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My husband is....
Sad, because by Halloween I'll have hair and he can't dress me up as: **Uncle Fester with a light bulb in my mouth **Dr. Evil from Austin Powers (although he still makes me say One MILLion Dollars!) He even sugggested shaving one of our cats for this one!!! **Yul Brynner in the King and I **Kojak **Yoda **Mr. Clean ** The…
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immune system
I need some advice on how to improve the immune system. My daugher,Angela,had a good portion of her insides taken out, including her spleen. Iook 60 staples to put her back together. We need advice, Please!
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YEA!!!!!
I saw my gyn/onc today. My CA-125 is at 21 and my CT scan was clear! I'm THRILLED!! He's gonna check me every 2 mos, then do another CT scan in January. I actually left the office crying today because I was happy...what a switch! Dr. said we will have a boring 5 yrs ahead of us. I am truly blessed. I know there's a…
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bummer
Here I was kicking and screaming about not being able to get Carbo anymore due to an allergic reaction and I find out my ca125 only dropped one point after my second infusion. BUMMER. I was hoping it would have made more of an impact than that. It had dropped 8 points after my first infusion. I just completed my first…
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Lindas' Passing Knocked the Wind Out of Me./Counseling Session Brought Me Back
Hi everyone, After my dear friend Linda Dorian passed, I just stopped thinking for a while about anything. The last time I spoke with her, I was happy to hear she was back home. Us having our early morning a.m. chats with each other because of the steriods in our meds... But afterwards; I had to take a break from…
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Naps
I am sure some of you already know this but I have found that all though I am in remission, nothing feels better than a small nap during the day. Friends that have not been through it don't understand. They say I look just like I did,(except the long scar on my stomach) and can't understand why I still get run down. Does…
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Birthday
Today is my birthday. It is my second birthday since dx with cancer. Everyday is special but today I will sing and dance like no other. I am NED for this birthday and I am starting to feel alive again. Elaine
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vactioning while undergoing treatment
I know I brought up this topic before. I am planning another vacation cruise to Bahamas from NYC next month. Again, I am fearful I may get 'sick' while out at sea. How many people have took a vacation while they were actively undergoing treatment? Thanks for any input.
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I'm grouchy......
I don't know if it's just my advancing age, or the risiaual aftermath of chemo, or the side effects of the Taxol maintenance, or maybe just the stress of the whole cancer experience, but I find that I have zero tolerance for almost anyone. My entire family gets on my nerves, it seems. I have never been a door-slammer, but…
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Angela's cancer is finely fiqured out. Undifferentiated ovaial cancer 3c.
Anyone here with anything like that?
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new article on IMAGING for Primary Peritoneal Cancer & recurrences in the peritoneal cavity
I copied the whole LONG article (37 pages) for any of the Teal Warriors with Primary Peritoneal Cancer because I thought it made such a good argument for PET/CT scanning for this subset and because it explained so completely what this recurrence site is. Email me if you want the whole article: lindapro@ptd.net Here's the…
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Trial began today
Premeds in port(benedryl - almost put me to sleep, decadron - gives me a stuffy nose for about 1/2 hour!, and pecid) went fine. First time for pepcid. Chemo went well, granddaughter (4 1/2) came in for a couple minutes (nice to be close to our daughter for treatments now)and asked why I was getting blood - first time for…
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Question about speed of Recurrance..
My mother's cancer seems to have reappeared at a very swift rate..from week to week, there are a few more spots....has anyone else had this? When I have read these posts, it seems that most recurrances have been one spot here and there....so of course, I am seeing the worst....Also, has anyone had good luck with the Doxil,…
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The emotional side of cancer when going thru treatment.
My 66 yr old Mom was diagnosed June 18th. I am still so angry. She went to her family doctor 4 times with complaints about how she was feeling, even told him she thought she had cancer. He told her she didn't and her bloating was caused by a new medication she was taking for depression. Her CA 125 count when finally…
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Upset over Ca125 numbers
Just went for my 7th doxil treatment and had asked about my CA125. He doesn't offer to tell me unless I ask. I think he doesn't want me dwelling on it. My number was 28 and now it is 30. He says it is in the normal range. The lab I go to has a higher normal range. I think it goes to 34. But this still worries me. I will be…
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ca over 7000
Hi, I am just writing because my mum has cancer , we have just found out and our world has fell apart , her ca 125 is just over 7000, we do not know what is round the corner , to me 7000 is so high that Im so scared of loosing my mum. xxxxx
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Questions about CA 125 vs. C ATSCAN
Hi, I hope you can help me with this question. I've been on several different chemos and now I am on cytoxan and avastin. My numbers went up from 39 to 63 but, my catscan showed everything was stable. My dr. told me not to worry - as CA 125 is not that reliable. Has anyone gone through this. I feel great, just tired.…
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undifferentiatiated cancer ,any survivers out there.
