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Lymphoma (Hodgkin and Non-Hodgkin)

4th stage lymphoma cancer can be defeated
This week I visited my oncologist after taking several blood samples and was thrilled to see the results - all levels back to the normal range-it's been a year in remission-only having to have my port flushed every two months and oncologist visit every three months with blood tests. I want to encouage everyone to stay…
I'm Curious
I had/have large B cell NHL, found when it was a large mass in my lung. I had 6 treatments of R-CHOP last fall. Now, I am simply stable. The last PET scan 4 months ago still showed some activity, but no growth. The doctor has never used the word remission, and every time I walk into his office and report that I am feeling…
thirty year survivor now having medical issues--tell me I'm not alone
I had Hodgkins in 1980 as a senior in high school at age 17. With all the advancement in treatment I almost feel like I had Hodgkins in the stone ages now. I am now 47 with a wonderful family. My chest and neck were radiated. Five years ago I was told that I had pulmonary fibrosis(scar tissuein my lungs) probably from the…
First Post
Shortly after my dx I found this site and have been reading for a couple of months. There is no finer group of people than those at this site that give of their time to advise, comfort, and support ones just begining this journey. I cant thank you enough! While new to this site, my fight with cancer started in a different…
4th round of chemo tues May 7th
hello!!!! My 4th round is coming tues May 7th. I'm a little nervous because my food selection has become less and less. I try to eat but its hard to tolerate at times. I'm afraid it might get worse? eek Im good and positive!!! Cindy : )
Scan results...
Hi Guys, I went in to my PCP today for a folllow up visit regarding this darn sinus infection..(which I still have ) and he said he got the results of my CT scan in the mail today. Are you ready? "NO EVIDENCE OF RECURRENT OR PROGRESSIVE LYMPHOMA"!!!!! I am in REMISSION! Finally! I go in to my Onc on Friday the 19th for a…
Orbital cancer
I had stage 4 NHL with bone marrow involvement a little over a year ago. It was also found in the left orbit. I had surgery on my orbit. Went through chemo and radiation. My last scans in late Feb. came back negative. But I've been experiencing problems with my left eye again. Pressure, a blurry spot and some swelling…
SLL/CLL new diagnosis please help me with info
Hi My name is Anna. I am a 39 year old mommy and teacher to 3 little boys. I have recently been diagnosed withNon H Small lymphocitic lymphoma stage 4. I have swolleny lymphnodes and it is 30 % in my bone marrow. I have gone to 2 oncologist. The first one says treat with RCHOP the second one at Cedars Sinai says to watch…
Return of B Cell NH Lymphoma 18 months after stem cell transplant.
Has anyone else out there had stem cell and then had the cancer to return? I am 18 months out from stem cell and now the NH Lymphoma is back and I have had two treatments of Treanda and one of Rytuxin. I am curious as to the side effects. Has anyone had the Treanda and Rytuxin treatment?
Nathan how are you and your family?
Thinking of you all...
fatigue
I am new to this site looking for answers. I am a 65 year old male and live on the Mississippi Gulf Coast . For the past 12 years I have suffered with what I call chronic fatigue. I was diagnosed with b cell non Hodghikns Lymphoma stage 4 in Jan. 2010. I went to MD Anderson for treatment with r chop and what the nurses…
Low Iron
My six-month lab work all came back great, with no indications of cancer. I am nearly four years out from treatment now. But, my iron (HGB) is low. I am getting a colonoscopy next week, but have had no signs of G.I. disease. It may be from the amount of Tums and asprin that I eat all day long. I am not worried, but would…
Day #1 off 100mg Prednisone
Well folks....Sue warned me....Day #1 off the 100mg of prednisone and I fell asleep in a box at work...lol....Thats right, sat down to rest for a minute and literally fell into the box and fell asleep. Oh well, I didn't feel much like working yesterday anyway . I hope you all can find as much humor in this as I did. xxxooo
NLPHL 50-60 % shrunk afer 4th treatyement PET scan.
My lymphoma shrunk 50-60 after after 4th treatment, Well I guess it's good news that ABVD is working as expected. Yesterday was my 6th treatment. I remember my first one once I said (1 down and 11 Togo :) . My oncologist told me I am going to have a CT scan after the 8th one but not a PET scan (don't you think that PET…
entertaining lil story_read at your own risk*
Well my fellow Lymphocytes...I embarked on a weekend getaway with the girls, sponsored by a random stranger Sit around the campfire while I tell this one...Ok so this random act of kindness complete stranger offered his vacation home on a quaint little lake in Traverse City, Mi for myself and whomever could join me..(sorry…
T-Cell Lymphoma presentation
