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My biopsy results
I wish I could have news but I dont! My doctor called me and told me that the results came back that he got more muscle cells then he got lymph node cells. So now I have to get another biopsy and do it ALL OVER AGAIN! He felt terrible I could tell but I just cannot believe this. I have to wait a week or two because I have…
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Results
so i just wanted to let you all know thank you all for the kind words and the best support possible i really needed it it helped me so much. You really are all great ppl and i wish you all the best in the world your all in my thoughts and prayers. And to the ppl that are going through the biopsy process and waiting your in…
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New
I'm so sorry my message showed up three times. I had trouble figuring it out.
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Nadir
I had blood work done today and it confirmed what I already knew--I am in my nadir. (I hope this will be the last time). My white blood cell count is less than 1.0, my hemoglobin is 8.6 and my absolute neutrophils are 156 indicating severe neutropenia and high risk for infection. Now I am where I need to be. Home. Away…
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Hello from New Member
Hello all. I joined this site this afternoon, completed most of my "about me" profile, and have spent some time aquainting myself with the site and with some of you. I was diagnosed with Follicular B-cell Non-Hodgkin Lymphoma, Grade 3A late last summer. I've had 8 sessions of R-chop chemo and have been in remission for…
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Any tricks to get rid of NAUSEA ? please help.
PHENERGAN 25MG , ATIVAN 1MG, METOCLOPRAMIDE 10MG, and ZOFRAN. No effect what so ever except put me to sleep. I am sick and Tired of feeling nauseated at all time day and night without end. Anyone have the same issue ?.
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Had my biopsy!!
man i feel like crap i guess it took them forever to get me to sleep so they had to use alot of meds to knock me out. I hurt im still numb in the area but im starting to feel a lil discomfort but at least they are out and i will find out whats wrong next week. So now just play the waiting game till next week and hopefully…
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Jceleste
Wondering how things are...
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Remission? Great! Back to Work?
Good Afternoon Everyone!! I received my 3rd clean scan in a row! The doctors now tell me that I am in remission. I had an Allogeneic stem cell tranplant on July 1, 2011. The lymphoma returned. The cancer doctors activated my Graft Versus Host Disease and I was sick for most of 2012. Now I am in remission but still on…
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Enlarged Lymph Nodes have a surgical biopsy in 2 weeks!!!
I havent been diagnosed yet with cancer but they found two enlarged lymph nodes on my left side groin. I have to get surgery on the 21 of March and all im doing is worrying cause of what the docs have been telling me that im borderline cause my lymph nodes are 2.3 cm big. Im scared and terrifed cause i dont know what is…
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FNHL in retina
Has anyone ever heard of an instance of follicular lymphoma behind the retina? I understand it is rare but does sometimes happens. Most retinal lymphomas are large b-cell type. In any case it is very serious as the inside of the eye is part of the central nervous system protected by the blood brain barrier. This means…
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Retuxan
It's been a while since I posted...my husband is over half way done with his 2 years maintenance treatments of Retuxan infusions. I have a few questions... Does any one who is getting Retuxan have any side effects such as nerves stomach and cloudy head feeling... just feeling really crappy and irritable. Also does anyone…
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Should Retuxan be added to my ABVD treatment ?
I have NLPHD , and my DR did not recommend adding Retuxan to the treatment . It seems this kind of lymphoma is highly relapsing compare to other HD, I am afraid that it will relapse if I didn't take Retuxan. Per my Oncologist "steam cell Transplant is the second line of defense if it relapse", please advise.
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High blood sugar with ABVD, Happen to anyone.
After my 3rd ABVD, my blood sugar shot up to 315. My family Dr putt me on type2 diabetes medcation. did it happen to anyone, will I be dependent on the diabetic medication after the chemo is over.
