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Lymphoma (Hodgkin and Non-Hodgkin)

Chronic joint pain following Chemo.
Hi Folks, I had a year of Casltleman's Disease before being diagnosed with Hodgkin's Lymph. I had several blood transfusions, surgeries, and five months of Chemo. Following Chemo. and getting off months of Predisone... I now find that I have constant joint pain and Edema. It is the joint pain I want to focus on here. My…
follicular cancer
Hi, My name is Corinne and I am a 51 yr old woman who was diagnosed a year ago with Non-hodgins lymphoma. After 6 months of chemo ( with no change ) my oncologist took a wait and see approach. In the past month I have been finding swollen lymphs in my cheek, shoulder neck, and being very concerned was catscanned again. NOW…
Early Diagnosis Questions and Testing
Hi All, Many thanks in advance for reading this and taking the time to share your insight. I recently noticed a few strange symptoms that mirror lymphoma (swollen lymph nodes after drinking alcohol, slight nausea, and two recent evenings of night sweats). The alcohol effect is usually very noticeable (24 hours after 2-3…
para-aortic lymphnode cancer
para-aortic lymphnode cancer is it classed as terminal and anything anyone can tell me would be very welcome
Feeling Alone
I am pretty new to this site and so far it has been such a great resource for me. It is something I really needed to help me through this process, especially mentally. Although I don't post a whole lot, what I have read has been immensely helpful. I am 20 years old and was recently diagnosed with extranodal natural killer…
Another Question
Is there anyone out there who has experienced headaches after all treatments are finished? Yesterday my daughter had to go to the doctor for a headache. He treated her for a migraine. I do trust him, but I was wondering if this is something that someone else can relate to. She finished abvd in March and radiation in…
Results
Got great news from the oncologist today! Positive theraputic response with significant interval decrease in size and near complete resolution of abnormal metabolic activity in upper abdominal lymphadenopathy. Basically the cancer is gone. He wont call it a remission yet because there is still a little activity but he said…
Renal transplant and non hodgkin
Hello there, my first time posting My boyfriend has got b cell non hodgkin lymphoma. He has also had a kidney transplant around 14 years ago (both his out someone elses in) Apparently his lymphoma was bought on by his medication - immuno suppresant (sorry about the spelling) He starts chemo this week. Well I was wondering…
Thanks
Hi All, Thank you for your kind and supportive words. I am feeling better today and have had some good sleep. Cancer for me is like a roller coaster ride. I would not chose to get on the ride, but now that I am, it can be very scary. Mostly I try to just coast along and enjoy my life. But then there are the times when I am…
Scans
I get my first PET/CT scan on Thursday since starting treatment in August! I have two cycles of chemo down and this will determine my progress and how much more treatment I will need. I am super nervous but really hoping to see that my cancer is melting away!
Radiation for Follicular Lymphoma
Hi you guys, Has anyone received radiation for follicular lymphoma? I received R-CVP in 2010 with complete remission, it was followed up with Zevalin In July 2010. One year later and I have a walnut size tumor in my groin. Dr. is recommending radiation. I have an appointment with the radiologist on Friday, the 23. I'm…
Good luck peeps!!!
Just want to wish everyone good luck with scan results today! lizzy will be here any minute and then my day is off and running with taking care of her. She's a cat napper, which usually takes place in my arms, but I'll check back on the computer later today and will be expecting to hear "ONLY GOOD NEWS"...I'm sure! Love to…
It's KICK-Butt Scan Day !
Good luck today on your scans/results and to anyone I may have missed out there! JoanieP dixieGirl anag21
Got CD of my pet scan today
From what I can understand from the report is great news. No signs of new activity. There has been regression of the area where it was!! Yipee!! Will find out for sure tomorrow, but I couldn't help but look at it. NOW the disk is stuck in my computer.... Oh well. It's happened before and eventually it spits it out LOL
Got the results of Ultra sound..
Hi guys, I called my doctors office this morning and the nurse told me the ultra sound showed NO cancer in my right breast. She said my doctor will go over the mammogram and ultra sound results in detail with me on Sept 27th when I go in for my physical. So...that was wonderful news and music to my ears! We were without…
