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Lymphoma (Hodgkin and Non-Hodgkin)

Lost battle with tcell lymphoma :(
Last week my Uncle Ray lost his mostly silent battle with an extremely rare form of tcell lymphoma. We need to fight for more research on these rare forms of cancer. Please help my family and I in the fight by donating to our Light the Night team. We have dedicated the rest of our lives to fighting (we have lost 6…
Ouestion?
Does anyone have any information if it's commom for NHL to have a recurrance in the breast? I got a call last week telling me a spot was found on my right breast after my mammogram, and now I have to go in the morning(Thurs) for an ultra sound. They said when they compared last years mammogram to the new one,they found a…
Happy Birthday Susan ( go go gi gi )
Hi Susan, I just want to wish you a very Happy Birthday. Enjoy your friends and family as you celebrate your special day. Thinking of you, Happy Birthday Lisha
return of follicular lymphoma
Once in remission does follicular lymphoma always comes back? Richard
Computer issues
My computer is dead at home. Supposed to be getting hooked up again next Monday the 19th. I hope everyone is doing well and hanging in there! Will catch up with everyone next week I promise!! Take care, Beth
What happened?
I tried to post a comment on the thred we had going about the actor,but when I clicked on submit, a knowtice popped up that said.."the URL cannot be found". When I went back to the discussion board the thred had been completely removed. Whats up with that? Sue (FNHL-2-3A-6/10)
Accessing Sloan Kettering Late Effects Clinic
Hi, I've read many positive posts about the Late Effects Clinic at Sloan Kettering. I am experiencing neck and shoulder weakness and have been told this is related to mantle radiation treatment for HD which I had many years ago. I am interested in finding out more about the program at SK and the best way to arrange to be…
Follicular Lymphoma stage 3 , 66% contraction in nodes after the 3rd cycle
Hello, My dad was diagnosed with Follicular NHL stage 3 about 7-8 months ago. I think we were a little late in diagnosing it , he already had 8 kgs weight loss by then since the past 6 months. He has always been a very good athlete and very fit , this came out as a shock for our family. So the scans after the 4rth cycle…
most accurate
i always have pet scans, i never have cat scans, does anyone else have pet scans only? does anyone know which one is more accurate? (probally not spelled right)
Cat Scan results
Just went to the Oncologist on Friday and got my cat scan Results. All is good so he says. But when I left the office I asked for a cat scan result. She did make one and gave me a copy. Once I got home I read it and was surprised to see a comment on my Chest scan that Quote- Tiny Nodule in left lung base is unchanged. Well…
Thank you
Hi All, I want to thank each one of you personally for your warm and supporting words. I find that my lack of energy and my brain fog kicks in so fast these days. I have all the thoughts in my head of what I want to say to each of you, but then by the time I start to type, I and my thoughts start to fade. So for now,…
Rituxin now what?
I have follicular lymphoma and am on rituxin for two years. I am in remission now. What happens after I finish my rituxin? Is there another drug I go on for maintenance? Richard
Remission with Mantle Cell Lymphoma
I'm new to this site and would be happy to help anyone going thru MCL. I was diagnosed with stage 4 MCL in 2009. I went thru many rounds R-HYPER CVAD then a stem cell transplant. Sept 1st was my 2 year remission birthday and am taking one day at a time and enjoying each and every one of them. Tony, Michigan
Painful intercourse after NON HD chemo treatment
I am 23, I was diagnosed with non hodgkin lymphoma 3 years ago...i am currently all good, all is well. however, now having sex with my husband is very painful, it's like being a virgin all over again, actually worse than i remember losing my virginity. i have tried a few over the counter medications and i only found one…
talked to my nurse
i finally talked to my nurse and she said that i had treatment and i would'nt need treatment for 30 years, but i had r-cvp in 2005and in 2007 i relasped, i just told her i would go to my primarey care dr for the shotness of breath and feeling weak if he did'nt find anything then i would call back to see if my appt can be…
Still worrying!!
It's me again! My daughter finished radiation 2.5 weeks ago to her chest and neck, and tonight we noticed that she has loss hair right at her neck/nape area. I know that radiation can cause hair loss, but is it possible that the radiation to the neck/throat area could have caused the hair loss? When you pull on it, it…
School
