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Long-Term Effects of Treatment

Fibromyalgia
I am a 28 year cancer survivor. I am almost 10 years cancer free. I am now dealing with chronic pain...perhaps fibromyalgia. I have had both radiation and chemotherapy. Is there anyone else experiencing chronic pain?
treatment for metastatic adenocarcinoma
Dear All, I have been diagnsed with metastatic adenocarcinoma. It initially started with teratocarcinoma. I am wondering if anyone can help me with an effective treatment solution. cheers, saeed
premature ovarian failure
Hi everyone. I was 2 1/2 years in remission when I discovered that I had premature ovarian failure. My doctors always told me that there was a chance of me getting pregnant after cancer and now it is gone. Just wondering if there is anyone else with a simular experience. Amber
Dealing with permanent hair loss
Hello, My name is Claudia and I was diagnosed with non-hodgkins lymphoma in 1994. After five years of chemo/radiation and, finally, a bone marrow transplant, I am amazed and thrilled to be cancerfree. My issue seems minimal when I read what others are dealing with but it's about my hair . . I have very little and I don't…
Anal Cancer and Radiation
Hello my name is Cynthia and I am new here..hello everyone! I was diagnosed with Stage II Anal Cancer in Feb,2013.I went through Rad/Chemo and about a month after the treatments were over I began to hurt in my hips really bad and as time progressed so does the pain that has ventured into my inner thighs..I called my family…
Hyperbaric Chamber therapy for Atrophied Bones/Muscles
Hello All, I had childhood hodgekins disease and have some severe atrophy of my right shoulder/Arm. Has anyone ever explored Hyperbaric therapy or any other ideas how to strengthen or make this similar to the other side?
30+ year childhood astrocytoma survivor looking for other Long Term survivors
I would like to communicate with anyone who was diagnoised with an astrocytoma early in life and is now an adult (say 20's, 30's and up). I wouild also like to find a Long Term Effects doctor.
severe depression, chemo brain? and fears
Hi there, I am looking for some help, I had my last chemo on NYE 2012, and was in the mental ward for a nervous breakdown. Since then my ex fiance dumped me and I'm struggling to accept it. I get very frustrated because I can hardly read, I don't know what I like or dont like, shopping and making decisions. Since leaving…
severe depression, chemo brain? and fears
Hi there, I am looking for some help, I had my last chemo on NYE 2012, and was in the mental ward for a nervous breakdown. Since then my ex fiance dumped me and I'm struggling to accept it. I get very frustrated because I can hardly read, I don't know what I like or dont like, shopping and making decisions. Since leaving…
Myelofibrosis
I like any one has Myelofibrosis to contact me at my e mail address suesue555@hotmail.com I just find out I have Myelofibrosis this August 2008 Thanks
Colbolt Radition in the 70's
I am a daughter of a surviver from Colbolt radition. Please forgive me I am not a good speller and our family has been going through a lot with my dad the last 6 months and I would like to know if there is other surviver out there that is going through what we are going through. My Dad is now 61 years old when he was 23 or…
Is this just my new normal?
I was diagnosed with ALL (PH+, CNS) almost two years ago now, and that was after 24 years dealing with a chronic autoimmune disorder. Treatment was a real whirlwind: heavyinduction chemo that nearly killed me, a relatively bearable maintenance round and a rough BMT prep of chemo and TBI+cranial irradiation ... all within 6…
Cerebrospinal fluid leak from ear
I had nasopharyngeal carcinoma (stage IV - T2N3) in 2002, and I completed induction chemotherapy and IMRT radiation in 2003. I've done well since. Now I have a cerebrospinal fluid leak from my right ear. I have suffered no head trauma so I suppose the insult to my dura is probably from the radiation. Anyone else experience…
Peripheral Neuropathy
After 19 weeks of treatment with virtually no side effects, other than losing his hair, my husband finished his chemo the end of November. Last week he began to have numbness in his fingers and toes. Now it is moving into his entire foot. The doctor said to take extra vitamin B, vitamin e (2000 iu) and vitamin d (800 iu)…
necrotic tissue
has anyone ever heard of necrotic tissue or necrosis caused by radiation 6-9 months after treatment?
Radiaplex or some other radiation burn creme asap...