Hi I was diagnosed in May 2011 ,2 weeks after having my 3rd child
I was diagnosed with stage 2B Hodgkins ,I have been a nervous wreck, but I kept pushing them to start treatments asap, by the time my 6 week maternity leave was up I had several ABVD treatments and was wearing a wig.(wasnt exactly the maternity leave I planned).The sales reps that come in the office at my work will say "oh…
My heart is breaking
Hi All, This year has started off going down hill fast. As you know, my wonderful mother in law passed away from melanoma. Not a way to start off the new year. The last few months have been horrible. Putting my issues aside, my younger cousin 45, has stage 3 colorectal cancer. She went through aggressive treatment that…
Out of Jail :) Thank you all
Just got home from cycle 5, one to go. Bouncin' from the prednisone but okay otherwise. I just wanted to say thanks to the wonderful and supportive people on here. It's meant so much to me. You're all in my thoughts and positive wishes. Jim
911 / Toxic Dust
Hello everyone, After being diagnosed with FNHL Stage 3 / Grade 1.5 and my Onc stated to me that I was probally exposed to something TOXIC in my life. I told him I was detailed to 911 WTC for a couple of days for search and rescue operations, he stated that was too early to tell at this point. After I knew where I was…
Pet Scan - GOOD RESULTS :) !
I go to get a pet scan today. My question is what do you feed a "Scan" and are they "house broken";)? I can't wait to eat something with carbs afterwards! Wish me luck - probably won't get the results until Wednesday when I see my oncologist and go in for cycle 5 of R EPOCH. Jim
Always worrying!!
Hi My daughter (23) was treated for Hodgkin's Lymphoma with ABVD ending in March and 20 radiations treatments ending on August 19th. Everytime she gets an ache or pain my mind just goes wild and I think all those bad things. Just recently she has been complaining of pain in her sciatica area. She saw her dr and he has…
Lost battle with tcell lymphoma :(
Last week my Uncle Ray lost his mostly silent battle with an extremely rare form of tcell lymphoma. We need to fight for more research on these rare forms of cancer. Please help my family and I in the fight by donating to our Light the Night team. We have dedicated the rest of our lives to fighting (we have lost 6…
Ouestion?
Does anyone have any information if it's commom for NHL to have a recurrance in the breast? I got a call last week telling me a spot was found on my right breast after my mammogram, and now I have to go in the morning(Thurs) for an ultra sound. They said when they compared last years mammogram to the new one,they found a…
Happy Birthday Susan ( go go gi gi )
Hi Susan, I just want to wish you a very Happy Birthday. Enjoy your friends and family as you celebrate your special day. Thinking of you, Happy Birthday Lisha
return of follicular lymphoma
Once in remission does follicular lymphoma always comes back? Richard
Computer issues
My computer is dead at home. Supposed to be getting hooked up again next Monday the 19th. I hope everyone is doing well and hanging in there! Will catch up with everyone next week I promise!! Take care, Beth
What happened?
I tried to post a comment on the thred we had going about the actor,but when I clicked on submit, a knowtice popped up that said.."the URL cannot be found". When I went back to the discussion board the thred had been completely removed. Whats up with that? Sue (FNHL-2-3A-6/10)
Accessing Sloan Kettering Late Effects Clinic
Hi, I've read many positive posts about the Late Effects Clinic at Sloan Kettering. I am experiencing neck and shoulder weakness and have been told this is related to mantle radiation treatment for HD which I had many years ago. I am interested in finding out more about the program at SK and the best way to arrange to be…
Follicular Lymphoma stage 3 , 66% contraction in nodes after the 3rd cycle
Hello, My dad was diagnosed with Follicular NHL stage 3 about 7-8 months ago. I think we were a little late in diagnosing it , he already had 8 kgs weight loss by then since the past 6 months. He has always been a very good athlete and very fit , this came out as a shock for our family. So the scans after the 4rth cycle…
most accurate
i always have pet scans, i never have cat scans, does anyone else have pet scans only? does anyone know which one is more accurate? (probally not spelled right)

Lymphoma (Hodgkin and Non-Hodgkin)

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