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Lymphoma (Hodgkin and Non-Hodgkin)

second line treatments
Today's visit with the radiation oncologist went pretty well. But he made some strange faces, then said it's too possible to fail, and he didn't recommend radiation. It's all because it's my liver-- my poor sensitive liver! (Well-- I've taken good care of my liver and wouldn't mind keeping it zap-free for some time.) So,…
Hair regrowth
Starting to grow hair after intense chemo treatments. I had dark brown before the chemo, now it seems to be coming in much lighter (hope it's not gray!) Would appreciate other members feedback on their "new" hair.
2nd opinion questions ?
I'm sending MD Anderson and John Hopkins requests for 2nd opinions on my husbands Large Diffuse BCell which seems reluctatant to go away or be under control after 3 R-ICE treatments. My mind is fried lately so other than asking if there are any additional chemotherapies or radiation options (he did not get radiation) are…
NOT AGAIN!
Well I got thru the uterine cancer and I'm ready to deal with the Lymphoma then something else turned up today.I got a call back about a mammogram and I must go tomorrow for more testing. I am just about insane right now. This is getting too much to handle. chris
younger brother(47yo) was diagnosed with lymphoma
Unfortunately he avoided going to the doctor for almost a year, according to him, and now he moved in with my family. Just in the last 3 weeks he has gotten visibly weaker and today finally after so many tests he goes to his oncology doctor. I hope it is not too late as he gets out of breath just climbing stairs and most…
I'm a survivor....now what?
Hi everyone! My name is Stephanie and I am a survivor of Hodgkin's lymphoma (2b). After being miserably sick for almost two years, with no real explanation, I was finally diagnosed by an ENT. Although I knew cancer was a possibility from my relentless googling, I don't think anyone is really prepared for that news.…
Rituxan Monotherapy Frontline
I am very interested in talking to someone who has Rituxan monotherapy as their initial treatment for Non Hodgkins Follicular Lymphoma. Seems to be working for me. However my therapy for Stage 4 NHFL has been very intense. I had 8 weekly infusions to start vs the more talked about 4. My maintenance is one infusion every 8…
Is it normal to take 6 weeks to get test results
got blood drawn almost 3 weeks ago and still no results on the t cell gene rearangement test. anyone else taken this long to get results, was told it might take 6 weeks to come back
Non Hodgkins Lymphoma VA help for Viet Nam Vets
I just wanted to stick a little note up to let any Viet Nam Vets know that there is help for them via the VA, monitory as well as medically. Unlike folks with other cancers all a Viet Nam Vet has to do was be in the Viet Nam Theater to qualify. You don't have to have set foot on land or prove a date time or place.…
PET results and a forked path
Well, the news wasn't good, and I have failed R-CHOP and the cancer has still grown despite treatment. Though, it is still much smaller than my first PET scan! I'm going to take that as a great sign! Problems. Problems... I have to make a choice now, and it's a bit confounded. Of course, we have to act fast... but there's…
Medicare
Still have insurance from my employer. 65 and signing up for Medicare. Will Medicare pay any of my out of pocket expenses?
Eating right
THIS IS AMAZING INFORMATION ON WHAT FEEDS CANCER, AND WHAT OTHER TREATMENT IS AVAILABLE. PLEASE READ AND PASS ON TO YOUR LOVED ONES. Johns Hopkins Update This is an extremely good article. Everyone should read it. AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE…
SGN 35 setback
Was responding well to treatment. No more signs in neck,kidney,liver ans spleen but Dr says I had a new area show and called it a relapse. Now wait on PET and next step. This hit me hard
PET & Waiting...
I had my PET scan yesterday.. I grilled the poor tech about the results and she had a good poker face. You know they can see things already.. but I know they're not allowed to say. The waiting is killing me.. I seriously need a hobby. One last gripe-- as I leave, the technician says that the results should be ready, at…
Night Sweats
Prior to diagnosis with stage IV grade 2 NHFL my main symptom was fatigue and leg pain. Now I am supposedly in "total response" having finished 9 months of R maintenance. I am starting to show other classic symptoms. 1st is night sweats which are nothing like I expected. I have been waking up at about 4:30 most mornings…
Lisha, where are you?
