Question for Clamryn (Linda)

antcat
antcat Member Posts: 270
in Ovarian Cancer #1
Hi Linda, thanks for responding to my question about blood pressure medicine and Avastin. I'm really happy to hear that you're doing so well on Avastin. How fast did the Avastin start to work on you? I started on it end of Dec. 2010 along with Cytoxan and in March, there was still some tumor increases. So, the doc took me off of Cytoxan and put me on Avastin and Topotecan. I'm going for another CT scan the end of this month to see what's what.

I was wondering though, are you on any type of a blood thinner? If you are, what are you on. Any information you can give me will be most appreciated.

Thanks.

Comments

  • clamryn
    clamryn Member Posts: 508
    #2
    Hello
    Hello,
    I wanted to let you know that I am only on Avastin. No chemo agent is being taken with it. I was suppose to take Gemzar with the Avastin but the insurance company didn't approve and my doctor then went with Avastin alone. Everything I had read said that the Avastin works better with a chemo agent. So when I went for my PET/Scan, I really wasn't expecting too much. I about fell off the chair when the doctor told me it was killing the cancer cells. I had 4 treatments (every 3 weeks) and then I had went for my PET/Scan.

    Yes, I am on a blood thinner. Prescription was for coumidin (1mg) but I am taking the generic warafin (1mg). The reason I was put on the blood thinner was because I have a power port.

    I will be watching for your post to see how you did on your CTScan at the end of the month. I sure hope and pray it is working for you.

    Sending hugs and prayers to you.
    Linda
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #3
    clamryn said:

    Hello
    Hello,
    I wanted to let you know that I am only on Avastin. No chemo agent is being taken with it. I was suppose to take Gemzar with the Avastin but the insurance company didn't approve and my doctor then went with Avastin alone. Everything I had read said that the Avastin works better with a chemo agent. So when I went for my PET/Scan, I really wasn't expecting too much. I about fell off the chair when the doctor told me it was killing the cancer cells. I had 4 treatments (every 3 weeks) and then I had went for my PET/Scan.

    Yes, I am on a blood thinner. Prescription was for coumidin (1mg) but I am taking the generic warafin (1mg). The reason I was put on the blood thinner was because I have a power port.

    I will be watching for your post to see how you did on your CTScan at the end of the month. I sure hope and pray it is working for you.

    Sending hugs and prayers to you.
    Linda

    No coumadin for me
    Linda: I have a PowerPort, too, but I'm not taking any warfarin. Interesting difference of opinion between doctors. Unless there is more to the story.

    Your dose seems very low. I am wondering if you go in for blood tests on a regular basis to check how thin your blood is and were told to avoid eating green leafy veggies. Or maybe your dose is so low, there is no worry about being overdosed.

    thanks,

    LQ
  • clamryn
    clamryn Member Posts: 508
    #4
    LaundryQueen said:

    No coumadin for me
    Linda: I have a PowerPort, too, but I'm not taking any warfarin. Interesting difference of opinion between doctors. Unless there is more to the story.

    Your dose seems very low. I am wondering if you go in for blood tests on a regular basis to check how thin your blood is and were told to avoid eating green leafy veggies. Or maybe your dose is so low, there is no worry about being overdosed.

    thanks,

    LQ

    blood thinner
    LQ,
    You are correct. Due to taking such a low dosage, I do not get my blood checked. The only thing he told me was that because of the port he didn't want me to get a blood clot.

    Linda

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