Subcutaneous Panniculitis-Like T-Cell Lymphoma

sarahbruton23
sarahbruton23 Member Posts: 1
edited August 2017 in Lymphoma (Hodgkin and Non-Hodgkin) #1

I am searching for someone who has the same kind of non hodgkin's as me.  I have Subcutaneous Panniculitis-Like T-cell lymphoma stage 4a.  This is a rare cancer and I have not been able to find much information on this disease let alone anyone who also has this.

 

 

Comments

  • po18guy
    po18guy Member Posts: 1,505 Member
    #2
    Do you have a T-Cell specialist?

    Since this variety (one of 19 T-Cell sub-types) is so rare, you should strongly consider consulting with a nationally known specialist in T-Cell Lymphomas. Have you begun treatment? 

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