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PET scan
well tommarrow is my halfway point of 8 treatments of my hodgkins lymphoma stage IIA which i been being treated for. tommarrow i have my halfway point PET scan to see if the treatment is working or not. If the treatment is working i will have 4 more treatments before i get a cancer free where i need no more treatments. if…
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Febrile neutropenia!
Wowee, it is not fun! I was released from the hospital yesterday and so glad to be home. Surprisingly enough, it was actually my first hospital stay as an aware adult! It was also the first time I projectile vomited in front of a stranger :) Sorry to be so graphic.. I just kinda find it funny now in retrospect! No more…
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Back in the chair
Hi y'all, just checking in and saying hi. I'm sitting here lamenting the fact I'm moments from being half way done. I hope everyone is doing well, Sharlene how are you doing? I hope all is going smoothly with your treatments. Ta, how are you? I've been watching but haven't seen a post from you in a while, I hope all is…
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cancer, diabetes and how it affects blood sugars
this chemo really sucks! not only am i a cancer patient of hodgkins lymphmoa but i also have diabetes. the chemo has really messed with my blood sugar levels and now cause me to do insulin where as before cancer and chemo i was able to control my diabetes. now no matter what it is i eat my blood sugars just go crazy. i…
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Question about Rituxan Maintenance and Low Blood Counts
I have Follicular Non Hodgkins Lymphoma. I was treated with Treanda and Rituxan for 6 rounds every 21 days. I am in remission - thank God! Now I am having Rituxan maintenance every 2 months. I had my third treatment Oct 3. My WBC (1.5) and RBC (3.1) HGB (10.8) are low. My platelets are ok. I thought by now my blood counts…
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I AM FINISHED WITH MY 6 ROUNDS!!!
Hi all! I finished my final chemo today!!!!!!!! Bendamustine w/ Ofatumumab!!! Get a CAT scan in a month with a doctors visit to follow. Onc wants to put me on Ofatumumab maintanence for 2 years every other month. Waiting to see how I tolerate the drug this month. Last month I got a lot of side effects during the week after…
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My little princess pictures on expressions page
I downloaded a few pics of my grand daughters visit last week on the expressions page. I will download a few more later. It takes a while to do it as you know. Especially when you have a rough time getting on. John
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Flagging
Has anyone noticed that when a comment is flagged the whole thread goes when it's removed? John
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Hi everyone and a question
I had my last chemo treatment on Feb 22, 2012 and I was wondering why am I still so sluggish on some days. I've had two three-month scans which came back great, blood counts are still off a little. Most days I feel great and have a lot of energy, but when a "bad day" comes along it usually lasts for two or three days. I…
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Treatment Update
Well guys, 3 treatments down, 15 to go. I was having problems stretching out my arm without a pulling pain going up my arm. I am happy to say, this pain is gone. The lump is still visible and feels like it's going down in size a little bit. It is still about the size of a large chocolate easter egg, but it's making…
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Kim- Denise/Scuttlebugs daughter
I sincerely hope that your mom is improving, although not hearing anything is truly scary for us. I just want to let her know that I am thinking of all of you and hope that she is getting better and stronger every day. Please let us know how it's going? Take Care, Beth
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Should I be worried
As I have written in post emails, I have finished (for the moment) with my RChop and rituxtan three weeks ago until I have further tests done this month. The fatigue is really bad and my hips hurt so bad that I have gone back on my pain meds. Had hip pain for several months, but thought it was just old age (65 here). Never…
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ANY SCUTTLEBUG NEWS?
Just wondering if anyone has heard any news concerning Scuttlebug(Denise). The last I heard was she was down with pneumonia after her SCT. Praying and wishing her and her family good results. John
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First Scan since Stem Cell Transplant
As many of you know I had an auto stem cell transplant back in June. Today I head to my first scan since the transplant. I would be lying if I said that im not nervous and anxious. Many of you have been there for me through the procedure and I owe it to you to keep you informed of the results. Thank you all for your loving…
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Thinking of you, Beth
Hi Beth I just wanted to let you know that I am keeping you close in my heart today. I am praying that you will receive some long overdue positive news. Whatever you do find out, I am here for you and I am holding your hand through these difficult days. Huge hugs across the miles and positive healing always (((hugs))) Lisha
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the plan
Well I saw rad doc friday. Did CT and got my tattoos. He said it has grown since scan in June. Start treatment on wed. Not sure exactly how many yet but probably 4 weeks. I will be glad to get it gone. This armpit has been a target for too long. I am praying for miss denise. I hope she gets better soon.