Here is a presentation on T-Cell Lymphomas that occurred at the North American Educational Forum on Lymphoma in California in November, 2012. The presenter is Dr. Andrei Shustov of the Fred Hutchinson Cancer Research Center in Seattle. The audience was a patient group, so some of the information is quite basic. However,…
Peripheral T-Cell Lymphoma, not otherwise specified (involving bone marrow w/ cytotoxic phenotype)
Finally, we got the doctors final note from the Mayo Clinic and Kyle is a member of the PTCL-NOS family. To be quite honest, I am feeling really down and depressed today. It started with me waking up and wanting to work out. That turned into me excersing in rage and screaming out of anger, "@$#$^@#$@ CANCER!" All the most…
Elevated WBC anyone experienced prior to diagnosis?
I was wondering if high WBC values are of anything to worry about. The nurse who gave me the results stated you must have been fightiing of an infection our response was am I fighting an infection each time... WBC values have been 11, 18, 13 basically ranging all over 11-18... Thank you
Restasis for Dry Eyes
I went for a routine checkup with my eye doctor last week. He wrote me an Rx for Restasis for the dry eye problem I didn't even know I had?? First of all, I am skeptical of any drug that advertises on TV. Secondly, why did the doc give this drug for a non-existent problem. Or at least ask me about symptoms I may be having.…
third chemo tomorrow April 16th
Hi Everyone! Tomorrow is my third chemo. Also, right before chemo I see my Dr. to find out the results of my CT scan to see if the Chemo is working. Let's hope it is!!! Last night I had my first nausea with chemo. Does anyone have a reaction to some foods such as it makes you nauseated? That you maybe didn't have before?…
It has been a while since i was here last
Hi it has been a while since i was here last, i was first diagnosed in 2008 with FNHL, did RCHOP, and maintence chemo until Oct 2010, was diagnosed again this past August, and just finished 2 sessions of retuxan, and also an infusion of Zevalin last Tuesday 1-15.I didnt quite make 2 yr remission, so i will be monitored…
New; CD8 (Cytotoxic) T-Cell Lymphoma
Well, the title says it all. Kyle has been diagnosed with CD8 T-Cell Lymphoma. In which, I am finding it hard to find information on this type of lymphoma because I do not think it is the correct diagnosis name. I think it actually is something along the lines of Cutaneous T-Cell Lymphoma. So I am awaiting the doctor's…
Doc visit update
Hello dearhearts I spent an hour and a half with the doc today going over everything and then some. Sometimes it just feels never ending. The labs were a mix of some really great values and some maybe worrisome ones. The basic stuff like cholesterol and glucose were fantastic, doc called them perfect. yeah! White count is…
Checking in
Hello dearhearts, I know that I've been MIA lately, but I have tried to follow your posts. Lots of newbies, A big welcome to you all. Many of you know that we lost a dear family friend about six weeks ago. Well we had another loss the first week in April. Our business was being run by a close friend, who passed away. It…
Anyone familiar with or been treated with R-IVAC?
Hi.. I'm a 42 yo diagnosed with a high grade "double hit" lymphoma in July 2012: it is considered one of the most aggressive sub classes of DLBCL with an add'l mutation characteristic of BL. I've completed six cycles of DA R-EPOCH. I've seen four oncologists, including three specializing in lymphoma. My primary onc…
the waiting game
It hit me hard with constant changing symptoms, that have now calmed down. The doctor is sending me for a ebus' after a ct scan showed exstensive mediasternal lymph node reaching into the upper right lung. She suspects lymphoma but says it could also be a malignancy. She has not offered any hope of anything else and says…
Lymph Nodes in Groin
Can anyone (female) describe to me what pain you feel when your nodes in your groin enlarge?
hipercaptation at cavum scan
Hi everyone! I got my results, hodkin in remission!! thats the good news! no more chemo! but they also found something in my cavum ( the inner part that communicates the nose with the throat) they think its not cancer, maybe an inflammatory issue, Im going to the doctor this monday and see... anyone had something similar?…
How about funny time
I found this online it made me cry Laughing. My girl friend did not find it funny. "When all my hair fell out, I woke up to my husband staring at my head with a frightened expression on his face. “I think you better look in the mirror,” he said. I leapt out of bed, ran to the dressing table mirror and burst out laughing…
20 somethings for Hodgkins survivors
Hello. I am 23 and had Hodgkins when I was 19. I am looking to connect and chat with others in there 20's about any difficulties they have had( from long term effects) etc... Thanks

Lymphoma (Hodgkin and Non-Hodgkin)

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