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Coming back
Hello everyone, I used to post in here when newly diagnosed with FNHL as a way to express my feelings and find out about this disease. I was first diagnosed in Oct of 2009 and went thru RCHOP in 2010 following a two year Ritux treatments in January of 2011. All the test concluded that I was back in remission and no signs…
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CCG-550 Protocol
I was diagnoised with NHL at the age of 17 in 1982. I was told at the time this protocol was the only chance I had of survivoral. The long term effects have been one thing after another. It started with lung problems such as fibrosis and 7 pneumothoraxes. The tumor was growing around my heart and covered my entire chest. I…
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CT Scan tomorrow!
Hey everyone, sorry I haven't been posting a lot but I have been checking in often to see how you're all doing & I've been praying for everyone here! Just wanted to let you guys know that the doctor moved my CT from June 10th to tomorrow morning. I have 4 more enlarged nodes that popped up in the past 10 days that I can…
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thinking about everyone
hi all i just wanted to check in and say the last 2 rounds have kicked my butt with low white blood counts and having to give myself shots. most of the last week i was very tired but i took my dads camper to the lake that is near my house. two nights of camp fires and fishing when i could or just i great view out the…
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Primary Mediastinal Large B Cell Lymphoma
I was diagnosed in July of 2012 with Primary mediastinal large b cell lymphoma. I am 46yrs old and female otherwise very healthy. I am being treated with DA R-Epoch and I'm wondering who else might be out there dealing with the same diagnosis and or is a survivor of this sub-type of large b-cell. I would love to connect…
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1st Rituxan Maint. Done
My first Rituxan maintenance that I was fretting about so much is behind me. I got many smiles and warm hugs at the clinic and that was really nice. I had some errands today and that was tough--but I did it and that makes me happy. I was away from home for about 4 hours, went 5 different places, and now I am tired!…
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Hiatal Hernia Repair
Hi, I am a long term survivor of Hodgkins with full mantle radiation in the 1990s. I have severe acid reflux caused by a hiatal hernia and surgery is recommended for repair. This problem started before I got sick but the radiation made it worse. I am wondering if any long term survivors have undergone this surgery. The…
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NHL types and sub-types
I have been on this site for 3 years now. When I first started posting there were no ways as many types and sub-types of NHL as there are today. It seems they are constantly adding to the list. Does anyone out there know about how many types and sub-types are being treated today? Thanks
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NHL types and sub-ytpes
I have been on this site for 3 years now. When I first started posting there were no ways as many types and sub-types of NHL as there are today. It seems they are constantly adding to the list. Does anyone out there know about how many types and sub-types are being treated today? Thanks
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Extranodal marginal Zone Lymphoma on the roof of mouth
Hi all, my story short version - I was told my very "insignificant" cancer was kind of rare. I was wondering if anyone else had this in a similar location (mouth). In August of 2012 I had a lump about the size of a nickel in diameter appear on the roof of my mouth. It was strange but I just thought it was one of those…
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How I deal with Prednisone
Hi Everyone.... I have DLBCL, 2nd stage, and had my first R-CHOP cocktail 4 days ago. I've been on 100 mg of Prednisone 5 days before & 5 days after, then I go to 50mg till the next treatment. I don't think I'm a highly sensitive person to drugs, so that's of help to me, but those dosages can really rev you up. I hold my…
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Neuropathy,Muscle,Joint and Nerve Pain Severe W/Autoimmune disorders AFTER Chemo?
New Here! NHL Indolent Follicular 3rd Stage(docs keep sayin THE ONE YOU WANT TO HAVE...NOT!) First Chemo Nov.2012 Bendamustine/Rituximab Severe Reactions severe pain at injection site,unable to use limbs,in wheel chair as one day I could nt walk! Doctors baffled?Me? TERRIFIED. Stopped Treatment Until March.2013 Able to…
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Cataracts
I went to the eye doc this week, and discovered that I have developed cataracts in both eyes. The doctor said they will probably need surgery within two years or so. The doctor noted where I listed lymphoma on my medical history, and asked if I had received steroids. I said "no," since r-abvd does not include a steroid,…
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How are you doing Maggie?
