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Husband with hodgkins
Hello, I am new to this discussion. My Husband was diagnosed with Hodgkins Lymphoma In October of 2016. Dr gave a good prognosis, and Lymphoma is curable, but that is down the road. Getting through the treatment is quite an experience. He is approaching his 6th chemo treatment coming up on Jan 9, 2017. Regimen is set for…
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continous fever after chemo
My brother is undergoing chemo for his lymphoma but since last 2 weeks he is continously having fever, due to which his chemo scheduled for today is also delayed.. But ther are no infections in any of his results. Is this ok?? Can anyone help??
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When is it time to switch doctors??
After my 5th treatment of chemo (R-CHOP/O-CHOP), I had a scary incident that ended with me in the ER. I had a very difficult time with chemo and my symptoms would peak about 2 days after treatment. This time, my symptoms took a downward spiral. I felt terrible as usual, facial pain, stomach pain, extreme sensitivity to…
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Working my way back
Well 6 RCHOP sessions in the books ! 4 IT methotrexate in the books! Last dose of Prednisone done! I am sitting here realizing how blessed I am. I keep hoping that tomorrow I wake up and the fatigue is gone. I know that is unrealistic. I am just so ready to feel good again. The Oncologist was right when he said by round 6…
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Various symptoms, not sure where to start for help
I was diagnosed this time last summer with mono, which took months to recover from and still wonder if I'm being plagued with it. I'm also having additional symptoms that my doctor, as of yet, cannot pinpoint to a diagnosis. Ive had severe drenching night sweats for going on a year and a half, to the point I sometimes get…
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Obinutuzumab?
I was diagnosed with follicular lymphoma, and started with r-chop for the first two cycles. I then switched to obinutuzumab (GAZYVA) for cycle 3-5 (didn't have cycle 6, but that is another story). I am currently in remission and have been told I will have maintenance therapy with the obinutuzumab every 2 months for 2…
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Shout-out for massages
I did 6 rounds of R-Chop starting Jan 2015. August 2015 I started the first of 3 cycles of RICE. Through all of it I managed to work most of the time at a job where I sit a lot. At home I napped and sat. I didn't realize how weak I was until December when I tried to do some Christmas shopping. Feb-Mar 2016 was prep for…
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Vaccines after SCT
Hi All! I have been told by my oncologist that 12 months after a SCT I will need to have my vaccines repeated. I have no problem with that. Is that the norm with autologous SCT? Do I need titers first, or should I just go with the vaccines?
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Our Friend has Lymphoma
Our dear friend and well loved, long time coworker, of my husband has been diagnosed with lymphoma. He wasn't feeling well and was going to his family doctor. I don't know what kinds of symptoms he was having as he is a very private person. I do know that his blood work revealed that he was anemic. His doctor ordered a CT…
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Shortness of breath, Single agent Rituxan
I have been dealing with shortness of breath since my treatment in 2014. I have been seen by cardiology, wore a halter monitor, mutilple stress tests and thankfully my heart is good. Next a pulmonologist and many more tests and scans. Nothing remarkable. Ok, thoracics they will find something. Tests, tears, tests.....…
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What to expect
My mother was diagnosed with lymphoma. She had a node on her leg that kept growing and got infected. The doctor sent her to the hospital immediatly and it was removed. It was sent for diagnosis and came back as lymphoma. She just turned 90. She refused treatment due to her age and being frail. She also has lupus. She now…
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Radiation on vertebrae
I am having radiation on my T11 vertebrae for B Cell Non Hodgins Lymphoma. I just had my tattoos today and had this question (after I left the docotors office) Why are they radiating me from my front instead of my back to get to my vertebrae. Wouldn't it go through less organs to go from the back? They told me I would have…
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3 clean blood works an x ray and ultrasound! What are the odds I could have lymphoma?
So as the title says I have had 3 clean bloodworks a chest x ray and stomach ultrasound what are the odds I could have lymphoma? Let me also add in I had an fna biopsy done which came back suspicious but then a core needle biopsy that came back negative (what are the chances of a false positive and negative?) And little to…
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Public health care in Costa Rica for DLBCL; What am I missing?
