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Long-Term Effects of Treatment

Hodgkin's - mantle radiation - lungs / heart / breast cancer
I'm new to CSN. I'm looking for input from 35-40 y.o. female(s) who have similar background to mine to exchange information, knowledge and experiences with long-term side effects. I was diagnosed in 4/1988, had a splenectomy and laperotomy, and 3+ months mantle/abdomen radiation. One of my lungs was radiated for a month…
Breast pain after lumpectomy
Hello, friends i have been on the BC board, but thought almost a year out of treatment this may be a good move for me. I had neoadjuvant chemo, a partial, then 25 rounds of rads. Now, 10 months out of treatment I am experiencing neuropathy in my fingers and feet and pain in my affected breast. Surgeon said it is probably…
Radiation induced pain
Hi Anyone! I have had pelvic bone X-rays last June and have been suffering with chronic pelvic, hip, groin and back pain. I have had an MRI of spine and hips - nothing to show why I have this pain. Taken all sorts of medication- none help. Oncologist thinks it's iin my head! WRONG! Can anyone comment. Hurts when I walk,…
hair loss 20 years after treatment
Wanted to know if anyone experinces hair loss, not total, several years after their treatment has ended. I had Hodgkins twenty years ago and from time to time my hair still falls out almost to the point of having bald spots. I try to grow it longer and sometimes it gets almost to my shoulders and then starts to fall out…
cervical cancer
wanna know about cervical cancer treatment for stage 3b.....besides conventional traetments like chemo and radiation.
Has anyone had hipocampal sparing whole brain radiation?
Hi everyone, I have HER2 positive breast cancer with many brain metastases. I've had Gamma Knife treatment in the past but new lesions keep developing so now I have been offered hippocampal sparing whole brain radiation as my only treatment option. From reading all the posts about whole brain radiation, I am very reluctant…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Removal of port
In Aug of 2016 my onc told me chemo would no longer work and gave me 7 mos to live. They have wanted to perform a port flush every8 weeks. I saw no need for that and now they want me to go through surgery for removal of the port. I was diagnosed with stage 4 colon cancer which matastized to liver and lung. Any thoughts?
Getting sick a lot
I have completed chemotherapy and radiation almost 2 years ago. Lately I have been getting sick left and right with all kinds of minor illnesses, such as cold , ear infection etc.. it seems to be a constant thing. I do admit I do have a toddler that just started preschool . Has anyone else experience this? It just seems…
Incontinence temporary cure
Had an interesting occurence the other day. I've been incontinent since prostate treatment over a year ago. I went in for a cystascope examination and was totally continent when I came out. This continued for 9 hours and I could urinate normally. Has anyone experienced this before? The exam was not successful as my bladder…
Radiation and Pelvic Radiation Disease
This is a dear friend of mine. She is beautiful and smart and found out that Pelvic Radiation Disease (PRD) is real and not yet really recognized here in the U.S. All her research took her across the pond and I think it is worth sharing this piece with anyone who is looking for information.…
Maintenance Tx for indolent, NHL
I completed induction Tx for indolent, NHL 3B, in December, 2015. My last scan, a month ago, was clean. The suggested maintenance Tx following induction was continuing with Rituxan only, 1 X every 2 months. But I had to quit, after 2 Tx, because the fatigue, mostly, was life-changing, epic-class. The best analogy I could…
20 Plus years after radiation
In 1978 I was told I had Stage 1A Hodgkin's. I was told I would have to go thru radiation treatments using Colbalt 60. I was given over 7432 rads of radiation and now some 27 years later I'm still having side effects. I was wondering if they are any other "LONG TERM" Survivors of radiation?
Long term effects of 5fu and levamisole for colon cancer
Hi I have just passsed the end of year 18 of survival from stage3c colon cancer into six nodes. A cancer that I was assured by my surgeon would get me within three years, too many nodes and frightfully aggressive. I survived surgery and 48 weekly hits off 5 flourouricil enhanced every fortnight with a drug called…
Lack of muscle tone
I am currently undergoing chemo (Carbo/Taxofere) for ovarian cancer. Within my 1st month of treatment (currently starting my 3rd) I noticed a loss of muscle tone. It was all my muscles (calf, thigh, arms)! It is a HUGE effort to just take short walks, it feels like I'm dragging my legs! I had VERY strong muscles before…
