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high grade cancer, but does not show well on CT

kimberly sue 63
kimberly sue 63 CSN Member Posts: 421 Member
in Ovarian Cancer #1

Hi everyone, I have not been on for a while. I scanned the posts and there are so many new names.  I am on my 3rd recurrence. I have found that my cancer even though I am having symptoms and unstable CT it is not appering on my CT scan. I think this has always been the truth because I have had two surgeries and both times my surgeon was surprised on how much disease I had compared to the preoperative scans. Has anyone else had similar issues? Because my disease is not measurable, it makes me unqulified for most clinical trials. Kim

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