Husband's Auto Transplant

Hi guys...my husband is scheduled to start BEAM on Thursday for his auto transplant. I am nervous but excited to have reached this point.

He is still feeling weak from the stem cell collection last week. I hope it is normal that his blood counts have not recovered yet. I know his body has been through a lot. He had a PET scan yesterday and we anxiously (and neverously) await those results.

Any thoughts on what I should expect from those of you that have been through this?

Thanks! Katie

Comments

  • allmost60
    allmost60 Member Posts: 3,178 Member
    Best wishes...
    I haven't been through this, but still wanted to wish you the best of luck with everything your hubby is going through. My prayers for good scan results. Thank you for keeping us informed. Best wishes and love...Sue
    (FNHL-2-3a-6/10)
  • bulldog
    bulldog Member Posts: 7
    Stem Cell Transplant
    Hi, Katie, I had stage 4 Hodgkin's and went through chemo for 10 months leading up the the high dose Beam Chemo. Try not to be too nervous as this procedure has had great success in many cases. I was pretty weak by the time i got to the Beam and transplant, but the doctors and staff kept a very close eye on things throughout the process. It has been almost a year since the transplant and I feel pretty good. I am still building strength and endurance, but in light of the stage of my cancer and how weak i was , it is truly a blessing for me to be in good shape today.
    my last scan showed that the cancer is gone! Praise God!!!
  • jimwins
    jimwins Member Posts: 2,107
    Positive Thoughts :)
    Hi Katie,

    I also haven't been through this but wanted to send
    hugs and positive thoughts your way that everything
    goes better than perfectly!

    Jim
  • KatMat
    KatMat Member Posts: 62
    jimwins said:

    Positive Thoughts :)
    Hi Katie,

    I also haven't been through this but wanted to send
    hugs and positive thoughts your way that everything
    goes better than perfectly!

    Jim

    Thanks for all the good thoughts!
    Thank you everyone for all the good wishes.

    Bulldog - congrats on your good scan!

    I am confident everything will go good. He is at Mayo. I am just worried right now because he is week after stem cell collection. He never really got a chance to recover from his third R-ICE treatment before they started collection. Blood test today to see where his numbers are at.

    Hugs to all of you :)
  • Laura33
    Laura33 Member Posts: 1
    Be Encouraged
    My husband had an Auto Stem Cell Transplant after ICE Chemo. He has been in remission from Stage 4 Lymphoma for almost one year now.
  • KatMat
    KatMat Member Posts: 62
    Laura33 said:

    Be Encouraged
    My husband had an Auto Stem Cell Transplant after ICE Chemo. He has been in remission from Stage 4 Lymphoma for almost one year now.

    Hi Laura
    I am glad your husband is doing well.

    Unfortunately my husband did not go to transplant. The day before he was scheduled his PET scan results came back not good. We are delayed once again. Not sure what is next. Doing whatever we can to investigate all avenues of additional therapy.

    Katie
  • KatMat said:

    Hi Laura
    I am glad your husband is doing well.

    Unfortunately my husband did not go to transplant. The day before he was scheduled his PET scan results came back not good. We are delayed once again. Not sure what is next. Doing whatever we can to investigate all avenues of additional therapy.

    Katie

    delays
    Katie,

    I'm so sorry to hear the news.. I wish there was a hug icon I could send to you!

    I have been hoping you would get good news.. I'm going into salvage chemo soon, and just wanted to thank you so much for sharing your story.

    -Nathan
  • KatMat
    KatMat Member Posts: 62
    unknown said:

    delays
    Katie,

    I'm so sorry to hear the news.. I wish there was a hug icon I could send to you!

    I have been hoping you would get good news.. I'm going into salvage chemo soon, and just wanted to thank you so much for sharing your story.

    -Nathan

    Hug icon
    Someone needs to invent a hug icon. :)

    Nathan, I wish you all the best with your salvage chemo!

    My husband had a really good PET after 2 rounds of R-ICE so we were very optimistic but the PET after the 3rd round showed significant uptake mainly in his spleen. Unfortunately my husband's situation is complicated by the fact that he had CLL which transformed into the lymphoma. Need this lymphoma to get under control and every day I focus all my energies on him to make that happen. The power of the mind right?

    Good luck to you!
    Katie
  • jimwins
    jimwins Member Posts: 2,107
    KatMat said:

    Hug icon
    Someone needs to invent a hug icon. :)

    Nathan, I wish you all the best with your salvage chemo!

    My husband had a really good PET after 2 rounds of R-ICE so we were very optimistic but the PET after the 3rd round showed significant uptake mainly in his spleen. Unfortunately my husband's situation is complicated by the fact that he had CLL which transformed into the lymphoma. Need this lymphoma to get under control and every day I focus all my energies on him to make that happen. The power of the mind right?

    Good luck to you!
    Katie

    Ignore
    Ignore - testing something.

