Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Hi I was diagnosed in May 2011 ,2 weeks after having my 3rd child
I was diagnosed with stage 2B Hodgkins ,I have been a nervous wreck, but I kept pushing them to start treatments asap, by the time my 6 week maternity leave was up I had several ABVD treatments and was wearing a wig.(wasnt exactly the maternity leave I planned).The sales reps that come in the office at my work will say "oh…
My heart is breaking
Hi All, This year has started off going down hill fast. As you know, my wonderful mother in law passed away from melanoma. Not a way to start off the new year. The last few months have been horrible. Putting my issues aside, my younger cousin 45, has stage 3 colorectal cancer. She went through aggressive treatment that…
Out of Jail :) Thank you all
Just got home from cycle 5, one to go. Bouncin' from the prednisone but okay otherwise. I just wanted to say thanks to the wonderful and supportive people on here. It's meant so much to me. You're all in my thoughts and positive wishes. Jim
911 / Toxic Dust
Hello everyone, After being diagnosed with FNHL Stage 3 / Grade 1.5 and my Onc stated to me that I was probally exposed to something TOXIC in my life. I told him I was detailed to 911 WTC for a couple of days for search and rescue operations, he stated that was too early to tell at this point. After I knew where I was…
Pet Scan - GOOD RESULTS :) !
I go to get a pet scan today. My question is what do you feed a "Scan" and are they "house broken";)? I can't wait to eat something with carbs afterwards! Wish me luck - probably won't get the results until Wednesday when I see my oncologist and go in for cycle 5 of R EPOCH. Jim
Always worrying!!
Hi My daughter (23) was treated for Hodgkin's Lymphoma with ABVD ending in March and 20 radiations treatments ending on August 19th. Everytime she gets an ache or pain my mind just goes wild and I think all those bad things. Just recently she has been complaining of pain in her sciatica area. She saw her dr and he has…
Lost battle with tcell lymphoma :(
Last week my Uncle Ray lost his mostly silent battle with an extremely rare form of tcell lymphoma. We need to fight for more research on these rare forms of cancer. Please help my family and I in the fight by donating to our Light the Night team. We have dedicated the rest of our lives to fighting (we have lost 6…
Ouestion?
Does anyone have any information if it's commom for NHL to have a recurrance in the breast? I got a call last week telling me a spot was found on my right breast after my mammogram, and now I have to go in the morning(Thurs) for an ultra sound. They said when they compared last years mammogram to the new one,they found a…
Happy Birthday Susan ( go go gi gi )
Hi Susan, I just want to wish you a very Happy Birthday. Enjoy your friends and family as you celebrate your special day. Thinking of you, Happy Birthday Lisha
return of follicular lymphoma
Once in remission does follicular lymphoma always comes back? Richard
Computer issues
My computer is dead at home. Supposed to be getting hooked up again next Monday the 19th. I hope everyone is doing well and hanging in there! Will catch up with everyone next week I promise!! Take care, Beth
What happened?
I tried to post a comment on the thred we had going about the actor,but when I clicked on submit, a knowtice popped up that said.."the URL cannot be found". When I went back to the discussion board the thred had been completely removed. Whats up with that? Sue (FNHL-2-3A-6/10)
Accessing Sloan Kettering Late Effects Clinic
Hi, I've read many positive posts about the Late Effects Clinic at Sloan Kettering. I am experiencing neck and shoulder weakness and have been told this is related to mantle radiation treatment for HD which I had many years ago. I am interested in finding out more about the program at SK and the best way to arrange to be…
Follicular Lymphoma stage 3 , 66% contraction in nodes after the 3rd cycle
Hello, My dad was diagnosed with Follicular NHL stage 3 about 7-8 months ago. I think we were a little late in diagnosing it , he already had 8 kgs weight loss by then since the past 6 months. He has always been a very good athlete and very fit , this came out as a shock for our family. So the scans after the 4rth cycle…
most accurate
i always have pet scans, i never have cat scans, does anyone else have pet scans only? does anyone know which one is more accurate? (probally not spelled right)
Cat Scan results
Just went to the Oncologist on Friday and got my cat scan Results. All is good so he says. But when I left the office I asked for a cat scan result. She did make one and gave me a copy. Once I got home I read it and was surprised to see a comment on my Chest scan that Quote- Tiny Nodule in left lung base is unchanged. Well…
Thank you
Hi All, I want to thank each one of you personally for your warm and supporting words. I find that my lack of energy and my brain fog kicks in so fast these days. I have all the thoughts in my head of what I want to say to each of you, but then by the time I start to type, I and my thoughts start to fade. So for now,…
Rituxin now what?
