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Long-Term Effects of Treatment

Incontinence temporary cure
Had an interesting occurence the other day. I've been incontinent since prostate treatment over a year ago. I went in for a cystascope examination and was totally continent when I came out. This continued for 9 hours and I could urinate normally. Has anyone experienced this before? The exam was not successful as my bladder…
Radiation and Pelvic Radiation Disease
This is a dear friend of mine. She is beautiful and smart and found out that Pelvic Radiation Disease (PRD) is real and not yet really recognized here in the U.S. All her research took her across the pond and I think it is worth sharing this piece with anyone who is looking for information.…
Maintenance Tx for indolent, NHL
I completed induction Tx for indolent, NHL 3B, in December, 2015. My last scan, a month ago, was clean. The suggested maintenance Tx following induction was continuing with Rituxan only, 1 X every 2 months. But I had to quit, after 2 Tx, because the fatigue, mostly, was life-changing, epic-class. The best analogy I could…
20 Plus years after radiation
In 1978 I was told I had Stage 1A Hodgkin's. I was told I would have to go thru radiation treatments using Colbalt 60. I was given over 7432 rads of radiation and now some 27 years later I'm still having side effects. I was wondering if they are any other "LONG TERM" Survivors of radiation?
Long term effects of 5fu and levamisole for colon cancer
Hi I have just passsed the end of year 18 of survival from stage3c colon cancer into six nodes. A cancer that I was assured by my surgeon would get me within three years, too many nodes and frightfully aggressive. I survived surgery and 48 weekly hits off 5 flourouricil enhanced every fortnight with a drug called…
Lack of muscle tone
I am currently undergoing chemo (Carbo/Taxofere) for ovarian cancer. Within my 1st month of treatment (currently starting my 3rd) I noticed a loss of muscle tone. It was all my muscles (calf, thigh, arms)! It is a HUGE effort to just take short walks, it feels like I'm dragging my legs! I had VERY strong muscles before…
Who decides???
Last week I was having a bad day. I found this site and thought it would be good for me to have some people to interact with. People that are going through the same things I am going through. The same day My dad called me I told him I had considered assisted suicide, he hung up and I have not heard back from him. Then I…
Pain in hands and wrists = rheumatoid arthritis?
Hello, My husband was diagnosed with sinus cancer last fall, and underwent chemo and radiation treatment during the winter months. We are fortunate for the wonderful doctors and care he received. The doctors are very happy that they see no sign of the cancer at this time. While he is doing well overall, not long after…
Difficulty Swallowing 6 years into remission
My mother(46 years old) is a 6 year stage 4 tonsil cancer survivor(as of may). After surgery to remove tonsils, 22 treatments of radiation, and 2 different concurrent chemotherapies, she was given the thumbs up for no cancer. However, she had been severely burnt from the inside out with sores from her lips down her…
Scar tissue from Neuroblastoma
Radiation Late Effect Plexopathy
I was recently diagnosed with lumbar plexopathy, a late effect of radiation treatment I had eight years ago for endometrial cancer. I am having difficulty walking. Anyone else with this problem?
Raditation Enteritis - So now I have a REALLY grumpy gut
Hi Everyone - I was diagnosed with Stage IIIC endometrial/uterine cancer in the fall of 2013. I underwent a total hysterectomy and then 6 months of what my oncologist calls "sandwich" therapy. 3 round of chemo (taxol and carboplatin), 5 weeks of radiation (both internal and external) and a final 3 rounds of chemo. I've…
Whole Brain Radiation Experiences?
Wife had second surgery to remove small superficial tumor last month on brain and now Dr's are suggesting whole brain radiaition (WBR) to eliminate any small cells that could remain. Her first surgery was in the same place last August and followed up with Gamma Knife last September. Looking for some help with anyone who…
Permanent nephrostomy tubes due to radiation damage
New to this site. I am desperate for answers!!!!! According to the doctors patients like me don't exist and basically have been doing my own medical care (awareness) since. My damage started two months after treatment had an emergency colostomy then two months later my bladder startEd to pass huge blood clots so they went…
Radiation on neck