Hi all- Am new to this but am calling out a plea to help me find a pharmacy that carries Radiaplex or something that for sure works. I heard that it could help my 12 year old daughter's radiation burns. We have 11 more radiation treatments to go and she has started experiencing the burns in multiple places- she has 3…
Blood Clots in Lungs
I have colon cancer and was told they got it all during surgery but it was a god ised to have chemo anyway to be sure they get all the cancer cells that may have spread even though all my scans are clean. I have had 5 treatments so far. After the third treatment they had to stop the oxyplatin because I now have neuropathy…
metastasis pancreatic cancer
My heart stop when my husband got sick in March 2012 I knew it was bad becouse he never gets sick. We got him into the VA and they did some test and that is when. We were told 7 months ago my husband has stage 4 metastasis pancreatic cancer .And they gave him only 6 months or less to live .The doctore said he won't make it…
Whole Brain Radiation Therapy
Traditional external beam radiation therapy for cancer is very imprecise in its targeting, resulting in sometimes severe side effects due to the volume of healthy tissue radiated. Metastatic disease has historically not been treated very well with radiation, due to lack of efficacy and side effects. Observation, with…
Ravenous, frat-boy-level hunger
Hi folks. I'm new here, and I want to say, thank you in advance for any input. My father has Stage IV melanoma. Three weeks ago, he was on steroids when we learned he had brain mets. A week later, the steroids were discontinued. He's still on Zelboraf. In any event. He is constantly, excessively hungry. We have to puree…
I'm so HOT!!!!
I'm being treated with 5FU & sandostatin and I am hot all the time. At work, if I control the thermostat, people around me are putting on sweatshirts and at night my husband throws on extra blankets while I barely have a sheet. Does anyone else get like this? I'm only 36 but people say it sounds like I am having hot…
Raynaud's and pain after chemo
Is there anyone out there diagnosed with Raynaud's after chemo? Im a will be 15 year survivor of Hodgkins Lymphoma on the 17th of this month and it seems like Im falling apart. I hurt all over most days. Im only 37years old and sometimes I move like a 90 year old woman. I was told I had Raynaud's right after chemo and my…
Any late side effects of Hodgekins? Radiation Chemo
Hello- I had hodgekins disease in 1986 when I was only 6 years old. I had chemo and radiation treatments. I am now 32 and wondering of any late side effects I should be worried about. I am relatively healthy but have not had many health issues yet.
Levamisole
Hi I am a 14yr+ survivor of stage three c colon cancer. I was treated with the standard 5Fu but it was enhanced with a drug called levamisole. I have recently found out that levamisole was banned in the US in 2002. The reason given was because of sometimes fatal side effects. I have been ca free since chemo but I suffer…
Has anyone else had thisproblem?
So, I went through Chemo going to be 9 years ago this July 2013. I had Cisplatin and I have had a constant ringing in my hears ever since. It gets so bad sometimes about drives me crazy. Over the past year or so, I have started to have my hearing (mostly in my left ear) start to just go out. I know that Cisplatin is known…
Dealing with many long term effects
Hi, I am a 2x childhood cancer survivor (I am 34 now). The last 10 years or so I've been devleoping long tern effects- chronic pain, chronic fatigue - which no-one acknowledges- chronic staff infection and memory loss. I'd love to chat with others dealing with even one similar issue.
Watery Eyes from 5-FU
Hello, I am a colon cancer survivor. I had two rounds of chemo involving the drug 5-FU and its oral counterpart Xeloda. Has anyone who has been on these drugs or others, had tearing up to 1 1/2 years later? Did you have surgery to correct the problem? What did you have done and how did it work? I have just had a DCR…
RCC CANCER tail bone pain
RCC tail bone pain
Heart valve replacement
I am a 30 year survivor of NHL and facing aortic valve replacement and triple bypass. I am wondering if others have had this and what kind of valve they chose. Also, did anyone have trouble with the healing of the sternum. I am going to the Mayo clinic for surgery.
Help with reverse side effect symptoms
I've decided to try here because I don't know where to turn. My wife's doctors are nide and all but their hearts don't seem to be in it. A Brief Chronology all in 2012: 16 April: Severe Headache, thought migraine, slept it off, 18 April noticed slurring, took her to ER, thought had stroke. Had small bleed but found four…

Long-Term Effects of Treatment

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