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Latest Journey
After treating my husband's Hodgkins with ABVD, ESHAP, and brentuximab we decided that our best chance to get a clean scan was to go for a stem cell transplant. Our doctors biggest concern is that the cancer will return, so he suggested a tandem auto stem cell transplant. Chris got chemo on Tuesday and his cells on…
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If it's not one thing. . .
Hello my friends. . . (this is not a relapse story) I recently wrote about wanting to take my recovery up another notch. Among other things, I started doing physical therapy. I am still trying to recover from residual peripheral neuropathy and also I still have some balance issues. I was doing great in PT, very diligent…
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arm pain
Hi , I have been really lost in my family's crisis lately and have not been able to stay connected with you all . I have actually been very overwhelmed. I was able to finish my third treatment last week and now I'm having muscle or vein pain for the last two hours. Left arm above the sight the nurse had to use the last…
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Causes of Hodgkins Hodgkin Lymphoma NLPHL
In an attempt to solve the puzzle, I'm starting a topic so people can write in to see if there are any similar circumstance leading up to Hodgkin Lymphoma. My Lymphoma was NLPHL. Here are some of the new things I was doing in the two years prior to diagnosis: -lap swimming several time per week in chlorine pool; -taking…
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Brother's Biopsy Results
Unfortunately, my brother has cancer. I'm not sure if it is lymphoma but all of it seems to be in the nodes. My SIL said she can't remember the name but that it started with an S and was something carcenoma. The only thing that I'm thinking is squamous cell but if someone could inform me as to what this might be I'd be…
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Peripheral T-cell lymphoma NOS diagnosis
My 37 year old husband was just diagnosed with PTCL NOS after being sick for five months. He's lymphoma is presenting in the lungs. His Dr. is recommending CHOEP followed by an autologous stem cell transplant. We will meet with his doctor on Thursday and he will potentially start treatment on Friday. I'm looking for anyone…
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To trust or not to trust
Two and a half weeks ago I found a lump underneath my armpit. I went in for an ultrasound yesterday. The Dr said that she found "something" and her conversations started as such "I'm not worried. Most lymph nodes are horseshoe shaped, yours is abnormally shaped right now. I think you're fine. I wouldn't even tell you to…
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follicular b cell lymphoma stage 4
Hi my name is Patricia i was diagnosed in April of this year with Follicular b cell lymphoma and when i saw my doctor he thought i was just in stage one or two i had to push to get him to do a bone marrow test which proved to be stage 4 to his dismay. He was shocked to say the least i have been taking Rituxan since and now…
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Done with treatment...but it is not over.
Hi there. Just coming up on my first follow up scan after treatment for Hodgkin's Lymphoma and am just as anxious about this as I was about the initial treatment. Do any survivors with a few years under their belt have any advice or insight on follow up scans? I just completed treatment a few months ago and the remission…
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Symptoms of Lymphoma - Need Advice
Hello: I'm usually posting on colorectal cancer board, but got a call from my brother this morning stating that my younger brother was brought in to emergency this morning. He has had a swollen arm for a week now and they did an xray on him stating the arm had no blood clots and sent him home telling him that it was due to…
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Lymph node cancer after complete bladder reconstruction
My brother was diagnosed with bladder cancer 2 years ago and had UCLA do a complete bladder removal, reconstruction and Chemo Treatment. He has been cancer free until today. He was told that cancer had returned to the lower lymph nodes on both sides of the abdomen. Surgery and Radiation appears to be the treatment since he…
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walking.
Walking again! I just wanna share that I have not done any physical activity for a while and just started again about 4 days ago. It is so good for us who can do this during our journey of fighting cancer. I feel it is not only helping my mind but my body as well. I never wanna come back home, I just want to keep walking…
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Hodgkin's Lymphoma diagnosis (im new here!)
Hiya, Been diagnosed with Hodgkin's Lymphoma. Staging is complete - its 1A limited disease. (My CSN space has info on my journey so far) Can't wait to start treatment next week, but i am a bit nervous. Thought of having a PICC line in and possible complications is more stressful to me than chemo itself. Egg collection was…
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Sugar
Sugar. Hi Everyone, I finished my second round of Rituxin, Treanda and Neulasta last week. We'll it was harder than the first. My nausea was constant and with Onda setron HCL 8 mg, flip flopped with another 6 hrs one it didn't let up.I would have been happy to throw up and get some relief , even if it were for 10 min. Not…
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Recently diagnosed with Pmbcl
Hello all.... I decided after looking on here and reading others' posts and comments, to share my story as well. I know this will help me along my journey, as many of you have already been where I have yet to go. I was diagnosed a little over two weeks ago after goin to the ER because of a "slight" shortness of breath. It…
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Happy Halloween
Happy Halloween TO ALL xxxooo Carie
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Newbie, DLBCL, pet scan clean but.....
