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Leukemia

CLL
CLL diagnosis in Canada takes a while - GP referral to Oncologist --- June 30 to Aug. 27. Can anyone comment on my blood count WBC - 59,000 Platelets 99 RBC - 3.7 Lymphocytes 48,400 Cheers Dano *** Looking at Chemo once a month for 6 months starting in 3 weeks?
Vidaza/ Azacitidine for AML? What are your stories and successes. My Dad is going through this now.
Hi. My Dad is being treated wth Vidaza in the hope of getting into remission so he can then go to London to have a vaccine trial for early relapse of BMT with AML. Our struggle right now is finding him hope in people who have succeeded with treatment post early BMT. His prognosis back in June was he has weeks/months to…
Early relapse of Bone Marrow Transplant - Hoping to hear from survivors out there?x
Hi everyone. This is my first post on the discussion boards and I'm new here. My Dad is not very internet savvy and has asked for my help in finding him information on here. Dad was diagnosed with AML October 13 and had a Bone Marrow Transplant in Feb 14. He relapsed in June 14. He is desperate to find people who have…
Thrombocytopenia
Hello, I was recently diagnosed with thrombocytopenia (platelets were at 50K). They did a bone marrow biopsy and aspiration yesterday to look for other problems. My Red and White blood cell counts were just a tad low (about one point). The docs have advised me this could be leukemia, MDS, nothing, or a few other…
Vitamin D
I am 71 and have had CLL since I was 62. Initially my WBC count was 12.3, but for the last 4 years has remained at about 19-21. Four years ago I read an article in the MAYO Clinic newsletter about a study on the effects of vitamin D on CLL. When Vitamin D levels are normal, in about 48 percent of the people the increase in…
Rituximab
Anyone familiar with this? Hubby was dx'd with CLL 17 years ago, Onc feels that this treatment will help. 4 weekly infusions. this will be his first treatment. He is 78 and is still going strong. thank you! Sue
Hope always helps
New therapy being fast tracked for Leukemia http://news.yahoo.com/us-regulators-fast-track-novel-leukemia-therapy-213503303.html
LGL Leukemia just diagnosed
I am 38 years old and going back to the doctor after my initial diagnosis. Is there any specific questions i should be asking the doctor? I found out through a routine physical and feel healthy but wondering how long will i fell healthy. There are lots of questions that are running through my mind and if anyone has any…
To tell or not to tell....
Hi everyone, Here's my resume in short: Age of 12- Stage 4 Neuroblastoma 3 years of treatments Age of 17- AML, Allogeneic Peripheral Stem Cell Transplant Current Status: I'm Thank God, a few years post transplant, and I am Thank God well! Now for the question: I know of a few families who were determined to keep the…
When is it safe to color my hair?
I have gone through 6 rounds of chemo, and I still have my hair (just as I did when I went through it 6 years ago). I would like to color my hair again, but don't know how long I should wait to do it safely.
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
Symptoms, paranoia, and a wannabe doctor.
So here it is: About one month ago I got a really bad case of step throat... then, two weeks later I felt a swollen lymph node in my groin and ever since then I keep getting these random bruises (three so far). As of two days ago I now have three swollen lymph nodes in my groin. I have also had a swollen lymph node on the…
Test Shown to Reduce Early Cancer Deaths is Now Available to Patients
Huntington Beach, CA - SignatureCLL announced that the first laboratory test ever shown in a clinical trial to improve one year survival rates in cancer is now available to patients with chronic lymphocytic leukemia (also called CLL). The U.S. cancer physician who invented the test and the British scientist who used it to…
DX CLL after Hodgkins and Thyroid
Hi All, I am new to this CLL stuff, I have a history of Hodgkins Lymphoma dx in 1987 -88 then Thyroid in 1997 - 98, now CLL 2014. I am a 40 year old female so a bit young for CLL, and having a really hard time with the wait and see apporach I know it is common not to treat until necessary but I can't seem to stop thinking…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
CLL
My dad was diagnosed with CLL having no symptoms, I'd like to talk to someone with this same type of cancer
Mental Illness and AML
My brother was diagnosed with AML almost a year ago. He went through several rounds of chemo and induction last year. During his treatment his mental state of mind started to worsen. He had previously shown signs of schizophrenia, but had never been treated for it because he refused to see a doctor. When he was diagnosed…
AML leukemia and pregnancy
My name is Lisa, I am 35 years old and I was diagnosed with AML leukemia on May 1st 2011. On May 1st, my husband and I went to the hospital to welcome our first baby into the world. After being admitted that morning, we started to get prepped for the epidural and did some routine blood work. The results were that my…
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
Husband has AML refusing treatment
I am at loss! My husband was diagnosed one year ago with AML. He did the induction and 2 other chemo treatments. Once he found out that he was still NOT in remission he said "i am done with this rodeo." He would rather enjoy whatever time he had left. The Dr.'s had told me that he had to make his decisons, not me. I was ok…
The True Story of David Tuccaro Jr.
If someone you love is fighting leukemia, "Bad To The Bone: The True Story of David Tuccaro Jr." will help you understand how physically and emotionally devastating this cancer is. "Bad To The Bone" takes you inside the pain to understand it.…
Fluid in the lungs after treatment- Please help
My father has had leukemia for 7 years now and finished his treatemnt end of last year. Everything looked good. Then he got what looked like a cold as my mother was sick, and doctors thought it was pneumonia now say its not. They have no idea what it is and its been almost 2 months. He has had a CT scan, an x ray, blood…
Retuxinmab. Has anyone else taken this before? Comments, concers?
I am going to start taking Retuxinmab IV this week. Has anyone else taken this? Comments or concerns?
CLL
I am starting Chemo, for CLL soon would like to get feedback, on what to expect
Possible Leukemia?? Please help!
Hi, I am 21 yrs old guy recently having lot of problems with my health. I feel very fatigued all the time and my vision is getting blurry day after day. I have knee pain which makes me struggle even to walk sometimes. I also have few bruises poping up in my leg. I had sinus inflammation few months ago which isn't going…
Update elevated WBC
Hi, I just got a call from the doctor, he said I'm at 12 again. He said because of your Dad we can send you to a hematologist. That's an option. I said to him could it be from stress he said no not in a chronic form. I said im not sick I don't have any infection going on. He said yeah you are fine so we can send you to a…
Hematology/oncology visit
I hope everyone is doing well. Had a long day.. Had my appt for chronically elevated WBC. Bottom line they drew blood to check for CML, Chronic myelogenous leukemia. She said I should not be worried, she doesn't thinkI have it, but at the same time there are people diagnosed at my WBC levels. Please Take care of yourselves.
FAQ about CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
CLL & TB
I discovered I have CLL thru a routine exam. I imagine there are a lot of people who find out that way. After reading the many comments & messages shared on this website, I decided I would tell about my situation. I discovered that I am not nearly as informed about my circumstance as some others & I think I will ask a few…
Confused with CML. Help!
Hi, I am 35 years old, mom of 4 kids and I was diagnosed with CML 10 months ago. I think I have taken it pretty well but my husband seems terrified but frustrated. Since I look fine when I am having night sweats or small amounts of joint pain, or even fatigue, my husband looks upset because I am not doing things around the…

Leukemia

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