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Got stabbed today
Doc walked in the room saying Complete Remission! I love those words :) Then the nurse stabbed me with a flu shot. My arm is killing me :) I am headed back to work tomorrow, wish me good luck! Take care, Beth
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Exercise
I looking for execrise while on R-CHOP, especially day 1 and day 2 of treatments. I do know to stay out of the sun. Swming is what I prefer. Richard
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Experiencing Changes (I am back!)
Hi dear everybody, When I started going back to work, I had been treading waters big time. I found myself having to channel my energy - just to live by working, eating and visiting family. My father is grieving a lot due to losing his wife of 40 years so I have been watching him. I found myself just wanting not to think of…
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Happy Last Chemo to Me!
Thanks everyone for being there. At least I have this leg of the journey complete. Can't exactly "party" right now so I thought I'd share a couple things I dug up on the web. Hope they will make you smile :) 1) MY CELEBRATION:(I couldn't say this better with any words) "Last Chemo Happy Dance/Wiggle?" I just like it.…
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Two experts, two different recommendations: What do I do next?
Hi Folks, Here is a good one for the collective wisdom of this fine assemblage of unwilling subject matter experts. Please read the entire message; and it is bulky, like my disease. I finished 6 rounds of R-FND this past August. Before that I underwent 3 rounds of R-CVP that produced minimal results. Eight months and 9…
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Gaseous smell?
I finished my chemo treatment (R-EPOCH)on May 13. For quite some time certain foods tasted quite funny - eggs, some meats, popcorn). I've noticed that has started to go away, but now I constantly smell a gaseous scent. It is the same smell that you typically notice in your garage if the door has been closed for a while.…
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Thank you God
I feel totally blessed today. My scan was great and no activity. My husband and I went out to dinner and I drank 2 rasbrry martinis. I don't drink really but they were wonderful.. I thought I would dance on the table after the first drink but I ate lots of bread. Thank you for all my well wishes. I feel like a new…
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PET scan
Hi It's been a year since my last PET scan. It's Wed. with results this Thursday. My mind is imaging all sorts of things. I am pretty upbeat but I am becoming anxious. I hate feeling that way. I am not ready to be sick again. I love feeling good and being normal. Sorry I am rambling. Joanie
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Second opinion
Hello ladies and gentlemen; Well wanted to keep you guys posted on the following, went to the doc, and got my second opinion over the phone lol...at first my doc was surprised that my onc wanted to watch and wait but she got on the phone really quick started talking to some of her colleagues that specialize in all types of…
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HTLV and Lyphona
I have a friend her mom had a type of leukemia caused by HTLV. How any of you heard that this virus causes T-Cell Lymphona? Thank you...
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NHL and HIV
Hello everybody; My name is Liz, I'm 35 a mother of three kids and a wife, I was recently diagnosed with NHL after 20yrs. of being HIV+...My Doc told me to watch and wait to see what my lymphoma does since it is affecting my spleen...he wants to wait since starting chemo can make me weaker and put me more at risks for more…
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My grandmother
hey guys, I really need the help and support of those of you fighting this thing. I take care of my gma shes 75 and she was diagnosed with 3rd stage t cell lymphoma and the doctor suspects it to soon reach stage four. she is scheduled for a bone marrow biopsy soon and she is terrified.I hope that nobody gets offended for…
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Migraines after Radiation
I had radiation to my left hip in 2007 and also I do have Fibromyalgia. I tried explaining to both my radiation onc and my medical onc that I had concerns regarding sensitivity to radiation with my FM. Both said it's too far from my head to cause migraines I was having daily. They were horrible. I was in incredible pain…
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worried
I am a 20 year old healthy male that has trouble with my lymph nodes in my right groin area. It was noticed two months ago as I had horrible pain in the area and fever. I did have a couple beer's the night before. Doc thought I had a infection in the leg and I had a ultrasound done and surgery was preformed to drain the so…
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36 year old mother with no answers! just want to know!
Can anyone explain what their eye tumor looked like? when i pull my right eye lid up and back i have a fatty/fleshy mass that pops out. there is no pain but i can feel it at times and it does seem to get bigger. My symptoms for the last 3 months have been,my eye,tired, 25 pound weight loss, skin lesions,itchy skin, hair…
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Chronic joint pain following Chemo.