Who decides???
Last week I was having a bad day. I found this site and thought it would be good for me to have some people to interact with. People that are going through the same things I am going through. The same day My dad called me I told him I had considered assisted suicide, he hung up and I have not heard back from him. Then I…
Pain in hands and wrists = rheumatoid arthritis?
Hello, My husband was diagnosed with sinus cancer last fall, and underwent chemo and radiation treatment during the winter months. We are fortunate for the wonderful doctors and care he received. The doctors are very happy that they see no sign of the cancer at this time. While he is doing well overall, not long after…
Difficulty Swallowing 6 years into remission
My mother(46 years old) is a 6 year stage 4 tonsil cancer survivor(as of may). After surgery to remove tonsils, 22 treatments of radiation, and 2 different concurrent chemotherapies, she was given the thumbs up for no cancer. However, she had been severely burnt from the inside out with sores from her lips down her…
Scar tissue from Neuroblastoma
Radiation Late Effect Plexopathy
I was recently diagnosed with lumbar plexopathy, a late effect of radiation treatment I had eight years ago for endometrial cancer. I am having difficulty walking. Anyone else with this problem?
Raditation Enteritis - So now I have a REALLY grumpy gut
Hi Everyone - I was diagnosed with Stage IIIC endometrial/uterine cancer in the fall of 2013. I underwent a total hysterectomy and then 6 months of what my oncologist calls "sandwich" therapy. 3 round of chemo (taxol and carboplatin), 5 weeks of radiation (both internal and external) and a final 3 rounds of chemo. I've…
Whole Brain Radiation Experiences?
Wife had second surgery to remove small superficial tumor last month on brain and now Dr's are suggesting whole brain radiaition (WBR) to eliminate any small cells that could remain. Her first surgery was in the same place last August and followed up with Gamma Knife last September. Looking for some help with anyone who…
Permanent nephrostomy tubes due to radiation damage
New to this site. I am desperate for answers!!!!! According to the doctors patients like me don't exist and basically have been doing my own medical care (awareness) since. My damage started two months after treatment had an emergency colostomy then two months later my bladder startEd to pass huge blood clots so they went…
Radiation on neck
hello, I was wondering for those of you who have had radiation on their neck how long did it take for your taste buds to come back after 6weeks of radiation was complete? Also, how long until you were able to handle spicy food again? Please tell me the age you were during your treatment also.
Chemo-Brain
Wow, it's like a breath of fresh air!! To feel like you're the only one out there that's going through all this and then discover that there is someone else.. not only one, but a community, of people to share this with!! I too am a 4yr. cancer survivor and struggle with this daily. I have read some articles on it and also…
sever pain in ankles, feet, knees, elbows
I finished with lung cancer chemo on september 07, but here it is 8 months later...I am 46 years old and I am having almost severe constant joint, muscle, or bone pain, also heavy duty pre menopausal symptoms- sometimes hot flashes, sometimes very bad period pain. The reason I am writing is due to the fact that my doctors…
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Testing for nerve damage due to cancer treatments
For all of you with tingling feet and toes, numbness etc after cancer treatments you might want to speak to your family doctor about a referral for Neuropathy testing. You go to a clinic usually in a hospital and they do a nerve conduction test and right after you get the results from a neurologist, at least that's how it…
I HAVE HEAT/SUN INTOLERANCE AS LONG TERM SIDE AFFECT.....ANYONE ELSE? HELP!!
It's been 15 years since I've had chemo/radiation/surgery [abdominal cancer]. The last year and a half I've had onset of HEAT/SUN INTOLERANCE. Can't find any info out there regarding how to treat this, if it's from chemo, or what. I can be in direct sunlight less than 5 minutes in very mild temperatures and just began to…
Thyroid problems after radiation?
Has anyone experienced throid problems after radiation treatment? I have 25 treatments to the chest area and now they think I might have a thyroid problem. I will let you know the results of the tests but I want to hear from you too. Thanks, Lia

Long-Term Effects of Treatment

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