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Long-Term Effects of Treatment

How do you move on after treatment? (severe hearing-loss, neuropathy, weakness, brain fog, etc.)
Hi, My name is Logan. At 35, I was diagnosed with testicular choriocarinoma with mets to the liver and lungs. For men with this cancer, a bHCG level over 40,000 is associated with poor prognosis. Mine was 437,000. One year, eight rounds of chemo including two that were high-dose with autologous stem cell transplants, an…
Fatigue
I complete my 6 cycles of Carbo/Taxol on 15 May '02 and have been experiencing alot of body aches, weakness and this overwhelming fatigue. I can just be sitting at the computer at work, and all of a sudden I feel like I've been ran over by a Mack truck! While having my treatments I did have weakness and fatigue that would…
Dex addict or getting better or worse confused
Hello to everyone on this forum. I thought to subscribe and give a life experience while I was long time on this medication. I started this med since I have had a cough for several months and I mean a cough that no other medication like antiviral or antibiotic was helping to get rid off it. I couldn't tolerate and was…
How to battle late effects
Hello, I’m new. It’s been validating to know I’m not alone even if the posts are old. Sadly I can relate to so many of them. I’m a survivor of leukemia over 5 years dealing with a ton of late effects of treatment. I’ve gone through chemo, radiation, and a BMT. And I vaguely remember a 3 page list, front and back, of oral…
Sexual therapy
Hi. New here. I’m looking for a sexual therapist. I’m a 51 year old female. Stage 4 metastatic melanoma. In remission for 3 1/2 years so far. In a committed relationship for 14 years so far. I desperately need some advice and/or therapy that’s free. I live on disability.
Low WBC and Brain Fog after 2+ years
Frankly, I am tired of my oncologist saying "it's part of the process" and "it's different for everyone." I am still battling brain fog since chemo and radiation completed in Spring 2021. And my WBC have never rebounded either. My last test showed 2.9/uL when it should be 4.0. Does it ever get better?
Effects of IMRT pelvic radiation for uterine cancer
Have been told that IMRT pelvic radiation has fewer side effects than EBRT but am still wary and need to hear from those who pulled through pretty well and those who haven't. Please indicate whether you ALSO had high-dose brachytherapy as well and whether you were treated at a major cancer-treatment center. Can you comment…
Power Port
Hi I was diagnosed with lupus and a lung disease back in January 2014 and the doctors placed a power port in due to have bad and partially working veins. Here it is in Jackson 2014 and my port is not working properly anymore. It’ll flush but won’t draw blood any more and can be a little painful at times. What is it that I…
Really long term effects of cobalt radiation?
Following the surgical removal of a medulla blastoma (base of brain), I received cobalt radiation treatment to kill any remaining errant cells. This happened 40 years ago. Since then, life for me has been fairly "unremarkable". During the past half dozen years however, I have slowly lost control over the coordination of my…
Pain urinating after pelvis radiation
Ive heard there isnt much you can do for the pain. But ive noticed alot of people talking about pouring warm water on their vagina while they urinate and that it helps alot. Im justt curious exactly how to do it. Do you get in the tub or just sit on the toliet? Ive been doing everything I can to avoid urinating for the…
Thoughts on Full Brain Radiation
Hello, I am interested in hearing about others experience with full brain radiation for quality of life. We have already been told this is not curable; however, I'm not sure receiving full brain radiation will give my father "quality" of life. He is already suffering from a speech deficit from having a lesion removed from…
Dry mouth
i had total thyroidectomy last year and this year i am going through Radioterapy. can anyone tell me how long will it take after Radiotherapy things can be normal like dry throat etc. i meant to have 30 sessions of Radiotherapy but due to early signs of sore throat my doctor thinks i am not able to cope with 30 sessions he…
How common is it to have cancer three times?
A friend of mine has survived leukemia twice. She's been in remission for nearly 10 years. She was just told that they've found masses on her liver, lungs and uterus and has to have a biopsy done. Is it possible that this could be something other than cancer? Are there long-term effects of treatment that could cause this?…
Radiation Proctitis
