk, have joined a group, do visual imagery and read about diet and…
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Symptom details
Hello everyone! Hope you are all doing well today. I have been looking all over the web for answers to my question and haven't been able to find anything. I finally ran across this site and hope that someone who has experienced this horrible disease may be able to help me. I have trouble getting my GP or ob/gyn to listen…
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Hysterectomy aftereffects
I am a 28 yr old woman who had a hysterectomy because of ovarian cancer. I was wondering if anyone was experencing any effects of loss of feeling like a "woman" because of the surgery? I am and I totally feel alone in this matter and I feel scared. If anyone could offer help and support please feel free. Thank you,…
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Thanks for the welcome
I would like to thank all the kind ladies who welcomed me...hopefully I won't be looking at a recurrence. I am having a CT Scan 10/02 so we'll see. Lately I've been having a pain on my right side, sometimes it's sharp and other times it's a dull ache...it hurts to breathe in at times. So I'll be happy to do this CT…
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Ovarian cancer
My sister was told 6 months ago she had cancer on her left ovary (I just found out) nothing has been done to treat this so far. I have taken her to another Doctor and he has offered the following: remove the left ovary through the vagina in an outpatient center and her recovery will be 7-10 days!!!! All help is apprectiated
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ca125 result
Hi Everyone, I just wanted to share the amazing news. My ca125 is at 10 now. It has not been at 10 since 2003. Do you believe it? I have one more avastin treatment and a couple weeks of the daily cytoxan and then I am finished with treatment. October 26th will be my next appt with gyn/onc and ctscan. Just had to share the…
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HELLO to all, I'm new here
Hi everyone, I'm new to this group. I was dx. 11/04 with OVCA stage 3c. I have had 12 chemos-6 carbo/taxol and 6 Doxil for refractory disease. My last chemo was 1/06 and my ca-125 in 3/06 was 5.1. Now however it is going back up, last ca-125 was 15.8 which is my highest ever except for pre-surgery when it was 204.…
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HIDA SCAN
Has anyone every had this type of scan before? It's to check for gall bladder problems. I know I will be injected with contrast, and that the test will take about 4 hours. But my doctor told me they would take films, then have me eat sometime, then take more films. The hospital said there was no eating involved. So, just…
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Chemotherapy & High Doses of Vitamins
Hello, I recently saw a Holistic doctor who perscribed a lot of different vitamins in high doses. My gyne onocologist said i should only take the FDA reccommended dosage because she doesn't know if taking mega vitamins will increase the growth of the cancer. I feel very much at a loss...cancer has spread to my lymph nodes…
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Anyone do 8 instead of 6 Taxotere/Carbo?
Hello everyone. I finished 6 treatments. CA-125 within normal range now. This treatment has been for a recurrence. The doctors are strongly considering giving me an additional 2 treatments. However, they warn that although you may have done great with the 6, the 7th or 8th treatment can be extremely dangerous. I think I've…
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Had my 7th chemo!
Hi everyone. Well, I just wanted to let you know that the doctor went ahead with the 7th, plus they gave me a shot of Aranesp (spelling). They said the shot would cause bone pain & flu-like symptoms. But, I found out more about the marker numbers. I asked why the numbers were just dropping 7 points now. He said they look…
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New CA-125 number
Hi everyone. I couldn't wait until tomorrow, so I called my nurse and found out that my CA-125 dropped 7 points after chemo #6, and is now 25. I hope my blood count is up enough to get to have chemo #7 tomorrow. Two years ago, after six chemos, my CA-125 was at 18. Do you guys think the next two will just drop it a couple…
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MRI update
Goodmorning everyone, I received the MRI report in the mail. It said as far as the headache it was good, but that it showed I had small vessel ischemic disease of the white matter. Always something going on, we deal with the cancer ongoing that we forget sometimes about the rest of our bodies. I almost finished with the…
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Hi! Need some advice
I've been dealing with Stage 4 ovarian cancer since 2000, on & off chemo and reoccurrence in 2002 with mass on my spleen. Now I have CA 125 of over 23000 with newly diagnosed liver mets and mass on my spleen has grown to 5.8 cm per recent Pet Scan done last week. I need advice on ablation/chemo etc. They tell me surg is…
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Strong Bladder Urges
Hello to anyone...have any of you had to deal with the extra strong urge to void that it is almost painful? The kind where you leak a little because you just can't stop the urge because it is so strong and painful? Has anyone taken anything to help relieve it? My Mom has stronger and stronger urges but one doctor has told…
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New To The Group
Hello..just found this board. My Mom was diagnosed last year with ovarian cancer.First some background. It started with a seizure. No cause. Then her leg gave out. No cause.Then a blood clot in her leg. The hospital gave her coumadin which caused a bleed and landed her in intensive care. They installed a Greenfield filter…
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Thank U All
I am new to this board and am so glad I found all of you. I took some time to read postings from 1-61 pages. I was able to follow some of your stories. I don't believe in coincidents anymore....I believe God has his hands in everything. Whether you are in long remission or just beginning the journey, your stories are an…
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Helping survivors to feel useful
My elderly mother is fighting stage 4 ovarian cancer. She cannot get around except for use of a wheelchair. She'd like to feel useful by doing something but I'm at a loss as to what this could be. Does anyone have ideas?
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I have a questions ??
there is a man that cures cancer, he is on an island somewhere, if anyone knows anything about this please let me now or if you know anything that would help her..
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CA-125 Count
Ok I need your thoughts, because I don't go back to the doctor until Monday. He sent me today for a cat scan papers said Left pelvic mass, got my CA-125 from yesterday and it is now 143.5. it was 104 in May. I'm tired I need prayer... Say a prayer for my family. My husband said today when he saw what the doctor wrote it…
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Ovarian cancer reoccurence
I was diagnosed with stage 3c ovarian cancer in August 2005. I had extensive debulking and had 6 rounds of carboplatin and taxol. My Ca125 went to 14 after 2 treatments and 6 after the 4th treatment. In April my ca125 was 9 in May it was 64. I got into a clinical trial. I was on the drug for a month and my ca125 went up to…
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CA125 still 18
Hi everyone, My tumor markers are staying low on the cytoxin/avastin treatments, we are pleased with the results. I am still having severe headaches and now going to see some other Drs to try and find out why. My bloodpressure has come down from the 100mg of Toprol a day that I take. Not as low they'd like it but great…
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GONADAL BLOOD CLOT
Anyone have experience with this? I was informed the other day that I have a blood clot in the vein that used to supply the ovary. It was clamped off in a surgery I had 6 1/2 years ago when I had a total hysterectomy. The doctor is puzzled as to why it has occurred at this point in time, as it is more likely to occur…
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gemzar/cisplatin
I am currently on gemzar/cistplatin for a recurrence within 6 months of initial treatment of carbo/taxol. Initial treatment went very well with ca-125 normalization (14) after 2 treatments. It was 6 after the fourth treatment and stayed in the single digits until 4 months after treatment. I am currently on the above…
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Ovarian Tumor
Thank you for reading my message. I was told on Thursday that I have a 12.3 x 9.9 cm tumor/cyst/who knows on my left ovary which was diagnosed by ultrasound. It was originally discovered because it blocked my Dr. from doing a routine pap smear. I am 49 and am ashamed to say I had not been to a Dr. since 1998. CA-125 was…