-
Help with Stage III B Cell Large Lymphoma
Hi, my mother in law recently got diagnosed with B Cell Lymphoma. For a few months she was experiencing weakness and also what her primary considered pneumonia (in fact she is still taking Levaquin). After she was taken to the hospital and many different tests were done she was diagnosed with Stage III Large Cell Lymphoma.…
-
Girlfriend was recently diagnosed with cancer and needs help.
Hi guys, my girlfriend Gemma has recently been diagnosed with a certain type of Lymphoma cancer. Unfortunately she does not have health insurance so all health costs will have to be out of pocket, but we do not have the resources for it. Her family is considering selling the house she and her brother grew up in just to pay…
-
New to site
Hello, I haven't been diagnosed with anything yet but I have some concerns and I don't know what my next step is. I started having pain under my arms in Dec 2013. Normally, when I shave my armpits, I always wipe with alcohol when I am done. But I didn't this particlar time so I figured my problem was related to this. Then…
-
Thyroid cancer x2, unexplained pulmonary embolism and enlarged aortic lymph node on PET SCAN , not f
I don't know what's going on but I have flank pain on left side and fullness and pain in abdomen left side which Is where the enlarged lymph node is . Confused. Could I have csncer for the third time ? A diff type? And an unexpained pulmonary embolism. Help anyone!
-
on the edge of a cliff
Everyone has their share of trouble, and Ive mine. Though things tilted into the realm of ridiculous when at 21 I was suddenly diagnosed with terminal stage IV cancer. Though I survived with the aid of an iron will, I was damaged. With tumors on my pancreas, liver, lungs, i could go on but it'll be easier to say from top…
-
IF you have DLBCL, get genotyped!!! It could save your life!
Hi everyone, My mum was diagnosed with DLBCL fall 2012. Back then, we were all CLUELESS about lymphoma and all the various available treatments. We did A LOT of research, and thankfully ended up getting mum REPOCH, which is one of the best treatments to date for DLBCL. She went into remission for almost a year, and then…
-
radiation
Lease post your year of diagnoses for hodgkins , include staging and surgerys and side affects! Lets find the common links between us for discussion. this could simplify our efforts of charting our side affects. Thank you Kevin 1987 stage 2b
-
Should I stop Chemo after 5 rounds, or should I receive number 6???
I have stage IV Folicular Lymphoma. I have been receiving chemo since Jan 6, 2014. Rituxon & Treanda every 28 days, was scheduled for 6 rounds. After my 3rd treament mid March my Dr. sent me for a CT scan, results were excellent showing almost full reggression. I continued on with rounds 4 and 5, however my white platelet…
-
8 R-CHOP sessions, is it safe for 68 years old patient?
Hello every body, My mother is 68 years old, four moths ago we discovered that she has NHL, the gastric was involved and all lymphoma nodes around... the doctor recommended her 6-8 R-COP sessions, now she finished the fourth session, by she started to be very tired because of the aggressive side effects. a PET scan was…
-
New here, B cell marginal zone lymphoma with ITP
Hello all. I'm new here. I was diagnosed on 4/13/12 (Friday the 13th!) with marginal zone B cell lymphoma and its sometime companion, immune thrombocytopenic purpura - mercifully known as ITP. ITP is an autoimmune disorder that also involves the B cells and causes the immune system to destroy platelets, which makes it more…
-
anyone else having issues post chemo
I'm 7 months post chemo, two all clear pet scans but I'm feeling exhausted all the time. I also can barely eat due to nausea(I am taking zofran multiple times a day), my neuropathy is getting worse, my heart shows signs of mild damage due to the Adriamycin. It's depressing and confusing, I'm supposed to be getting better…
-
Navel pain in Non-Hodkins (B-Cell-High Grade) after Chemotherapy
Hi All, My aunt 87 yrs was diagnosed with NHL (B-Cell; High grade)...She has received 7 chemo sessions that includes (6 rituximab dosage as per prescription)..She is experiencing stomach pain most near Navel part for the past 7-8 days. Is this normal? Doctors says the tumor is shrinking and pain maybe of because of that.…
-
UK vs American treatment
Hi everyone, I am a 63 year old male from the UK and have just been given the good news that I am in remission from NHL after 8 R-CHOP cycles. I am a bit curious about any differences between treatment in the United States and the UK. I notice that in the US it seems standard to use a port for chemo infusions, is this…
-
My wife was diagnosed with NHL large defused B-cell
This all started a few months ago, my wife was pregnant with our 1st child and during pregnancy she developed a rapid heartbeat, she even passed out once. Once the baby was born (November), she was still feeling sick after she gave birth, I was also sick doctor's said it was most likely a virus going around. We both…
-
The Latest
Had surgery the 19th last Thursday, surgeon did a video assisted surgery, when he went in he said that the one area that has been giving me a bad time wasnt a tumor but possible Sarcoidosis, as if i dont have enough going on, he finally reached a tumor and got a good biopsy, i am happy about that, i have at least 4-5…
-
If you are diagnosed with HepatoSplenic T-Cell Lymphoma, here's where to go
Hello, Here's my quick story. Let me know if you have any other questions or are looking for specific info. Hepatosplenic T-Cell Lymphoma is extremely rare and aggresive - time is of the essence in treating it, so that's why I'm posting this. Story My nephew, Brian, was diagnosed with HSTCL in Feb., 2012, 1 week before his…
-
Stopping By
Just stopping in to say Hi... I don't get on much and when I do, I find myself not posting anything anymore. I will be complete with my Rituxan maintenance finally in september and am anxiously awaiting having my port removed. I am pretty sure the port is really just a portal to hell and I have a direct line ... LOL.. I…
-
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
-
New here. Care giver to non hodgkin lymphoma fiance.