My daughter has cancer of the uterius 3c, undifferentiated. Any survivers out there? I desparetly need to hear from you. Linda
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Long-term Avastin use helps keep ovarian cancer in check
Long-term therapy with the blockbuster drug Avastin — already used to treat breast, lung and colorectal cancers — also appears to help women with advanced ovarian tumors, a new study shows. In a study presented Sunday at the American Society of Clinical Oncology, researchers compared the results of giving women standard…
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single agent carbo side effects?
My 79-year old mother's recent PT showed lesions in her chest wall, so the treatment plan has changed to single agent carbo given once every three weeks via port infusion. Mom was given a Gemzar option but declined based on quality of life issues. Without the taxol, I'm thinking that the side effects might not be so bad…
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Avastin - new data
I am wondering if anyone on Avastin currently had any change in their regimen due to the newly released information. For anyone who doesn't know: WASHINGTON — U.S. government health advisers say unanimously that a follow-up study of the Roche drug Avastin failed to show meaningful benefits for breast cancer patients. A…
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Still Hanging Around Here
Good Morning Everyone, Just wanted to tell everyone that just because I am okay right now, does not mean that I am not still reading the posts and praying for everyone. I have been NED for almost 14 monthes. DX'ed May of 2009. Stage 2B. I hate it when everyone goes away just because they are okay right now. I, we, need to…
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Just wanted to share
Hi,Ladies. I just wanted to share with you something I have done to promote awareness for this dreaded disease. I recently ordered 200, individually wrapped, teal silicone bracelets (the company was offering 100 free bracelets for every 100 ordered). Each bracelet has the words, "Ovarian/PPC Awareness" on it. In addition,…
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Question and some hopeful news
My mother (being treated with Carbo/Taxol) has been brusing easily and today they did a blood and platelet transfusion to address this problem. Is this common? I'm also sharing an article about some new research on OC treatment (link to article at bottom) that someone passed to me. TGen finds protein inhibitor revives…
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Newly diagnosed
Hey everyone! I am 49, just found out July 2nd that I have stage III ovarian cancer, clear cell. Waiting to hear what grade it is - so new to all this - wasn't a question I even knew to ask! I had a softball size cystic mass on my ovary that had leaked fluid into my abdomen. I had a total hysterectomy on July 6th. Our only…
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newest on Angela
Angeal is still in the hospital ( will be two weeks tomorrow) , but may be going home this afternoon. The cancer is of the uterius, but is undifferentiated ( the most agressive and fastest spreading) Mary is back in the hospital two doors down and is not doing well. Is there any suvivers out there that had undifferentiated…
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God's Perspective
One of our "older and seasoned" ladies of my Thursday Bible study sent this to me and I wanted to share it with each of you. The Power for Living today had a heart touching story of the worship pastor, Lyndon Plett, whose mother was murdered when he was only five. His father & step mother were killed in an accident when he…
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Just found out Sister has cancer........
Well, just found out my little sister Cindy(she's 30) has cancer....We fell out 2 months ago over some family issues and now I'm looking back to the fight and just feel so disgusted with myself. She was in pain then and didn't tell anyone. She was hurting and kept it to herself. She needed us, needed our support and I was…
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UPDATE ON BONNIE
I hope Bonnie doesn't mind, but some of you may not access Caring Bridge. This was an update from this morning by Bonnie's daugther Michelle. 'Talked to mom this morning. They are scheduling her for a CT scan this morning to get a better look at everything. Yesterday they had talked about sending her home today on pain…
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Funny t shirts
chemochick.com has some cute Tshirts. "I'm too sexy for my hair", "I'm having a no hair day" Breast cancer has cool shirts like "save the ta tas". I saw one for ovarian that says "ovaries are for losers" HA! I don't like that at all. Gotta come up with a better slogan.