-
Extranodal marginal Zone Lymphoma on the roof of mouth
Hi all, my story short version - I was told my very "insignificant" cancer was kind of rare. I was wondering if anyone else had this in a similar location (mouth). In August of 2012 I had a lump about the size of a nickel in diameter appear on the roof of my mouth. It was strange but I just thought it was one of those…
-
How I deal with Prednisone
Hi Everyone.... I have DLBCL, 2nd stage, and had my first R-CHOP cocktail 4 days ago. I've been on 100 mg of Prednisone 5 days before & 5 days after, then I go to 50mg till the next treatment. I don't think I'm a highly sensitive person to drugs, so that's of help to me, but those dosages can really rev you up. I hold my…
-
Neuropathy,Muscle,Joint and Nerve Pain Severe W/Autoimmune disorders AFTER Chemo?
New Here! NHL Indolent Follicular 3rd Stage(docs keep sayin THE ONE YOU WANT TO HAVE...NOT!) First Chemo Nov.2012 Bendamustine/Rituximab Severe Reactions severe pain at injection site,unable to use limbs,in wheel chair as one day I could nt walk! Doctors baffled?Me? TERRIFIED. Stopped Treatment Until March.2013 Able to…
-
Cataracts
I went to the eye doc this week, and discovered that I have developed cataracts in both eyes. The doctor said they will probably need surgery within two years or so. The doctor noted where I listed lymphoma on my medical history, and asked if I had received steroids. I said "no," since r-abvd does not include a steroid,…
-
How are you doing Maggie?
Hi Maggie, I've been thinking about you quite a bit lately and wondering how you are doing since your hip surgery. Hope everything is going great and you are out dancing, hiking, or kicking up your heels because you feel so wonderful! Check in soon and let us know you are ok! We miss you! Much love...Sue…
-
I'm LOST
-
Anxiety--1st Rituxan Maintanence Thurs. 3/16
I keep telling myself not to worry. Everything will be just fine. I have had Rituxan 8 times already. It is no big deal. They keep telling me there will be no side-effects. It hasn't bothered me before--or has it? I really don't know because I was taking it along with 4 other drugs. Which one caused what? I CAN. NOT. make…
-
Bumpy Is GONE!!!
hey friends good news, last week my port a cath AKA bumby has been removed!!! no longer having that ugly attatchment located in my upper chest. thank you all for your prayer and love coach mike
-
Checking In
Hey All, Just checking in to see how everyone is doing...I have been M.I.A., working on a top secret mission as Jim put it...lol Just had my 2nd Chemo on thursday and am still feeling great <----BLESSED!! I hope this finds you all feeling well both physically and emotionally, I have learned that this ugly lil disease can…
-
Good News
NO LYMPHOMA in the brain. Man it was such a relief to hear the doc say that. Thank you all for the best wishes and prayers. I feel its a more manageable fight now. My best wishes and prayers are with you all. Mark
-
t cell lymphoma nos - ptcl
Hi have recently been diagnosed with PTCL nos, keen to hear from any other survivors with this rare diagnosis. many thanks jason
-
Jaw Pain
Just wondering if anyone else has had this strange side effect of chemo....I have been having jaw pain, almost like I can't eat at first...major jaw watering like I ate something really sour. carie
-
Relapsed B cell Non hodgkins Lymphoma
Hello, I am new to the forum having not posted previously. My husband (39 yrs at diagnosis) was diagnosed with Stage 4B DLBCL Non-Hodgkins in May 2012. He underwent 6 rounds of RChop with 2 additinal rounds of rituximab and 4 x IT meths (as a prophalactic because he was high risk of a relapse and also CD5+). He achieved…
-
I NEED HELP!!
