Thanks

deerhaven
deerhaven Member Posts: 5
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Thanks for all of your caring comments. I was just diagnosed in Dec. (2010) with non-Hodgkin's lymphoma (large cell diffuse) I believe that's it! It's all still new to me. The first round of chemo wiped me out. In fact, I was to begin Round #2 last week, and the Dr. thought I hadn't recovered enough from Round #1, so they put it off a week. My blood pressure is still quite low (86/75) so I'm trying to pump fluids, but my stomach has "shrunk" so I get full easily. Guess that's about it......It's nice to have someone to share with........someone who's been there!

Sandy

Comments

  • merrywinner
    merrywinner Member Posts: 626 Member
    #2
    A belated welcome
    Glad you found us. Wow it sounds like you have been through a lot in a very short time. I can well imagine how tired your mind must be. Please know that you are in a safe environment here. These people are the absolute best and can offer tons of support and information to help with any situation. Being in the company of people who know and have firsthand experience with Lymphoma has no equal. There's so much to gain here and it's all for free with no strings or obligations. So use what you need and add what you can. Will look forward to hearing from you. Mary(FNHL-1-2,4A,7/08, remission)

    PS: Sometimes you will see a series of numbers,letters and words following someones name. They are the type of lymphoma,the grade,the stage and the year of diagnosis and sometimes the current outcome. This is totally voluntary but is useful in getting accurate answers to specific questions. Hang around, we love to share cuz we've all been there,been scared,been new,been sick and most importantly gotten better!!!
  • KC13167
    KC13167 Member Posts: 215
    #3
    Low BP
    Hi Sandy, My blood pressure ran very low during my R-CHOP treatments; I too had DLBNHL, diagnosed in 6/10 and in remission in 10/10. The nurses would up my IV fluids before and during the infusions, which seemed to help. Good luck to you. Kellie
  • yesyes2
    yesyes2 Member Posts: 591
    #4
    KC13167 said:

    Low BP
    Hi Sandy, My blood pressure ran very low during my R-CHOP treatments; I too had DLBNHL, diagnosed in 6/10 and in remission in 10/10. The nurses would up my IV fluids before and during the infusions, which seemed to help. Good luck to you. Kellie

    BP
    Hi Sandy, I know that Rituxan as a side effect can lower BP. Although I don't know if that is only during the infusion period or if it can have a longer effect.
    Leslie
  • KC13167
    KC13167 Member Posts: 215
    #5
    KC13167 said:

    Low BP
    Hi Sandy, My blood pressure ran very low during my R-CHOP treatments; I too had DLBNHL, diagnosed in 6/10 and in remission in 10/10. The nurses would up my IV fluids before and during the infusions, which seemed to help. Good luck to you. Kellie

    Low BP and....
    I should have noted that my average blood pressure is lower than average to begin with at about 88/66. Leslie, I think you are right and it only effects BP during the infusion. Kellie
  • bluerose
    bluerose Member Posts: 1,104
    #6
    Hi Sandy
    Just a little encouragement as you start your treatments that I went through all that first time fatigue and overwhelming confusion with all the new terms and life changes that come with a diagnosis of cancer and in fact had NHL myself.

    The encouragment is that I am considered cured now, the diagnosis was 23 years ago. I had one recurrance about a year a half after the diagnosis and then that was it. Today they are using gentler techniques it seems from what I can gather and that's wonderful.

    Continue to use this board for support, I wish I had it when I was in treatment, and take care of yourself - resting when you feel the need - don't fight the fatigue. Your body goes through a great deal when under chemo attack so let it rest when it says so.

    All the best, you can do it, and in 20 plus years you will be sitting at your computer encouraging another NHL patient as I am doing with you now.

    Blessings,

    Bluerose
  • deerhaven
    deerhaven Member Posts: 5
    #7
    merrywinner said:

    A belated welcome
    Glad you found us. Wow it sounds like you have been through a lot in a very short time. I can well imagine how tired your mind must be. Please know that you are in a safe environment here. These people are the absolute best and can offer tons of support and information to help with any situation. Being in the company of people who know and have firsthand experience with Lymphoma has no equal. There's so much to gain here and it's all for free with no strings or obligations. So use what you need and add what you can. Will look forward to hearing from you. Mary(FNHL-1-2,4A,7/08, remission)

    PS: Sometimes you will see a series of numbers,letters and words following someones name. They are the type of lymphoma,the grade,the stage and the year of diagnosis and sometimes the current outcome. This is totally voluntary but is useful in getting accurate answers to specific questions. Hang around, we love to share cuz we've all been there,been scared,been new,been sick and most importantly gotten better!!!

    Mary
    What does the F in NHL
    Mary

    What does the F in NHL stand for?

    Sandy
  • yesyes2
    yesyes2 Member Posts: 591
    #8
    deerhaven said:

    Mary
    What does the F in NHL
    Mary

    What does the F in NHL stand for?

    Sandy

    fNHL
    Hi Sandy, The F stands for follicular, most common form of indolent NHL. There are many people on here who have this type of lymphoma. There are also several CSN members with DLBC like yourself. My type is only known as Lymphoproliferative Disorder (LPD),or if you have had a BMT/SCT or solid organ transplant than it is called Post Transplant Lymphoproliferative Disorder (PTLPD). It is a result of taking medications which suppress your immune system.
    Leslie
  • yesyes2
    yesyes2 Member Posts: 591
    #9
    deerhaven said:

    Mary
    What does the F in NHL
    Mary

    What does the F in NHL stand for?

    Sandy

    fNHL
    Hi Sandy, The F stands for follicular, most common form of indolent NHL. There are many people on here who have this type of lymphoma. There are also several CSN members with DLBC like yourself. My type is only known as Lymphoproliferative Disorder (LPD),or if you have had a BMT/SCT or solid organ transplant than it is called Post Transplant Lymphoproliferative Disorder (PTLPD). It is a result of taking medications which suppress your immune system.
    Leslie

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