Hi my name is Justin and I am 30 years old. I was diagnosed with stage 1 nasopharyngeal carcinoma in August 2015. I completed 35 treatments of radiation therapy and 3 cisplatum chemotherapy treatments. My last day of these treatments was October 22nd.
I am looking for relief and information and I hope that somebody can help me. I am truly desperate for some support with my side effects. I have read so much information on the Internet and talked to my team of doctors, but I really can't find any real relief from my symptoms. I don't have the best doctors, and they say that there is nothing j can do about my side effects.
I won't bore you with the pain I've already gone through, but if you want to know more, I'll be more than happy to tell you my story.
My major problems my salivary glands and my sore throat. My salivary grands aren't producing enough saliva and my throat and mouth are covered in thick mucus all of the time. Due to my side effects, I wake up every hour and choke, which is extremely painful due to my sore throat.
I'm taking hydromorphone and saligen and omaperazal as far as medications. I've had a peg tube since my fourth week of treatment. I've read and practiced many of the remedies, tried magic mouthwash and carafate solution. Nothing seems to work successfully, which is why I say that I am desperate for relief and information.
Here's are a list of questions I would like to ask somebody who has done my treatment in the past:
How long did it take until the sore throat started to subside after treatment was over?
How long until the salivary glands started to get better after ending treatment?
How long until eating was starting to get better?
Is there anything you would truly recommend to relieve the pain until side effects start to get better?
Please help me with any information. Even if you don't feel like it is important enough, I don't mind any extra information. I'm at the point where my quality of life has been diminished. I've had to quit my job, I'm in pain every single day and I really hate living right now. The mornings and night are the worse because that's when the side effects are at the pinnacle. I wake up, gag and choke, try to feed myself through the tube and throw up. That has been my life since week 5 of treatment. It's extremely depressing to think that there is nothing I can do to help myself. I have been taking care of myself since I've been 18 years old and always figures things out for myself. To try so many things and do so much research with no help is so very hard on me. Thanks for your time.