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scuttlebug
Has there been any update?
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SGN35 and GOD
Im on round 6 , technically round 8 but the other two were limited study..anyways. About 5 weeks ago I had a dream or heard a voice tell me that I only have 7 weeks to go and every since then I have been feeling like a champ. If in 2 weeks im told im in remission I will come back and say you heard it hear first. Pray does…
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Looking for other patients experiences with NLPHL
My brother started treatment for IVa NLPHL in December of 2011 He received 6 cycles of r-abvd. Treatment ended in late June, results of pet-scan at that time showed slow growth in the right axillary still. Doctors recommended wait and watch until September, so here we are. Went to the Doctor for yet another pet-scan and…
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VA hospitals and Doctors
My husband is a Vietnam vet and has been going to the VA clinic. He has had favorable tr eatment for normal checkups, a colonoscopy and meds. Since I was diagonised with B cell Non-Hodgkins disease with bone marrow involvement I'm worried that if he was to contact a disease that requires so many treatments and tests if I…
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artimesia annua
A friend of mine had cancer (died of heart attack) and used artimesai annua and claimed it made his tumors go away when he used it and they came back when he didn't. Thats all I know.
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Onc changes gameplan unexpectedly... a good thing?
Yesterday I had R-CHOP chemo 6 of 8... my nerves had certainly got the best of me, and I nearly fainted in the lab.. you know, making a general fool of myself. Well, I saw the oncologist, and he was acting funny.. just nothing felt right about our visit. He upped my chemo doses and sent me off to the infusion center. Next…
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Update for my Mom, Denise
Thank you all for your prayers and kind words. As of right now my mom is still heavily sedated and is on the ventilator. They are getting secretion out of her lungs though, that's good. Also they are talking about trying to stop sedation and pull the tube out and see if she can breathe on her own. The doctors are not…
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Sidelined!!!
Dang!!! Things were going so well until I went for my blood work on Tuesday. Turns out my white blood count is too low and so no chemo yesterday. They will phone me to set up more bloodwork and my next chemo. It plain sucks! So, now I'm home and trying to avoid going out anywhere there might be a crowd.
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Advice/opinion
Just diagnosed with stage 3, low grade follicular lymphoma with clean bone marrow. As of now, the projected plan of treatment is Rituxan. Research is frightening. Any comments/advice from personal or known experience with this infusion drug?
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Has anyone decided not to do Rituxin maintenance?
I just finished radiation and chemo with Rituxin for Non-Hodgkins Lymphoma which presented in my femur and abdomen as well as a large tumor in my groin. My oncologist wants to put me on a maintenance program of Rituxin as well as a bone strengthener for two years, every three months. I am hesitant to do this. Rituxin will…
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Kim..Please keep us up to date
Kim, Please keep us informed about your mom, Denise. She is part of our family here and we all worry about her. John
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PLEASE EVERYONE PRAY FOR MY MOM "SCUTTLEBUG 11" (Denise)
Please everyone pray for my mommy. She had a stem cell transplant done a couple of weeks ago and yesterday she took a turn for the worse. She is currently being intabated for respiatory distress, and she has pneumonia and we all know how bad that is. This is her oldest daughter Kim, and I know prayers work and they tend to…
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Good News after my 3 cycle....MIRACLES DO HAPPEN...
Content removed by administrator. CSN Terms & Conditions for site usage disallow proselythizing.
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scuttlebug..(Denise) How are you??
Hi Denise, We haven't heard how you are doing since last Friday? Did everything go well with getting the stem cells put in. I continue to pray everything is going good for you and hope you've been able to visit with your daughter Amanda. Check in when you feel up to it dear friend. Much love...Sue (FNHL-2-3a-6/10)