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Just started Brentuximab
Just wanted to update you guys. The stem cell transplant still hasnt happened. My husband did 2 rounds of ESHAP and had a great response. They collected his stem cells and decided to do one more treatment to see if he would be in complete remission. After fighting with insurance they did another pet scan and it was pretty…
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PET Scan results
Sorry i havent posted sooner, so much going on, the results came back there are no other areas involved except the 3 that were seen originally. I informed my job, they are so understanding, they told me that if i need to leave sooner than the 2 week notice i gave them its fine, this will be my last week as i have a lot to…
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Rituxan and Childhood Immunizations
My little almost 5-year-old granddaughter is scheduled for some immunizations and I have been asked to go with her. She will be getting Dtap, MMR, IPV, and Varicella (chicken pox). It occurs to me that since I am on Rituxan, that it may not be safe for me to go for this appointment. Or maybe not even be around her for a…
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Richters lymphoma
My husband was diagnosed with CLL 4 years ago. In march it transformed into Richters Lymphoma which is very aggressive. He just finished 6 cycles of RChop and had a pet scan earlier this week. I am trying to connect with others who have this disease as it is rare. Thank you
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New to CSN
Happy Monday, A little about me - I was diagnosied with Stage 4A classic HL in May 2014, and began my ABVD treatment June 2. I have had treatments two and three both postponed by a week due to very low white and red cell counts. I finally have treatment #3 tomorrow and will begin taking Filgrastim the following week for…
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Hi, new here
Hello, I am new here. treated for lymphoma Bcell 2 years ago. the worst thing Ive been through and feel I got out lucky in some ways. the worst for me now is brain fog. I am improving, but I feel like I have ADD. I use to be a major multi tasker. the second worst is how the Doctors played it down, it does not happen to…
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A very happy day
We got the results of Bill's first CT scan since being on the miracle drug Ibrutinib. There is scant evidence of any lymph nodes left. The doctor and nurses are thrilled and of course so are we. I have been a nervous wreck! This new target drug for relapsed B cell lymphoma is such a hope. Although it has only been released…
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Reishi extract?
I was wondering if anyone else has taken the Reishi extract during chemo. I know I should've told my doctor about it but for some reason I decided to keep it to myself, even my family doesn't know. I read allot about the benefits and decided to give it a try as soon as I stopped breastfeeding my baby (about 2-3 weeks prior…
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Odd History
My new next-door neighbor (moved in about a year ago) has had a very odd journey with lymphoma. He went for extensive testing about two years ago, including the removal of a baseball-sized node. On other occasions he has had two golfball-sized tumors removed. All tested "negative" for any form of cancer. His biopsies were…
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Glad to find this forum
Hello! I've been trying to find a place where I could chat with people with the same problemsas mine and finally found it! :) Here is my story.... I live in Montreal, Canada. Last year while pregnant (14 weeks) and after having two unsuccessful needle biopsies and then later having a biopsy with removal of three lymph…
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Checking in with my CSN friends
Greetings All Been a while since I have checked in with you all. Im doing great. Been 2 years since my stem cell transplant!!! Cant believe it, but time has flown by. Im doing great, Adam and I just bought our new home last month and we are finally settled in. Hope you are all doing well and wanted to send my love and care…
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HOW LONG DOES CHEMO CONTINUE TO WORK?
I have read the chemo stays in your body for about 8 days to 2 weeks, but was wondering if anyone knows for how long it actually continues to work in the body. It must be working on the hair continuosly because it never stops falling out. Just wondering how long it works to destroy the bad cells too.
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Limit to amount of chemo/radiation
Diagnosed with NHL in 2008. Had 8 rounds R-CHOP and 27 radiation sessions. Have been clear until now. So my question...Is there a limit to the amount of chemo/radiation you can have? I don't have symptoms right now but a recent PET showed uptake in the pelvic region and near the trachea. I will see my oncologist on Monday…
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Just had my half-way PET/CT scan for NLPHL
I have had two cylces (four treatment) of R-ABVD for NLPHL. I am scheduled to have four cycles (8 treatments; once every two weeks). Yesterday I had my PET/CT scan. My Dr. said the enlarged nodes have shrunk about in half but there is still some cancer activity, although less than before. He said that no new areas have…
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PET scan Appt
PET scan is scheduled for Saturday morning, the following week will let my job know what is going on, then it will begin, the endless doc appts. Will post results of PET scan next week.