I have follicular lymphoma and am on rituxin for two years. I am in remission now. What happens after I finish my rituxin? Is there another drug I go on for maintenance? Richard
Remission with Mantle Cell Lymphoma
I'm new to this site and would be happy to help anyone going thru MCL. I was diagnosed with stage 4 MCL in 2009. I went thru many rounds R-HYPER CVAD then a stem cell transplant. Sept 1st was my 2 year remission birthday and am taking one day at a time and enjoying each and every one of them. Tony, Michigan
Painful intercourse after NON HD chemo treatment
I am 23, I was diagnosed with non hodgkin lymphoma 3 years ago...i am currently all good, all is well. however, now having sex with my husband is very painful, it's like being a virgin all over again, actually worse than i remember losing my virginity. i have tried a few over the counter medications and i only found one…
talked to my nurse
i finally talked to my nurse and she said that i had treatment and i would'nt need treatment for 30 years, but i had r-cvp in 2005and in 2007 i relasped, i just told her i would go to my primarey care dr for the shotness of breath and feeling weak if he did'nt find anything then i would call back to see if my appt can be…
Still worrying!!
It's me again! My daughter finished radiation 2.5 weeks ago to her chest and neck, and tonight we noticed that she has loss hair right at her neck/nape area. I know that radiation can cause hair loss, but is it possible that the radiation to the neck/throat area could have caused the hair loss? When you pull on it, it…
School
Im a survivor, got that news in like july! now im in school and no one will talk to me or they look at me like im an alien! it really gets to me and i dont know how or what to do to fix it...
rituxen therapy and horrible leg cramps?
I hope everyone is doing okay. I haven't been here in a while, but everyone on this site (whether I've conversed with them or not) is in my prayers all the time! My mom was diagnosed with NHL 3A last year, did 4 cycles of B-R and is now on her 2nd cycle of rituxen therapy. She has horrible leg/body/joint pain. I hear that…
Chemo Angels
Hi All, I wanted to let each of you know about this wonderful program called Chemo Angels. Anyone who is currently going through treatment can sign up to be "adopted" by a Chemo Angel. Your angel will then send you gifts, notes, letters of encouragement through your treatment process to support and encourage you through…
Fatique progressively worse over chemo cycles?
I recently finished cycle 4 of R EPOCH and got my neulasta shot on Monday. I started having bach and chest aches yesterday from the neulasta which seemed a little late from the past experience. It's not too bad, just 2-3 days of aches in the back that shoot to my chest (sort of like having the flu)and this hasn't changed…
My Angel
Hi, I had to post my story and experience of being on this site when I was going through treatment back in 2003. I was diagnosed with Hodgkin's Lymphoma when I was 23 years old, stage IIa. I lost a lot of people in my life during that time because they did not know how to be there for me. Feeling hopeless, I turned to this…
I don't know what to do
I don't know what to do. my onc office is not calling me back, the first time i called,no one called me back and now i don't remember why i called. the second time i called was because i talked to an onc nurse from the lymphoma foundation, and she suggested i call back his office and get in sooner than nov. 7 because i am…
Radiation for HD 22 years ago..now Lung Cancer
Hi everyone, I battled Hodgkins 22 years ago. I had both chemo and radiation...chest and abdomen. Almost 5 years ago, I got colon cancer and was treated with surgery and chemo. I have tentatively been diagnosed with a new primary cancer of the lung. I keep wondering if the radiation I had all of those years ago had…
opinions wanted about workshopand recommendation
Hello friends, I heartily recommend the series of podcasts provided by CancercareConnect, all about survivorship. They are really well done, current, and the doctors who speak are great. They had a podcast very recently called, "Update on Lymphoma 2011", and they have a whole survivorship series. I stumbled upon a website…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards