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Mixed feelings now that my treatments are done.
After over two and a half years of going for radiation, r-chop and rituxan maintanence it feels strange to have no more treatments planned. I did get a good pet-scan in January so that is good news. I really have nothing to complain about and yet I feel unsure of what happens next. I was just curious if anybody else in…
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CALLIN' VINNY !!!!...CALLIN' VINNY !!!!
COME ON !!!!... WE MISS YA' WHERE YO' BE !!!!!
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Aggravated
I have had alot of time to reconsider the biopsy. And I finally decided to just get it removed instead. So I called the cancer center and asked questions. Left 2 voicemails. Never got a response back! I am really getting depressed. I feel worthless at this point. Even when I want to change something or have questions they…
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Going home!
After 22 days in the hospital, today is the day-- I am being released back to the wild! Having a stem cell transplant has to be one of the most confusing & scary, yet uplifting things I have yet to experience in my life. Every last person that I have worked with here has overwhelmed me with kindness and help-- they have…
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Hiccups after r-ABVD
Is it just me or has any other had trouble with this. I had my first chemo on the 14 started hiccuping on and off and can't get it to stop.
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The lumps in my nodes
Around October I found a lump in my left breast. I did get it drained, my doctor said it was from all the caffeine I drink. So I cut back and haven't had a problem? Is there a chance that's what is wrong with my neck?
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Depression
My mom has been in the hospital for the past 3 weeks. She was admitted with a blood infection and her blood pressure dropped very low. She was in ICU for a few days then back on the cancer floor. A few days after she was back in the Icu. The antibiotics she was on caused some problems with breathing and kidneys. She is now…
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News from my Dr appt Monday
Hey everyone! So my Doctor ended up finding another lump in my lymph nodes on the right side of my neck! :( So now he chose to go the next step up and get me an MRI, I had a CT scan on the 15 of Feb but it didn't come out the best because I am allergic to the dye in the contrast they give you. So I wasn't able to use that.…
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The Latest
Im back from doc appt, no need for transfusion at this time , im officially anemic, platelets are up a bit so she will see me in 2 weeks, she said if anything changes, or i dont feel "right" call her ASAP, she wont do any scans for another 2 months, she wants cell counts up before i can have a scan, was hoping to have one…
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Newly Diagnosed
Hello everyone, My name is Ciri, I am 31 years old and I was recently diagnosed with B-Cell Follicular Lymphoma. I am here for support. With hopes that someone who is going through the same thing can help me deal with it all. I have two little girls who are my world, Delcia who turns 8 next week and Ava who is 2. I am…
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Any news from hiccup?
Emailed him but did not get a response, he is quick in responding... Wishing his sct is going well... Please let us know if you read thisMSG...
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Sad sad day
Hi All, Sadness and loss has hit me again. My dear sweet "other" mom has passed from lung cancer. She never smoked, ever. She fought so very hard and tried everything she could. We all thought that she would be okay. She is a second mom to me and the one I turned to this past year after losing my mom. I feel numb and too…
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'Lower back pain' is it chemo side effects ?
I have a constant pain in my lower back started today after 12 days of my first ABVD. Does anyone have such pain.
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X-husband with bcl-2/myc looking for others
He was dignified in nov 2012. Went to Houston in dec started epoch. Was stage 4. Horrible shape, byet the end of January they discovered tby bcl-2 amend myc issues. They say its rare but after reading this forum I'm not so sure. They now want to do a sct. They don't think they can cure him without it. His marrow was clean…
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Introduction Looking for Support!
