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Lymphoma (Hodgkin and Non-Hodgkin)

Shortness of breath, Single agent Rituxan
I have been dealing with shortness of breath since my treatment in 2014. I have been seen by cardiology, wore a halter monitor, mutilple stress tests and thankfully my heart is good. Next a pulmonologist and many more tests and scans. Nothing remarkable. Ok, thoracics they will find something. Tests, tears, tests.....…
What to expect
My mother was diagnosed with lymphoma. She had a node on her leg that kept growing and got infected. The doctor sent her to the hospital immediatly and it was removed. It was sent for diagnosis and came back as lymphoma. She just turned 90. She refused treatment due to her age and being frail. She also has lupus. She now…
Radiation on vertebrae
I am having radiation on my T11 vertebrae for B Cell Non Hodgins Lymphoma. I just had my tattoos today and had this question (after I left the docotors office) Why are they radiating me from my front instead of my back to get to my vertebrae. Wouldn't it go through less organs to go from the back? They told me I would have…
3 clean blood works an x ray and ultrasound! What are the odds I could have lymphoma?
So as the title says I have had 3 clean bloodworks a chest x ray and stomach ultrasound what are the odds I could have lymphoma? Let me also add in I had an fna biopsy done which came back suspicious but then a core needle biopsy that came back negative (what are the chances of a false positive and negative?) And little to…
Public health care in Costa Rica for DLBCL; What am I missing?
Hello everyone, I am being treated for DLBCL at a public hospital in Costa Rica. It is far different than my past experience at Moffitt Cancer Center in Tampa. I am getting R-chop with IT methotrexate. Instead of doxorubicin I get epirubicin. How it works here is I get a consultation with the hematologist(lab work first…
Heart surgery for Hodgkins survivors
Hi everyone, I'm a 47-year survivor (I was 12 at the time), now diagnosed with aortic valve stenosis. My doctors are debating whether to use a less invasive surgery (TAVR - or a new valve via cathether), or replace the valve via open heart surgery. The TAVR is a fairly new technology, and the valves don't last as long.…
PTCL-NOS and Romidepsin
My husband has been battling PTCL-NOS for a year and a half now. He's been refractory to CHOEP, relapsed on Brentuximab Vedotin, and is now taking Romidepsin. Since he relapsed, they're saying an auto stem cell transplant is not recommended. There are no matches for him on the donor list for an allo transplant. We're…
Thymic Rebound/mediastinal mass
Hello, I was diagnosed with stage III T-cell lymphoblastic lymphoma in January of 2015. At the time of diagnosis, a "trivial" pericardial effusion was found. My oncologists mainly focused on my large external nodes and I went through two and a half years of chemotherapy on the ALL protocol. A few notes, I was diagnosed…
Opdivo injury
Has anyone had an Opdivo injury to their kidney's? My creatinine is 3.1 and has stayed there for a month now. I saw a nephrologist he said most likely I had an acute injury to my kidney's due to Opdivo. He'd usually do a biopsy, but my platelets are below 50. I was just curious
My husband NHL..... remission new issues...
June 2015 my husband underwent surgery partial parodictomy to remove a necrotic salivary gland. They dx him with Sjogren's and then the Biopsy came back... differential: marginal/mantle/CLL he was treated with 12 radiation sessions and has had PET every 6 months since. Blood work points to Sjogrens but other antibodies are…
Neutropenia: common??
Hey. I was supposed to have Chemo round #2 tomorow but my Dr. called and said I have neutropenia. Is this a common thing? I am getting another blood test next week now to see if we can do Chemo next week. I am irritated to say the least. I want this cancer gone. I don't want to have to wait another week! (insert whiny…
Longterm effects of radiation therapy
I am 56 years old and I had Hodgkins when I was 16. Treatment was surgery for tumors in my chest and radiation therapy. I am now having problems the worst of which is severe aortic stenosis. There seems to be some question as to whether there is a fix for this. Normally it would mean heart valve replacement. Because…
radiation of throat
My husband has been diagnosed with Extranodal Marginal Zone NHL, Stage 1. Found in the tonsil, he had his right tonsil removed. Doctor has recommended 15 rounds of IGRT radiation, with side effects of sore throat, and loss of saliva, fatigue. Anyone have had this type radiation for neck? Oncologist says this is a slow…
Brain Fog
I know this is a topic that comes up every so often and I thought I would share something I just read. Earlier this week I got the July-August issue of Arthiritis Today and one of it's featured articles was "Brain Fog'". The article is about how people with RA and certain other conditions experience brain fog. One of the…
Stem cell transplant
