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MRI Brain Scan
I have been in remission from non-Hodgkins Lymphoma Diffuse B Cell for three years now. Each PET scan comes back normal and clear. Early last June I started to get instances of fatigue off and on, then as time went on it progressed where now it is every day and can get pretty extreme. Because of the symptoms, and the fact…
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Likely lymphoma, what to expect?
Hello everyone! I've found this great forum and I'd like to hear from the experiences of others to help me learn what to expect. I'm a 29 year old male in otherwise very good health. Here's a brief timeline of where I am: Feb 23rd, notice first lymph node, left side of groin. March 20, notice first night sweats, about once…
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Intravascular B Cell Non-Hodgkins Lymphoma
I was wondering if anyone has any experience with Intravascular B Cell Lymphoma? My Dad was recently diagnosed with this very rare, aggressive sub-type of NHL. Apparently it's so rare that it is usually found post-mortem so we are so grateful for the doctors who didn't give up until they found out what was really going on.…
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Late Effects: Heart Valve Disease/Replacement
In 1987, I had radiaton therapy for Hodgkin's disease. In 2010, I was dx with diseased aortic and mitral valve. Cardiologist estimated my aortic valve would need to be replaced in five years. In 11-2014, I entered the ER with stroke like symptoms. A full cardiological and nuerological work-up revealed my aortic valve…
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Relapse in brain, anybody have similar situation?
After responding extremely well to chemo for a large mass in my abdomen last winter, my B-cell non hodgkins lymphoma has reappeared in my brain. I have been receiving methotrexate treatments all summer. The tumor has shrunk but is not gone and I'm told will always come back in several years anyhow. I will start stem cell…
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primary mediastinal b cell lymphoma (trials)
Hi Everyone I post this on behalf of my wife who is currently fighting this horrible disease. We feel as if we are running out of options. MY wife is 34 years of age and has had numerous lines of treatments. fIrst she had R-chop x 6 and radiation and got a complete response and was in remission for 9 months until she…
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Happy to Connect With Other Survivors
Hello all: I'm Happy to connect with other survivors here in this group. 1987 & 1989: Hodgkin's disease; CLL: 1991-1996. Living with late-effects of (1987) radiation. Chronic fatigue most limiting to my daily activities. Glen
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Hodgkins disease survivor
I was diagnosed with stage 11B with hodgkins in 1991. I was given a little over three months of radiation treatment in my neck and mantle. This past year I have severe hearing loss in my left ear, same side i was radiated on. My oncologist thinks it is a result from the treatment. Has anyone else had this problem?
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Night sweats
My dad just had his 3rd treatment almost a week ago and for the first time he had night sweats. Is this normal to get them during treatment?
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Antioxidants
I have seen two long term studies which indicate that taking antioxidant vitamins and food supplements dramatically increase the risk of cancer. Also my onc advised against vitamins and supplements saying " consuming anything you don't actually need harms you". I took that to mean these supplements are NOT a way to prevent…
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Tightness in Hip and Thigh Area?
Hi, 42 male with NHL diagnosis in Jan-2014 here. Mine started with a neck lump that was removed and later determined to be Stage 1 NHL. Subsequently I received radiation treatment. Over the past several months, I've noticed a chronic tightness in the front of my hips (around my beltline), thighs, and sometime groin area.…
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Newbie spouse here, and scared
Hi all, my spouse has just been diagnosed with Lymphoma this past Friday. We have a close friend in the lab, so that much we know. We have yet to meet with the Oncologist so we don't even know if it is Hodgkin or Non-Hodgkin type. I think I remember our lab buddy stating stage 2 something...it was all a blurr of…
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Looking for answers
Hello, Let me start by saying I have not been diagnosed with any form of cancer at this time. I have very high concerns though that I feel are being brushed off by the last two general practioners I have seen about my concerns. Here's a little about me. I apologize in advance for my lack of brevity. Four years ago I was…
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Moving Forward
I had a CT scan on Wednesday, which was the first one since February 2013, when a PET scan showed I was in remission. I then proceeded with 2 years of Rituxan maintenance, which ended this past February. Friday, I saw my oncologist to discuss the findings of my CT scan and discuss what next. He handed me a copy of the CT…
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1st annual checkup
Been feeling a lot of fatigue lately. I had my first post Rituxan 1 yr checkup with mixed results. Blood work was normal. Dr. Ordered a biopsy on my strange small, hard neck lump just to rule out cancer. He also found very small nodes in my armpits and groin. If neck biopsy is clean, which is what he expects based on its…
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R-chop & Prednisone
I have completed 3 out of 6 chemo sessions. At the time of the first one we were still waiting for insurance aproval for the Rituxan so it was just Chop. On the day of chemo I have to take 100mg of Prednisone, in the form of 2 50mg tablets, before I go to chemo and for 4 days afterwards. The first time I didn't feel much…
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Hello everyone!
