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Any survivors of Non-Hodgkin's lymphoma lymphoma out there??
Are any survivors of Non-Hodgkin's lymphoma out there? Anyone from India or Bangladesh?
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Para Aortic Lymph Node Cancer
Hi, My mother had endometroid and serous carcinoma about 6 years back. During hysterectomy pelvis lymph node dissection was done and cancer was found in one of the node. Followed with Chemo (3 week cycle) and Radiation (weekly for 26 weeks). No issues for till 2-3 months back when she started getting slight back pain. When…
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Possible secondary cancer post advanced stage Hodgkins Lymphoma w/ splenectomy. Depressed, worried
Is there a one else who may share a similar concern about my topic? It would be nice to chat w/ someone with same concerns:) I’m
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T-Lymphoid markers positive
Hi Everyone, I am new to this forum. My brother (Age-32) who is in India had a Flow Cytometry test and the T-Lymphoid markers came positive.To be specific CD3,CD5,CD 7 -positive ,CD4,CD8- double positive ,CD 10 is positive The doctor ruled out Leukemia and is suspecting T cell Lymphoma. The CT scan report of the chest also…
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Hair loss and chemo question among other things.
Around the first of the year I was diagnosed with non Hodgkin’s lymphoma. In a few days I will start my 5th treatment. Each treatment is 21 days and I’m scheduled for one more If all goes well. Anyways, around my second treatment I noticed if I even touched my beard or hair that I would see hair coming out. It got so bad…
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Fourth cancer
Pathology report states squamous cell carcinoma. Not a blood cancer, but posted here as fellow blood cancer patients are my second family. Apparently confined to the skin. So an excision and topical chemo (my 21st!) for 2 weeks then watch and wait. At least I'm tapering off. 🙄
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Pet scan not clean
I just received my pet scan on line. It should my lymphoma in my lymph nodes gone. Nbut it shows activity in my sternum w hi hi I haven’t heard before. I had breast cancer 10 years ago and had a bilateral mastectomy and lots of radiation. Did it come back. I’m terrified. gio
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Issues again
6 months ago I started running low grade fevers nightly and a hacking cough. Lost 50 lbs over a 3 month period. I go for a pet scan today. I worked in the printing industry since 1989 and been exposed to that. Back in 2012 my adranline grand was removed for being enlarged. After 4 CT test said postive for cancer and pet…
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Side effects from RCHOP a year after treatment
Hi I'm new to posting but here goes. Last April through July I went through 6 rounds of RCHOP for non Hodgkin's lymphoma. The treatment was effective and as of last scan no active disease present. I'm grateful for that but for several months now I have been dealing with occasional waves of nausea, joint pain that doesn't…
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Update Hodgkin’s Lymphoma
Hi all, I cannot remember how to navigate through this site, as I have not been on here in at least a year. Anywho, for those I had conversations with during my initial diagnosis of Hodgkin’s, and throughout chemotherapy I just want to give an update. I had my most recent PET scan in April after finishing chemo in December…
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Pet scan results
Can some please help me understand my husbands pet scan?
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Why do we still differentiate between Hodgkin's and Non-Hodgkin's?
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How many indolent lymphoma relapses is enough?
My history: Oct 1996: Diagnosed and treated for nodular lymphocyte predominant Hodgkin's lymphoma* in abdomen and pelvis. NED after six cycles of ABVD. June 2018: Diagnosed with NLPHL again, treated with Rituximab. NED Sept 2020: Relapsed, treated with Bendamustine with Rituximab. NED March 2023: Relapsed, treated with…
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When is a bone marrow biopsy necessary?
