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Post Treatment Anxiety
I was 41 years old when I was diagnosed with Stage 2A Hodgkins Lymphoma. Needless to say, it was the worst thing I could have imagined. My mother died when she was 48 years old 18 years ago of metastasized breast cancer and I feel like I am headed in the same direction. I completed ABVD and radiation in December 2010 and…
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First chemo
I am suppose to start my first chemo treatments Dec 1st and having a porta cath put in on Nov. 28th, I am considering backing out. My ct scans are the same, but the fatigue, weakness some days are awful then i have good days. I wonder if I am starting to soon and should wait until the ct scans show the lymph nodes getting…
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Belated Thanksgiving Wishes
Hi All Just want to say Happy Thanksgiving to all. I hope everyone had a peaceful and happy day. And lots of yummy food to. Keeping you all close to my heart.. Lisha
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Happy Thanksgiving
Hello everyone, Just wanted to wish everyone a Happy Thanksgiving! For those still in treatment, please stay strong and try to stay positive! Vinny
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A blast from the past!!
Just popping in to wish everyone a happy Thanksgiving and to remind you that I think of all of you all the time. God bless us everyone! Mary
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Stroke, Non Hogkins Lymphoma and lymphoma of the brain
On July 30, 2011 my mother in law was diagnosed as having a stroke. Within days they discovered tumors around her heart and lung. Later to be determined to be Non Hogkins Lymphoma. They also found a tumor in her stomach area but did not do a biopsy. She declined daily. She started chemo treatments and the third week she…
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anyone else with this problem
my daughters was on the fouth, i spent 3 day s looking for the right present i found it on the last day, and the rest of the time paying bills and grocery store i feel so woreout ifeel i feel half dead, does any one else feel this way after getting a lot done blessings denise
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There's a lump in my arm
Hi Everyone, My name is Jen and I'm writing at the suggestion of my uncle Cobra666 (I call him Guy). Earlier this week I found a small lump at the top of my right arm and I'm trying to not worry too much about it because it could be anything or nothing at all. Cancer is something that is a possibility because my uncle is…
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Thanksgiving blessings
To everyone and their famalies, This Thanksgiving, when I am sitting with my family and friends, I will say a special prayer for all of you. There is not a day that goes by, that I do not think of you. Each day I read the good news, and days the struggles are at their worst. Give us the courage to take what comes our way.…
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clean pet scan
I just wanted to do an update on my dad. He had a pet scan after his third treatment and it came back clean with no signs of cancer. Yeah, I was so excited!! I expected it to be 50% shrunk. He did his 4th treatment and he still has two more to go. After that he has to do another pet scan and bone marrow testing. I am so…
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R-EPOCH
Hi, I'm new to the boards and am wondering if anyone else is or has been on R-EPOCH. I have primary mediastinal b-call lymphoma, and have had one round of chemo so far. I'm wondering what other people's experiences have been and any suggestions you may have. I am 39 years old with two kids (7 and 8). I think I am still…
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Anyone who has/ had/ experienced Gamma delta t cell lymphoma ctcl ?
My wifes is 35yrs old and we just had 4th treatment of chop chemo and she is in icu critical condition!.
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Pet Scan!
Morning Guy's, my Pet Scan came back with a little scare ,but upon further review... lol, all is good! When we picked up my scan it showed activity in my hip bone,(where the original cancer was it's worst). There is still a SUV uptake of 2.1 there, but in talking with my Onc, this is a byproduct of treatment and not a…
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Dear John-Your mom
Dear John, I did respond to your post about your mom. I wanted to make a separate post for you to read. I am pasting a copy below. So sorry John Dear John First, let me say, how sorry I am on your mom's passing. Since losing my mom my life is not the same anymore. Losing one's parent is horrible. I read and re-read your…
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Anyone had a problem with this...
My husband had his first chemo 11/08/11 of R-Chop, since then he says he has a feeling of fullness in his abdominal region pushing up. He says it's better when he can burp but will fill up again. He has taken to drinking ginger ale which he says helps him burp and relieves the pressure. It creates more nausea with him…
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Anyone else with Nodular Lymphocyte Predominant Hodgkin's?
