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Night Sweats
Prior to diagnosis with stage IV grade 2 NHFL my main symptom was fatigue and leg pain. Now I am supposedly in "total response" having finished 9 months of R maintenance. I am starting to show other classic symptoms. 1st is night sweats which are nothing like I expected. I have been waking up at about 4:30 most mornings…
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Lisha, where are you?
Dear Lisha, I see you haven't posted for awhile. I do know you do read the posts as often as you can. I don't mean to stress you. I do understand we have another life outside this site. If you can, please just post a hello. That's all I ask. Hugs and thoughts of you dear friend. Love Maggie
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r-ice therapy
DOCTORS ARE WANTING MY FATHER IN LAW TO DO THE R-ICE TREATMENT FOR HI NHL BUT HE THINKS THAT THEY TOLD HIM THAT HE ONLY HAS A 1% SURVIVAL RATE IF HE DOES IT. DOES ANYONE KNOW IF THIS IS TRUE? I DONT SEE WHY THE DOCTORS WOULD OFFER A TREATMENT THAT HAS A 99% CHANCE OF KILLING HIM.
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Non Hodgkins Lymphoma Success
I am in a doctor's lobby waiting for my appointment so can't go into all the details of my history with non hodgkins lymphoma but the main point is one of hope. I am a 20 year cancer survivor having had one recurrance which led to a bone marrow transplant 2 years later that saved my life. Today is a new day in cancer…
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Phone Call From Pam
Hi, Pamela Bunner from the Babb Cancer Center returned my phone call from yesterday. Woke me up at 6:45 this morning, husband got the call and told her I was still sleeping. I got up and called her right back. She said she has no one meeting the discription of Denise on any of her protacals. All of her patients on this…
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r-ice therapy
DOCTORS ARE WANTING MY FATHER IN LAW TO DO THE R-ICE TREATMENT FOR HI NHL BUT HE THINKS THAT THEY TOLD HIM THAT HE ONLY HAS A 1% SURVIVAL RATE IF HE DOES IT. DOES ANYONE KNOW IF THIS IS TRUE? I DONT SEE WHY THE DOCTORS WOULD OFFER A TREATMENT THAT HAS A 99% CHANCE OF KILLING HIM.
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Following Denise
Hi all my wonderful peeps, I have not been on this board for a long time. One of those people who just disappears. But I do follow all of you and care about you all. Most of all I am very worried about Denise. And I want to help. I just left a voice mail message with the BMT Patient Co-Ordinator, Pamel Bunner, (304)…
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Senator Spector Dies
Senator Arlen Spector died today. He had two separate bouts with HL, and then a brief bout with NHL. I rememered him because my doc told me years ago that his HL was the same strain that I had. He is an example of how lymphoma can morph into differening forms of the disease, usually years later. Of course, we are lucky in…
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Where ever you are?
Dear Denise, Where ever you are, my love and thoughts are filled with you. Love Maggie
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Called the hospital...
Hi guys, I called the hospital where Denise had her SCT and was told without having Denise's last name they could not help me. I told the admissions clerk the dates Denise was being treated and asked her if she could check those dates for a woman named Denise having a SCT done and she again once again said it's…
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Clay and the Dragon
Clay and the Dragon Submitted by Lacynaws on Mon, 10/15/2012 - 8:41am I was diagnosed with Non HODGKIN'S Mantel Cell Lymphoma stage 3 on Friday, October 12. I am waiting for a Bone Marrow Biopsy,to determine weather it is stage 4. I am a lung cancer savior of 5 years. I do not know what to expect and I am scared. I am 70…
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R-ICE Not working; auto transplant postponed :(
My husband got his PET scan results today and it showed significant increase in activity. I was a bit surprised because his PET scan 4 weeks ago showed a significant decrease. He was scheduled to auto transplant tomorrow but that's postponed (that's the word I'm using). He is in the hospital and getting a new chemo which I…
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Advice on upcoming stem cell transplant
I am new to the site and have read through many posts in this thread. Everyone here is so supportive and nice, it seems like a nice place to be. My father was diagnosed in January 2012 with Non-Hodgkins diffuse large B cell lymphoma. Upon diagnosis, it was pretty severe. Stage IV, but negative in bone marrow. Mostly in…
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non calcification lymph node
my niece had lymphoma 4 yrs ago, wasn't feeling well and returned to the doctors. Received her results and they told her lymph nodes calcified, except for one 10ml? and will send to specialist... not quite sure what this means!! can someone tell me what a "non"calcification lymph node is? Thank you,
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Weekly Checkup
I had my first week checkup with my radiation onc yesterday. I finally got the opportunity to ask him how much bigger it was compared to my scan in June. He said 50%! I have a hard time believing this is slow growing. I am tempted to ask the transplant doc to do a second review of the biopsy to make sure it IS still…
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New to lymphoma but not cancer
Hello everyone, I was DX with stage IV lymphoma via bone marrow biopsy with 3% involvement. My PET scan and blood were negative. My doc believes it is fnhl so she is recommending watching and worrying...she says I should not be upset as it is highly treatable but the websites I ahve cruised give me a 10 year expiration…
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Primary bone lymphoma?