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News To Share
Good news to share....I was one of 16 students accepted into the Athletic Training Program for 2014/2015 at Saginaw Valley State University...That's right my fellow Lymphomaniacs, one of 16 per year admitted into this Elite Program!! I am so blessed to walk on this earth, let alone have wonderful things like this happen to…
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Where's Shoopy?
I know Karl said he planned to take a break from the Discussion Boards after his SCT, so I am not surprised by his absence. I miss Karl and hope he is doing well. And moving forward with his plan to live forever. . .
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R-EPOCH side effect?
Hello there, I'm a new member. My mom (76 years old) was diagnosed in Stanford Hospital in 3 months ago as having c-MYC positive Diffuse Large B Cell Non-Hodgkins Lymphoma (DLBCL). I just recently discovered this online community and was hoping to seek information and share our experience. After having two cycles of R-CEOP…
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Got the results
Saw the doc yesterday, seems that there are a total of 3 areas involved now, she ordered a PET to see if there are more that didnt show up on the CAT scan, she told me that i have 2 options now, rads and chemo like i had the first time which will hand my behind to me again. The rads have a chance of causing raditation…
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Mantle Cell Lymphoma
I was diagnoised with Stage 4 Mantle Cell Lymphoma on March 2, 2012. I was given a 3 phase treatment plan. R_EPOCH, Spinal Tap injections of chemo and stem cell transplant. First phase treatment consisted of 5 days in the hospital for R-EPOCH chemo by IV then 2 weeks out at home for 6 separate treatments. Second phase was…
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I have a question please!
Hello! I haven't been here for awhile. I have a question. I have been in remission for two years this coming December from Non-Hodgkins Lymphoma Diffuse B Cell. I was feeling very strong and well until June 2, 2014. Prior to that time I had a bout with a bronchial situation and came through that. On my follow up doctor…
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Hope for those of us with PCNSNHL
Hi, I have been battling primary central nervous system non-hodgkins disease for the last four and one-half years. Mine was large B cell diffuse with from what I've read includes most if not all of us. I have been receiving chemo, high dose MTX and Rituxan at least every 4 months after the inital nine months when the…
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neuropathy from vincristine
My dad has been in remission now since April 2004, after he finished his last chemo is June he started to feel numbness and tingling in feet. Has anyone had this experience and can it go away. My dads taste buds fully recovered from radiation it took a good month. (FYI) He is sceduled to have a cat scan soon. He hates…
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Appt with doc
I have an appt with Onc Friday morning, she wouldnt discuss results over the phone like she usually does, so i will post Friday what she says.
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Shoopy (Karl)
It breaks my heard to share this but I just got this message from a friend of Karl (Shoopy): "I am a friend of Karl. I know how much support he felt from this site and I think he would want you to know that he passed away on Saturday. He was loved by so many and I know he died feeling that love. His plan was to live…
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Extreme mental decline issues with Neulasta ?
Hi just signed up here trying to find any information on mental issues after taking Neulasta. My father was recently recieving chemo treatments through a chest port for lymphoma. He was doing great with it. Then this morning he had to go in for a shot of Neulasta. He walked to the car just fine with very little…
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Got scan results
Got the results of my CAT scan and it shows that it has progressed and it looks like a new area has started too, my lymph node has enlarged quite a bit in 5 months as well, am waiting to hear from Onc. and see what she has to say, i feel fine for now, just tired of all of this, i keep telling myself it can be worse, there…
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confused by biopsy results.
hi my name is angie, my husband has been told that he probley has non hodgkins lymphoma. he has this tumor growing on the side of his neck. its huge. now the other side has one growing. he went to an ent they did a niddle biopsy it showed lymphoma. we went to the oncoligist he had a pet scan ordered and another biopsy. so…
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Life is just full of surprises.
Well, I've never done this before but I am to the point of serious anxiety about this. So here it is: I am a healthy 22 yr old, white male. I am 6'1" and apprx. 190lbs. About four weeks ago I had a really bad bout of strep throat. Since then and before that point I have been in good health. Anyway, about two weeks ago I…
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It's been awhile
It has been awhile since my last post, i am now working full time, i decided that since my last Dx that since the tumor is small i would work to keep myself busy, and to keep me from thinking too much, after 3 times of being diagnosed and it being a small tumor that i would not stress as i know i have beaten it twice…