Just wondering what treatments worked for those of you who ended up with Radiation Proctitis after cancer treatment. Aside from HBO, what treatments have cleared it or at least lessened the bleeding?
Late effects of Cobalt radiation in childhood
Looking for others of us who had Cobalt radiation in childhood for NON-cancerous, normal things such as enlarged tonsils, acne, thymus gland, feet for shoe fitting. These people are having late effects of Cobalt decay that start popping up in ones 60s. Some late effects are life threatening and certainly quality of life…
Radiation in Infancy
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. After surgery, radiation and chemo treatments for four cancers (leukemia, thyroid, lymphoma, prostate), three open-heart…
Chemobrain testing
I am a 20 year survivor of Non Hodgkins Lymphoma and have many side effects and one of them is chemobrain. I first noticed forgetfullness but now have cognitive issues as well. Finally my doc sent me to a Memory Testing clinic where they test for things like Altzheimers and dementia and the neurologist put me through a…
Avastin for radiation-induced necrosis
When brain tumors are treated with radiation therapy, there is always a risk of radiation-induced necrosis of healthy brain tissue. Insidious and potentially fatal, radiation necrosis of the brain may develop months or even years after irradiation. This poorly understood side effect can occur even when the most stringent…
How do we find a good, relevant doctor for long-term survivors?
Long-term survivors with significant adverse effects of cancer treatment are an increasingly large population. However, no specialty addresses this problem and patients are often misunderstood. How do you find you caregivers? I moved to Orlando last month having had excellent caregivers elsewhere but have not been able to…
Head and neck radiation side effects
Hi my name is Justin and I am 30 years old. I was diagnosed with stage 1 nasopharyngeal carcinoma in August 2015. I completed 35 treatments of radiation therapy and 3 cisplatum chemotherapy treatments. My last day of these treatments was October 22nd. I am looking for relief and information and I hope that somebody can…
New Life Threatening Disease From Radiation
Hi everyone. I am trying to find people who were treated for cancer with chemo and radiation and went into remission....then developed a new issue from that treatment. In my case, the radiation fried my bladder, and I had to have a radical cysectomy. This led to me having to have stents placed to keep the ueters open.…
Effects of RAI (I-131)
I had a total thyroidectomy in 2018 followed up with radioactive iodine (radiation in a pill) 2 months after. Now, 6 months later I’m still feeling side effects that were allegedly suppose to be “temporary.” My saliva glands swelled and it’s so painful and gets worse when I chew. My nose has a permanent nasal drip and…
Traitements de chimiothérapie et hernies discales
Bonjour, Je cherche à savoir si je suis la seule personne à avoir eu des hernies discales suite à des traitements de chimiothérapie ? J'ai eu un lymphome de Burkitt à l'âge de 15 ans en 1993, j'ai eu pour 8 mois de traitements de chimio dont 2 directements dans la colonne vertébrale. Je ne me rappelle plus trop des noms…
Radiation Proctitis
Information wanted re uncontrollable anal discharge with putrid odor. I am logging my eating habits monitoring what foods are related to odor in order to help control the smell. I am 6 years post radiation with psa .06. PSA at treatment was 14. Any information appreciated
Stem cell treatment
Who has gone through the stem cell process?
Post Carcinoma Nasopharyngeal Treatment Problems +8 years
Hello everyone, I hope you are all doing well. I joined this forum a little late, well maybe not "a little". My name is Mawadda, I'm 27 and I was diagnosed with carcinoma nasopharyngeal over eight years ago. I have been cancer-free since 2014 (Thank God) but I am still struggling with a lot of health issues that I am…
Anti-cancer diet
There is a diet, thought up by a doctor, that has saved the lives of many people I know who had different types of cancer. Most of these people are living a cancer-free life today. One person survives today and lives a long and healthy life after having been on dialysis. The diet is based on the principle that cancer cells…
joint and bone pain following Taxol
pelvic radiation, after effects
Has anyone had radiation to the pelvis region and suffered long term side effects? I have been done with radiation since april and cant seem to feel better. Is it just me or what?
Retinoblastoma survivors
Family member interested in communicating with other long-term retinoblastoma survivors regarding experiences and treatments for associated problems.

Long-Term Effects of Treatment

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