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extremely worried
hi guys, So I've had my lymphnodes on the side of neck for years now, but lately they've gotten bigger and my neck and shoulder hurt really bad. I also found another lump just above my collar bone. I've also been having some difficulty breathing as well. another strange thing that has been happening is that I break out in…
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Hi to all my friends
As I look at the names I recognize some of you. I haven't been on this site for about 4 years. I want to write about HOPE. There are so many new treatments availble to us. I went to MOFFIT in Tampa, Florida for a seminar and learned something that was encouraging. I was in remission 5 years then and they told me my chances…
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New Here and Scared
OK saw the Oncologoist and the Final Diagnosis and Treatment plan is: Diffuse Large "B" Cell Lymphoma. Will have Chemo once every 3 weeks for 6 cycles. Have a PET scan next week and get a port put in for the Chemo. so my surgeon gets another Whack at me Will be getting the R-CHOP Combo platter Scared because I am alone, no…
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"MERRY CHRISTMAS"!
MERRY CHRISTMAS!!! I hope all of you are having a wonderful day with your families! Sorry for not posting more often, but honestly, I've just been overwhelmed with so much that's gone on since we've moved to the river. We love it here and couldn't be happier, but this stupid cancer just isn't giving me a break. We found a…
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CANCER STABILIZED
Hello Folks: I had a very good Oncologist for about 3 years. He decided to leave and departed the end of August 2014. The cancer clinic is part of a nearby hospital. I miss him; had a good rapport, which is important. His replacement is very good too, but the rapport is gone. Well, anyway, I have had what the Onc. calls,…
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Radiation Therapy
Hello dear forum members! I wish you health and happy life! I've some questions about Radiation therapy during HL. My wife (24 years) was diagnosed HL on september 2014. We've got six courses BEACOPP regimen of 21 day cycles (As i know it's standards). Two weeks ago we made PET/CT, the results were good. There was not…
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ROCQUIE AND "EMPERIOR OF ALL MALADIES"
Rocquie: I answered your post re "Emperor of all Maladies," and Ken Burns, but the thread seems to be drifting. So here I am again....................... Nancy The Film Thank you, Nancy. This is a very exciting upcoming PBS film being released in the spring. It is based on the pulitzer prize winning book, THE EMPEROR OF…
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Where is the best place to have the needle for chemo treatment?
Hi. My name is Laura. I am going to have my 3rd round of Chemo in the next 3 days. I have chemo on Thursday and Friday, Rituximab & Benadamustine. During my first treatment in October, the needle was put in my hand. I had issues for weeks after, with the veins in my wrists being sore and popping out. It is fine now. For my…
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KEN BURNS RE CANCER AND PROGRESS
KEN BURNS FILM RE CANCER, MEMORIAL SLOAN KETTERING CANCER CENTER, NEW YORK CITY: http://www.mskcc.org/blog/watch-video-physician-chief-upcoming-ken-burns-film
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Eating after radiation to the Head and Neck
Hello! Recently (Jan. 15th) I finished radiation to my neck (salivary glands, throat, etc) and sinus. I had 25 rounds. I had level/stage 3 Oral Mucositis and it caused lots of bleeding in my throat if I wanted to cough or sneeze etc. My tongue also developed severe burns on all sides. I switched to a chicken broth diet on…
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lymphoma worries
i had some calf pain left leg back in august some tightness went to doctor they gave me some pain killers also have over the years some lower left back pain that would flair up, pain went away after a week then noticed a bump/lump on back side of my left knee about 4 months ago, also had leg pain with it calf area really…
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Mantle Cell
Hi Debbie, I hope you are finding this. I have started a new thread as the other one was older and a bit confusing and long. I am so sorry that you and your husband are going through this. I hope you are both holding up well. Bill was diagnosed at the age of 62 and is now 66, so we have a lot in common. By the time Bill…
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GURD/Acid Reflux
Hi Everyone, I have GURD. I have had it for years. My problem is this darn heart burn won't stop. I was told by my onc. To not take my prilosec 4 days before and after chemo.thats 11 days . I am wanting to take tums but don't know if I should. When this rollercoaster is over I am pretty sure I will have a healthier diet…
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phlabitis
Well I ended up with phlabitis in my arms. One spot came from last chemo. The other one in other arm is from previous chemo. He said if I didn't have just one more Bendamustine and rituxen treatment he would insist on port. He prescribed antibiotics and heating pad. I'm ok with this its just a bit nerving. ~GG~
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Reporting Back After Oncologist Visit
