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Leukemia

Lymphoma 3 times and Now Leukemia
Has anyone had or know anyone that has had Lymphoma two times followed by leukemia and lymphoma again? Help please!! Do we have hope?
Extreme extreme severe burning tongue after aml salvage chemo
My wife has undergone induction chemo and a stem cell transplant. The stem cell transplant failed a couple of weeks ago and she received seven days of salvage chemo. Unfortunately, she now suffers from a burning tongue that is so extremely severe that she cannot eat. Has anyone heard of this? The doctors seem to think it…
Transplant related graft-versus-Myelodysplastic syndrome
In 2015 after seven years of treatment for Peripheral T-Cell Lymphoma - Not Otherwise Specified (PTCL-NOS) as well as Angioimmunoblastic T-Cell Lymphoma (AITL), I ended up with 26% MyeloDysplastic Syndrome (MDS - 20q deletion) cells in my marrow. Although considered a pre-leukemic cancer, it is quite low risk, unless it…
B Cell Prolymphocytic Leukemia Treatment, Future Plan, Life Expectancy
My father, Age 63, was diagnosed with "B Cell Prolymphocytic Leukemia" in April 2017 and his treatment started in August 2017, after 3 months of wait and watch. He has so far received 5 cycles of Rituximab + Bendamustine and is planned to receive 1 more cycle of the same. Before starting treatment his spleen size had…
Flt3 mutation
my wife has aml, which is obviously one of the worst of cancers (If not the worst). She is even more impacted by this terrible, terrible illness by a flt3 mutation. She is being treated at the karmanos center in Detroit and has undergone both induction chemo and a stem cell transplant. Neither worked. The stem cell lasted…
Cancer Cluster Information
Hi, My daughter, who is now 18, was diagnosed with ALL when she was 2 years and 9 months old. She survived. My son, who is now 16, was diagnosed also with ALL on Noveber 7th of this year. I understand that part of this is genetics, however in talking to one of his oncologists I understand that the chances of anyone…
Acute Penotypic Leukemia Husband Diagnosis New Help!
My husband was just diagnosed with acute phenotypic leukemia. He is 44. He went to his primiary doctor because he had been having chest pains (for a couple of months but he had't told me) and they thought he had angina. They sent him to a cardiologist who was going to do a cardiac catheterization but sent him for bloodwork…
APL leukemia bone marrow transplant
Anyone going through APL leukemia have to get a bone marrow transplan? If so any info you can provide it would be much appreciated.
11-year remission of AML and pregnancy planning
I am 32 years old now. I was sick with acute myeloid leukemia in 2002-2004. In 2004 I had the autologous bone marrow transplantation. Since then, I have complete remission. Now I am fine in terms of my health, but I am upset that I don’t have children. With my eggs pregnancy is rather impossible because I do not have my…
Medical Cannabis
I have Myelo Fibrosis (stage4) . I have been on Cannabis RSO (rick simpson oil) since april of this year. In Jan. I started medication (kakafi) 30mg twice a day to shrink my spleen . I have had 3 transfusions , last one was 5 mos ago. In Sept. my hgb leveled off at 8.2 , in oct my hmb rose to 8.6 in Nov it rose to 9.2 . My…
33year old sister with apl
hello all, My name is Tamara and my sister was recently diagnosed with apl she's 33 years old and this is the hardest thing I've ever had to watch somone go through in my life! I was wondering can anyone share their experiences with us? Shes home now from a 3 and half week stay at the hospital. She's currently on atra for…
Financial help or ideas
Hey, this is very diffrent for me to do but i am not sure what i can do for my situation. My daughter was diagnosed with leukemia about a year ago. Since then she has gotten to maintaince. I tried to go to work annd put her in daycare and she got to the point the sicknesses kept home from daycare really messed with her…
Who should I tell
Just diagnosed at 55. No symptoms other than WBC that climbed over two years to 20k. Gp thought at first it was allergies or just something I was fighting like sinus or cold But due to the continue climb sent me to local Oncologist. He looked at my recent blood test and pre diagnosed cll. Took 4 of blood and told me to…
24 year old female concerned about leukemia
Hi, I am trying to find out what was it that made you get tested to be diagnosed? I have had 3 blood test done and have spoken over the phone with a doctor that seems to be as concerned as I am. I have all the symptoms of leukemia and my blood test results have been adnormal in sorts it shows it might be leukemia. I am 32…
under 50 with CLL