Dave's bloodwork shows slightly low levels of RBC, hemoglobin, hematocrit, platelets, and monocytes... his WBC dips in and out of low/normal range. His LDH and beta 2 microglobulin and most all the other numbers are within normal range. We are in the process of getting diagnosed right now (retroperitoneal biopsy done…
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Still waiting on my results... terrified
2 months ago i had a ct which showed an 8 cm(3.1 inch) mass in my mediastinum and two other smaller 2 cm lymphoadenopaties ( i assume these are swollen lymph nodes ) I also can feel pea sized lymph nodes under my jaw. I am 31 and been losing a lot of weight in the last few months, i look really skinny now. No real other…
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Large B-cell lymphoma
HI! My dad is 63 years old today, and last week was diagnosed with NHL Large b-cell lymphoma in stage 3-4. He is currently on CHOP and Rituxin. i was just wondering if there was anyone his age that has survived this specific type of lymphoma.....and any advice on how we can get it into remission fast? :) thanks, I'm just…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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funding
hello new to the group. my son in law is in the hospital with burkitt lymphoma cancer. my daughter will be the only one working now. where on the amc website can she look up to get help for herself and him. thank you god bless you all
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Lymphoma (N.H.L ) T cell
Hi everyone My son have 2.5 yers old He have lymphoma non hodgkin T cell on stage4 How Can help me? What is this 😭😭😭
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I need clarification
Dear wonderful people, I am here once again because state health wouldn't assist me. I have taken my mum to the medical unit ever so often and all they do is a full blood count. I had to insist that a private doctor would do a blood test to check out all her organs. Everything else looked fine but her liver has some damage…
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First treatment this week (rCHOP) - And Scared
I thought it might be helpful to post here. I am a 35 year old male with 2 beautiful daughters (3.5 and 1.5 Years old) and a most beautiful wife. I am scared that I wont get to see them grow up. I have a really good disposition on life and I am relatively healthy. I haven't had any symptoms from my Nodular Lymphocyte…
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Boom Boom Radiation Therapy
What a dumb name and I refuse to use it from now on, but has anyone here had this type of low-dose radiation treatment (4Gy/2), presumably for some form of indolent NHL?
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1st time doing Rituxan Infusion tomorrow for Extranodal Marginal B Zone Cell Lymphoma
Hello, I am 31 years old and I was just diagnosed with extranodal marginal zone b cell lymphoma. Noduals were accidently found in my lungs and ended up being cancerous. I am going to start my treatment of rituxan since it is was caught at such an early slow growing stage and I will not have to get chemo. I will be getting…
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MCL Facebook Groups
I have read that there are some very active MCL Facebook groups. I do not have a Facebook account. In your opinion, are the Facebook groups helpful enough to justify creating a Facebook account? Thanks
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Struggling with a parent’s diagnosis
Hello everyone! Never in a million years did I think I’d find myself here. My mom was recently diagnosed with NHL. Chemo is getting ready to begin. My mom lives alone and I’m out of state. She has my sibling and friends local. I am about a 6 hour drive from my mom. I have a home, a husband, pets, and a job. Unfortunately…
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Mantle Cell Lymphoma
Looking for Mantle Cell survivors to talk too
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Splenic marginal zone lymphoma
integrative Medicine for SMZL
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Neulasta or other stimulant injections severe side effects
I am actually writing this from a hospital bed after being admitted 3 days ago for lower back muscle spasms that were so painful and debilitating I could not even stand. I have never had in my life had anything comparable to this pain. And yes that includes childbirth. I had the neulasta single dose injection given 5 days…
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Auto Stem Cell Transplant for MCL
Soon I will have to decide if I want to elect to do an Auto Stem Cell transplant for my Mantle Cell Lymphoma or just Rituxin maintenance. I am interested to hear any stories about your Stem Cell transplant experience and whether or not you would make the same choice. I am also interested in hearing if the ASCT was an…
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Likely.....
Hello friends, old and new.... I was diagnosed with advanced S-3 HL in 2009, and went into complete remission (c.r.) very readily, during or before the end of six months of R-ABVD. It has mostly been worry-free complete remission since, except for a few occurrences of anemia, although some episodes of anemia were serious,…