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good news kinda
hi everyone i have'nt really been posting much for a while but i am glad for everyones good reports, i have felt really have'nt felt well for a couple of months, i was worried where i am on watch and wait the cancer was getting worse i finally went to thr er and found it is pneumoni they kept me a couple of nights and gave…
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Round 2 as a caregiver....yikes!!!
Three weeks ago my husband went to the doctor for chest pains. He was sent in for x-rays and then a CT. Large mass in his chest 9cm x 9cm x 9cms. Had a biopsy 3 days ago we just got the call that it is a large cell lymphoma. He has an appointment on 10/31 with the oncologist. This is surreal to me I lost my 40 yr old…
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side afects from prednisone?
just read about prednisone and this med has terrible side affects. has anyone been treated without this med with a good outcome. seems like it is used quite often.
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I cannot process anymore, can you help me
Hi All, It seems like the only thing I talk about with you all is the emotional and difficult part of my life lately. I have debated all weekend about sharing more sadness with you. I am so ready for some happy in my life. My family seems to not want to talk or be supportive. They really just don't get what life with…
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going in again
Well it's back and they are going in again as soon as they get the other two surgeons on board, not sure why but I'm very anxious about going in this time, not sure if it because if the fact how much time we lose when we are recovering and the holidays are near and its my fav time to get to do for my family and friends or…
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In a Funk
Hello all, I haven't posted in awhile as things have been going really well for me and I was sort of trying to avoid cancer haha! However the past week or so I have really been stuck in a funk that I can't seem to pull myself out of. I'm sure a lot of it can be attributed to the steroids I have to get every other day but…
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Decadron Side Effects
Hello, Has anyone had any major irritability or anger issues while on Decadron? My partner has gone through 5 cycles of ABVD with one more to go (for Stage 2A Hodgkins). He gets decadron as a pre-med infusion before each chemo. He was also taking decadron orally for a couple days after chemo, but stopped (with his onc's…
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does r chop cure skin rash caused by nhl
My dad was recently diagnosed with diffuse large b cell lymphoma stage 4. He is only 57 years old. I am devastated. His brother(59) just passed away from bladder cancer in May 2011. My dad's first symptoms were anemia. The anemia has gotten much better. He has had two r chop treatments. His reactions to the chemo are…
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HI
Hi I am new to this and still feel new to diagnosis. I was diagnosed in June after being sick for the month of May. I had a weird rash on my arms and what I thought was an upper respiratory infection. My kids have their own Dr and when I get sick I just went to a Dr's Care.After hearing a lady brag about this Dr. I decided…
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Happy Birthday Sue!
Dearest Sue, This night owl wanted to be the first to wish you a very wonderful and happy birthday. Wishing you many joys, large and small. Happiness today and always. Enjoy Enjoy Enjoy Continued good health and negative scans. Happy Birthday Love, Lisha
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Spiffy new port
Hey all, First off, thank you for all the support! Even as the first days go by, hour by hour, things are getting easier. Friday morning I had my port-a-cath installed. My "conscious sedation" was not so conscious. I think I was awake when they made the first incision, but one long blink later and the doctors were cleaning…
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Bone Marrow Transplants and low immunity
Have long term survivors especially had issues with reduced immunity and if so what were your symptoms? Just wondering. Thanks. Blessings, Bluerose
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Got stabbed today
Doc walked in the room saying Complete Remission! I love those words :) Then the nurse stabbed me with a flu shot. My arm is killing me :) I am headed back to work tomorrow, wish me good luck! Take care, Beth
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Exercise
I looking for execrise while on R-CHOP, especially day 1 and day 2 of treatments. I do know to stay out of the sun. Swming is what I prefer. Richard
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Experiencing Changes (I am back!)
Hi dear everybody, When I started going back to work, I had been treading waters big time. I found myself having to channel my energy - just to live by working, eating and visiting family. My father is grieving a lot due to losing his wife of 40 years so I have been watching him. I found myself just wanting not to think of…
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Happy Last Chemo to Me!
Thanks everyone for being there. At least I have this leg of the journey complete. Can't exactly "party" right now so I thought I'd share a couple things I dug up on the web. Hope they will make you smile :) 1) MY CELEBRATION:(I couldn't say this better with any words) "Last Chemo Happy Dance/Wiggle?" I just like it.…
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Two experts, two different recommendations: What do I do next?
