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The Latest
Just checking in, had a PET scan last Sunday and saw Onc on Monday, new scan shows a new area starting, for a total of 4, the Onc mentioned stem cell and that its a good possibility this time its aggressive, i have an appt for Thursday with a thorasic surgeon, he will let me know what can be done, my Onc says i have to get…
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No cancer activity.
No cancer activity at this time! I had my PET Scan done yesterday , all clear ! I am still going to finish my last two rounds of chemotherapy and then do rituxen only once every two months for two years. I am really happy aboutbeing cancer clear but having to finish out my treatments and then do Rituxan is a small bummer.…
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WHy can't I trust doctor
I am 25 years old, male. I was freaking out because I found a 1 centimetre enlarged lymph node behind my ear, its been there for about 4 months. I thought for sure it was cancer/lymphoma. My family doctor told me it was probably nothing to worry about, but would send me to a specialist because I am worried. I went to the…
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Checking in
I've not posted in awhile - been sort of taking a break and have been busy with things. I have a friend going through cancer treatment right now and have been offering what little support I can over the phone. We plan to visit sometime after he finishes treatment. He's doing well so far - just anxious to finish as we can…
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Swould i relax?
I found 6 mounths ago a lymph node in my head right side its the size of a peanut,its hard like a bone,fixed and nontender .Had a lot of headaches,nausea and dizzyness with it .My doctor give me antibitics for 10 days to see if will go down.Meanwhile another apeared on the neck under the hair line this one is a bit softer…
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Confused and Scared
I am new here , and do not have a cancer diagnosis , but have been having symptoms for months that are begfining to scare me. I thought I could reach out here to see if anyone has experienced what I am going through so that I can prepare myself for a visit with my practitioner. I have brought upo these symptoms to my…
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Latest results
I had a CT scan yesterday and the results came in yesterday afternoon. The Onc called me last night and said that she wants to get things rolling ASAP, i have been on a watch and wait for a year and a half now, i have non hodgkins lymphoma stage 3, it is in my chest and now the lymphnodes are pressing on my lower right…
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Interesting Hodgkin Lymphoma Article
Here is a recent article that I thought some of you would find interesting: http://www.nbcnews.com/health/cancer/connecticut-teen-curable-cancer-fights-stop-chemo-n281511
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Question for Max
i saw the spam the other day about MJ oil. Some guy at work also told me about it. I've done a bit of on line research and it hasnt been disproven. What are your thoughts?
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Happy New Year
Happy New Year All, Just wanted to pop in to say that I think of you all and read through the posts most of the time. Life in general has kept me busy, although I move a bit slower these days I am doing okay. Still having problems with my blood counts, very low white and low red, which adds to moving a bit slow. My marrow…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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tis' the season
Tis' the cold and flu season. Ok everyone make sure you wash your hands, wear masks if needed and be wear the big bad flu bugs are out there. I went to court hearing for my son yesterday didn't wear a mask and by late that evening I contracted the flu. My cancer center was on it quick and I have antibiotics but I wanted to…
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Last chemo and I'm done!!!!
Hello my lymphoma friends, just wanted to share the exciting news about finishing my last chemo treatment # 12 yesterday and I can't stop feeling excited and happy but at the same time somehow emotional. I'm still under the effect of steroids which are not helping my excitement to go away. I woke up at 3 this morning and…
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Videos of my wifes biopsys and inspirational story :-)
My wife asked me to write my perspective of what we went through in the last year. The site includes our inspirational story and vidoes and pictures, including vidoes of some of the procedures she had to go through. Hope this helps someone. www.roadsuntravelled.com
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Ureaplasma urealyticum during chemo
Hello, I was diagnosed with stage II Hodgkin's about two months ago. I have been receiving ABDV every two weeks; so far, I have had three rounds. I will have a PET CT in mid-January to see if the cancer is gone. I f so, I will have radiation therapy. I am trying my best to be positive. I know that Hodgkin's responds well…
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Wanted to wish all a Merry Christmas
I know its been a while since my last post, just wanted to wish all a Merry Christmas and a Happy New Year, I will be going to Massachusettes, and will be back after the New Year, I have been feeling better since i changed my diet while on a watch and wait, no more symptoms like before, no fevers etc, will have a scan in…