hello, I was wondering for those of you who have had radiation on their neck how long did it take for your taste buds to come back after 6weeks of radiation was complete? Also, how long until you were able to handle spicy food again? Please tell me the age you were during your treatment also.
Chemo-Brain
Wow, it's like a breath of fresh air!! To feel like you're the only one out there that's going through all this and then discover that there is someone else.. not only one, but a community, of people to share this with!! I too am a 4yr. cancer survivor and struggle with this daily. I have read some articles on it and also…
sever pain in ankles, feet, knees, elbows
I finished with lung cancer chemo on september 07, but here it is 8 months later...I am 46 years old and I am having almost severe constant joint, muscle, or bone pain, also heavy duty pre menopausal symptoms- sometimes hot flashes, sometimes very bad period pain. The reason I am writing is due to the fact that my doctors…
Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
Testing for nerve damage due to cancer treatments
For all of you with tingling feet and toes, numbness etc after cancer treatments you might want to speak to your family doctor about a referral for Neuropathy testing. You go to a clinic usually in a hospital and they do a nerve conduction test and right after you get the results from a neurologist, at least that's how it…
I HAVE HEAT/SUN INTOLERANCE AS LONG TERM SIDE AFFECT.....ANYONE ELSE? HELP!!
It's been 15 years since I've had chemo/radiation/surgery [abdominal cancer]. The last year and a half I've had onset of HEAT/SUN INTOLERANCE. Can't find any info out there regarding how to treat this, if it's from chemo, or what. I can be in direct sunlight less than 5 minutes in very mild temperatures and just began to…
Thyroid problems after radiation?
Has anyone experienced throid problems after radiation treatment? I have 25 treatments to the chest area and now they think I might have a thyroid problem. I will let you know the results of the tests but I want to hear from you too. Thanks, Lia
Neck atrophy and slumped shoulders
After a diagnosis of neuroblastoma in October of 1992, my 1 year old son went through 9 months of chemo, 12 doses of radiation to the neck and chest, and 2 surgeries, one of which removed 24 lymph nodes from the neck. Over the years, there have been several unusual characteristics that he has developed, that we have always…
28 year survivor but am sick of the side effects!
Hi, I was diagnosed with AML in 1986, I was 11 years old at the time. I received chemotherapy, single fraction total body radiation and a bone marrow transplant. Since then I have have been dealing with late effect after late effect and even though I try really hard to keep a positive spin on life it is beginning to get me…
CyberKnife
I have been told I'm no longer a candidate for traditional radiation. Being referred to CyberKnife. Does anyone have experience with CyberKnife? Thanks for any comments or advice.
gist and gleevec
My mom is on Gleevec for about 1 month and half because of GIST. But liver enzymes are increasingly elevated. Oncologists said to stop it till they back to normal range. Even changing the medication might not be a solution and they can have same side effect and on liver enzymes. Any one experienced same problem or any idea…
Hospital Delirium
My Dad, who is 78 years old, finished a regimen of IV chemo about a month ago. He was getting the chemo every other week since December 2014. His oncologist put him on a 6-week break. Unfortunately, he fell and broke his left arm about 10 days ago and is still in the hospital. The broken arm is bad, but other medical…
Any experience hair thinning or hair loss after remission?
Hi everyone I had NB stage4 at 13months of age have been in remission for years I am 35 years old. I have many late effects from chemo and radiation. One is or may be from my Neuroblastoma or treatments. I first noticed in 2004 that my hair started falling out and has gotten thinner and thinner since. I am still losing…
Lymphedema in the News, Hope for a Cure
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
Vocal cord paralysis
In 1983, I had a modified radical mastectomy with 23 cobalt radiation treatments. Today, I have coronary artery disease (failed bypass to 100% blocked LAD in 2007) and I have just discovered that I have left vocal cord paralysis. I am also preparing to undergo surgery for a tumor in the bladder. I am male. Thankful to have…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…

Long-Term Effects of Treatment

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