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Videos of my wifes biopsys and inspirational story :-)
My wife asked me to write my perspective of what we went through in the last year. The site includes our inspirational story and vidoes and pictures, including vidoes of some of the procedures she had to go through. Hope this helps someone. www.roadsuntravelled.com
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Ureaplasma urealyticum during chemo
Hello, I was diagnosed with stage II Hodgkin's about two months ago. I have been receiving ABDV every two weeks; so far, I have had three rounds. I will have a PET CT in mid-January to see if the cancer is gone. I f so, I will have radiation therapy. I am trying my best to be positive. I know that Hodgkin's responds well…
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Wanted to wish all a Merry Christmas
I know its been a while since my last post, just wanted to wish all a Merry Christmas and a Happy New Year, I will be going to Massachusettes, and will be back after the New Year, I have been feeling better since i changed my diet while on a watch and wait, no more symptoms like before, no fevers etc, will have a scan in…
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PET Scan
I am a 3 yr survivor, Non-Hodghins, I have not had a PET scan in a while. I have gained a lot of weight since I was cleared from chemo, too much to have a PET scan. How can I be tested to make sure that I am still cancer free. I am having some issues that cause concern. I know that I get a little jumpy when something…
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Hair regrowth & bone pain after finishing chemo
Hi!!! This is my first time posting, so I don't really know where to begin. I am 20 years old and I just finished EPOCH chemotherapy four weeks ago. My last Neulasta shot was also four weeks ago, and normally the bone pains go away witihin ten days. My pain went away for two weeks but came back these last few days much…
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Numbness , weight gain and life after chemo
Good morning everyone! Yesterday I had the first treatment of cycle #6 which is actually chemo # 11 and as usual every time I feel a little worse than before. My biggest concern is numbness in the bottom of my heels, I have some in my fingertips but it's not as bad. Sometimes it's painful to walk and it feels as though I…
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SURVIVED Stage 4b Hodkins
Just a note to offer hope. I was diagnosed with 4th stage B Hodkins just 3 months ago. The cancer was spread throughout my body, and had two large tumors on my spine. I had lost 15lbs and was having drenching night sweats. I was shocked to say the least. The good news, after a mere 2 rounds of ABVD (4doses) I am cancer…
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L'Hermittes Sign (Leg tingling) After Radiation
Hello All! i'm happy to say that I finished radiation for NHL in August and have since been in "complete remisson"! With that being said, lately I've been experiencing a mild tingling in my legs, hips, and lower back when I exercise or tilt my neck down (AKA L'hermittes sign). Has anybody else experienced this? It has been…
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Aggessive T-Cell Lymphoma
Morning Kindred Spirits! Diagnosed with T-cell Lymphoma in Feb. in Mayo Clinic Jacksonville. Their protocol was to return home and start standard CHOP Chemo immediately. Went to to UAB in Birmingham, but got a completely different protocol. Theirs was radiation on the site and then a wait and see approach. This was so…
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It's Not Lymphoma
Hello All: Thank you for welcoming me on this board. Have bad news tonight that my brother doesn't have lymphoma it's just all in the nodes from a source they are unknown to at this moment. There are spots on his lung, liver, possible pancreas, along with several nodes and possible bone. They are doing genetic testing to…
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Scan results tomorrow... so scared
Been very stressed of late waiting for results of my CT Scan after 3cycles of ABVD..... (Stage 1A HL) Never thought it cld b this hard. 2moro i get results. :( so scared! The lumps in my neck have gone and i know chemo should have worked but i keep expecting the 'body-blow' that my diagnosis was to me! Is my fear…
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Thanksgiving
Just wanted to let everyone here know that I'm really thankful for your support. Jim and Max, you guys are so helpful. Here is my top 5 List for this Thanksgiving: 1) Jesus, my Lord and Savior who carried me through my chemo and gave me mind blowing peace, that I would be "ok" even if the worst happended. 2) My family,…
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Ended up in hospital. ..Uugh.
It came on so fast ! I was settling down for the night and started throwing up like a champion. A long with the other end going strong to. I was so weak after 2 hours my daughter can to take me to hospital. They gave me a shower got a ER bed stat. The have done blood , urine, culture, cat scan, X rays , and say my blood…
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One year post-treatment, ongoing chest pressure/shortness of breath
I am female, 32 years old at diagnosis of stage II primary mediastinal large B cell lymphoma in Nov 2011. I underwent 6 cycles of R-CHOP and then 20 radiation treatments to my mediastinum. At diagnosis, I was 13 weeks pregnant (therefore, did not undergo R-EPOCH). I am now over a year out from my last radiation treatment…
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Latest Journey
After treating my husband's Hodgkins with ABVD, ESHAP, and brentuximab we decided that our best chance to get a clean scan was to go for a stem cell transplant. Our doctors biggest concern is that the cancer will return, so he suggested a tandem auto stem cell transplant. Chris got chemo on Tuesday and his cells on…
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If it's not one thing. . .
