Long-Term Effects of Treatment
Discussion List
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FLEXERIL for 'locked' joints to relax muscle & tendons
After almost 9 months of limping around due to ankles that were locked solid every morning. Bloodwork confirmed it wasn't rhumatoid arthritis or lupus or Fybramyalga, so I was referred to a Rhumatologist to discuss other possibilities & after hearing me describe when my ankles would be locked tight vs the bone pain, she…
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Effects of IMRT pelvic radiation for uterine cancer
Have been told that IMRT pelvic radiation has fewer side effects than EBRT but am still wary and need to hear from those who pulled through pretty well and those who haven't. Please indicate whether you ALSO had high-dose brachytherapy as well and whether you were treated at a major cancer-treatment center. Can you comment…
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Could any of you with tender spots on your legs check "long term survivors board' too please for my
I posted about this issue of a new developement on a very paintful issue I have developed on my legs with horrifically sore spots on my legs that are like 10 bad bruises on top of each other to one of those spots? Please read my post on the long term surivovor board about these spots if you feel you have similar issues.…
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whithe cell count??
with my frist chemo my white blood cells went down to a 2.3..so they gave me neupogen.for a week to bring them back up..so i took the next treatment..and now they are at 3.5..and they said that was fine..and what me to take a treatment tomarrow..i'm afaird i won't have any white cells left..they said it shouldn't…
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Joint/Muscle Pain Post Carbo and Taxol
My Mom had her last treatment for an aggressive clear cell uterine cancer on Jan. 19, 2011. 3-4 weeks post chemo she developed pain (severe at times) in the back of her knee. She saw her PCP who ordered an ultrasound to check for blood clot and it came back negative. She is still experiencing the pain, though not when…
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Stand Up 2 Cancer: Manage Your Treatment
Patients are often overwhelmed with medical information once they have been diagnosed with cancer. Many do not fully understand the risk of infection during chemotherapy and the potential impact it has on one’s overall treatment success. To encourage cancer patients and their caregivers to actively work with their…
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Long term effects if radition for uterine cancer.
In 1998 I had a radical hysterectomy and 28 radition treatments plus 24 hours of a vigina inplant. I have had terrible time with diarea and bladder infections since . I have thought it was from the radition any one else with the problem ? LouiseWeezee
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could this be from the whole brain radiation?
My 58 year old mother was diagnosed in October with limited stage SCLC. She went through chemo and radiation. She then had prophylactic radiation to her brain. She had no tumors there though. Her last session was in February, and within the last 4 weeks she has completely become a different person. She's hallucinating,…
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Buttock / Hip Pain Suggestions
Last year diagnosed with uterine cancer and had 6 rounds of taxol/carboplatin, plus sandwiched in middle 33 sessions of PELVIC radiation. Finished July 30, '09 and been feeling great outside of one area -- pain in buttock / hip area. It's not the end of the world but it does tend to come and go, possibly depending on my…
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CHEMO BRAIN
CHEMO BRAIN PAST AND PRESENT Submitted by RE on June 26, 2009 - 12:17am For those of you who do not know me I am 52 years old and have been fighting cancer since 1997, during which time I have had a total of 28 rounds of chemotherapy. I have heard a lot about “chemo brain” (memory problems, difficulty concentrating,…
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Dental implant failure 12 years after total body radiation
I had a very successful bone marrow transplant for leukemia in 1997 with total body radiation. I never heard or read anything about the effect of the radiation on bone strength. But I just had a dental implant fail just a few months after placement and am wondering if it could be due to the radiation weakening the bone. My…
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Some relief from nerve damage/fibromyalgia perhaps
Just thought that I would throw my 2 cents in here regarding pain topics that could be related to past cancer treatments, chemo or rads. I found about 7 years ago (treatments were 20 plus years ago) that all of a sudden I was waking at night with pressure point pain in my hips and ankles, sometimes arms and legs. I would…
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Loss of all taste and smell
I had chemo for 10 months, followed by a double mastectomy and then radiation for 6 weeks. I am 72 years old and this happened three years ago. To date, I have no sense of smell or taste which makes eating an unpleasant experience. I do eat because I know I need to. But there is absolutley no enjoyment in it. The whole…
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Coronary/Heart disease
I am a somewhat healthy 36 year old male who is about three or four months past a quintuple coronary artery bypass graft surgery. The radiation used to save my life from leukemia had caused so much scar tissue in my arteries that when it was found, I was in the intermediate stages of a profound fatal heart attack! But, it…
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Long-Term Psychological Effects
So I feel kind of petty posting this when so many people are still actually dealing with cancer, but I was hoping some of you might be able to provide me with some insight on my situation. I was diagnosed with ALL when I was 17 just before my Senior year of high school and I reacted well to the chemo treatments, all things…
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blood in urine
My mom finished with 6 months of chemo on 12-23. She had colon cancer was undergoing the 5FU chemotherapy. A week ago they found microscopic blood I her urine. All testsindicate no spread of cancer. Have any of you had any experience in this?
