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Long-Term Effects of Treatment

Colbolt Radition in the 70's
I am a daughter of a surviver from Colbolt radition. Please forgive me I am not a good speller and our family has been going through a lot with my dad the last 6 months and I would like to know if there is other surviver out there that is going through what we are going through. My Dad is now 61 years old when he was 23 or…
Is this just my new normal?
I was diagnosed with ALL (PH+, CNS) almost two years ago now, and that was after 24 years dealing with a chronic autoimmune disorder. Treatment was a real whirlwind: heavyinduction chemo that nearly killed me, a relatively bearable maintenance round and a rough BMT prep of chemo and TBI+cranial irradiation ... all within 6…
Cerebrospinal fluid leak from ear
I had nasopharyngeal carcinoma (stage IV - T2N3) in 2002, and I completed induction chemotherapy and IMRT radiation in 2003. I've done well since. Now I have a cerebrospinal fluid leak from my right ear. I have suffered no head trauma so I suppose the insult to my dura is probably from the radiation. Anyone else experience…
Peripheral Neuropathy
After 19 weeks of treatment with virtually no side effects, other than losing his hair, my husband finished his chemo the end of November. Last week he began to have numbness in his fingers and toes. Now it is moving into his entire foot. The doctor said to take extra vitamin B, vitamin e (2000 iu) and vitamin d (800 iu)…
necrotic tissue
has anyone ever heard of necrotic tissue or necrosis caused by radiation 6-9 months after treatment?
Radiaplex or some other radiation burn creme asap...
Hi all- Am new to this but am calling out a plea to help me find a pharmacy that carries Radiaplex or something that for sure works. I heard that it could help my 12 year old daughter's radiation burns. We have 11 more radiation treatments to go and she has started experiencing the burns in multiple places- she has 3…
Blood Clots in Lungs
I have colon cancer and was told they got it all during surgery but it was a god ised to have chemo anyway to be sure they get all the cancer cells that may have spread even though all my scans are clean. I have had 5 treatments so far. After the third treatment they had to stop the oxyplatin because I now have neuropathy…
metastasis pancreatic cancer
My heart stop when my husband got sick in March 2012 I knew it was bad becouse he never gets sick. We got him into the VA and they did some test and that is when. We were told 7 months ago my husband has stage 4 metastasis pancreatic cancer .And they gave him only 6 months or less to live .The doctore said he won't make it…
Whole Brain Radiation Therapy
Traditional external beam radiation therapy for cancer is very imprecise in its targeting, resulting in sometimes severe side effects due to the volume of healthy tissue radiated. Metastatic disease has historically not been treated very well with radiation, due to lack of efficacy and side effects. Observation, with…
Ravenous, frat-boy-level hunger
Hi folks. I'm new here, and I want to say, thank you in advance for any input. My father has Stage IV melanoma. Three weeks ago, he was on steroids when we learned he had brain mets. A week later, the steroids were discontinued. He's still on Zelboraf. In any event. He is constantly, excessively hungry. We have to puree…
I'm so HOT!!!!
I'm being treated with 5FU & sandostatin and I am hot all the time. At work, if I control the thermostat, people around me are putting on sweatshirts and at night my husband throws on extra blankets while I barely have a sheet. Does anyone else get like this? I'm only 36 but people say it sounds like I am having hot…
Raynaud's and pain after chemo
Is there anyone out there diagnosed with Raynaud's after chemo? Im a will be 15 year survivor of Hodgkins Lymphoma on the 17th of this month and it seems like Im falling apart. I hurt all over most days. Im only 37years old and sometimes I move like a 90 year old woman. I was told I had Raynaud's right after chemo and my…
Any late side effects of Hodgekins? Radiation Chemo
Hello- I had hodgekins disease in 1986 when I was only 6 years old. I had chemo and radiation treatments. I am now 32 and wondering of any late side effects I should be worried about. I am relatively healthy but have not had many health issues yet.
Levamisole
Hi I am a 14yr+ survivor of stage three c colon cancer. I was treated with the standard 5Fu but it was enhanced with a drug called levamisole. I have recently found out that levamisole was banned in the US in 2002. The reason given was because of sometimes fatal side effects. I have been ca free since chemo but I suffer…
Has anyone else had thisproblem?