Hi Maggie, I've been thinking about you quite a bit lately and wondering how you are doing since your hip surgery. Hope everything is going great and you are out dancing, hiking, or kicking up your heels because you feel so wonderful! Check in soon and let us know you are ok! We miss you! Much love...Sue…
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I'm LOST
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Anxiety--1st Rituxan Maintanence Thurs. 3/16
I keep telling myself not to worry. Everything will be just fine. I have had Rituxan 8 times already. It is no big deal. They keep telling me there will be no side-effects. It hasn't bothered me before--or has it? I really don't know because I was taking it along with 4 other drugs. Which one caused what? I CAN. NOT. make…
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Bumpy Is GONE!!!
hey friends good news, last week my port a cath AKA bumby has been removed!!! no longer having that ugly attatchment located in my upper chest. thank you all for your prayer and love coach mike
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Checking In
Hey All, Just checking in to see how everyone is doing...I have been M.I.A., working on a top secret mission as Jim put it...lol Just had my 2nd Chemo on thursday and am still feeling great <----BLESSED!! I hope this finds you all feeling well both physically and emotionally, I have learned that this ugly lil disease can…
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Good News
NO LYMPHOMA in the brain. Man it was such a relief to hear the doc say that. Thank you all for the best wishes and prayers. I feel its a more manageable fight now. My best wishes and prayers are with you all. Mark
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t cell lymphoma nos - ptcl
Hi have recently been diagnosed with PTCL nos, keen to hear from any other survivors with this rare diagnosis. many thanks jason
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Jaw Pain
Just wondering if anyone else has had this strange side effect of chemo....I have been having jaw pain, almost like I can't eat at first...major jaw watering like I ate something really sour. carie
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Relapsed B cell Non hodgkins Lymphoma
Hello, I am new to the forum having not posted previously. My husband (39 yrs at diagnosis) was diagnosed with Stage 4B DLBCL Non-Hodgkins in May 2012. He underwent 6 rounds of RChop with 2 additinal rounds of rituximab and 4 x IT meths (as a prophalactic because he was high risk of a relapse and also CD5+). He achieved…
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I NEED HELP!!
Hi, I'm a gay man and have been involved with a married man (common law) for a few years. He has several young teen aged children and lives with his girl as a family. He claimed to be in a loveless relationship and I've always had commitment issues so our connection seemed like a "win-win." Eventually our feelings grew out…
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Happy Mother's Day
Happy Mother's Day to all the mothers, grandmothers and greatgrandmothers. Have a wonderful day. Huge hugs Lisha
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4th stage lymphoma cancer can be defeated
This week I visited my oncologist after taking several blood samples and was thrilled to see the results - all levels back to the normal range-it's been a year in remission-only having to have my port flushed every two months and oncologist visit every three months with blood tests. I want to encouage everyone to stay…
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I'm Curious
I had/have large B cell NHL, found when it was a large mass in my lung. I had 6 treatments of R-CHOP last fall. Now, I am simply stable. The last PET scan 4 months ago still showed some activity, but no growth. The doctor has never used the word remission, and every time I walk into his office and report that I am feeling…
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thirty year survivor now having medical issues--tell me I'm not alone
I had Hodgkins in 1980 as a senior in high school at age 17. With all the advancement in treatment I almost feel like I had Hodgkins in the stone ages now. I am now 47 with a wonderful family. My chest and neck were radiated. Five years ago I was told that I had pulmonary fibrosis(scar tissuein my lungs) probably from the…
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First Post
Shortly after my dx I found this site and have been reading for a couple of months. There is no finer group of people than those at this site that give of their time to advise, comfort, and support ones just begining this journey. I cant thank you enough! While new to this site, my fight with cancer started in a different…
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4th round of chemo tues May 7th
hello!!!! My 4th round is coming tues May 7th. I'm a little nervous because my food selection has become less and less. I try to eat but its hard to tolerate at times. I'm afraid it might get worse? eek Im good and positive!!! Cindy : )
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Scan results...
Hi Guys, I went in to my PCP today for a folllow up visit regarding this darn sinus infection..(which I still have ) and he said he got the results of my CT scan in the mail today. Are you ready? "NO EVIDENCE OF RECURRENT OR PROGRESSIVE LYMPHOMA"!!!!! I am in REMISSION! Finally! I go in to my Onc on Friday the 19th for a…