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Introduction Looking for Support!
Hey all, I am so happy that I have found a site that talks about long term survival, relapse, and support! I am having a bit of a hard time right now, have had a number of health stuff going on. Let me tell you a bit about me I was diagnosed with HD at the age of 13 in 1988 stage III A only symptom was back pain, after…
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So Sorry
Dear Old friends, and the new friends, I am so sorry you have to be here, First let me keep up updated on my NHL. I went to my oncologist for my 6 month visit. My blood work was excellent, and I feel good. I will be having another Pet Ct Scan in July 2013. This will tell the true story. My last CT Pet scan showed…
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Lump is still here, feels bigger
Hey everyone! Things have not changed much at all since I last posted. My doctor thought my mass was nothing to worry about and that it'll go away. It supposedly shrunk from my last ultra sound on my last check up a month ago. Now it feels like it is harder and bigger? Is been three weeks since I last saw the doctor at the…
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The Wedding - Pictures ! additions , and just a few more !
Hi, I put some photos from the wedding on my expression page. They were all taken by various guests. The wedding weekend was wonderful. The wedding turned out better than I ever imagined. All I can say is that it was a grand affair with the most beautiful bride. I'll add more pictures as I get them. Thank you all for your…
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Node swelling in uncommon areas!
just wanted to know if anyone has had any lymph nodes swelling in unusual places? My Dr is glad that I had the CT and that the surgon is on top of things, however he finds it odd that I have lump swelling unusually for glands...given my other sysmptoms it does feel that it could certainly be a lymphoma recurrence but of…
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CT Scan today - other information
I had my CT scan today and I'm happy to report I'm still NED! The oncologist was very encouraged and what a relief! I had scanxiety bad this time. I took Ativan the last two nights so I could sleep. While there I asked him some other questions: SHINGLES VACCINE: Generally he does NOT recommend because: 1. It was not tested…
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Supplement insurance with Social Security
Fairly certain that I won't be returning to work after my NHL. I am 65 so I will have Medicare, but know that I will need additional insurance. Can anyone suggest a good and affordable program? Thanks! Carol
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Long term effects of radiation and bariatric surgery
Hi everyone, I had Hodgkins in 1991 and have been cancer free ever since, although I have had some side effects from therapy that many of you have mentioned here . What I am interested to know is if any of you have had or know of any survivors who have later had bariatric weight reduction surgery. I ask because my surgeon…
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Anything I can do about arm pain 3 weeks after first chemo treatment of Rituxan and Treanda
I am getting ready to do 2nd round in 2 days, I think I will switch arms, still a little nervous about getting a port
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My doctor seems crazy =/
Had a follow up today for my Fav Doctor and he examined my glands on neck and groin his words were ( the glands are too small to be lymphoma ) he gave me some sheet of paper and said he thinks i have Bornholm Disease, due to blood work chest xray and utrasound all coming back fine =/ im more confused then ever he said that…
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First ABVD treatment and throbbing pain in left ARM.
I am having a throbbing pain in my left arm (not Hand). My arm feels warm and the pain comes and ago, it's almost sever to the point I forgot all my symptoms. Does anyone have this kind pain?
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Return to Work
I am so conflicted. I was diagonised with stage 4 NHL with bone marrow involement and orbital cancer. Went through 8 harsh chemo, and 17 radiation treatments. Had my last PET Friday and 4 cat scans the week before. My radialogist told me that my scans looked good and he had a good feeling about my PET. To say the least I…
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My PET scan results
I kept really busy today because my appointment wasn't until 3:30 and I was preparing myself for the worst. The doctor came in and told me they have a scale of 1 to 5, 5 being not so great and one being excellent and that I am a solid ONE!!! Yahoo! I have NED!!!! Absolutely no sign of active disease and the mass in my…
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checking in
Hi everybody. Just thought I'd drop in to say sorry for not posting lately. I am fine but been fighting bronchitis and a horrible cough that I just cannot shake. It's exhausting and by the end of the day after talking on the phone all day I am ready to pass out early. I have a really bad habit of reading in bed and falling…
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Return to Work
I am so conflicted. I was diagonised with stage 4 NHL with bone marrow involement and orbital cancer. Went through 8 harsh chemo, and 17 radiation treatments. Had my last PET Friday and 4 cat scans the week before. My radialogist told me that my scans looked good and he had a good feeling about my PET. To say the least I…
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thanks
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The Latest
Just got home from doc apt, platelets have gone up a bit but red cell count is going down, if it continues going down will need red blood transfusion, will know next week after labs, also doc said i have thrush, lovely, have to take it easy and dont exert myself due to the light headedness i been having. the last…
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To all NLPHL out there, does it relapse for you, Is ST second line of defense?
