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Update Terry Ca-125 Is 28,000
Well I got back from my vacation last Sunday with having to have 5 ¼ liters of ascites drained. Prior to vacation I had 18 treatments of radiation for a tumor on my vaginal cuff. My pet/ct scan was cancelled and I started chemo Thursday, topotecan/avastin. They couldn’t access my port, I had a scan and it’s cracked. I need…
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Update for Carlene/Hissyfitz?
Hi, I have been looking everyday to see if there has been an update posted by/for Carlene, (it is crazy trying to figure out the discussions now). Does anyone know how she is? Thanks so much. Hoping and praying for good news. Michelle
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Just a Hello to all!
Hello everyone! I have not been on in awhile.. was internet 'challenged' for a bit(aka...I have been broke!! lol). But I wanted to stop in & say hi & hope everyone is doing or coping well. This is such a lonely war we have to fight,,,it really helps to have ppl to share with that know EXACTLY whats happening! I will begin…
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Further treatment after hysterectomy?
Hello, this is my first post here! Within the past two weeks I saw a surgeon for suddenly worsened pain for what I thought was a hernia I'd had for over a year, had a CT scan, and learned that it was not a hernia but a large pelvic mass. Two days later I saw a GYN oncologist who said that it was a fibroid, ovarian though…
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Board
What happened to our board? Did I miss something?? Thanks, Libby
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gemzar/cisplatin Ladies
Hi Ladies, Just checking in to see how we are all feeling??? I have had more headaches, tiredness, fatigue than carbo/taxal treatment. Do not seem to recuperate as well. Maybe because having treatment every 2 weeks instead of 4 weeks? Had chemo Monday, 14th with Procrit shot before I left, had Neulasta next day and still…
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Stagubg
On Oct 1, 2009, I underwent a full, abdominal hysterectomy as a result of severe endometriosis. There was no reason to suspect cancer being present so it was quite a surprise when cells were found by the pathologist. I was notified on Oct 8 of the path report and am just wondering what happens now. We meet with the gyn…
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Update on Joanne Prayers Needed
Hi, I also belong to the John Hopkins Ovarian site and this was a posting about our sweet Joanne today that I thought I would share with all our OVCA sisters, it is from her sister. Dear (((((Friends))))))) I just want to update you on Joanne. (floridajo) Joanne's blood pressure is very low and she is on medication to keep…
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Diferent subeject but would love your opinion
Hi Ladies, I¡m 3e weeks away from delivering my baby girl and I must decide between 2 names, both are french since our last name is french also (Quesnel. Please let me know your opinion on which one is nicer, sounds better with my last name, and is best pronounced in the USA. Amélie Anaïs Thank you, Liz
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Ovarian Cancer?
Hi, I am here trying to glean as much information as I can. I went to the Dr. on the 9th for a well women's check, which didn't go so well after all. Everything since then has been moving along so quickly, I figure it has something to do with the 'C' word being used in the radiologists report. I have had so many symptoms…
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Mom has a question for my "New Lady Friends" about chemo
I spoke to her this am. It's been about 72 hours post first treatment and she's spending the day in bed. Up until now, no serious side effects (chemo brain as she calls it, swollen ankles, and fatigue). Today she says it hurts and is taking her extra strength tylenol. She relays that it hurts mostly at the spots where the…
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Newly diagnosed (stage 1A)
I found this discussion forum yesterday and thought I'd join up and say hello to everyone. I'm 44 years old, engaged, and live in Michigan. At this point, I've had surgery to remove a very large tumor, two lymph nodes, the omentum, plus a full hysterectomy. At this point, my doctors say I don't need any further treatment,…
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CA-125
Well, now my CA-125 is up. My oncologist says we will recheck on the 30th for my last low dose Taxol and confer with the Dallas head of department that did my surgery in October. It was 29 after being under 10 since last November. The odd thing that I want to question the older timers is that the report from the Dallas lab…
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MichaelaMarie Are You Back Yet?
Haven't heard from you yet on how your surgery went. Thinking of you and keeping you in my prayers. Let us know how you are doing! Your friend! Jami
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Waiting for dx
Let me just start by saying I'm very glad to have found this discussion board! I don't have a diagnosis yet...I go for an abdominal and pelvic ct scan w/contrast this afternoon and basic bloodwork. I have a surgery scheduled for august 12th to remove my right ovary and biopsy it. Here's my story: I have been sick for over…
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Sepsis due to port irrigation
Have any of you experienced this? I have been cancer free since January and all was going along well. My gyno/oncol leaves the ports in unless there is a reason to remove it. I had my port flushed during a routine visit and three hours later, I was very ill. I was taken to the emergency room and then admitted to the…
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Has anyone experienced severe vomiting after Doxil treatment? Please help
My mom just started doxil last week and she has severe and consistent vomiting (including bile) 5 days after the treatment since then. She is now hospitalized and has not eaten for the last 4 days. Please share if anyone had this problem with Doxil.