Hello Folks: I had a very good Oncologist for about 3 years. He decided to leave and departed the end of August 2014. The cancer clinic is part of a nearby hospital. I miss him; had a good rapport, which is important. His replacement is very good too, but the rapport is gone. Well, anyway, I have had what the Onc. calls,…
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Vitamin D Deficiency
Hello my friends, Remember a few weeks ago when I told you I fractured a bone in my foot? As it turns out, on a follow up x-ray, after much of the swelling had subsided, and I suppose pictures taken at a slightly different angle, because I was more comfortable, it turns out that 2 of my bones were fractured. Also, the…
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Auto Stem Cell Transplant
Can someone who has had a auto stem cell transplant share what their experience was after they were released from the hospital? My daughter had one just over month ago, and I was wondering what others experienced. I have noticed that she seems to be a experiencing a bit of shortness of breath. She did have a bit of a head…
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The Latest
Just checking in, had a PET scan last Sunday and saw Onc on Monday, new scan shows a new area starting, for a total of 4, the Onc mentioned stem cell and that its a good possibility this time its aggressive, i have an appt for Thursday with a thorasic surgeon, he will let me know what can be done, my Onc says i have to get…
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No cancer activity.
No cancer activity at this time! I had my PET Scan done yesterday , all clear ! I am still going to finish my last two rounds of chemotherapy and then do rituxen only once every two months for two years. I am really happy aboutbeing cancer clear but having to finish out my treatments and then do Rituxan is a small bummer.…
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WHy can't I trust doctor
I am 25 years old, male. I was freaking out because I found a 1 centimetre enlarged lymph node behind my ear, its been there for about 4 months. I thought for sure it was cancer/lymphoma. My family doctor told me it was probably nothing to worry about, but would send me to a specialist because I am worried. I went to the…
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Checking in
I've not posted in awhile - been sort of taking a break and have been busy with things. I have a friend going through cancer treatment right now and have been offering what little support I can over the phone. We plan to visit sometime after he finishes treatment. He's doing well so far - just anxious to finish as we can…
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Swould i relax?
I found 6 mounths ago a lymph node in my head right side its the size of a peanut,its hard like a bone,fixed and nontender .Had a lot of headaches,nausea and dizzyness with it .My doctor give me antibitics for 10 days to see if will go down.Meanwhile another apeared on the neck under the hair line this one is a bit softer…
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Confused and Scared
I am new here , and do not have a cancer diagnosis , but have been having symptoms for months that are begfining to scare me. I thought I could reach out here to see if anyone has experienced what I am going through so that I can prepare myself for a visit with my practitioner. I have brought upo these symptoms to my…
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Latest results
I had a CT scan yesterday and the results came in yesterday afternoon. The Onc called me last night and said that she wants to get things rolling ASAP, i have been on a watch and wait for a year and a half now, i have non hodgkins lymphoma stage 3, it is in my chest and now the lymphnodes are pressing on my lower right…
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Interesting Hodgkin Lymphoma Article
Here is a recent article that I thought some of you would find interesting: http://www.nbcnews.com/health/cancer/connecticut-teen-curable-cancer-fights-stop-chemo-n281511
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Question for Max
i saw the spam the other day about MJ oil. Some guy at work also told me about it. I've done a bit of on line research and it hasnt been disproven. What are your thoughts?
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Happy New Year
Happy New Year All, Just wanted to pop in to say that I think of you all and read through the posts most of the time. Life in general has kept me busy, although I move a bit slower these days I am doing okay. Still having problems with my blood counts, very low white and low red, which adds to moving a bit slow. My marrow…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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tis' the season
Tis' the cold and flu season. Ok everyone make sure you wash your hands, wear masks if needed and be wear the big bad flu bugs are out there. I went to court hearing for my son yesterday didn't wear a mask and by late that evening I contracted the flu. My cancer center was on it quick and I have antibiotics but I wanted to…
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Last chemo and I'm done!!!!
Hello my lymphoma friends, just wanted to share the exciting news about finishing my last chemo treatment # 12 yesterday and I can't stop feeling excited and happy but at the same time somehow emotional. I'm still under the effect of steroids which are not helping my excitement to go away. I woke up at 3 this morning and…