Hi folks, I'm one of those with early symptoms that most likely will turn out to be something benign and simple. I'm also one of those who hasn't felt these symptoms before and am scared. So I wonder if anyone here has any experience with this rare form of lymphoma. It mainly hits men in their 40's from what I've read. I'm…
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Scuttlebug(denise)
Well guys,it has been 11 days and still nothing from Denise or her daughter. Just wish somebody knew how to get in touch with them. That is what makes it so bad when someone does not post for a while. We end up sitting and wondering what is going on with them. Wonder if Greta would help us out with suppling some info in…
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Knee and hip
Dear Lisha and all, It seems after I was dx in late Sept, early Oct 2009 with NHL, so many stupid issues arose. Anyway,I went to see my doctor yesterday for an explanation of the xrays I had last week of my right hip and right knee. As far as the Oxycodone, 15 mg I take 3 times a day, he is not concerned or worried about…
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Maggie is back
Hello to all my old buddies (family) To everyone that is new, I am so sorry You have to be here. My move is complete. Let me tell you, it was one hell of a job. Especially moving from one large house to a smaller house. I did it, and it's over. I don't know where to begin on this site. So much is going on. I signed on with…
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Happy Birthday Lisha
Happy Birthday, Lisha (forme) ! John's granddaughter, Kaite found some birthday frogs for you: Happy Birthday Lisha Big Hugs, Jim
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PET scan
well tommarrow is my halfway point of 8 treatments of my hodgkins lymphoma stage IIA which i been being treated for. tommarrow i have my halfway point PET scan to see if the treatment is working or not. If the treatment is working i will have 4 more treatments before i get a cancer free where i need no more treatments. if…
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Febrile neutropenia!
Wowee, it is not fun! I was released from the hospital yesterday and so glad to be home. Surprisingly enough, it was actually my first hospital stay as an aware adult! It was also the first time I projectile vomited in front of a stranger :) Sorry to be so graphic.. I just kinda find it funny now in retrospect! No more…
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Back in the chair
Hi y'all, just checking in and saying hi. I'm sitting here lamenting the fact I'm moments from being half way done. I hope everyone is doing well, Sharlene how are you doing? I hope all is going smoothly with your treatments. Ta, how are you? I've been watching but haven't seen a post from you in a while, I hope all is…
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cancer, diabetes and how it affects blood sugars
this chemo really sucks! not only am i a cancer patient of hodgkins lymphmoa but i also have diabetes. the chemo has really messed with my blood sugar levels and now cause me to do insulin where as before cancer and chemo i was able to control my diabetes. now no matter what it is i eat my blood sugars just go crazy. i…
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Question about Rituxan Maintenance and Low Blood Counts
I have Follicular Non Hodgkins Lymphoma. I was treated with Treanda and Rituxan for 6 rounds every 21 days. I am in remission - thank God! Now I am having Rituxan maintenance every 2 months. I had my third treatment Oct 3. My WBC (1.5) and RBC (3.1) HGB (10.8) are low. My platelets are ok. I thought by now my blood counts…
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I AM FINISHED WITH MY 6 ROUNDS!!!
Hi all! I finished my final chemo today!!!!!!!! Bendamustine w/ Ofatumumab!!! Get a CAT scan in a month with a doctors visit to follow. Onc wants to put me on Ofatumumab maintanence for 2 years every other month. Waiting to see how I tolerate the drug this month. Last month I got a lot of side effects during the week after…
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My little princess pictures on expressions page
I downloaded a few pics of my grand daughters visit last week on the expressions page. I will download a few more later. It takes a while to do it as you know. Especially when you have a rough time getting on. John
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Flagging
Has anyone noticed that when a comment is flagged the whole thread goes when it's removed? John
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Hi everyone and a question
I had my last chemo treatment on Feb 22, 2012 and I was wondering why am I still so sluggish on some days. I've had two three-month scans which came back great, blood counts are still off a little. Most days I feel great and have a lot of energy, but when a "bad day" comes along it usually lasts for two or three days. I…