Hello everyone! Hope everyone is doing good (health wise). I apologize for not checking in sooner but since a lot of things changed for me including oncologist, I didn't want to post until I had news to report. I have a couple of questions that I'm wondering about and hopefully you guys can help me out! First the results…
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Just found out
as of 1 month ago. Was hospitalized for an unrelated condition when it was discovered. It has answered many questions for me as to why I felt tired all the time and just never felt 100%. I was diagnosed with non-Hodgkin Lymphoma. I now have an ileostomy to deal with so I can't say I'm feeling all that upbeat at this time.…
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BR versus RCHOP for Follicular Lymphoma
Hello, I am new here, posting for my 45 year old husband who was just diagnosed with Follicular Lymphoma, Stage 4, Grade 3a (30%) Grade 1-2 (70%) after a surgical biopsy on a lymph node in his neck. We are in the process of getting several opinions for treatment and struggling since there is not aggreement. Most of the…
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FNHL
Have not posted in a long time. Have been diagnosed with Fhl in 2004 and did 22 radiation therapy after surgery. That took out my submandibular gland out and in my left cheek. Then I went to 2009 and had to do the right side and it came back in my bone marrow and abdomen. did 8 rounds of chemo and zevalin. So have been in…
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Three months after my last chemo
Hello my friends (the ones I met here almost 9 months ago)! It's been a while since I posted here or even read any of the other posts. Today is exactly 3 months since I had my last chemo but it feels so much longer and I just couldn't be happier that it's all over. I have some good news which I receivied the day after my…
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Surreal
Saw stem cell doctor last Wednesday,it is a lot to take in, i was over whelmed and emotional when i left her office. One thing came as a shock to me was my Oncologist failed to mention the results of the multiple biopsies i had, was that my cancer is now transitioning in large B cell or aggressive, it was a surreal…
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pre cancerous, Ugh.
Have been very quiet latley. Finished Bendamustine, Rituxan and nulesta treatments in February. Starting to feel human again. Start 2 yrs of Rituxin maintenance in a few weeks . Had weird spot show up on the apple of my cheek a few weeks ago.I went to dermatologist and he froze it and said if it disappears completely in 3…
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Concerned about lymphoma
About a year and a half ago I had a lump show up on the back of my neck. I believe it is the occipital lymph node. It is about 1.5 cm from my best guess. Other than the lump I feel just fine. I also have a small node behind my right ear and a couple under my jaw. About a year ago I had an ER doctor feel it and he said it's…
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New to this site
Hi, my name is Karen and I was diagnosed with Follicullar Lymphoma stage 1 in Dec.2012. it was caught early because I had blackfly bites in the summer and one bump had not gone down. My family dr., endocrinologist and plastic surgeon all told me it was a lipoma but upon removal, they discovered a 5cm tumour behind my right…
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Help for my 12yr old daughter
Hi all. This is my first official post here and while you all seem like such a wonderfully supportive bunch, I'm quite sad to be posting here. A quick intro: my name is Aly & I'm from Cali ;-) I'm a mom to 5 crazy, cute & lovely kids ranging in age from 12 to 22mo. My oldest daughter Anni- (pronounced like Annie) has been…
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cuzjon
hi Jon, I'm so sorry I haven't answered right away, I just got very busy. I am so glad you did well with B/R, think you know that Bill did also, but does'nt seem to be the case with some. We researched and even emailed 2 docs in Germany and one in WI about him getting a stem cell transplant and they all suggested not to.…
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Treatment
Has any one else had breathing problems after treatment? Like radiation to the chest can that cause lung problems? I had breathing test done but they said nothing was wrong every thing came back good but I still can't breath I take my inhaler but it don't work.
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Scan results tomorrow morning
It has been way too long since I have been on the site. I have been traveling with work from october til now like a crazy person. I had my scan monday and get my results tomorrow. I am being optimistic but still dealing with these ugly thoughts and anxieties. I have been in remission for about 2.5 years since my Auto…
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The latest
I had my first round of chemo last week which was 2 days in a row, of retuxin and treanda first day, and treanda only the second day, then neulasta the day after, it totally whipped my butt, i used regular Claritin for bone pain which helped a lot, but after al was said and done i am not so sure i can handle stem cell now,…