Hi Folks, Here is a good one for the collective wisdom of this fine assemblage of unwilling subject matter experts. Please read the entire message; and it is bulky, like my disease. I finished 6 rounds of R-FND this past August. Before that I underwent 3 rounds of R-CVP that produced minimal results. Eight months and 9…
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Gaseous smell?
I finished my chemo treatment (R-EPOCH)on May 13. For quite some time certain foods tasted quite funny - eggs, some meats, popcorn). I've noticed that has started to go away, but now I constantly smell a gaseous scent. It is the same smell that you typically notice in your garage if the door has been closed for a while.…
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Thank you God
I feel totally blessed today. My scan was great and no activity. My husband and I went out to dinner and I drank 2 rasbrry martinis. I don't drink really but they were wonderful.. I thought I would dance on the table after the first drink but I ate lots of bread. Thank you for all my well wishes. I feel like a new…
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PET scan
Hi It's been a year since my last PET scan. It's Wed. with results this Thursday. My mind is imaging all sorts of things. I am pretty upbeat but I am becoming anxious. I hate feeling that way. I am not ready to be sick again. I love feeling good and being normal. Sorry I am rambling. Joanie
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Second opinion
Hello ladies and gentlemen; Well wanted to keep you guys posted on the following, went to the doc, and got my second opinion over the phone lol...at first my doc was surprised that my onc wanted to watch and wait but she got on the phone really quick started talking to some of her colleagues that specialize in all types of…
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HTLV and Lyphona
I have a friend her mom had a type of leukemia caused by HTLV. How any of you heard that this virus causes T-Cell Lymphona? Thank you...
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NHL and HIV
Hello everybody; My name is Liz, I'm 35 a mother of three kids and a wife, I was recently diagnosed with NHL after 20yrs. of being HIV+...My Doc told me to watch and wait to see what my lymphoma does since it is affecting my spleen...he wants to wait since starting chemo can make me weaker and put me more at risks for more…
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My grandmother
hey guys, I really need the help and support of those of you fighting this thing. I take care of my gma shes 75 and she was diagnosed with 3rd stage t cell lymphoma and the doctor suspects it to soon reach stage four. she is scheduled for a bone marrow biopsy soon and she is terrified.I hope that nobody gets offended for…
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Migraines after Radiation
I had radiation to my left hip in 2007 and also I do have Fibromyalgia. I tried explaining to both my radiation onc and my medical onc that I had concerns regarding sensitivity to radiation with my FM. Both said it's too far from my head to cause migraines I was having daily. They were horrible. I was in incredible pain…
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worried
I am a 20 year old healthy male that has trouble with my lymph nodes in my right groin area. It was noticed two months ago as I had horrible pain in the area and fever. I did have a couple beer's the night before. Doc thought I had a infection in the leg and I had a ultrasound done and surgery was preformed to drain the so…
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36 year old mother with no answers! just want to know!
Can anyone explain what their eye tumor looked like? when i pull my right eye lid up and back i have a fatty/fleshy mass that pops out. there is no pain but i can feel it at times and it does seem to get bigger. My symptoms for the last 3 months have been,my eye,tired, 25 pound weight loss, skin lesions,itchy skin, hair…
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Chronic joint pain following Chemo.
Hi Folks, I had a year of Casltleman's Disease before being diagnosed with Hodgkin's Lymph. I had several blood transfusions, surgeries, and five months of Chemo. Following Chemo. and getting off months of Predisone... I now find that I have constant joint pain and Edema. It is the joint pain I want to focus on here. My…
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follicular cancer
Hi, My name is Corinne and I am a 51 yr old woman who was diagnosed a year ago with Non-hodgins lymphoma. After 6 months of chemo ( with no change ) my oncologist took a wait and see approach. In the past month I have been finding swollen lymphs in my cheek, shoulder neck, and being very concerned was catscanned again. NOW…
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Early Diagnosis Questions and Testing
Hi All, Many thanks in advance for reading this and taking the time to share your insight. I recently noticed a few strange symptoms that mirror lymphoma (swollen lymph nodes after drinking alcohol, slight nausea, and two recent evenings of night sweats). The alcohol effect is usually very noticeable (24 hours after 2-3…