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Long-Term Effects of Treatment

Neck atrophy and slumped shoulders
After a diagnosis of neuroblastoma in October of 1992, my 1 year old son went through 9 months of chemo, 12 doses of radiation to the neck and chest, and 2 surgeries, one of which removed 24 lymph nodes from the neck. Over the years, there have been several unusual characteristics that he has developed, that we have always…
28 year survivor but am sick of the side effects!
Hi, I was diagnosed with AML in 1986, I was 11 years old at the time. I received chemotherapy, single fraction total body radiation and a bone marrow transplant. Since then I have have been dealing with late effect after late effect and even though I try really hard to keep a positive spin on life it is beginning to get me…
CyberKnife
I have been told I'm no longer a candidate for traditional radiation. Being referred to CyberKnife. Does anyone have experience with CyberKnife? Thanks for any comments or advice.
gist and gleevec
My mom is on Gleevec for about 1 month and half because of GIST. But liver enzymes are increasingly elevated. Oncologists said to stop it till they back to normal range. Even changing the medication might not be a solution and they can have same side effect and on liver enzymes. Any one experienced same problem or any idea…
Hospital Delirium
My Dad, who is 78 years old, finished a regimen of IV chemo about a month ago. He was getting the chemo every other week since December 2014. His oncologist put him on a 6-week break. Unfortunately, he fell and broke his left arm about 10 days ago and is still in the hospital. The broken arm is bad, but other medical…
Any experience hair thinning or hair loss after remission?
Hi everyone I had NB stage4 at 13months of age have been in remission for years I am 35 years old. I have many late effects from chemo and radiation. One is or may be from my Neuroblastoma or treatments. I first noticed in 2004 that my hair started falling out and has gotten thinner and thinner since. I am still losing…
Lymphedema in the News, Hope for a Cure
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
Vocal cord paralysis
In 1983, I had a modified radical mastectomy with 23 cobalt radiation treatments. Today, I have coronary artery disease (failed bypass to 100% blocked LAD in 2007) and I have just discovered that I have left vocal cord paralysis. I am also preparing to undergo surgery for a tumor in the bladder. I am male. Thankful to have…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
5FU Toxicity Treatment & Survival
I have a dear friend in a Southern California hospital being treating for 5FU toxicity either due to DPD deficiency or overdosing of 5FU. Severe toxic symptoms appeared after 2nd chemo treatment, then endured 3rd chemo treatment, then admitted to hospital one week later. Has been in the hospital now for 2 weeks, not…
Lasting Effects from Chemo being brushed aside by my oncologists.
Hi, this is my first time posting here. I was diagnosed with Ovarian cancer 5 1/2 years ago and recieved chemo (Bleomycin, Cisplatin, and Etoposide) for 4 months then cancer free! Yay!!! However during the treatment i kept asking my oncologist about the increasing numbness in my feet. Each time I asked this question it was…
Rectal Cancer / Vagina Shrinkage and Shortening / Chronic Diarrhea
I'm 48 years old and last year I was diagnosed with Rectal Cancer stage 4 and had 28 sessions of radiation, surgery to remove my rectum and 18 inches of my radiated colon with an illeostomy bag, 2 months later had the bag removed and 4 months of Chemo which finished in November 2013. The radiation fused my rectum and…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today and sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a…
12 years NPC and still going
I am right at being 12 years passed my first treatment for NPC that was in 2002, and 10 years passed my second treatment for NPC that was in 2004. The side effects have been devastating and I am unable to find a doctor that can help with the side effects or tell me what more to expect. The oncology doctor who did some of…
Long term effects of Radiation to the Head & Neck
I had my first radiation in 2002 / 180rads for 35 days for a total of 6,300rads and my second radiation in 2004 / 110rads twice a day for 35 days for total of 7,700rads. That is a total of 14,000rads to the head in just under 2 years. I am now ten years out from my last treatment June 3, 2014 and have a ton of side…
Vulva Cancer
Hi im new to this forum and was just 4 days diagnosed with Vulva Cancer and really need someone whos familar with this Cancer to spred some light on what i can expect whats next iam so lost and confused
Severe Aortic Stenosis Due to Radiation for Childhood Cancer
I am a 35 year cancer survivor looking for other long term childhood cancer survivors who had radiation (to the chest or mantle) and have been diagnosed with severe aortic stenosis (as a long term side affect from the radiation) and need a valave replacement but are considered high risk (due to lung capacity because of…
Custom Bed/Mattress Makers?
Hello all, I am a 33-year-old male long-term (28 years) survivor of an inoperable spinal malignancy. Massive radiation therapy at 5 years of age damaged the upper thoracic/lower cervical portion of my spine. and much of it was wrenched into place and fused together for strength/stability ~18 months later. I am still…
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
Pentoxifylline + Vitamin E for radiation-induced Muscle Atrophy?
Good day fellow survivors I'm a new member who accidentally found this site while searching for a solution regarding one of the late radiation side-effect that i have been experiencing. I was treated for NPCA on 2005 when i was 21 yrs old and there were no recurrence since then. Among some of the side-effects that i'm…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
Late Effects of my Treatments
Hey! I am a 22F Wilms' Tumor survivor who had lung mets as well. I only had chest radiation, but I had chemo both times, including adriamycin. I just recently had to have surgery for a benign tumor in my uterus and an extensive problem with endometriosis. My doctors all made the comment that it is probably a result of all…
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
late effects of chemo? Anyone else??
Hi, Wondering if anyone else has had neuropathy after many years of chemo? I had Wilms tumor when i was 13 and this year am experiencing weird neuropathy. I am wondering after this many years if this is possible?? Anyone help? I had Vincristine and andriomyacin. I am 26 yrs HEALTHY!
Lymphoedema
Has any one developed "lymphoedema in the leg after treatment. I had a hysterectomy 2 years ago with lymph nodes removed and recently I have developed lymphoedema in my one leg. I can manage the swelling but the pain in the top of my leg is excruciating.
Manual Lymphatic Drainage (MLD) Therapy
has anyone heard of this type of therapy that is considered "alternative medicine" for lymphoma patients?
21 yr survivor need info
In 1992 I had surgery for uterine cancer having a complete hysterectomy and removal of a large tumor 4-5 weeks after surgery , I started radiation to the pelvic for 6 weeks then. I was treated with 500 hours of cisplatin and 5-fluorouracil chemotherapy with a pump around my waist at 100 hrs one week with one week off and…
severe depression, chemo brain? and fears
Hi there, I am looking for some help, I had my last chemo on NYE 2012, and was in the mental ward for a nervous breakdown. Since then my ex fiance dumped me and I'm struggling to accept it. I get very frustrated because I can hardly read, I don't know what I like or dont like, shopping and making decisions. Since leaving…
Fibromyalgia
I am a 28 year cancer survivor. I am almost 10 years cancer free. I am now dealing with chronic pain...perhaps fibromyalgia. I have had both radiation and chemotherapy. Is there anyone else experiencing chronic pain?

Long-Term Effects of Treatment

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