First, I'm so glad to have found this site today. Going crazy. I was sick for quite some time. 2 yrs or more. I was also having marriage problems so I thought I was just run down. I had major back pain, fatigue and chronic sinus problems. At least that's what 4 Md's, hematologist and a week in the hospital diagnosis was.…
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newbie still freaking out
I am 28 with a HD 1b. I was diagnosed on sept 15 and started chemo on oct9. On Oct 22 a day before second treatment I was hospitalized due to bleo toxicity. Doing second treatment today. My hair has started to shed and I feel just plain angry. Not sure why or at what. Anyone else feel this way?
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Treanda side effects
Has anyone here done Treanda/Rituxan and had alot of side effects?Need some input.Just finished my 4th round of 6.Thinking most of the side effects are from the Treanda as I,ve done years of Rituxan with mild side effects.Side effects so far- 8 day headache in temple left side behind eye,severe itching of ears, back,leg &…
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Battling Cancer / How did you get diagnosed?
Hey All, So my story starts about 6 years ago or so. I have always been a bit on the unhealthy side. I am 32 yrs old and have three children. My issues started off with a mass on my liver that was about 3in, They biopsied it threw CT but they hit a blood vessel and my lungs filled up with blood so it was stopped and I was…
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All kinds of people, all kinds of FNHL
I talked with my neighbor's father today. He is 71 and retired. He was diagnosed with follicular lymphoma at age 58 - 13 years ago. At that time he was put on watch and wait. He is still on watchful waiting and has never received any form of treatment. He was at a major medical Center last week for a 6-month exam. They…
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Good luck Max
Good luck with your tests, tomorrow, Max!
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Hit the 3 year mark and I am no longer a "Borg" :)
Last week I had my scan and I'm still NED so that puts me at three years remisson! Yay! Today, my port was removed so I am no longer a member of the "Borg" (Reference Star Trek, Borg Collective). The extra "nipples" are gone! I am very grateful and hugs and smiles to all of you!
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Half way through
Just wanted to share this with you. Today I had my 6th chemo and there are 6 more to go. I can't beleive that time passed so quickly and now I have to count backwards, 6,5,4,3,2,1 and done! I simply can not wait to not feel tired and enjoy the feeling of feeling normal again. I hope I can get there soon.... 6 down! :) )) 6…
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Michelle & Kyle
I emailed Michelle but seems like last time she logged in was Sept. 10. I hope everything is going well for them. Has anyone heard from them? Following posts daily, keeping everyone in prayers, extremely happy when I see good news.. I seem to be down a lot and can't get myself to post much, but all of you are in my…
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Can cramp be caused by temodar?
I have cramp in my hands, feet, and legs, normally about one day a week, and it can be quite painful. This cramp can perhaps be due to age (I am 70). I take temodar 4 days every month to prevent a relapse of CNS (brain) lymphoma. It seems that cramp is more frequent when I take temodar. I have studied the documentation of…
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So Confused
Im having a very difficult time lately. I was happily married with 3 wonderful young boys. My life was not always peaches and cream but it worked. I was diagnosed with Follicular Non-Hodgkins in 2010. At first I spent my time alone crying. Then I decided that I would control the beast and not let it control me. I had a…
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Lymphoma Newbie
The cancer gods have thrown me a double whammy. After kicking anal cancer last year, I've now been diagnosed with Stage III (Maybe IV) Hodgkins Lymphoma, so I guess I'm moving to this forum now. I had a marrow biopsy to see if it was Stage III or IV but it was inconclusive, and I ain't letting 'em do another (ouch) since…
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Still Kickin------BUTT that is!!!
Fellow Lymphomaniacs Just wanted you to know I am still kicking...lol...More like getting my butt kicked by Anatomy and Physiology classes I am so blessed to be living my dream, even though I had this slight detour with this Cancer crap. Ain't nobody got time for that!! Infusion #8million tomorrow and so tired of it, I am…
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burkit like lymphoma
Hi my name is abdi I am 32 years old. I have been diagnosed with burkit like lymphoma @ mayo clinic rochester mn. I was told I would need 4 months of intense chemo as an inpatient. I was wondering if anyone had this particular lymphoma and treatment. Am worried.