Dear Lisha, I see you haven't posted for awhile. I do know you do read the posts as often as you can. I don't mean to stress you. I do understand we have another life outside this site. If you can, please just post a hello. That's all I ask. Hugs and thoughts of you dear friend. Love Maggie
r-ice therapy
DOCTORS ARE WANTING MY FATHER IN LAW TO DO THE R-ICE TREATMENT FOR HI NHL BUT HE THINKS THAT THEY TOLD HIM THAT HE ONLY HAS A 1% SURVIVAL RATE IF HE DOES IT. DOES ANYONE KNOW IF THIS IS TRUE? I DONT SEE WHY THE DOCTORS WOULD OFFER A TREATMENT THAT HAS A 99% CHANCE OF KILLING HIM.
Non Hodgkins Lymphoma Success
I am in a doctor's lobby waiting for my appointment so can't go into all the details of my history with non hodgkins lymphoma but the main point is one of hope. I am a 20 year cancer survivor having had one recurrance which led to a bone marrow transplant 2 years later that saved my life. Today is a new day in cancer…
Phone Call From Pam
Hi, Pamela Bunner from the Babb Cancer Center returned my phone call from yesterday. Woke me up at 6:45 this morning, husband got the call and told her I was still sleeping. I got up and called her right back. She said she has no one meeting the discription of Denise on any of her protacals. All of her patients on this…
r-ice therapy
DOCTORS ARE WANTING MY FATHER IN LAW TO DO THE R-ICE TREATMENT FOR HI NHL BUT HE THINKS THAT THEY TOLD HIM THAT HE ONLY HAS A 1% SURVIVAL RATE IF HE DOES IT. DOES ANYONE KNOW IF THIS IS TRUE? I DONT SEE WHY THE DOCTORS WOULD OFFER A TREATMENT THAT HAS A 99% CHANCE OF KILLING HIM.
Following Denise
Hi all my wonderful peeps, I have not been on this board for a long time. One of those people who just disappears. But I do follow all of you and care about you all. Most of all I am very worried about Denise. And I want to help. I just left a voice mail message with the BMT Patient Co-Ordinator, Pamel Bunner, (304)…
Senator Spector Dies
Senator Arlen Spector died today. He had two separate bouts with HL, and then a brief bout with NHL. I rememered him because my doc told me years ago that his HL was the same strain that I had. He is an example of how lymphoma can morph into differening forms of the disease, usually years later. Of course, we are lucky in…
Where ever you are?
Dear Denise, Where ever you are, my love and thoughts are filled with you. Love Maggie
Called the hospital...
Hi guys, I called the hospital where Denise had her SCT and was told without having Denise's last name they could not help me. I told the admissions clerk the dates Denise was being treated and asked her if she could check those dates for a woman named Denise having a SCT done and she again once again said it's…
Clay and the Dragon
Clay and the Dragon Submitted by Lacynaws on Mon, 10/15/2012 - 8:41am I was diagnosed with Non HODGKIN'S Mantel Cell Lymphoma stage 3 on Friday, October 12. I am waiting for a Bone Marrow Biopsy,to determine weather it is stage 4. I am a lung cancer savior of 5 years. I do not know what to expect and I am scared. I am 70…
R-ICE Not working; auto transplant postponed :(
My husband got his PET scan results today and it showed significant increase in activity. I was a bit surprised because his PET scan 4 weeks ago showed a significant decrease. He was scheduled to auto transplant tomorrow but that's postponed (that's the word I'm using). He is in the hospital and getting a new chemo which I…
Advice on upcoming stem cell transplant
I am new to the site and have read through many posts in this thread. Everyone here is so supportive and nice, it seems like a nice place to be. My father was diagnosed in January 2012 with Non-Hodgkins diffuse large B cell lymphoma. Upon diagnosis, it was pretty severe. Stage IV, but negative in bone marrow. Mostly in…
non calcification lymph node
my niece had lymphoma 4 yrs ago, wasn't feeling well and returned to the doctors. Received her results and they told her lymph nodes calcified, except for one 10ml? and will send to specialist... not quite sure what this means!! can someone tell me what a "non"calcification lymph node is? Thank you,
Weekly Checkup
I had my first week checkup with my radiation onc yesterday. I finally got the opportunity to ask him how much bigger it was compared to my scan in June. He said 50%! I have a hard time believing this is slow growing. I am tempted to ask the transplant doc to do a second review of the biopsy to make sure it IS still…
New to lymphoma but not cancer
Hello everyone, I was DX with stage IV lymphoma via bone marrow biopsy with 3% involvement. My PET scan and blood were negative. My doc believes it is fnhl so she is recommending watching and worrying...she says I should not be upset as it is highly treatable but the websites I ahve cruised give me a 10 year expiration…

Lymphoma (Hodgkin and Non-Hodgkin)

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