Hello All. I'm trying to connect with other people who have Nodular Lymphocyte Predominant Hodgkin's. We have a rare sub-variant of Hodgkin's that has things in common with Hodgkin's (but no Reed Sternberg cells) and characteristics of Non-Hodgkin's that I'm beginning to believe can pose unique challenges to proper…
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Post induction pain, stiffness and fatigue
Hi Folks, hope everyone is well. I had my last R-FND treatment first week of August. My Oncologist tells me I am in remission based on PET scan in September. I start Rituxan maintenance first week in December and every three months thereafter for a long, long time. My major malfunction at the moment is the pain and…
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Very ill mother
Here is my story. My mother was taking care of her mother at my home for over 4 years. My grandmother was on hospice and bed ridden for the past 5 months. She was 94 and would have been 95 Nov 12th. Well my mother started for fall ill and I had to put granny in a nursing home on Oct 31st, so I could get my mother to the…
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Honoring our Veterans
11-11-11..Veterans Day Thank you to all of the Veterans for their sacrifices and service. Also a big thank you to my father Robert, Steve's father Art, Steve my hubby, who all served in the NAVY, and our youngest son Josh who served in the Marines. We fly our flag with pride and gratitude. Great day except I tweeked my…
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Survivorship - some progress and setbacks
Hi, Dear Everybody, Since treatment of HL last February, hubby and I decided to take a big trip flying across US to New Mexico for 1 week vacation (two weeks ago). Before taking off, I was concerned because I had headaches often so I went to opthmaologist and found out that my eyes are very dry so took eye drops regularly…
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Friday hello
Hi All I just wanted to say hello. I hope everyone is feeling okay and has a lovely weekend. I am waiting to hear from my Dr, he is supposed to call today. Still waiting. Once I hear from him, I will post an update. Thinking of you all Lisha
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" FNHL Rituxan Treatment #7 is Behind Me
I found out I had FNHL March 2009. R-CHOP began Nov. 2009 and ended March 2010. Today was Rituxan treatment #7 and yearly CT scans. All was clear and I am still in remission with my last treatment on Feb. 8, 2012. I really have no side effects with Rituxan. Only issue is a sleepless night on treatment days because of…
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Happy Dance !
I got good news yesterday on my CT scan - still clean. Hope is alive and well at this site! Thanks so much for your prayers and thoughts. This deserves two dances :) Happy Dance Classic Happy Dance Prayers For You :) Hugs and laughs :) , Jim
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TERMINAL & WITH KIDS
Good afternoon all. I am new to the concept of forums per say and by nature am a very private individual. Having recently come to learn of one's fast express way ticket to understanding "terminal" i confess my mind is somewhat in a pickle. Currently I am drawn not to concern over myself but alas ones childeren. It causes…
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My heart is broken
I am so angry and confused and distrustful right now. When I was 18 I was treated for Hodgkins Lymphoma with ABVD, my treatment went great. I had some terrible nausea and lost about 20 lbs but my counts never dropped, no transfusions, no hospitals. I am now a little over 5 years out and it seems like everything is…
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New to the board
Hi. I am new to the discussion board and wanted to introduce myself. My name is Joe and I am a Hodgkins disease "survivor". Sorry about the quotes but here's my background: first diagnosed in 2000 clean for 8 years, relapse found on a routine scan had an auto stem cell bone marrow transplant relapsed almost a year after…
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Here we go...
My husbands diagnosis was B large cell lymphoma. He had his port put in today and starts chemo next Tuesday R-CHOP. Any advice for what's in store anything I can do to help make this easier on him or help in his recovery. God bless to everyone dealing with this! Diane
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Advice on My 2 year old Son
I’m not sure if this is the right place to find some advice but I hope it is, I’m from the UK & I am finding it very difficult to find anyone who is or has been in my position as Lymphoma in children is rare. My two year old son has had enlarged lymph nodes for about nine months, it was first noticed with two in his neck…
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Pet Scan
Hello guy's had my Pet Scan yesterday, hard to believe it's been a full year in remission! I have been researching treatments for relapse for the past week, don't really know why. I guess I want to be prepared for the worst, is that crazy?????? Anyway thanks for the ear, I should get my result's tomorrow........ Vinny
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new oncologist
well after my appt. on november7 i will have a new one i am really sad i jokingly told my nurse i was going to become his stalker, i really don,t know what are the most important things to look for in a new lymphoma specialist, does anyone else know the no.1 things i should be looking for any help would be appreciated i…