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Honoring our Veterans
11-11-11..Veterans Day Thank you to all of the Veterans for their sacrifices and service. Also a big thank you to my father Robert, Steve's father Art, Steve my hubby, who all served in the NAVY, and our youngest son Josh who served in the Marines. We fly our flag with pride and gratitude. Great day except I tweeked my…
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Survivorship - some progress and setbacks
Hi, Dear Everybody, Since treatment of HL last February, hubby and I decided to take a big trip flying across US to New Mexico for 1 week vacation (two weeks ago). Before taking off, I was concerned because I had headaches often so I went to opthmaologist and found out that my eyes are very dry so took eye drops regularly…
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Friday hello
Hi All I just wanted to say hello. I hope everyone is feeling okay and has a lovely weekend. I am waiting to hear from my Dr, he is supposed to call today. Still waiting. Once I hear from him, I will post an update. Thinking of you all Lisha
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" FNHL Rituxan Treatment #7 is Behind Me
I found out I had FNHL March 2009. R-CHOP began Nov. 2009 and ended March 2010. Today was Rituxan treatment #7 and yearly CT scans. All was clear and I am still in remission with my last treatment on Feb. 8, 2012. I really have no side effects with Rituxan. Only issue is a sleepless night on treatment days because of…
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Happy Dance !
I got good news yesterday on my CT scan - still clean. Hope is alive and well at this site! Thanks so much for your prayers and thoughts. This deserves two dances :) Happy Dance Classic Happy Dance Prayers For You :) Hugs and laughs :) , Jim
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TERMINAL & WITH KIDS
Good afternoon all. I am new to the concept of forums per say and by nature am a very private individual. Having recently come to learn of one's fast express way ticket to understanding "terminal" i confess my mind is somewhat in a pickle. Currently I am drawn not to concern over myself but alas ones childeren. It causes…
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My heart is broken
I am so angry and confused and distrustful right now. When I was 18 I was treated for Hodgkins Lymphoma with ABVD, my treatment went great. I had some terrible nausea and lost about 20 lbs but my counts never dropped, no transfusions, no hospitals. I am now a little over 5 years out and it seems like everything is…
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New to the board
Hi. I am new to the discussion board and wanted to introduce myself. My name is Joe and I am a Hodgkins disease "survivor". Sorry about the quotes but here's my background: first diagnosed in 2000 clean for 8 years, relapse found on a routine scan had an auto stem cell bone marrow transplant relapsed almost a year after…
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Here we go...
My husbands diagnosis was B large cell lymphoma. He had his port put in today and starts chemo next Tuesday R-CHOP. Any advice for what's in store anything I can do to help make this easier on him or help in his recovery. God bless to everyone dealing with this! Diane
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Advice on My 2 year old Son
I’m not sure if this is the right place to find some advice but I hope it is, I’m from the UK & I am finding it very difficult to find anyone who is or has been in my position as Lymphoma in children is rare. My two year old son has had enlarged lymph nodes for about nine months, it was first noticed with two in his neck…
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Pet Scan
Hello guy's had my Pet Scan yesterday, hard to believe it's been a full year in remission! I have been researching treatments for relapse for the past week, don't really know why. I guess I want to be prepared for the worst, is that crazy?????? Anyway thanks for the ear, I should get my result's tomorrow........ Vinny
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new oncologist
well after my appt. on november7 i will have a new one i am really sad i jokingly told my nurse i was going to become his stalker, i really don,t know what are the most important things to look for in a new lymphoma specialist, does anyone else know the no.1 things i should be looking for any help would be appreciated i…
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Stem Cell Harvest
I was wondering if anyone had trouble getting enough stem cells during the harvest-been on the machine two days and only have 1.1 so far. The nurse just called and said if the blood counts are not up tomorrow they may not continue with harvest. I guess the neupogen is not working like it should.
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Checkup was today
I went for my checkup today. Everything seems to be ok except my LDH is high. He wants to keep watching it and I go back in 4 weeks. Oh and my fingernails are starting to look like are going to fall off. They are cracked horizontally across the nail about 1/2 way down. Right now my thumb nails seem to be the worst and are…
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Follow-up care a must post Hodgkins Lymphoma treatment!
