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San Francisco T-Cell Lymphoma patient education seminar
The T-Cell Leukemia/Lymphoma Foundation will be conducting a patient education seminar Saturday, June 3rd, from 8:30 AM to 2:30 PM at the Hotel Nikko in downtown San Francisco, California. The main presenter will be Dr. Andrei Shustov of Fred Hutchinson/Seattle Cancer Care Alliance. He is an internationally known…
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Waiting And draining
I had my core needle and fine needle biopsy on my right inguial nodes done on Monday and recieved a call Tuesday afternoon from the general surgeon that they did not get enough tissue to test. The fine needle showed some lymphocytes but more blood than anything. So, I go back to the hospital Wednesday to repeat the core…
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Rash started getting better, now might be getting worse before second treatment...
Hello, Hoping someone has some experience with this and can help answer my question. My wife was recently diagnosed with ALCL ALK-Positive (anaplastic large cell lymphoma). She started her chemotherapy treatements recently, her first being on May 8th, and scheduled to run every three weeks for six times. Her next treatment…
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Medical Reports
Has anyone heard of this? Looking for feedback before considering. http://www.bloodjournal.org/content/105/3/1214.long?sso-checked=true and this is interesing too. http://constancetherapeutics.com/knowledge-center/cannabis-oil-and-leukemia.html
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Body Ache experiment
I was wondering if anyone is currently experiencing body aches from Neupagen or Neulasta and would drink iced tea & see if it lessens or stops the aches? I recently received high doses of Neupagen for stem cell collection. I received two shots every day for 7 days. I was warned that I would have painful body aches from it,…
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Is three days too long for Neulasta after Chemo?
My husband had his first Chemo treatment this past Friday the 26th...and was told to return on Monday for the Neulasta. From what I've read, this injection should be after 24 hours. Is there some information or web site that you can give me to put my fears at ease. Is it just because they are closed on the weekend? I want…
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Undiagnosed and nervous
Im looking for some outside opinions on what I'm dealing with. I feel like something is not right, I know my body. In October (about 7 months ago) I started seeing a new primary because I just didn't feel good. I lost about 15lbs pretty rapidly, no appetite, and I was so tired I could barely function. She ran some blood…
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Chemo and Diet
Hello, Often, people tell me to stay away from sugar and most meat products, especially red meat. I still eat grass-fed beef and organic chicken occasionally. I am trying to have more of a vegetarian diet, however, it's just hard with all the mood swings and taste buds. I was never into sweets before all this happened but…
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Undiagnosed, scared mom.
Hello. I'm here to get some advice. The night of the 25th of April prior to going to bed I noticed swollen lymph nodes in my groin. I reached out to my doctor and she felt them and thought because I have HSV1 and get outbreaks on my back that I was possibly going to have an outbrewk and started me on the medication. It did…
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At 18 months
This last Monday I had my "18 month" CT scan and it came back clear. Of course there is a little more to the story. We had gone on vacation for a week to DC. Did a lot of walking to see the various memorials and museums. We returned on a Thur. Sat I got up and my stomach felt a little odd. Did a few things and then ate…
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Chemo Brain
I first saw this news story on my flipboard this morning. https://www.washingtonpost.com/national/health-science/when-scientists-saw-the-mouse-heads-glowing-they-knew-the-discovery-was-big/2017/05/19/f33cc574-246a-11e7-a1b3-faff0034e2de_story.html?utm_term=.cc5d0a6ab2a9 I talks about how centuries it was accept that the…
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Late treatment problems years on
Long term chemotherapy and radiation problems over twenty years please let me here your problems if any one has had .bad chest.. Joint pain...bad tummy...general pains due to nerve damage....muscle pain
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Helping a Lymphoma Survivor with Guilt
Hi. So I know this discussion forum is mostly for survivors themselves but to be honest I'm quite desperate. My boyfriend is a non hodgkins survivor. He's now 22 and has been in remission for almost 2 years. I didn't know him when he was going through all of this which makes it even more difficult for me to know how to…
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bone marrow biopsy after pain
Can anyone share experiences with bone marrow biopsy and pain for days after? in my husband's case, his bones were so hard the doctor had to stand on a chair and literally broke a sweat getting it done. Lots of back pain 2 days after - is this normal? DX at this point is low grade Extranodal Marginal Lymphoma - a MALT.…
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Elevated Igm Kappa Levels
Hello Everyone, In Feb I was sent to Hemo/Onc for DVT, bone pain. I do have swollen lymph nodes in my neck, i do spit out blood at times dont why this happens either and Onc cannot grasp around it yet or is he knows doesnt want totell me till we have the right diagnosis. Onc ran several tests and Igm was elevated at 298…
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Radiation effects
Hi, HL patient just finished ABVD chemo about a month ago and just 2 days ago completed 10 radiation sessions. I know am experiencing what feels like a lump in my throat making it difficult to swallow, even water. Radiologist gave me the mouthwash but doesn't seem to be helping very much. Any recommendations, or idea how…
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2nd Opinion for PTCL NOS
My husband was diagnosed 2 weeks ago with PTCL NOS Stage 2a. We feel we have a competent physician but want a 2nd opinion on biopsy and diagnosis. Looking for what the best cancer centers specialize in T-cell lymphoma. He has already done 1 CHOEP chemo treatment. Is this still the beginning standard of care for PTCL NOS?