So, I went through Chemo going to be 9 years ago this July 2013. I had Cisplatin and I have had a constant ringing in my hears ever since. It gets so bad sometimes about drives me crazy. Over the past year or so, I have started to have my hearing (mostly in my left ear) start to just go out. I know that Cisplatin is known…
Dealing with many long term effects
Hi, I am a 2x childhood cancer survivor (I am 34 now). The last 10 years or so I've been devleoping long tern effects- chronic pain, chronic fatigue - which no-one acknowledges- chronic staff infection and memory loss. I'd love to chat with others dealing with even one similar issue.
Watery Eyes from 5-FU
Hello, I am a colon cancer survivor. I had two rounds of chemo involving the drug 5-FU and its oral counterpart Xeloda. Has anyone who has been on these drugs or others, had tearing up to 1 1/2 years later? Did you have surgery to correct the problem? What did you have done and how did it work? I have just had a DCR…
RCC CANCER tail bone pain
RCC tail bone pain
Heart valve replacement
I am a 30 year survivor of NHL and facing aortic valve replacement and triple bypass. I am wondering if others have had this and what kind of valve they chose. Also, did anyone have trouble with the healing of the sternum. I am going to the Mayo clinic for surgery.
Help with reverse side effect symptoms
I've decided to try here because I don't know where to turn. My wife's doctors are nide and all but their hearts don't seem to be in it. A Brief Chronology all in 2012: 16 April: Severe Headache, thought migraine, slept it off, 18 April noticed slurring, took her to ER, thought had stroke. Had small bleed but found four…
Damage to Heart arteries
I am quite fit and eat quite healthy ,just been told I need a heart bypass which will require 3 grafts. I had a Bonemarrow transplant 25 years ago,with full body radiation required to destroy my old marrow.Have been well and looked after myself since. Could the radiation be the cause of my damaged arteries ?
Question for the Group
Prostate cancer surgery in Feb of 2011, since that time I have had a number of issues. Cancer Brain for lack of a better term, depression, loss of energy, tiredness. I am a Viet Nam vet. So there are ptsd issues creeping back into my life. I have been going thru some of the postings and am seeing that there seems to be a…
Severe stomach and joint pain after RT
Hi I am seeking answers to this problem i was diagnosed with stage IB2 cervical cancer in July 2011 I had RT in Sept.2011 and completed it in November 2011 I have complained to my primary doctor not my oncologist about my pain but she makes me feel like my pain is all in my head. I have been experiencing severe stomach…
Long term effects after brain tumor removal
I posted this in the Brain tumor section but it might belong here: I am just curious as to other suvivors stories, I had my tumor( grade 3 astrocytoma right frontal lobe) removed in 1993( 18 years old) and went thru 6 weeks of Radiation and a years worth of Chemo. I am 34 now and I have always felt run down. I have some…
chemo theropy keeping you awake.
Have any of you had issues with chemo therapy keeping you awake. I have had a chemo port for the past 10 years The old chemo is still in it from 10 years ago. I know it still has chemo in it cause when I push on the site I start to loose hair. I have a lump too that has stopped growing at least for now any way. Plus I cant…
RIB & MUSCLE PAIN AFTER CHEMO & RT
Should I be alarmed or are these common effects...and long term? THANK YOU :)
Looking to talk with those of you who have put Radiation Therapy in the rear view mirror !
Hello, I'm new to the network, I am half way through my radiation treatments for Squamous Cell CA primary left tonsil bed with metastasis to a few lymph nodes same side neck (T1,N2,M0 IVa). Operated on and removed on 10-31-11, got all I'm told. I would very much like to chat with those like me who are out 3,4 or 5 years…
wow did not expect....
wow...I've been out here since 1994, being the only known person in the Universe, not to have recovered completely from cancer/treatment. Everyone is like "That was 18 yrs ago!" and I have lived in both the hell of the non-stop-pain and constant sickness, along with the hell of feeling like I am somehow doing this all to…
Life after treatment
Hope the following article about life after treatment will be helpful. Feel free to share with your survivor friends. http://voices.yahoo.com/life-after-cancer-10949944.html
Thumb joint pain
Does the medical community offer any agreement that chemo causes thumb joint pain? All I find on the internet are people's opinions on discussion boards. My pain seems to be the common complaint. It started months after the end of chemo and is identical in both hands. I'm concerned if the condition gets worse my oncologist…

Long-Term Effects of Treatment

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