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PET Scan
I am a 3 yr survivor, Non-Hodghins, I have not had a PET scan in a while. I have gained a lot of weight since I was cleared from chemo, too much to have a PET scan. How can I be tested to make sure that I am still cancer free. I am having some issues that cause concern. I know that I get a little jumpy when something…
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Hair regrowth & bone pain after finishing chemo
Hi!!! This is my first time posting, so I don't really know where to begin. I am 20 years old and I just finished EPOCH chemotherapy four weeks ago. My last Neulasta shot was also four weeks ago, and normally the bone pains go away witihin ten days. My pain went away for two weeks but came back these last few days much…
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Numbness , weight gain and life after chemo
Good morning everyone! Yesterday I had the first treatment of cycle #6 which is actually chemo # 11 and as usual every time I feel a little worse than before. My biggest concern is numbness in the bottom of my heels, I have some in my fingertips but it's not as bad. Sometimes it's painful to walk and it feels as though I…
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SURVIVED Stage 4b Hodkins
Just a note to offer hope. I was diagnosed with 4th stage B Hodkins just 3 months ago. The cancer was spread throughout my body, and had two large tumors on my spine. I had lost 15lbs and was having drenching night sweats. I was shocked to say the least. The good news, after a mere 2 rounds of ABVD (4doses) I am cancer…
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L'Hermittes Sign (Leg tingling) After Radiation
Hello All! i'm happy to say that I finished radiation for NHL in August and have since been in "complete remisson"! With that being said, lately I've been experiencing a mild tingling in my legs, hips, and lower back when I exercise or tilt my neck down (AKA L'hermittes sign). Has anybody else experienced this? It has been…
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Aggessive T-Cell Lymphoma
Morning Kindred Spirits! Diagnosed with T-cell Lymphoma in Feb. in Mayo Clinic Jacksonville. Their protocol was to return home and start standard CHOP Chemo immediately. Went to to UAB in Birmingham, but got a completely different protocol. Theirs was radiation on the site and then a wait and see approach. This was so…
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It's Not Lymphoma
Hello All: Thank you for welcoming me on this board. Have bad news tonight that my brother doesn't have lymphoma it's just all in the nodes from a source they are unknown to at this moment. There are spots on his lung, liver, possible pancreas, along with several nodes and possible bone. They are doing genetic testing to…
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Scan results tomorrow... so scared
Been very stressed of late waiting for results of my CT Scan after 3cycles of ABVD..... (Stage 1A HL) Never thought it cld b this hard. 2moro i get results. :( so scared! The lumps in my neck have gone and i know chemo should have worked but i keep expecting the 'body-blow' that my diagnosis was to me! Is my fear…
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Thanksgiving
Just wanted to let everyone here know that I'm really thankful for your support. Jim and Max, you guys are so helpful. Here is my top 5 List for this Thanksgiving: 1) Jesus, my Lord and Savior who carried me through my chemo and gave me mind blowing peace, that I would be "ok" even if the worst happended. 2) My family,…
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Ended up in hospital. ..Uugh.
It came on so fast ! I was settling down for the night and started throwing up like a champion. A long with the other end going strong to. I was so weak after 2 hours my daughter can to take me to hospital. They gave me a shower got a ER bed stat. The have done blood , urine, culture, cat scan, X rays , and say my blood…
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One year post-treatment, ongoing chest pressure/shortness of breath
I am female, 32 years old at diagnosis of stage II primary mediastinal large B cell lymphoma in Nov 2011. I underwent 6 cycles of R-CHOP and then 20 radiation treatments to my mediastinum. At diagnosis, I was 13 weeks pregnant (therefore, did not undergo R-EPOCH). I am now over a year out from my last radiation treatment…
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Latest Journey
After treating my husband's Hodgkins with ABVD, ESHAP, and brentuximab we decided that our best chance to get a clean scan was to go for a stem cell transplant. Our doctors biggest concern is that the cancer will return, so he suggested a tandem auto stem cell transplant. Chris got chemo on Tuesday and his cells on…
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If it's not one thing. . .
Hello my friends. . . (this is not a relapse story) I recently wrote about wanting to take my recovery up another notch. Among other things, I started doing physical therapy. I am still trying to recover from residual peripheral neuropathy and also I still have some balance issues. I was doing great in PT, very diligent…
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arm pain
Hi , I have been really lost in my family's crisis lately and have not been able to stay connected with you all . I have actually been very overwhelmed. I was able to finish my third treatment last week and now I'm having muscle or vein pain for the last two hours. Left arm above the sight the nurse had to use the last…