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NEW RESEARCH RESULTS: Trabectedin Plus Doxil in Relapsed Ovarian Cancer
These research posts are technical and hard to understand, but I post them because they do suggest options worth mentioning to your oncologists. Translation of some of the abbreviations they use in cancer research: OS = overall survival PFS = progression free survival (either on or off treatment, not necessarily remission)…
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Still nervous, but have some positive news
My mom was diagnosed with Stage III/IV Ovarian Cancer on May 4th. The reason its split, is because there were signs pointing to both...Anyway when she was first diagnosed she had a CA549 now it is CA129. I'm not exactly sure what that means, but I hear it's good. Life has pretty much been going on normal since she has…
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To all my friends... fr.Barbara Strange
Hello, ladies. I'm back. I'm sorry I have been absent so long, but I started work again last year and I had trouble getting back in the groove. My Ca-15 is at 26 so I am getting chemo every 3 weeks. I was taken off in Feb, but it started creeping up so my Dr. started me back when it got to 34. She says when it drops down…
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Very sad news
Hi , I would like to thank you all for your kinds words and information. As you know my mum was admitted to hospital on 26th June because of breathing difficulties and two weeks after that she was diagnoised with ovarian cancer, its with a broken heart to say that my mum passed away 30th July. She was an amazinly strong…
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New to the group and cancer
Hi everyone, Im new to the group and found out today that I have Ovarian cancer, and I go to the OB/GYN onocologist on Monday 7/26. I had a Pap smaer, ultrasound, chest x-ray, and contrast ct. My chest x-ray was clear, the CT showed mass 9.6cm High, 8.6 cm wide, and 4.3 cm deep. Ca 125 came in at 125 lab says 0-20 is…
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rising ca125
Hi, I just got the news that my ca125 has doubled since the last one and I am very scared, frustrated etc!! I have been going through my 2nd battle for 8 months now and dont know what is going on or what will happen next until I see my doctor next month I guess. I hope for the best and just want to be NED again! hugs to all
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Clinical Trial
Hi I have just been told that I have several small nodules that require further treatment - too small for surgery - and my oncologist has given me information about a trial with Carbo/taxane with weekly farletuzumab (MORab). I would like to know if anyone else on this board has heard/had this treatment. My CA125 is within…
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?
So, I know I'll regret this posting tomorrow when I wake up and feel better but... my CA125 is 14 and my CTscan is clear.....so..... Why can't I stop crying tonight? Thank you for at least reading this. I'm sure I'll be totally embarrassed tomorrow that I posted this, but I knew that you guys would "get it" even though my…
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Support Connection, Inc
Support Connection Inc. is a not-for-profit organization offering free and confidential support services to people affected by ovarian and breast cancer. Once a month, Support Connection offers an ongoing free telephone support group for women living with ovarian cancer. Like all of our support groups, it is facilitated by…
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Primary peritoneal cancer vs. ovarian cancer
I am confused and frustrated with where to find information about primary peritoneal cancer. My mother was been diagnosed with stage 4 peritoneal cancer in Feb. of this year. When her onocologist talks to her he refers to her cancer as peritoneal cancer, while others refer to it as ovarian cancer. I read they are…
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New Caregiver
My dear wife of 28 years was diagnosed with stage IV ovarian cancer in March of this year. Her stomach was extremely distended due to the ascites. This was the first clue she was sick. She is 53 years old and a mother of three adult children. Oncologist surgeon decided to go with three initial rounds of chemo…
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Just wondering and scared, what next ?
All of you woman are so very strong and couragious, I read what you say and how you support one another and you are all amazing. I went to my GYN/onocologist on Monday 7/26 my sugery is scheduled for 8/24 to remove the volleyball size pelvic mass via a hystorectomy, (SP?) my chest x-ray clear, my ct didnt show "Much" (I…
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Fungus
Good Morning!! Seriously looking into Fungus as my next research topic! Will let you know what I find. Already very interesting. Living for Eternity, Libby Did I not see somewhere that one of us was on an antifungal medication or am I losing it??
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UPDATES ON BONNIE
I may not be able to submit Bonnie's Caring Bridge here everyday, so to make it easier for all of you, just go to 'caringbridge.com'. Click on 'visit', and in the address bar put in 'brlemke'. Hope this helps. I'm watching it daily, too. Yesterday's post was encouraging. Dearest Bonnie: Sending prayers and hugs for…
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Good News!