Hello everyone, I am being treated for DLBCL at a public hospital in Costa Rica. It is far different than my past experience at Moffitt Cancer Center in Tampa. I am getting R-chop with IT methotrexate. Instead of doxorubicin I get epirubicin. How it works here is I get a consultation with the hematologist(lab work first…
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Heart surgery for Hodgkins survivors
Hi everyone, I'm a 47-year survivor (I was 12 at the time), now diagnosed with aortic valve stenosis. My doctors are debating whether to use a less invasive surgery (TAVR - or a new valve via cathether), or replace the valve via open heart surgery. The TAVR is a fairly new technology, and the valves don't last as long.…
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PTCL-NOS and Romidepsin
My husband has been battling PTCL-NOS for a year and a half now. He's been refractory to CHOEP, relapsed on Brentuximab Vedotin, and is now taking Romidepsin. Since he relapsed, they're saying an auto stem cell transplant is not recommended. There are no matches for him on the donor list for an allo transplant. We're…
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Thymic Rebound/mediastinal mass
Hello, I was diagnosed with stage III T-cell lymphoblastic lymphoma in January of 2015. At the time of diagnosis, a "trivial" pericardial effusion was found. My oncologists mainly focused on my large external nodes and I went through two and a half years of chemotherapy on the ALL protocol. A few notes, I was diagnosed…
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Opdivo injury
Has anyone had an Opdivo injury to their kidney's? My creatinine is 3.1 and has stayed there for a month now. I saw a nephrologist he said most likely I had an acute injury to my kidney's due to Opdivo. He'd usually do a biopsy, but my platelets are below 50. I was just curious
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My husband NHL..... remission new issues...
June 2015 my husband underwent surgery partial parodictomy to remove a necrotic salivary gland. They dx him with Sjogren's and then the Biopsy came back... differential: marginal/mantle/CLL he was treated with 12 radiation sessions and has had PET every 6 months since. Blood work points to Sjogrens but other antibodies are…
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Neutropenia: common??
Hey. I was supposed to have Chemo round #2 tomorow but my Dr. called and said I have neutropenia. Is this a common thing? I am getting another blood test next week now to see if we can do Chemo next week. I am irritated to say the least. I want this cancer gone. I don't want to have to wait another week! (insert whiny…
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Longterm effects of radiation therapy
I am 56 years old and I had Hodgkins when I was 16. Treatment was surgery for tumors in my chest and radiation therapy. I am now having problems the worst of which is severe aortic stenosis. There seems to be some question as to whether there is a fix for this. Normally it would mean heart valve replacement. Because…
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radiation of throat
My husband has been diagnosed with Extranodal Marginal Zone NHL, Stage 1. Found in the tonsil, he had his right tonsil removed. Doctor has recommended 15 rounds of IGRT radiation, with side effects of sore throat, and loss of saliva, fatigue. Anyone have had this type radiation for neck? Oncologist says this is a slow…
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Brain Fog
I know this is a topic that comes up every so often and I thought I would share something I just read. Earlier this week I got the July-August issue of Arthiritis Today and one of it's featured articles was "Brain Fog'". The article is about how people with RA and certain other conditions experience brain fog. One of the…
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Stem cell transplant
Has anyone completed a stem cell transplant recently? I tried searching the board, but am getting old posts. I have Double Hit Large B Cell Lymphoma and just finished with what I hope is my last round of Hyper-CVAD (3 rounds of cycles A & B) . I am scheduled for a PET scan & BMB in a few weeks. If everything's good I will…
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Neulasta
Hi everyone, mom just received her two day chemo treatment of (Rituxin and Bendamustine) for mantle cell lymphoma. She is supposed to have Nuelasta injection or go home with an on body injector for Neulasta. Has anyone used this on body injector before? The side effects don't sound great for Neulasta- bone pain? Thoughts?…
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anti-emotics Emend Q: Reduce pretreatment IV dosage before ABVD
TLDNR: Anyone else successfully reduce their "pre-treatment" anti-emotic w/o issue? Background: I'm receiving 150mg Emend intravenously before ABVD (3 infusions so far) and would like to reduce Emend dosage due to possible side-effects (neutropenia). I am also prescribed Zofran tablets but fortunately no issues w/nausea or…
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How to feel/What to expect
I'm soon to be 52 and was just diagnosed with MCL. My family doctor found something odd on a blood test when he was checking for rheumatoid arthritis. He thought it might be CLL but I've seen 2 oncologists since and they both agreed it was MCL.......of course I could manage to get one of the more rare versions of NHL!…
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Looking for treatment insight
I am a 44 year old male and have been diagnosed with Hodgkins Lymphoma. Nodular Lymphcite Predominant Hodkins Lymphoma to be precise. In Feb 2014 I had an ultrasound for a possible appeniciitis that turned out to be a pulled muscle. There was a small abnormaity in my abdomen noted on the results. My doctor assured me it…
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Mom recently diagnosed with MCL
Hi everyone I have been snooping around this board for a bit and have found you all to be so informative, helpful and supportive! So, I thought I would post with a question or two. My mother is 76 and was (finally) diagnosed with non-blastoid Mantle Cell Lymphoma last week. She goes for her port on Monday and her first…
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Relapse Again
My husband has Hodgkins - B Cell type - Not sure if that's technically correct description - He had chemo and was clear for 12 years! At that time, conventional wisdom was after 10 years, they could say "cured." But it came back and he had a round of treatment with Rituxan and relapsed in six months. So he had Rituxan and…