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Peripheral T cell NOS Non Hodgkins lymphoma
Anyone out there with this? My father was diagnosed with this 5 months ago - stage 3 - no organs involved thus far - just finished 5th treatment chemo (CHOP) - handling it fairly well - regression in all of his nodes - 6th round will be in early January, 3 weeks later a CAT scan to see where we are - and he is expected to…
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Treatments for DLBCL - UPDATE
Hi there - I'm inquiring about this for a my best friend, who was just recently diagnosed w/ Stage 3 DLBCL. She is 33 years old and is a mom to 3 young children, so it's imperative she kicks this things @$$!! Yesterday she had a bone marrow biopsy. I've been doing a ton of research on this and I know that this is all part…
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April 24, 2014
I just arrived home from the funeral when I heard the dreaded three words, "you have cancer". I learned that anniversaries and scans cause a bit of anxiety. Three years ago I was diagnosed. Three weeks later I found out that my father also had cancer. I pretended not to have cancer went through the treatment alone, then…
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Is Hodgkin's genetic? Husband had classical HL, daughter just diagnosed with NLPHL
Hi, I'm new to this site. It's my first post and I'm wondering if anyone else has had more than one person in their family with Hodgkin's Lymphoma? My husband was diagnosed with stage 2a classical HL in 2009 and had 12 rounds of AVBD. He has been cured ever since. My 19 year old daughter was just diagnosed with stage 2A…
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NLPHl and T Cell rich NHL Lymphoma
Well I have been stalking this forum and decided to join in case I have an experience that might help others. I am 53 year old male with NHPHL and T cell rich NHL Lymphoma. I have completed 3 RCHOP treatments and 2 intrathecal (spinal infusion) treatments. If all goes well I am halfway through both types of treatments. I…
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Mantel Cell Lymphoma
My Mum who is 57 has just been diagnosed with Stage 4 Mantel Cell Lymphoma (NHL). Her Oncologist has recommended starting with CHOP but isn't very optimistic. Does anyone else know of any other treatments or trials that might be worth considering? I would appreciate hearing from any Mantel Cell Lymphoma survivors as I am…
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Telling Others
When I was first diagnosed with cancer, almost 4 years ago, one of my first thoughts was that I didn't want to tell anyone. When my Doctor told me I would be losing my hair, I felt so sad, not because of vanity, but rather of being transformed into someone who must reveal to the world, through baldness, that they…
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Angioimmunoblastic T-cell Lymphoma Stage IV
This is the lymphoma my husband was diagnosed with last May. Anybody have any experience with treatment options. We have completed CHOP and before they could start Stem Cell Transplant, it was back in his bone marrow. Not a candiate for SCT. He is now on Gemzar for 8 treatments. He has had 2 treatments delay due to low…
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Dental Problems and Persistent Lymph Nodes
Hey all, I'm glad I found a site where I can ask people who know what they are talking about. Anyways, I just turned 26 years old and I have had a few broken teeth (wisdom and molars) for a number of years. This may be unrelated, but I've had a blocked ear for about 7 months... sometimes it unpops for a few minutes but…
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Survivor of lymphoma
I am a survivor of lymphoma. I am now in my 30's and I am into a pretty severe depression and anxiety due to the disease. I have had great difficulty coping with the long term effects of the disease and it’s side effects. How can I take control of my health as a lymphoma survivor? It is exhausting. I am thinking to visit a…
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3rd Clinical trial!
But not for cancer. Rather, trials are being conducted to learn how to combat Graft-versus-Host-Disease for transplant patients. And, since I have a touch of that, I inquired about trials. I am treated at SCCA/Fred Hutchinson, so trials are their daily task. They found one sponsired by Moffitt Cancer Center in Tampa that…
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Chemo Regimen R-ICE
how long did it take for your platelets to start holding on their own? And how long did it take for your white count to get to normal range after your first cycle of R-ICE?
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Itching and Hodgkin's Disease (long)
Back in 2001 I began itching without reason. I eventually went to my general doctor who referred me to an allergy doctor. After allergy test and multiple visits without solving my itching problem I asked the allergy doctor about a gland in my neck that I felt getting bigger than normal. He told me there were no glands in…