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Looking for pediatric cancer survivors of all ages....
Hello Everyone~ My name is Stacie and I am a pediatiric cancer survivior. At 16 I was diagnosed with Rhabdomayosarcoma and was given 6 months to live. Well it is now 17 years later and here I am. I have started this discussion topic because I would like to know your experieinces as a survivior. I was hoping that you would…
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How long will the side effects of Femara last?
I was diagnosed with early stage BC in July, 2006. After a lumpectomy and 9 weeks of radiation treatments I started on Femara. After 4 years I made the decision to quit taking the drug because I just didn't want to live anymore. The side effects are horrific! My mind was gone; I couldn't even remember what day it was. And…
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Muscle Loss due to Radiation
I had stage IA Hodgkins back in 95' with 6 weeks of upper field radiation therapy. I'm very blessed to be a 7 year survivor. My only complaint is the fact that I have loss a good deal of muscle in my neck and upper body areas. Being athletic this has been tough to deal with. I would appreciate any information regarding the…
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Long-term Hodgkins disease mantle radiation survivors
Hi, my name is Michele and I was treated in 1996 for HD with mantle radiation. The main long term effects so far are fatigue, general aches and pains and anxiety. I also have a TSH of 4.2 which is borderline hypothyroid. I worry a lot as I have young children and I am hearing so much about the increased chances of breast…
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Radiation Plexopathy - Symptoms
For those of you that have been diagnosed with radiation plexopathy (specifically having the pelvic area radiated), I was wondering what type of symptoms you are having. I was officially diagnosed this year - 23 years after having had colorectal cancer and radiation treatment. I've always had some symptoms but it was…
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Talking or mumbling to self
My husband just started chemo about three weeks ago for stage IV oral and throat cancer. From the very first week of chemo, he started a new habit of mumbling or talking to himself. At first I didn't think anything about it, because he said it was a song that popped into his mind or something. But now, three weeks later…
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HSC Topic
Hi guys, ive just started my HSC and i am studying the course, Community and Family Studies, We just began our first major assessment which is an Indiviual Research Project,i chose to do mine on 'How does chemotherapy Affect a perons wellbeing?' I came onto this site in hope that i could inspire a few people to tell their…
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Post Radiation muscle pain
I had surgery to remove a dermatofibrosarcoma from my left shoulder in 2000. I also had 7 weeks of daily radiation treatment to my left shoulder area. Now I constantly have stiffness and in some cases pain, in the radiation area. Does anyone else have this? Is there something I can do?
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One of those 'sick of it all' days as a 22 year survivor
Know what I mean? Have been chasing an endocrinologist for a scarey message left on my service over a week ago now 'results are borderline' she said but not BORDERLINE WHAT???????????? Hasn't called to clarify after 3 messages left, two of which got more questioning as I have gotten sick and don't know if I can even get a…
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Books on Lumbar Sacral Radiation Plexopathy
Can anyone recommend any books about radiation plexopathy? I was diagnosed this year with it as a result of radiation treatment for colorectal cancer I had 23 years ago. I've had many of the symptoms for years, but this last year had gotten much worse, went to the Neurologist, tested and diagnosed. Also, has anyone out…
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experience at ctca,zion
my wife was recently found to have breast cancer,and after talking with their lead guy on the phone,we were assured they would honor our insurance as an in network client,and we have an email confirming this.Now they sent me a financial hardship form, and are telling us they would most likely eat all the charges the…
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Dealing with Radiation Plexopathy with Myokymia
This year I was diagnosed with lumbar sacral radiation plexopathy with myokymia - 23 years after having had colon cancer (I was only 31 when diagnosed with cancer). Thank God I had my children prior to this happening and that treatment (radiation) was available as it more than likely saved my life. Looking back, I can say…
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Stomach pains non stop. What do you think?
Hi Guys: I recently had a endoscopy and colonoscopy and all clear except for bacteria on the stomach which I had a ten day supply of antibiotics. Every day I had a little discomfort but now it is all day. I was not going to call the Doc, but it seems to be more unbearable now. I need your views on this. Unfortunately, I…
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Long Term Effects Clinics
I am a 31 year old childhood cancer survivor (Wilms tumor and lung cancer). I have had multiple late effects, for a total of 10 surgeries throughout my life. I have always had Kaiser insurance and have had what I considered "crisis management" health care. I am now researching and learning more and am realizing there is…
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