Has anyone completed a stem cell transplant recently? I tried searching the board, but am getting old posts. I have Double Hit Large B Cell Lymphoma and just finished with what I hope is my last round of Hyper-CVAD (3 rounds of cycles A & B) . I am scheduled for a PET scan & BMB in a few weeks. If everything's good I will…
Neulasta
Hi everyone, mom just received her two day chemo treatment of (Rituxin and Bendamustine) for mantle cell lymphoma. She is supposed to have Nuelasta injection or go home with an on body injector for Neulasta. Has anyone used this on body injector before? The side effects don't sound great for Neulasta- bone pain? Thoughts?…
anti-emotics Emend Q: Reduce pretreatment IV dosage before ABVD
TLDNR: Anyone else successfully reduce their "pre-treatment" anti-emotic w/o issue? Background: I'm receiving 150mg Emend intravenously before ABVD (3 infusions so far) and would like to reduce Emend dosage due to possible side-effects (neutropenia). I am also prescribed Zofran tablets but fortunately no issues w/nausea or…
How to feel/What to expect
I'm soon to be 52 and was just diagnosed with MCL. My family doctor found something odd on a blood test when he was checking for rheumatoid arthritis. He thought it might be CLL but I've seen 2 oncologists since and they both agreed it was MCL.......of course I could manage to get one of the more rare versions of NHL!…
Looking for treatment insight
I am a 44 year old male and have been diagnosed with Hodgkins Lymphoma. Nodular Lymphcite Predominant Hodkins Lymphoma to be precise. In Feb 2014 I had an ultrasound for a possible appeniciitis that turned out to be a pulled muscle. There was a small abnormaity in my abdomen noted on the results. My doctor assured me it…
Mom recently diagnosed with MCL
Hi everyone I have been snooping around this board for a bit and have found you all to be so informative, helpful and supportive! So, I thought I would post with a question or two. My mother is 76 and was (finally) diagnosed with non-blastoid Mantle Cell Lymphoma last week. She goes for her port on Monday and her first…
Relapse Again
My husband has Hodgkins - B Cell type - Not sure if that's technically correct description - He had chemo and was clear for 12 years! At that time, conventional wisdom was after 10 years, they could say "cured." But it came back and he had a round of treatment with Rituxan and relapsed in six months. So he had Rituxan and…
Newly diagnosed
I was diagnosed on March 25, 2017 With TCell Pll. I took 12 rounds of Chempath, I got so sick that on April 21' 2017 i went for another round. I didn't know my name they immediately put me in the hospitaL. I was there for over a month with a very sick liver. I had told my doctor that I felt the same and something was not…
Complete remission
Well got my PET scan results yesterday. Full remission was music to my ears. Finished treatment 5 yesterday and treatment 6 scheduled for 7/3. Then I have PET scan every 3 months. The PET scan did show some spots on the lungs and Dr said it was not Lymphoma he thinks it could be from Chemo. I have an appointment with…
Panick Mode has set in
I went to my doctor for a regular check up and blood work and was surprised with more tests and they are setting up an appointment with a hematologist I know what each word on the CBC means and does, but I don't understand it as a whole: WBC 3.7 (which at minimum should be 4) RBC 3.24 (which at minimum should be 3.8)…
Necrotic Cells: Possible Lymphoma
A family member in India has a fairly large tumor in her left upper chest area. The tumor grew within 3-4 months and has reached her neck area. Her PET scan shows high possibility of cancer. She went through needle biopsy twice and they only found necrotic cells. Doctors say: - It is very likely she has non-hodgkins…
Do Retuxin + Bendamustine side effects intensify with treatments?
Suspicious for lymphoma and scared but no concrete diagnosis yet!
Hello everyone i am new to the site and just wanted some opinions and feed back from you very knowledgable and great people out there thank you in advance :) Well first things first i am a 20 year old male in pretty decent shape play alot of sports dont eat to terrible my family has no history of any illnesses to this day…
Rituxan Maintenance Schedule for MCL
Following treatment with Rituxan and Bendamustin, what is the usual maintenance schedule for Rituxan? My friend had a complete response after 3 B-R treatments, but he will continue for 2 more. He will probably begin mainenance when he is done.
Worry Type of Person
Hello, To begin, I am a 26 year old mother of two. I am currently breastfeeding my youngest and have been for a little over 2 years now. I noticed about 2 weeks ago, my left armpit area was swollen. It looks swollen to me and feels like it every time I touch it. It seemed to feel like it goes down, but I can't be 100…
Tomorrow I get my chemo and I am afraid!
Hello everybody, as I already posted here, I got diagnosed with LPHL IIA in 03/2017. Tomorrow starts my treatment (2*ABVD + 20 grey IFRT). I start to get more and more nervous and my fear is increasing with every hour. I'm afraid about the pain that could come up during the treatment and all the side effects. Although I'm…

Lymphoma (Hodgkin and Non-Hodgkin)

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