Im a survivor, got that news in like july! now im in school and no one will talk to me or they look at me like im an alien! it really gets to me and i dont know how or what to do to fix it...
rituxen therapy and horrible leg cramps?
I hope everyone is doing okay. I haven't been here in a while, but everyone on this site (whether I've conversed with them or not) is in my prayers all the time! My mom was diagnosed with NHL 3A last year, did 4 cycles of B-R and is now on her 2nd cycle of rituxen therapy. She has horrible leg/body/joint pain. I hear that…
Chemo Angels
Hi All, I wanted to let each of you know about this wonderful program called Chemo Angels. Anyone who is currently going through treatment can sign up to be "adopted" by a Chemo Angel. Your angel will then send you gifts, notes, letters of encouragement through your treatment process to support and encourage you through…
Fatique progressively worse over chemo cycles?
I recently finished cycle 4 of R EPOCH and got my neulasta shot on Monday. I started having bach and chest aches yesterday from the neulasta which seemed a little late from the past experience. It's not too bad, just 2-3 days of aches in the back that shoot to my chest (sort of like having the flu)and this hasn't changed…
My Angel
Hi, I had to post my story and experience of being on this site when I was going through treatment back in 2003. I was diagnosed with Hodgkin's Lymphoma when I was 23 years old, stage IIa. I lost a lot of people in my life during that time because they did not know how to be there for me. Feeling hopeless, I turned to this…
I don't know what to do
I don't know what to do. my onc office is not calling me back, the first time i called,no one called me back and now i don't remember why i called. the second time i called was because i talked to an onc nurse from the lymphoma foundation, and she suggested i call back his office and get in sooner than nov. 7 because i am…
Radiation for HD 22 years ago..now Lung Cancer
Hi everyone, I battled Hodgkins 22 years ago. I had both chemo and radiation...chest and abdomen. Almost 5 years ago, I got colon cancer and was treated with surgery and chemo. I have tentatively been diagnosed with a new primary cancer of the lung. I keep wondering if the radiation I had all of those years ago had…
opinions wanted about workshopand recommendation
Hello friends, I heartily recommend the series of podcasts provided by CancercareConnect, all about survivorship. They are really well done, current, and the doctors who speak are great. They had a podcast very recently called, "Update on Lymphoma 2011", and they have a whole survivorship series. I stumbled upon a website…
Why?
I think I've said that about a million times throughout the day. Today I lost my husband, my best friend, and my lover. Our battle began just last year when he nearly left us then He just turned 48 on Monday. Happy Birthday baby, I love you. I feel so empty or numb. I try to keep face for our children (aged 15, 13 and 3).…
"OUCH"
Hi guys, Yesterday I went and got my mammogram and then my flu and pneumonia shot. The arm I got the flu shot in is a tiny bit sore today, but the other arm where the pneumonia vaccine was injected hurts like all get out! It's swollen and hot to the touch and it feels like somebody sucker punched me as hard as they could.…
New Here with Follicular
Hello everyone, Heres my story....I'm 42 married with 4 Children, they are my life. Everything I do revolves around all of them one way or another. I was recently diagnosed with Follicular Non-Hodgkins Lymphoma (A) Stage (3) Grade 1.5.. this all started on Memorial Day Weeekend with a lump right above my left clavical. A…
NHL, Indolent Follicular--Brand new diagnosis--
I'm 67, diagnosis 8/22/2011; Grade 1, I think Stage 3 --to start chemotherapy Bendamustine/Rituxan 8/31--It has been a whirlwind month--doctors were superb and communicative-- Faith in the Lord will see me through, along with being prepared as much as I can prior to starting the Chemo-- Any suggestions to prepare and hope…
A Life Saving Tip From My Grand Mother
A Life Saving Tip From My Grandmother (A True Story) I was 28 and half years old in Sept.1983. Now suffering almost 12 months with pain in my chest, I have had 5 doctors and one Internal Medicine Doctor tell me not to worry; it was chostrochondritis an inflammation of the breast bone. In pain so bad at times I wished I…
Follow up appointment tomorrow
Hi all, I have my 2 month follow up appt tomorrow with my oncologist. Very important appt since I am truly praying that we can safely postpone treatment another 2 months so that I can fully enjoy my daughter's wedding in October. I am getting very anxious about the appointment since the doc wanted to treat 2 months ago and…

Lymphoma (Hodgkin and Non-Hodgkin)

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