  • allmost60
    allmost60 Member Posts: 3,178 Member
    jimwins said:

    Ignore
    Ignore - testing something.

    testing..
    Hi Jim,
    I bet you were trying to figure out how to put a "hug icon" on here for us...right?
    {{{{{ }}}}} <<Somebody told me this was a symbol for cyber hugs. Sue :)
  • jimwins
    jimwins Member Posts: 2,107
    allmost60 said:

    testing..
    Hi Jim,
    I bet you were trying to figure out how to put a "hug icon" on here for us...right?
    {{{{{ }}}}} <<Somebody told me this was a symbol for cyber hugs. Sue :)</p>

    LOL - yes ;).
    Evidently in

    LOL - yes ;).

    Evidently in the distant past, you could include images on posts here.
    I have figured out a way to do it with ASCII text but it's not as
    "purdee" :).

    ____(```\ .-'""""`-. /```)____
    (____ \_____ / (O O) \ _____/ ____)
    (____ ( ) ) ____)
    (____ _______\ \____/ /_______ ____)
    (______/ `-.____.-' \______)



    ((`'-"``""-'`))
    ) - - (
    / (o _ o) \
    \ ( 0 ) /
    _'-.._'='_..-'_
    /`;#'#'#.-.#'#'#;`\
    \_)) '#' ((_/
    #. .#
    '#. .#'
    / '#. .#' \
    _\ \'#. .#'/ /_
    (((___) '#' (___)))



  • KatMat
    KatMat Member Posts: 62
    jimwins said:

    LOL - yes ;).
    Evidently in

    LOL - yes ;).

    Evidently in the distant past, you could include images on posts here.
    I have figured out a way to do it with ASCII text but it's not as
    "purdee" :).


    ____(```\ .-'""""`-. /```)____
    (____ \_____ / (O O) \ _____/ ____)
    (____ ( ) ) ____)
    (____ _______\ \____/ /_______ ____)
    (______/ `-.____.-' \______)



    ((`'-"``""-'`))
    ) - - (
    / (o _ o) \
    \ ( 0 ) /
    _'-.._'='_..-'_
    /`;#'#'#.-.#'#'#;`\
    \_)) '#' ((_/
    #. .#
    '#. .#'
    / '#. .#' \
    _\ \'#. .#'/ /_
    (((___) '#' (___)))



    Very impressive
    That is very impressive Jim. Made me smile :)
  • jimwins
    jimwins Member Posts: 2,107
    KatMat said:

    Very impressive
    That is very impressive Jim. Made me smile :)

    Thanks
    Thanks :). Smiles and laughs are always good.

    I found these on the web so I didn't design them
    though I'm sure I painstakingly could. I did have to put
    a code in there to make it go to plain text around
    the item - otherwise the characters don't line up.

    _
    \`"-.
    ) _`-.
    , : `. \
    : _ ' \
    ; *` _. `--._
    `-.-' `-.
    | ` `.
    :. . \
    | \ . : .-' .
    : )-.; ; / :
    : ; | : : ;-.
    ; / : |`-: _ `- )
    ,-' / ,-' ; .-`- .' `--'
    `--' `---' `---'


    Hugs,

    Jim
  • miss maggie
    miss maggie Member Posts: 929
    jimwins said:

    LOL - yes ;).
    Evidently in

    LOL - yes ;).

    Evidently in the distant past, you could include images on posts here.
    I have figured out a way to do it with ASCII text but it's not as
    "purdee" :).


    ____(```\ .-'""""`-. /```)____
    (____ \_____ / (O O) \ _____/ ____)
    (____ ( ) ) ____)
    (____ _______\ \____/ /_______ ____)
    (______/ `-.____.-' \______)



    ((`'-"``""-'`))
    ) - - (
    / (o _ o) \
    \ ( 0 ) /
    _'-.._'='_..-'_
    /`;#'#'#.-.#'#'#;`\
    \_)) '#' ((_/
    #. .#
    '#. .#'
    / '#. .#' \
    _\ \'#. .#'/ /_
    (((___) '#' (___)))



    amazing
    Dear Jim, or should I call you Jimmy.

    The name Jimmy makes me think of a child. That's you. Bad boy in class, instead of listening to the teacher, scribbling notes and passing them on. Bad Boy.

    Stay well and childish please. Hugs from Maggie
  • jimwins
    jimwins Member Posts: 2,107

    amazing
    Dear Jim, or should I call you Jimmy.

    The name Jimmy makes me think of a child. That's you. Bad boy in class, instead of listening to the teacher, scribbling notes and passing them on. Bad Boy.

    Stay well and childish please. Hugs from Maggie

    Zoink!
    Call me anything but late for dinner, Maggie :).

    Actually I've been called "Jimmy", "Jimbo" and other not
    so cute names in the past ;).

    Actually, I was the nice kid in class most of the time.
    Though I did beat up a bully once in elementary school because
    he hit a girl on the school bus. I did it in his front yard
    and when I explained to his mom what he did, she said "It's about
    time". Sad but true... I think I was in 3rd or 4th grade?
    Before you picture me with "gilded cherub wings", I did go through
    a period when I delightfully tormented my sisters and was quite a devil.

    I've always been a kid - don't think there's anything wrong with that.
    All the kids in my family love me for that and the ones who are grown now
    remember some of the things we did when they were little.

    I still like to watch cartoons on occasion - should I be embarrassed?

    Zoink!
    (smiles)

    Jim