Anyone else out there under 50 w/CLL? Anyone with CLL and young kids? I'm in both categories, recently diagnosed and having a lot of ups and downs. Would like to hear from others out there especially w/r/to thoughts on treatment and stem cell transplants
New to this Forum
I am a member who has been on the Colon Cancer forum. I went through treatment for that last year (surgery followed by chemotherapy) and thought I was doing well. My WBC started rising in April of this year and by September is was very high. In the middle of all this, I lost my job and insurance and had to change to a new…
57 year old women diagnoses with ALL
my mother was diagnosis from ALL . Now she had 3 round of chemo after 3rd chemo she got blood clot in her neck and having feber daily. Today fever goes to 102.7. She feels very weak all the time. I am giving medicine for fever but after every 6 hours fever come back. Is this thing happen with someone else also. She will be…
CAR T Therapy Breakthrough for Leukemia and other cancers
This is in the latest edition of Time Magazine. http://time.com/4895010/cancers-newest-miracle-cure/?xid=homepage
Losing heart in this fight
A year ago I was diagnosed with AML. At the age of 20 I was in remission and a year later it re-occured. Now at the age of 21 I am up for a autologous transplant due to the fact that I am unable to find a donor match. In a few weeks they plan to begin the withdrawal of my stem cells and in a month begin the transplant. I…
High calcium or vitamin b12 levels
Has anyone had high levels of vitamin b12 or high labels of calcium in blood? Looking for support and any information you may have of what your symptoms were and what diagnosis was made. Thank you am desperate to connect with others. Feeling so alone and no one can give me answers or hope.
32 yrs old diagnosed with LGLL. anyone else out there?
Just found out a few days ago I have LGLL. It's devastating for me because I just turned 32. I was feeling extremely healthy other then some on and off anxiety issues...now more then ever I'm feeling super anxious..apparently it's very rare and a chronic form. Anyone else been diagnosed? Feeling very overwhelmed but trying…
cll
I was dignosed in December with cll. I have had ct scans and shceduled for pet scan in June. My dr was going to start chemo last week but since I'm still feeling ok decided to wait.
newly dx'd
Hey, I am newly diagnosed with CLL and the funny thing is I don't feel "sick" but haven't felt well for a long time. My PCP gave me a dx of Chronic Fatigue several months ago, but looking back on it, I think it was CLL all along. This past winter I stayed sick. Started with sinus, then the flu, then bronchitis, then…
BMA versus BMB result
Hi, please, can you give me explanation-bone marrow aspiration twice showed hypercellular bone marrow with overgrowth of WBC and megakariocytes with all stages of maturing including micromegakariocytes. But the same time as second BMA made bone marrow biopsy showed normocellular bone marrow. Is something like that possible…
Looking for LTS support groups in South Jersey/Philly Area
Hello everyone, My name is Matthew. I am 38 years old and a survivor of ALL Leukemia and Non-Hodgkin's lymphoma, dx'd when I was 5 and in remission since age 8. I also contracted Hepatitis-C via transfusions (though I am doing well with that, and about to begin treatment--something I have been dreaming of for more than a…
CLL immunoglobulin treatment questions
Last June I was diagnosed with CLL, I was told they caught it early and since I am only 37, my dr assumed I would be fine for years to come. I quickly moved to a stage 1 and my last blood work showed that my immunoglobulins have dropped significantly. My new oncologist says that if this trend continues I will have to be on…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
AML Older Survivors
Hello, my mother (59 years old) was diagnosed with AML (intermediate risk type) this past February. I am unsure if this is the correct place to ask, but is it possible for me to find someone who is around my mother's age who has also had her condition and survived? I ask this because I've read that the survival rate is not…
aml with flt3 marker
diagnosed wih aml with flt3 marker in june 2011. had 2 rounds of induction and then another round before dual unit cord blood transplant in august. hoping to meet other ducbt survivors.
11 year old with ALL
My daughter had ALL and we just finished the first month. We have not found out the results of the last BM but doctors have send her leukemia is agressive. I don't know what to expect and very scared. Are there any online support groups that are live so I may speak with others?

Leukemia

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