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Had a good day
Hello everyone, I had a good day yesterday! My second chemo, four more to go. I feel pretty good. My CA-125 number was 7, down from 1500 before surgery. I also found a cute wig that doesn't scratch my head. I could have done the Snoopy Happy Dance! I hope all of us have many days like this, that make us happy!!!!!!! God…
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CA-125 Good/Bad
Hi, I've had surgery and had 8 treatments of carbo/taxol and now onto my 5th treatment of Doxil with no break in between. My CA-125 levels came back 40,34,35 and(after my last chemo treatment) at 34, which I understood to be acceptable, but after reading a lot of the messages on this board showing women with lower levels,…
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H Pylori
Hi Ladies, I saw my internist today, he gave me a thorough examination, asked lots of questions, looked at my July CT scan report, and my blood work from last week. He said my severe pain, n/v and sweats from Monday are not related to passing a stone or gall bladder disease, or my 2 hernias. He said he feels that I have H…
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Looking for my Gemzar Cisplatin Buddies
Was in touch with Saundra, Libby, Bonnie Carol, Michaela Marie, and many others as we were all on the same regiment about the same time. Have kind of lost touch over the last few weeks as I have been feeeling lousy. Had Carboplatin and Taxol before and breezed through those. This chemo is brutal on the stomach. Anyway, it…
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Only 5 radiation treatments and a great deal of pain...
I began radiation treatments last Monday and have only had 5 treatments so far and the pain is incredible. Has anyone else had this kind of experience? Now in addition to the large amount of pain I began with before the radiation treatments I have a lot of additional pain all the way around my body in the areas that they…
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question for BonnieR
Bonnie I was on here last October and there was a girl with the a picture where she is bald and had her hand up like she was holding something above her head with a great big smile. Do you know who I am talking about? I can't find any posts here from her and she really helped me with her very positive attitude and do you…
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a few questions
Good morning ladies, First let me wish all the Dads and husbands a very Happy Father's Day. You are the rocks who support us, and do so much as our caregivers and we really appreciate you, although this cancer makes us a bit loopy (or feisty) at times. My questions are, and I apologize if we've covered them already. Monday…
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Ovarian Cancer - Comfort Care - Anyone have insight what to expect?
I was first diagnosed with stage 3C Ovarian cancer in May 2005. I have been on and off Chemo from that first diadnosis. Nothing has worked and I was placed on Comfort Care in July. I just wanted to know if anyone else is on Comfort Care?
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I'm a newbee in need of support
Hello, My name is Barbara and I was diagnosed with Stage 4 B Peritoneal/ Ovarian cancer last year. I had surgery and a grocery list was removed from me, but Praise God it was not in any of my lymph nodes or vital organs. I went under chemo for 6 treatments and was clear for 7 months. In september my numbers began climbing…
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Increased Anxiety from chemo?
Hi everyone, I seem to have increased Anxiety and some depression. I just had my 2nd chemo treatment on Tuesday of last week. This does not feel normal to me so I wanted to get an opinion from someone or all of you. Thanks so much Sheila
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21 year old with ovarian cancer
My name is Lyndsie and I am new to this site. I don't know if I am even doing this right. I just recently had my 2nd surgery for ovarian cancer. The first time I didn't have to have chemo. But this time my doctor is saying he wants to do treatment. I go back April 16th to meet with him to talk about treatment. I am scared…
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Pulled myself together and finished my profile
I have so enjoyed seeing other people's photos and reading their stories (what a bunch of amazing ladies you all are!), so I decided to stop whining long enough to introduce myself a little more.
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2nd Recurrence in Isolated Lymph nodes(coeliac region) in Clear cell Ovarian cancer
My mom under went total hysterectomy with partial omentectomy in March 2006. When her CA 125 was 46.8. Biopsy 1 Biopsy report revelaed 'CLEAR CELL' carcinoma of left ovary along with cervex. Chemo: Received 6 cycles of Cisplatin(300)+Taxol (60) upto September 2006. CA 125 showed gradual decrease and remained stable from…