-
Stem Cell Harvest
I was wondering if anyone had trouble getting enough stem cells during the harvest-been on the machine two days and only have 1.1 so far. The nurse just called and said if the blood counts are not up tomorrow they may not continue with harvest. I guess the neupogen is not working like it should.
-
Checkup was today
I went for my checkup today. Everything seems to be ok except my LDH is high. He wants to keep watching it and I go back in 4 weeks. Oh and my fingernails are starting to look like are going to fall off. They are cracked horizontally across the nail about 1/2 way down. Right now my thumb nails seem to be the worst and are…
-
Follow-up care a must post Hodgkins Lymphoma treatment!
Hi, It's sometimes so overwhelming trying to orchestrate follow up care isnt it? I am a registered nurse and finally researched a way to do this since I was not happy with results of tests being overlooked and relaxed medical care, we have to be so on top of this. I sought out my cancer center in Boston and found they had…
-
Round two...
Monday will be round two of AVBD and I'm not looking forward to it. I'm having trouble coming up with what to say right now.... I'm just not excited about it. Yesterday was the first real day I felt close like my normal self...4 days later, here we go again. I guess I feel like "poor me" right now. It's been hard wrapping…
-
Diagnosed with Hodgkins Two weeks ago...
I am 25 year old male that was diagnosed with Hodgekins 2 weeks ago. I have a 11 month old son that is my world and I want to be here for him forever. I am wondering if anyone could help me out by telling me how they handel the stress and coping with the fact that they have hodgekins. I am also wondering if anyone else…
-
Need to know my survival chances
I'm an 86 year old 24/7 caregiver to my 85 year old wife. At age 71 I was diagnosed with prostate cancer and had my prostate removed. Several months later I was diagnosed with colon cancer and had the ascending portion of my colon removed. Last year I was diagnosed with Barrett's esophagas and six months ago I was…
-
Good News
It’s been a while since I posted but wanted to share in the good news. Seen the oncologist yesterday for test results on my husband CTScan and bone marrow and they both show no signs of lymphoma. This was wonderful news to hear. As maintenance, he was given an option of either a Rituxan infusion every 2 months or a onetime…
-
Halloween hello
Hi All, I have not posted much lately, feeling tired and dealing with some issues. But, I try to read almost every day. I just want to say Happy Halloween and that I am thinking of you all. Love, Lisha
-
Enlarged lymph node in ultrasound?
I recently had posted in the Head & Neck section but my story has changed somewhat so I figured it might not be appropriate to post there. Anyway, this is the link to the thread since it has lots of information that would be tedious to repost here: http://csn.cancer.org/node/229216 Here's the short version: I recently went…
-
Hodgkin's then Colon
I was diagnosed with Hodgkin's when I was pregnant 14 years ago, Did 8 months of chemo and was in remission. 10 months ago, was diagnosed with colon cancer at age 41.Writing abtu my experience helps me cope. If you have time, please read my story. Thanks!…
-
low grade non hodgkins
Hi everyone, i was diagnosed last october with low grade nhl i was recalled after a mammogram as apparently it pickec up enlarged lymphnode in my right armpit, i had a ct scan and bone marrow biopsy last november, im on watch and wait and thankfully so far im doing good. I had a flu jab last thursday whicjh i thought id…
-
Disease-Specific Websites
Hi guys, Wanted to share this information with you. It's nice to have a place to go when we have questions about our specific lymphoma subtype and not have to sift through a ton of information thats non related. Hope everyone has a good weekend. Love..Sue (Follicular NHL-stage3-grade2-typeA-diagnosed June 2010-age 61)…
-
Transition to Survivor
Hi All, My name is Jessica and I was diagnosed with NHL in my tibia in Jan. 2011. My type was rapid growing and I almost faced an amputation as the cancer ate completely through my bone. I went from training for a half marathon into a wheelchair/crutches. I started chemo right away and completed 8 cycles of R-CHOP. I then…
-
Friday hello
Hi All, I just wanted to say that I am thinking about you all. I hope that everyone is feeling okay. Have a lovely fall weekend. Lisha
-
Grow my hair back faster?