Hi, It's sometimes so overwhelming trying to orchestrate follow up care isnt it? I am a registered nurse and finally researched a way to do this since I was not happy with results of tests being overlooked and relaxed medical care, we have to be so on top of this. I sought out my cancer center in Boston and found they had…
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Round two...
Monday will be round two of AVBD and I'm not looking forward to it. I'm having trouble coming up with what to say right now.... I'm just not excited about it. Yesterday was the first real day I felt close like my normal self...4 days later, here we go again. I guess I feel like "poor me" right now. It's been hard wrapping…
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Diagnosed with Hodgkins Two weeks ago...
I am 25 year old male that was diagnosed with Hodgekins 2 weeks ago. I have a 11 month old son that is my world and I want to be here for him forever. I am wondering if anyone could help me out by telling me how they handel the stress and coping with the fact that they have hodgekins. I am also wondering if anyone else…
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Need to know my survival chances
I'm an 86 year old 24/7 caregiver to my 85 year old wife. At age 71 I was diagnosed with prostate cancer and had my prostate removed. Several months later I was diagnosed with colon cancer and had the ascending portion of my colon removed. Last year I was diagnosed with Barrett's esophagas and six months ago I was…
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Good News
It’s been a while since I posted but wanted to share in the good news. Seen the oncologist yesterday for test results on my husband CTScan and bone marrow and they both show no signs of lymphoma. This was wonderful news to hear. As maintenance, he was given an option of either a Rituxan infusion every 2 months or a onetime…
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Halloween hello
Hi All, I have not posted much lately, feeling tired and dealing with some issues. But, I try to read almost every day. I just want to say Happy Halloween and that I am thinking of you all. Love, Lisha
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Enlarged lymph node in ultrasound?
I recently had posted in the Head & Neck section but my story has changed somewhat so I figured it might not be appropriate to post there. Anyway, this is the link to the thread since it has lots of information that would be tedious to repost here: http://csn.cancer.org/node/229216 Here's the short version: I recently went…
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Hodgkin's then Colon
I was diagnosed with Hodgkin's when I was pregnant 14 years ago, Did 8 months of chemo and was in remission. 10 months ago, was diagnosed with colon cancer at age 41.Writing abtu my experience helps me cope. If you have time, please read my story. Thanks!…
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low grade non hodgkins
Hi everyone, i was diagnosed last october with low grade nhl i was recalled after a mammogram as apparently it pickec up enlarged lymphnode in my right armpit, i had a ct scan and bone marrow biopsy last november, im on watch and wait and thankfully so far im doing good. I had a flu jab last thursday whicjh i thought id…
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Disease-Specific Websites
Hi guys, Wanted to share this information with you. It's nice to have a place to go when we have questions about our specific lymphoma subtype and not have to sift through a ton of information thats non related. Hope everyone has a good weekend. Love..Sue (Follicular NHL-stage3-grade2-typeA-diagnosed June 2010-age 61)…
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Transition to Survivor
Hi All, My name is Jessica and I was diagnosed with NHL in my tibia in Jan. 2011. My type was rapid growing and I almost faced an amputation as the cancer ate completely through my bone. I went from training for a half marathon into a wheelchair/crutches. I started chemo right away and completed 8 cycles of R-CHOP. I then…
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Friday hello
Hi All, I just wanted to say that I am thinking about you all. I hope that everyone is feeling okay. Have a lovely fall weekend. Lisha
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Grow my hair back faster?
Hey, sooo most of you probably don't remember me, but I joined this over the summer because my treatment for Hodgkins worsened. I gaven't been on here in foreverrr! Butttt the good news is, I'm better now and back at school! :) I have some hair growing back, but it's so short and I can't stand it! I'm using Mane n' tail…
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Stage IV Classic Hodgkins
Hi everyone. I found this site late last night and decided to reach out a little this evening. I was diagnosed with Stage IV Classic Hodgkins last week. I met with my Oncologist at the VA hospital today, in addition to attending a chemotherapy informational briefing. I'll get my portacath installed Friday and begin the…
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profile
how do you fix a mistake on your profile?denise
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My hands itch bad with some blister like bumps
Hi, I am a 46 year old women. I had non hodgkins at age 14.All the nodes on the right and left side removed, also had thyroid cancer that was removed. This all happened in 1979 thru 1981, I was given the I 131 radiation cocktial. I have been free of cancer for 30 years. Now my glands in the right side of my neck are…