Hey all, I am so happy that I have found a site that talks about long term survival, relapse, and support! I am having a bit of a hard time right now, have had a number of health stuff going on. Let me tell you a bit about me I was diagnosed with HD at the age of 13 in 1988 stage III A only symptom was back pain, after…
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So Sorry
Dear Old friends, and the new friends, I am so sorry you have to be here, First let me keep up updated on my NHL. I went to my oncologist for my 6 month visit. My blood work was excellent, and I feel good. I will be having another Pet Ct Scan in July 2013. This will tell the true story. My last CT Pet scan showed…
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Lump is still here, feels bigger
Hey everyone! Things have not changed much at all since I last posted. My doctor thought my mass was nothing to worry about and that it'll go away. It supposedly shrunk from my last ultra sound on my last check up a month ago. Now it feels like it is harder and bigger? Is been three weeks since I last saw the doctor at the…
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The Wedding - Pictures ! additions , and just a few more !
Hi, I put some photos from the wedding on my expression page. They were all taken by various guests. The wedding weekend was wonderful. The wedding turned out better than I ever imagined. All I can say is that it was a grand affair with the most beautiful bride. I'll add more pictures as I get them. Thank you all for your…
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Node swelling in uncommon areas!
just wanted to know if anyone has had any lymph nodes swelling in unusual places? My Dr is glad that I had the CT and that the surgon is on top of things, however he finds it odd that I have lump swelling unusually for glands...given my other sysmptoms it does feel that it could certainly be a lymphoma recurrence but of…
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CT Scan today - other information
I had my CT scan today and I'm happy to report I'm still NED! The oncologist was very encouraged and what a relief! I had scanxiety bad this time. I took Ativan the last two nights so I could sleep. While there I asked him some other questions: SHINGLES VACCINE: Generally he does NOT recommend because: 1. It was not tested…
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Supplement insurance with Social Security
Fairly certain that I won't be returning to work after my NHL. I am 65 so I will have Medicare, but know that I will need additional insurance. Can anyone suggest a good and affordable program? Thanks! Carol
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Long term effects of radiation and bariatric surgery
Hi everyone, I had Hodgkins in 1991 and have been cancer free ever since, although I have had some side effects from therapy that many of you have mentioned here . What I am interested to know is if any of you have had or know of any survivors who have later had bariatric weight reduction surgery. I ask because my surgeon…
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Anything I can do about arm pain 3 weeks after first chemo treatment of Rituxan and Treanda
I am getting ready to do 2nd round in 2 days, I think I will switch arms, still a little nervous about getting a port
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My doctor seems crazy =/
Had a follow up today for my Fav Doctor and he examined my glands on neck and groin his words were ( the glands are too small to be lymphoma ) he gave me some sheet of paper and said he thinks i have Bornholm Disease, due to blood work chest xray and utrasound all coming back fine =/ im more confused then ever he said that…
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First ABVD treatment and throbbing pain in left ARM.
I am having a throbbing pain in my left arm (not Hand). My arm feels warm and the pain comes and ago, it's almost sever to the point I forgot all my symptoms. Does anyone have this kind pain?
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Return to Work
I am so conflicted. I was diagonised with stage 4 NHL with bone marrow involement and orbital cancer. Went through 8 harsh chemo, and 17 radiation treatments. Had my last PET Friday and 4 cat scans the week before. My radialogist told me that my scans looked good and he had a good feeling about my PET. To say the least I…
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My PET scan results
I kept really busy today because my appointment wasn't until 3:30 and I was preparing myself for the worst. The doctor came in and told me they have a scale of 1 to 5, 5 being not so great and one being excellent and that I am a solid ONE!!! Yahoo! I have NED!!!! Absolutely no sign of active disease and the mass in my…
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checking in
Hi everybody. Just thought I'd drop in to say sorry for not posting lately. I am fine but been fighting bronchitis and a horrible cough that I just cannot shake. It's exhausting and by the end of the day after talking on the phone all day I am ready to pass out early. I have a really bad habit of reading in bed and falling…
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Return to Work
I am so conflicted. I was diagonised with stage 4 NHL with bone marrow involement and orbital cancer. Went through 8 harsh chemo, and 17 radiation treatments. Had my last PET Friday and 4 cat scans the week before. My radialogist told me that my scans looked good and he had a good feeling about my PET. To say the least I…
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thanks