I'm new.

deerhaven
deerhaven Member Posts: 5
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Just found this site and wondering how it works! I have had my first round of REPOCH and go back for the second one this Tuesday. Am not pleased with being in the hospital for 5 days at a time, but guess it's OK if that's what it takes!

Comments

  • yesyes2
    yesyes2 Member Posts: 591
    #2
    Welcome
    Hi Deerhaven,
    Welcome to the CSN. This is a great board with very carrying and warm members. We all have either completed treatment or are in treatment so have been there and done that. Can you tell us a little about yourself, like what type of Lymphoma you have. You are having a very aggressive chemo but I do recall some people on this board doing repoch. I am one yr out of RCHOP treatment for an aggressive and very rare B and T cell NHL know as LPD. I was diagnosed with it in Jan 2008, treated with rituxin, achieved remission in April, 2008 and dianosed with relape in June 2009. This time it was B cell only, same disease and treatment was RCHOPx6. I am finally having some energy and feeling good.
    I look forward to hearing more about you when you feel up to it.
    Blessings to you,
    Leslie
  • bluerose
    bluerose Member Posts: 1,104
    #3
    Welcome to the site deerhaven
    I am a 23 year survivor of non hodgkins lymphoma with only one recurrance early on after the first one and considered cure by my doctors some time ago.

    Just wanted to welcome you to the site and echo what yesyes had to say about this being a wonderful and caring site for cancer patients and survivors alike. I also wanted you to see, by my presence, and the presence of many others who have beat this thing, that with good treatment and lots of support you can do it too. There will be tough times and yes perhaps hospitals stays but with support from friends and loved ones you will be fine.

    All the best and feel free to post whenever you have a question or just need to vent. Be honest with your feelings, we don't consider anything 'whining' here because we have all been there at one time or another when we just felt poorly about this or that part of the treatments or recovery periods.

    Blessings,

    Bluerose
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #4
    Welcome
    Just want to say welcome to this board. I hope you make it your board as well. We are all like a big family here. We joke whenever we can,but our main objective is to listen to each other and their everyday ventures. Having lymphoma is quite a venture,just not the venture of first choice. I would like to echo Leslie and Bluerose by saying you are very welcome here. We can probably be more help to you when we know a little more about your diagnosis. I was diagnosed last May with follicular NHL and am currently in remission. It takes time but you will be too. John(FOLLICULAR NON HODGKINS LYMPHOMA GRADE 1 STAGE 4)
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #5
    COBRA666 said:

    Welcome
    Just want to say welcome to this board. I hope you make it your board as well. We are all like a big family here. We joke whenever we can,but our main objective is to listen to each other and their everyday ventures. Having lymphoma is quite a venture,just not the venture of first choice. I would like to echo Leslie and Bluerose by saying you are very welcome here. We can probably be more help to you when we know a little more about your diagnosis. I was diagnosed last May with follicular NHL and am currently in remission. It takes time but you will be too. John(FOLLICULAR NON HODGKINS LYMPHOMA GRADE 1 STAGE 4)

    Welcome
    Hi there,
    Like others here, I just wanted to welcome you to our family. I was dx with Follicular Non Hodgkins Lymphoma in June of 2010. Dec 14th I finished my 6 rounds of CVP-R chemo and will be starting(Feb 14th) my maint Rituxan..fusion once a month every other month for 2 years. Keep coming back here and I promise someone will always be around to help you out. Hope to hear more about your history when you feel up to telling us. Take care...
    Sue (FNHL-2-3a-6/10)
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #6
    allmost60 said:

    Welcome
    Hi there,
    Like others here, I just wanted to welcome you to our family. I was dx with Follicular Non Hodgkins Lymphoma in June of 2010. Dec 14th I finished my 6 rounds of CVP-R chemo and will be starting(Feb 14th) my maint Rituxan..fusion once a month every other month for 2 years. Keep coming back here and I promise someone will always be around to help you out. Hope to hear more about your history when you feel up to telling us. Take care...
    Sue (FNHL-2-3a-6/10)

    Welcome
    You've found the greatest place in the world for support while dealing with this rollercoaster ride. We are all here for support, sharing and laughter, tears, fears, frustrations and just plain companionship.

    I have follicular stage 3. I've had a couple relapses but am doing rituxan maintenance right now. Please know this is doable, chemo stinks, but you can do this!

    Take care and please come back.

    Beth

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