Just wanted to say hello and send warm wishes to you all. My fiance is very stubborn so it's not always smooth sailing and I get frustrated at him when I shouldn't. I love him lots though and try to understand what he is going through and we are doing really good atm. ;)
-
Is 8 cycles of R-CHOP chemotherapy normal?
Hello everyone, I have non-Hodgkin's lymphoma cancer. After 6 cycles of R-CHOP chemotherapy every 3 weeks, my cancer doctor has told me that "metobolic CR attained". The "CR" means "Complete Remission". He said that the tumors I had are all gone. He wants to do 2 more cycles of R-CHOP chemotherapy to consolidate metabolic…
-
ALCL or any other T Cell Lymphomas
I was hoping to chat with some others that may be being treated for or have been treated for these types of lymphoma. I have been on this site and few others but seem to be flying solo. All posts seem to be two to three years old. A part of me is happy that so few people have to deal with this type of NHL, but any feedback…
-
Rocquie
Hi Rocquie: Don't think you got this. Trying again. Nancy
-
phlabitis/chemo
Hi Everyone, wel life has been very interesting this last month. I haven't been really on the forum much. The phlabitis I ended up with is still in both of my arms but not as bad. The swelling has gone down within the last week, I have surely been relieved to see that. My oncologist did a ultrasound on them last week so I…
-
Cookingirl Fran
I haven't gotten an e-mail or seen Fran on this site. Anybody know anything? Thinking of you Fran and praying the drugs are working.
-
My first post
Hi there, obviously I'm new to this but I thought I could use all the support I could get! I'm 37 years and was diagnosed with follicular lymphoma back in the fall. I just had my first of 6 treatments last week. The Rotuxin Bendamustine combo. And boy was I sick!! I'm to have one treatment every month for 6 months. I'm…
-
extremely worried
hi guys, So I've had my lymphnodes on the side of neck for years now, but lately they've gotten bigger and my neck and shoulder hurt really bad. I also found another lump just above my collar bone. I've also been having some difficulty breathing as well. another strange thing that has been happening is that I break out in…
-
Hi to all my friends
As I look at the names I recognize some of you. I haven't been on this site for about 4 years. I want to write about HOPE. There are so many new treatments availble to us. I went to MOFFIT in Tampa, Florida for a seminar and learned something that was encouraging. I was in remission 5 years then and they told me my chances…
-
New Here and Scared
OK saw the Oncologoist and the Final Diagnosis and Treatment plan is: Diffuse Large "B" Cell Lymphoma. Will have Chemo once every 3 weeks for 6 cycles. Have a PET scan next week and get a port put in for the Chemo. so my surgeon gets another Whack at me Will be getting the R-CHOP Combo platter Scared because I am alone, no…
-
"MERRY CHRISTMAS"!
MERRY CHRISTMAS!!! I hope all of you are having a wonderful day with your families! Sorry for not posting more often, but honestly, I've just been overwhelmed with so much that's gone on since we've moved to the river. We love it here and couldn't be happier, but this stupid cancer just isn't giving me a break. We found a…
-
CANCER STABILIZED
Hello Folks: I had a very good Oncologist for about 3 years. He decided to leave and departed the end of August 2014. The cancer clinic is part of a nearby hospital. I miss him; had a good rapport, which is important. His replacement is very good too, but the rapport is gone. Well, anyway, I have had what the Onc. calls,…