According to my CT scan, while I am in fact, full of sh*t, I am no longer full of cancer! In fact, there is No Evidence of Disease at all! Therefore, I have booked the band and filled my dance card with NED for the next few decades! For the new comers to this board, I was diagnosed with Epithelial Ovarian Cancer at Stage…
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TAMOXIFEN
Hi.....I am new to this. I was diagnosed with stage 3C OC in Jan. I had surgery a total hysterectomy, cancer debulking and omentum removed. There was a tumor that was wrapped around my bile and the surgeon was unable to remove because of the damage that could occur if my liver was nicked,so it was left. I had 5 rounds of…
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Distended abdomen
Hi Everyone, My Mom was diagnosed June 18th with ovarian cancer. I had my annual physical July 15th and told my doctor about my mom. I have been feeling a little bit of discomfort on my left hand side of my abdomen so she sent me for a pelvic and abdomonal ultrasound as well as a transvaginal ultrasound. Well the doctor…
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I was a bad girl.
Hi everyone. I thought I would just share this with all of you. I had a chemo treatment and I wanted to go swimming two days later. I had called my nurse and was waiting for her phone call. I knew she was busy so I thought... What the heck. I put on my swimming suit. Well I had bought this huge blow up slide that has water…
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Neuropathy
I know this topic has been discussed many times but I wondered if anyone knew of anything besides Neurontin for treating neuropathy? I have been suffering with it in my hands and feet since November and it isn't getting any better. Also, my last CT scan in June showed a few lesions in the pelvic and abdominal area which…
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My husband is....
Sad, because by Halloween I'll have hair and he can't dress me up as: **Uncle Fester with a light bulb in my mouth **Dr. Evil from Austin Powers (although he still makes me say One MILLion Dollars!) He even sugggested shaving one of our cats for this one!!! **Yul Brynner in the King and I **Kojak **Yoda **Mr. Clean ** The…
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immune system
I need some advice on how to improve the immune system. My daugher,Angela,had a good portion of her insides taken out, including her spleen. Iook 60 staples to put her back together. We need advice, Please!
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YEA!!!!!
I saw my gyn/onc today. My CA-125 is at 21 and my CT scan was clear! I'm THRILLED!! He's gonna check me every 2 mos, then do another CT scan in January. I actually left the office crying today because I was happy...what a switch! Dr. said we will have a boring 5 yrs ahead of us. I am truly blessed. I know there's a…
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bummer
Here I was kicking and screaming about not being able to get Carbo anymore due to an allergic reaction and I find out my ca125 only dropped one point after my second infusion. BUMMER. I was hoping it would have made more of an impact than that. It had dropped 8 points after my first infusion. I just completed my first…
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Lindas' Passing Knocked the Wind Out of Me./Counseling Session Brought Me Back
Hi everyone, After my dear friend Linda Dorian passed, I just stopped thinking for a while about anything. The last time I spoke with her, I was happy to hear she was back home. Us having our early morning a.m. chats with each other because of the steriods in our meds... But afterwards; I had to take a break from…
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Naps
I am sure some of you already know this but I have found that all though I am in remission, nothing feels better than a small nap during the day. Friends that have not been through it don't understand. They say I look just like I did,(except the long scar on my stomach) and can't understand why I still get run down. Does…
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Birthday
Today is my birthday. It is my second birthday since dx with cancer. Everyday is special but today I will sing and dance like no other. I am NED for this birthday and I am starting to feel alive again. Elaine
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vactioning while undergoing treatment
I know I brought up this topic before. I am planning another vacation cruise to Bahamas from NYC next month. Again, I am fearful I may get 'sick' while out at sea. How many people have took a vacation while they were actively undergoing treatment? Thanks for any input.
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I'm grouchy......
I don't know if it's just my advancing age, or the risiaual aftermath of chemo, or the side effects of the Taxol maintenance, or maybe just the stress of the whole cancer experience, but I find that I have zero tolerance for almost anyone. My entire family gets on my nerves, it seems. I have never been a door-slammer, but…
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Angela's cancer is finely fiqured out. Undifferentiated ovaial cancer 3c.
Anyone here with anything like that?
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new article on IMAGING for Primary Peritoneal Cancer & recurrences in the peritoneal cavity
I copied the whole LONG article (37 pages) for any of the Teal Warriors with Primary Peritoneal Cancer because I thought it made such a good argument for PET/CT scanning for this subset and because it explained so completely what this recurrence site is. Email me if you want the whole article: lindapro@ptd.net Here's the…