Hello my friends. . . (this is not a relapse story) I recently wrote about wanting to take my recovery up another notch. Among other things, I started doing physical therapy. I am still trying to recover from residual peripheral neuropathy and also I still have some balance issues. I was doing great in PT, very diligent…
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arm pain
Hi , I have been really lost in my family's crisis lately and have not been able to stay connected with you all . I have actually been very overwhelmed. I was able to finish my third treatment last week and now I'm having muscle or vein pain for the last two hours. Left arm above the sight the nurse had to use the last…
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Causes of Hodgkins Hodgkin Lymphoma NLPHL
In an attempt to solve the puzzle, I'm starting a topic so people can write in to see if there are any similar circumstance leading up to Hodgkin Lymphoma. My Lymphoma was NLPHL. Here are some of the new things I was doing in the two years prior to diagnosis: -lap swimming several time per week in chlorine pool; -taking…
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Brother's Biopsy Results
Unfortunately, my brother has cancer. I'm not sure if it is lymphoma but all of it seems to be in the nodes. My SIL said she can't remember the name but that it started with an S and was something carcenoma. The only thing that I'm thinking is squamous cell but if someone could inform me as to what this might be I'd be…
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Peripheral T-cell lymphoma NOS diagnosis
My 37 year old husband was just diagnosed with PTCL NOS after being sick for five months. He's lymphoma is presenting in the lungs. His Dr. is recommending CHOEP followed by an autologous stem cell transplant. We will meet with his doctor on Thursday and he will potentially start treatment on Friday. I'm looking for anyone…
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To trust or not to trust
Two and a half weeks ago I found a lump underneath my armpit. I went in for an ultrasound yesterday. The Dr said that she found "something" and her conversations started as such "I'm not worried. Most lymph nodes are horseshoe shaped, yours is abnormally shaped right now. I think you're fine. I wouldn't even tell you to…
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follicular b cell lymphoma stage 4
Hi my name is Patricia i was diagnosed in April of this year with Follicular b cell lymphoma and when i saw my doctor he thought i was just in stage one or two i had to push to get him to do a bone marrow test which proved to be stage 4 to his dismay. He was shocked to say the least i have been taking Rituxan since and now…
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Done with treatment...but it is not over.
Hi there. Just coming up on my first follow up scan after treatment for Hodgkin's Lymphoma and am just as anxious about this as I was about the initial treatment. Do any survivors with a few years under their belt have any advice or insight on follow up scans? I just completed treatment a few months ago and the remission…
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Symptoms of Lymphoma - Need Advice
Hello: I'm usually posting on colorectal cancer board, but got a call from my brother this morning stating that my younger brother was brought in to emergency this morning. He has had a swollen arm for a week now and they did an xray on him stating the arm had no blood clots and sent him home telling him that it was due to…
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Lymph node cancer after complete bladder reconstruction
My brother was diagnosed with bladder cancer 2 years ago and had UCLA do a complete bladder removal, reconstruction and Chemo Treatment. He has been cancer free until today. He was told that cancer had returned to the lower lymph nodes on both sides of the abdomen. Surgery and Radiation appears to be the treatment since he…
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walking.
Walking again! I just wanna share that I have not done any physical activity for a while and just started again about 4 days ago. It is so good for us who can do this during our journey of fighting cancer. I feel it is not only helping my mind but my body as well. I never wanna come back home, I just want to keep walking…
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Hodgkin's Lymphoma diagnosis (im new here!)
Hiya, Been diagnosed with Hodgkin's Lymphoma. Staging is complete - its 1A limited disease. (My CSN space has info on my journey so far) Can't wait to start treatment next week, but i am a bit nervous. Thought of having a PICC line in and possible complications is more stressful to me than chemo itself. Egg collection was…
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Sugar
Sugar. Hi Everyone, I finished my second round of Rituxin, Treanda and Neulasta last week. We'll it was harder than the first. My nausea was constant and with Onda setron HCL 8 mg, flip flopped with another 6 hrs one it didn't let up.I would have been happy to throw up and get some relief , even if it were for 10 min. Not…
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Recently diagnosed with Pmbcl
Hello all.... I decided after looking on here and reading others' posts and comments, to share my story as well. I know this will help me along my journey, as many of you have already been where I have yet to go. I was diagnosed a little over two weeks ago after goin to the ER because of a "slight" shortness of breath. It…
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Happy Halloween
Happy Halloween TO ALL xxxooo Carie