Hi Folks, I had a year of Casltleman's Disease before being diagnosed with Hodgkin's Lymph. I had several blood transfusions, surgeries, and five months of Chemo. Following Chemo. and getting off months of Predisone... I now find that I have constant joint pain and Edema. It is the joint pain I want to focus on here. My…
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follicular cancer
Hi, My name is Corinne and I am a 51 yr old woman who was diagnosed a year ago with Non-hodgins lymphoma. After 6 months of chemo ( with no change ) my oncologist took a wait and see approach. In the past month I have been finding swollen lymphs in my cheek, shoulder neck, and being very concerned was catscanned again. NOW…
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Early Diagnosis Questions and Testing
Hi All, Many thanks in advance for reading this and taking the time to share your insight. I recently noticed a few strange symptoms that mirror lymphoma (swollen lymph nodes after drinking alcohol, slight nausea, and two recent evenings of night sweats). The alcohol effect is usually very noticeable (24 hours after 2-3…
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para-aortic lymphnode cancer
para-aortic lymphnode cancer is it classed as terminal and anything anyone can tell me would be very welcome
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Feeling Alone
I am pretty new to this site and so far it has been such a great resource for me. It is something I really needed to help me through this process, especially mentally. Although I don't post a whole lot, what I have read has been immensely helpful. I am 20 years old and was recently diagnosed with extranodal natural killer…
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Another Question
Is there anyone out there who has experienced headaches after all treatments are finished? Yesterday my daughter had to go to the doctor for a headache. He treated her for a migraine. I do trust him, but I was wondering if this is something that someone else can relate to. She finished abvd in March and radiation in…
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Results
Got great news from the oncologist today! Positive theraputic response with significant interval decrease in size and near complete resolution of abnormal metabolic activity in upper abdominal lymphadenopathy. Basically the cancer is gone. He wont call it a remission yet because there is still a little activity but he said…
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Renal transplant and non hodgkin
Hello there, my first time posting My boyfriend has got b cell non hodgkin lymphoma. He has also had a kidney transplant around 14 years ago (both his out someone elses in) Apparently his lymphoma was bought on by his medication - immuno suppresant (sorry about the spelling) He starts chemo this week. Well I was wondering…
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Thanks
Hi All, Thank you for your kind and supportive words. I am feeling better today and have had some good sleep. Cancer for me is like a roller coaster ride. I would not chose to get on the ride, but now that I am, it can be very scary. Mostly I try to just coast along and enjoy my life. But then there are the times when I am…
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Scans
I get my first PET/CT scan on Thursday since starting treatment in August! I have two cycles of chemo down and this will determine my progress and how much more treatment I will need. I am super nervous but really hoping to see that my cancer is melting away!
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Radiation for Follicular Lymphoma
Hi you guys, Has anyone received radiation for follicular lymphoma? I received R-CVP in 2010 with complete remission, it was followed up with Zevalin In July 2010. One year later and I have a walnut size tumor in my groin. Dr. is recommending radiation. I have an appointment with the radiologist on Friday, the 23. I'm…
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Good luck peeps!!!
Just want to wish everyone good luck with scan results today! lizzy will be here any minute and then my day is off and running with taking care of her. She's a cat napper, which usually takes place in my arms, but I'll check back on the computer later today and will be expecting to hear "ONLY GOOD NEWS"...I'm sure! Love to…
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It's KICK-Butt Scan Day !
Good luck today on your scans/results and to anyone I may have missed out there! JoanieP dixieGirl anag21
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Got CD of my pet scan today
From what I can understand from the report is great news. No signs of new activity. There has been regression of the area where it was!! Yipee!! Will find out for sure tomorrow, but I couldn't help but look at it. NOW the disk is stuck in my computer.... Oh well. It's happened before and eventually it spits it out LOL
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Got the results of Ultra sound..
Hi guys, I called my doctors office this morning and the nurse told me the ultra sound showed NO cancer in my right breast. She said my doctor will go over the mammogram and ultra sound results in detail with me on Sept 27th when I go in for my physical. So...that was wonderful news and music to my ears! We were without…