I am currently been treated for NLPHL on my 1st cycle of ABVD out of 6 cycles. It seems this kind of lymphoma is highly relapsing compare ClassicHL. Should I praise for a relapse . Per my Oncolfist steam cell Transplant is the second line of defense . Appreciate your inputs.
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Had a Biopsy today
I had a byopsy on one of the lymph nodes in my neck today. I went with the needle asperation, but he did it twice to make sure he had a good amount of tissue. I did not expect to be so sore. The proceedure wasn't too bad, just really sore now. Is there anyone else here just waiting to find out whether or not they have…
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tart cherry juice
Hi Yesterday I saw on Dr.Oz that if you have aches and pains ,which I do ,go to the health food store and get tart cherry juice. It has been proven to help the pain. Well I got a quart of Fast Fruit. It is $19.99 a quart but you only mix 2 teaspoons a day in 7 ounces of water. I will let you know how it works. I don't know…
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Auto-Immune disease after R-CHOP 2 years Post
I broke out with Shingles this last weekend. I was in tremendous pain from my right rib area around my back. I didn't know what it was till monday morning when I got out of the shower and looked in the full mirror! My wife was all excited and said, "you have to go see the Doctor, Call him NOW"! I got in next day to see him…
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Husband relapsed post SCT with very aggressive DLBCL
Hi, I am new to the group and wondered if anyone has experienced the above subject matter? Any advice would be appreciated. He will be going in for Rituxin Christmas Eve. You can read my profile for more details. Thanks so much! Kristi
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snafu
I just posted a reply to epicc concerning her mother and when I went back to check it the entire thread was missing. I am sure it will reappear some time or another. I think the site is run by a bunch of Democrats.
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Countdown
Hello Dearhearts, The countdown has begun. In just under 30 hours my beautiful daughter will walk down the aisle on the arm of her dad. Today the weather is beautiful, an early peek of spring. Tomorrow in San Francisco it is supposed to hit 70! The great weather should hold through Saturday night, which is all I care…
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Unsure and very worried!
Hi there first time poster, nice to meet you all, about 4-5 weeks ago i noticed 2 glands ( one either side ) in my neck had swollen up but no pain came from this so i went to doctor and he told me that unless they had been up for 8 weeks or more he didn't care ( the actual words he used ) so i trusted him and kept on going…
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Hola Jim, Emily, and Sue
Thanks for the well wishes, we're having a great time. I'll watch the horizon for our ship, if it comes in, we'll send you tickets........well except for Jim, you'll have to fly yourself, think your shoulder needs more exercise hee hee. Will send pics soon. Bill and Becky
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No change
Saw the doc this past Monday, labs show no change at all, doc said if my counts drop lower another transfusion will be needed, still have to inject with Neupogen ugh, wont be able to have a scan until counts go up so i will try and be patient,still have bruising, looks awful, so on Monday i will have labs again and see if…
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
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Could it be?
hi guys after reading all your posts and stories i have to ask ( and i am sorry for asking ) had swollen hard glands for about 5 weeks now in throat an groin they are hard but the ones in my neck have deffo gone down in size but still rock hard, i have been to the doctors who told me they were nothing to worry about but…
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Anyone heard from Vinny?
I haven't seen posts from Vinny or Beth (dixiegirl) in awhile. I emailed both and heard back from Beth but not Vinny. I don't think he's posted in quite awhile. Thanks - Jim