Hi, I'm a gay man and have been involved with a married man (common law) for a few years. He has several young teen aged children and lives with his girl as a family. He claimed to be in a loveless relationship and I've always had commitment issues so our connection seemed like a "win-win." Eventually our feelings grew out…
-
Happy Mother's Day
Happy Mother's Day to all the mothers, grandmothers and greatgrandmothers. Have a wonderful day. Huge hugs Lisha
-
4th stage lymphoma cancer can be defeated
This week I visited my oncologist after taking several blood samples and was thrilled to see the results - all levels back to the normal range-it's been a year in remission-only having to have my port flushed every two months and oncologist visit every three months with blood tests. I want to encouage everyone to stay…
-
I'm Curious
I had/have large B cell NHL, found when it was a large mass in my lung. I had 6 treatments of R-CHOP last fall. Now, I am simply stable. The last PET scan 4 months ago still showed some activity, but no growth. The doctor has never used the word remission, and every time I walk into his office and report that I am feeling…
-
thirty year survivor now having medical issues--tell me I'm not alone
I had Hodgkins in 1980 as a senior in high school at age 17. With all the advancement in treatment I almost feel like I had Hodgkins in the stone ages now. I am now 47 with a wonderful family. My chest and neck were radiated. Five years ago I was told that I had pulmonary fibrosis(scar tissuein my lungs) probably from the…
-
First Post
Shortly after my dx I found this site and have been reading for a couple of months. There is no finer group of people than those at this site that give of their time to advise, comfort, and support ones just begining this journey. I cant thank you enough! While new to this site, my fight with cancer started in a different…
-
4th round of chemo tues May 7th
hello!!!! My 4th round is coming tues May 7th. I'm a little nervous because my food selection has become less and less. I try to eat but its hard to tolerate at times. I'm afraid it might get worse? eek Im good and positive!!! Cindy : )
-
Scan results...
Hi Guys, I went in to my PCP today for a folllow up visit regarding this darn sinus infection..(which I still have ) and he said he got the results of my CT scan in the mail today. Are you ready? "NO EVIDENCE OF RECURRENT OR PROGRESSIVE LYMPHOMA"!!!!! I am in REMISSION! Finally! I go in to my Onc on Friday the 19th for a…
-
Orbital cancer
I had stage 4 NHL with bone marrow involvement a little over a year ago. It was also found in the left orbit. I had surgery on my orbit. Went through chemo and radiation. My last scans in late Feb. came back negative. But I've been experiencing problems with my left eye again. Pressure, a blurry spot and some swelling…
-
SLL/CLL new diagnosis please help me with info
Hi My name is Anna. I am a 39 year old mommy and teacher to 3 little boys. I have recently been diagnosed withNon H Small lymphocitic lymphoma stage 4. I have swolleny lymphnodes and it is 30 % in my bone marrow. I have gone to 2 oncologist. The first one says treat with RCHOP the second one at Cedars Sinai says to watch…
-
Return of B Cell NH Lymphoma 18 months after stem cell transplant.
Has anyone else out there had stem cell and then had the cancer to return? I am 18 months out from stem cell and now the NH Lymphoma is back and I have had two treatments of Treanda and one of Rytuxin. I am curious as to the side effects. Has anyone had the Treanda and Rytuxin treatment?
-
Nathan how are you and your family?
Thinking of you all...
-
fatigue
I am new to this site looking for answers. I am a 65 year old male and live on the Mississippi Gulf Coast . For the past 12 years I have suffered with what I call chronic fatigue. I was diagnosed with b cell non Hodghikns Lymphoma stage 4 in Jan. 2010. I went to MD Anderson for treatment with r chop and what the nurses…
-
Low Iron
My six-month lab work all came back great, with no indications of cancer. I am nearly four years out from treatment now. But, my iron (HGB) is low. I am getting a colonoscopy next week, but have had no signs of G.I. disease. It may be from the amount of Tums and asprin that I eat all day long. I am not worried, but would…
-
Day #1 off 100mg Prednisone
Well folks....Sue warned me....Day #1 off the 100mg of prednisone and I fell asleep in a box at work...lol....Thats right, sat down to rest for a minute and literally fell into the box and fell asleep. Oh well, I didn't feel much like working yesterday anyway . I hope you all can find as much humor in this as I did. xxxooo
-
NLPHL 50-60 % shrunk afer 4th treatyement PET scan.
My lymphoma shrunk 50-60 after after 4th treatment, Well I guess it's good news that ABVD is working as expected. Yesterday was my 6th treatment. I remember my first one once I said (1 down and 11 Togo :) . My oncologist told me I am going to have a CT scan after the 8th one but not a PET scan (don't you think that PET…
-
entertaining lil story_read at your own risk*
Well my fellow Lymphocytes...I embarked on a weekend getaway with the girls, sponsored by a random stranger Sit around the campfire while I tell this one...Ok so this random act of kindness complete stranger offered his vacation home on a quaint little lake in Traverse City, Mi for myself and whomever could join me..(sorry…