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Not so good scan report
Hi all, The Pet Scan showed a little progression of the cancer rather than a reduction after the 2 inpatient R-ICE treatments. I have a very aggressive lymphoma that is persistent and tenacious, and not responding to treatment the way we need it to for me to get better. I told my doc that after all it is made up of my…
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Good scan report
My scan came back positive and the doc says I'm back in remission. For anyone reading this who didn't see my earlier post I was diagnosed with Stage 3 Follicular NHL back in 2004, did eight rounds of CHOP-R and was in remission for seven years. Found out the FNHL was back last October and did a different treatment using…
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Some sad news
Hi Everyone, I got an email from Emily (Epicc) yesterday and her mother passed away on Saturday morning. She asked me if I would let you know. She is busy with her dad making arrangements for the wake and very emotional as you can imagine. I know she will be getting back to the posts and really needs some of your wonderful…
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surgical biopsy this week!!!
cant beleive this week is my surgery im getting so nervous now cause i just want to get it over and done with so i can find out whats gonna happen next. I had a pretty good weekend me and my son went out n had some fun together and took lots of great picture moments. Hes such a great boy he really makes me smile and he…
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just diagnosed
Hi, I'm new to this site, and hope that someone might can help. My mom has recently been diagnosed with non-hodgkins. It appears to be in an advanced stage. She will begin treatment (chemo) in about six weeks. (she just had surgery, so must recover from that before beginning chemo). If anyone else has had this type, I…
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Not so good news from the Doctor
Hey guys! So I basically had to bug the Cancer Center to give me results from my MRI it was rather annoying. I should be able to recieve those results fairly quick. But i did recieve a call from my Doctor today. Saying that the mass on my left lymph node grew from a 1.5cm to a 3.4cm, and the new lump they found on my right…
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How are you, Sue?
Hi Sue, Just wanted to let you know I was thinking about you and hoping you are feeling okay. I read that you have good pain meds, so hopefully they are doing their job. Pain is so exhausting. I wish you a speedy and easy recovery. Gentle hugs full of love, Lisha
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Mixed feelings now that my treatments are done.
After over two and a half years of going for radiation, r-chop and rituxan maintanence it feels strange to have no more treatments planned. I did get a good pet-scan in January so that is good news. I really have nothing to complain about and yet I feel unsure of what happens next. I was just curious if anybody else in…
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CALLIN' VINNY !!!!...CALLIN' VINNY !!!!
COME ON !!!!... WE MISS YA' WHERE YO' BE !!!!!
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Aggravated
I have had alot of time to reconsider the biopsy. And I finally decided to just get it removed instead. So I called the cancer center and asked questions. Left 2 voicemails. Never got a response back! I am really getting depressed. I feel worthless at this point. Even when I want to change something or have questions they…
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Going home!
After 22 days in the hospital, today is the day-- I am being released back to the wild! Having a stem cell transplant has to be one of the most confusing & scary, yet uplifting things I have yet to experience in my life. Every last person that I have worked with here has overwhelmed me with kindness and help-- they have…
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Hiccups after r-ABVD
Is it just me or has any other had trouble with this. I had my first chemo on the 14 started hiccuping on and off and can't get it to stop.
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The lumps in my nodes
Around October I found a lump in my left breast. I did get it drained, my doctor said it was from all the caffeine I drink. So I cut back and haven't had a problem? Is there a chance that's what is wrong with my neck?
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Depression
My mom has been in the hospital for the past 3 weeks. She was admitted with a blood infection and her blood pressure dropped very low. She was in ICU for a few days then back on the cancer floor. A few days after she was back in the Icu. The antibiotics she was on caused some problems with breathing and kidneys. She is now…
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News from my Dr appt Monday
Hey everyone! So my Doctor ended up finding another lump in my lymph nodes on the right side of my neck! :( So now he chose to go the next step up and get me an MRI, I had a CT scan on the 15 of Feb but it didn't come out the best because I am allergic to the dye in the contrast they give you. So I wasn't able to use that.…
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The Latest
Im back from doc appt, no need for transfusion at this time , im officially anemic, platelets are up a bit so she will see me in 2 weeks, she said if anything changes, or i dont feel "right" call her ASAP, she wont do any scans for another 2 months, she wants cell counts up before i can have a scan, was hoping to have one…