Hey, sooo most of you probably don't remember me, but I joined this over the summer because my treatment for Hodgkins worsened. I gaven't been on here in foreverrr! Butttt the good news is, I'm better now and back at school! :) I have some hair growing back, but it's so short and I can't stand it! I'm using Mane n' tail…
-
Stage IV Classic Hodgkins
Hi everyone. I found this site late last night and decided to reach out a little this evening. I was diagnosed with Stage IV Classic Hodgkins last week. I met with my Oncologist at the VA hospital today, in addition to attending a chemotherapy informational briefing. I'll get my portacath installed Friday and begin the…
-
profile
how do you fix a mistake on your profile?denise
-
My hands itch bad with some blister like bumps
Hi, I am a 46 year old women. I had non hodgkins at age 14.All the nodes on the right and left side removed, also had thyroid cancer that was removed. This all happened in 1979 thru 1981, I was given the I 131 radiation cocktial. I have been free of cancer for 30 years. Now my glands in the right side of my neck are…
-
good news kinda
hi everyone i have'nt really been posting much for a while but i am glad for everyones good reports, i have felt really have'nt felt well for a couple of months, i was worried where i am on watch and wait the cancer was getting worse i finally went to thr er and found it is pneumoni they kept me a couple of nights and gave…
-
Round 2 as a caregiver....yikes!!!
Three weeks ago my husband went to the doctor for chest pains. He was sent in for x-rays and then a CT. Large mass in his chest 9cm x 9cm x 9cms. Had a biopsy 3 days ago we just got the call that it is a large cell lymphoma. He has an appointment on 10/31 with the oncologist. This is surreal to me I lost my 40 yr old…
-
side afects from prednisone?
just read about prednisone and this med has terrible side affects. has anyone been treated without this med with a good outcome. seems like it is used quite often.
-
I cannot process anymore, can you help me
Hi All, It seems like the only thing I talk about with you all is the emotional and difficult part of my life lately. I have debated all weekend about sharing more sadness with you. I am so ready for some happy in my life. My family seems to not want to talk or be supportive. They really just don't get what life with…
-
going in again
Well it's back and they are going in again as soon as they get the other two surgeons on board, not sure why but I'm very anxious about going in this time, not sure if it because if the fact how much time we lose when we are recovering and the holidays are near and its my fav time to get to do for my family and friends or…
-
In a Funk
Hello all, I haven't posted in awhile as things have been going really well for me and I was sort of trying to avoid cancer haha! However the past week or so I have really been stuck in a funk that I can't seem to pull myself out of. I'm sure a lot of it can be attributed to the steroids I have to get every other day but…
-
Decadron Side Effects
Hello, Has anyone had any major irritability or anger issues while on Decadron? My partner has gone through 5 cycles of ABVD with one more to go (for Stage 2A Hodgkins). He gets decadron as a pre-med infusion before each chemo. He was also taking decadron orally for a couple days after chemo, but stopped (with his onc's…
-
does r chop cure skin rash caused by nhl
My dad was recently diagnosed with diffuse large b cell lymphoma stage 4. He is only 57 years old. I am devastated. His brother(59) just passed away from bladder cancer in May 2011. My dad's first symptoms were anemia. The anemia has gotten much better. He has had two r chop treatments. His reactions to the chemo are…
-
HI
Hi I am new to this and still feel new to diagnosis. I was diagnosed in June after being sick for the month of May. I had a weird rash on my arms and what I thought was an upper respiratory infection. My kids have their own Dr and when I get sick I just went to a Dr's Care.After hearing a lady brag about this Dr. I decided…
-
Happy Birthday Sue!
Dearest Sue, This night owl wanted to be the first to wish you a very wonderful and happy birthday. Wishing you many joys, large and small. Happiness today and always. Enjoy Enjoy Enjoy Continued good health and negative scans. Happy Birthday Love, Lisha
-
Spiffy new port
Hey all, First off, thank you for all the support! Even as the first days go by, hour by hour, things are getting easier. Friday morning I had my port-a-cath installed. My "conscious sedation" was not so conscious. I think I was awake when they made the first incision, but one long blink later and the doctors were cleaning…
-
Bone Marrow Transplants and low immunity
Have long term survivors especially had issues with reduced immunity and if so what were your symptoms? Just wondering. Thanks. Blessings, Bluerose