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Premature ovarian failure- menopause
HI everyone, I'm looking for some feedback on early menopause and treatment. I'm 28 yrs old and after a Stem Cell Transplant, I was dx with pre-mature menopause. I'm looking into treatment. Birth Control, HRT, and Bio Identical Hormone Replacement Thearpy. I don't have many symptoms related to menopause, but fear…
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Need some advice and help My sister is suffering from AML
My sister has been suffering from AML for about a year now and She had a first BMT transplant about 6 months ago. Everything was going well but suddenly her platelets started dropping. They did a bone marrow biopsy and noticed the leukemia has came back. We are very worried now. Everywhere I look at online nobody has…
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Aml leukemia
i was dianoosed with aml leukemia with flt 3 mutation in septemer 2016.I was imediatly admitted to local hosptial for induction. chemo. I stayed in the hospital from september2016 to october2016.I am still in remission since late october2016. I have had 2 rounds of cosildation(november and decemeber2016) to prepare for a…
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MDS AML Inversion 3
My sister (51 years) is starting her second round of induction therapy and is very scared. She had a blast count of 16% prior to her first round of chemo and repeat biopsy still shows 16%. Plan is to get blasts down so that she can have a cord blood stem cell transplant. Can anyone share with me what inversion 3 means as…
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I need at least one survivor of AML monosomy 7 inversion 3
Hi all, My brother is only 29 years old and was diagnosed last year with AML monosomy 7 inversion 3. His doctor told him there is nothing left and he refuses to see any other doctors. She said he has a 0% chance of living and nothing will work. He has been battling for 16 months. He has decided to stop treatment but he is…
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Head is itchy and scabby while hair is growing back..??
My last chemo was in December of last year. My hair is growing back but it's also getting very itchy and scabby. Has anyone gone through this or going through it now? If so, any products to reccomend besides the common head and shoulders? I also have an autoimmune disorder, Sjogren's. It dries the skin and body from within…
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APL after treatment
hello everyone, just wanted to ask those of you that have gone through all the treatment for APL what your lasting effects were/are. I myself have gone through all the treatment stages and will get my bone marrow biopsy to see if I’m in molecular remission this coming up week. Up until this past week i had been feeling…
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Question about bone paine
I have been have odd pains in my shins and arms for 2 month. The pain is usually sharp and seem to just happen out of nowhere. Movement doesn't make it worse. Yesterday the pain was mainly in my left shin and today it's my right shin. Could anyone who has had bone pain please give me some input or describe their bone lain.…
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3year old child diagnosed with ALL but now is changed to ABl(AML+ALL)is it possible?
I have a niece whose name is Baran. About 11 month ago exactly in her 2 years old birthday she was diagnosed with ALL. Her doctor started chemotherapy that was helpful and her BM (bone marrow) got normal and she was in her 5th phase of treatment but about 1 month ago, her platelet started reducing again. She had a BM which…
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Official Five Year ALL Survivor
Hi to all! Five years ago today, I was diagnosed with T-cell Acute Lymphocytic Leukemia, and my outlook was negative. I was told I would not likely survive. However, with much support and prayers plus a generous bone marrow donor, I survived! Not only that, but I am healthy again and living a normal life. If you or someone…
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Life expectancy of Chronic Lymphocytic Leukemia
Does anyone know of anyone who lived for more than 20 years with chronic lymphocytic leukemia? I am interested to know Thanks Richsterr
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Lymphoma 3 times and Now Leukemia
Has anyone had or know anyone that has had Lymphoma two times followed by leukemia and lymphoma again? Help please!! Do we have hope?
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Extreme extreme severe burning tongue after aml salvage chemo
My wife has undergone induction chemo and a stem cell transplant. The stem cell transplant failed a couple of weeks ago and she received seven days of salvage chemo. Unfortunately, she now suffers from a burning tongue that is so extremely severe that she cannot eat. Has anyone heard of this? The doctors seem to think it…
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Transplant related graft-versus-Myelodysplastic syndrome
In 2015 after seven years of treatment for Peripheral T-Cell Lymphoma - Not Otherwise Specified (PTCL-NOS) as well as Angioimmunoblastic T-Cell Lymphoma (AITL), I ended up with 26% MyeloDysplastic Syndrome (MDS - 20q deletion) cells in my marrow. Although considered a pre-leukemic cancer, it is quite low risk, unless it…
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B Cell Prolymphocytic Leukemia Treatment, Future Plan, Life Expectancy
My father, Age 63, was diagnosed with "B Cell Prolymphocytic Leukemia" in April 2017 and his treatment started in August 2017, after 3 months of wait and watch. He has so far received 5 cycles of Rituximab + Bendamustine and is planned to receive 1 more cycle of the same. Before starting treatment his spleen size had…
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Flt3 mutation
my wife has aml, which is obviously one of the worst of cancers (If not the worst). She is even more impacted by this terrible, terrible illness by a flt3 mutation. She is being treated at the karmanos center in Detroit and has undergone both induction chemo and a stem cell transplant. Neither worked. The stem cell lasted…
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Cancer Cluster Information
Hi, My daughter, who is now 18, was diagnosed with ALL when she was 2 years and 9 months old. She survived. My son, who is now 16, was diagnosed also with ALL on Noveber 7th of this year. I understand that part of this is genetics, however in talking to one of his oncologists I understand that the chances of anyone…
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Acute Penotypic Leukemia Husband Diagnosis New Help!
My husband was just diagnosed with acute phenotypic leukemia. He is 44. He went to his primiary doctor because he had been having chest pains (for a couple of months but he had't told me) and they thought he had angina. They sent him to a cardiologist who was going to do a cardiac catheterization but sent him for bloodwork…
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APL leukemia bone marrow transplant
Anyone going through APL leukemia have to get a bone marrow transplan? If so any info you can provide it would be much appreciated.
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11-year remission of AML and pregnancy planning
I am 32 years old now. I was sick with acute myeloid leukemia in 2002-2004. In 2004 I had the autologous bone marrow transplantation. Since then, I have complete remission. Now I am fine in terms of my health, but I am upset that I don’t have children. With my eggs pregnancy is rather impossible because I do not have my…
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Medical Cannabis
I have Myelo Fibrosis (stage4) . I have been on Cannabis RSO (rick simpson oil) since april of this year. In Jan. I started medication (kakafi) 30mg twice a day to shrink my spleen . I have had 3 transfusions , last one was 5 mos ago. In Sept. my hgb leveled off at 8.2 , in oct my hmb rose to 8.6 in Nov it rose to 9.2 . My…
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33year old sister with apl
hello all, My name is Tamara and my sister was recently diagnosed with apl she's 33 years old and this is the hardest thing I've ever had to watch somone go through in my life! I was wondering can anyone share their experiences with us? Shes home now from a 3 and half week stay at the hospital. She's currently on atra for…
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Financial help or ideas
Hey, this is very diffrent for me to do but i am not sure what i can do for my situation. My daughter was diagnosed with leukemia about a year ago. Since then she has gotten to maintaince. I tried to go to work annd put her in daycare and she got to the point the sicknesses kept home from daycare really messed with her…
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Who should I tell
Just diagnosed at 55. No symptoms other than WBC that climbed over two years to 20k. Gp thought at first it was allergies or just something I was fighting like sinus or cold But due to the continue climb sent me to local Oncologist. He looked at my recent blood test and pre diagnosed cll. Took 4 of blood and told me to…
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24 year old female concerned about leukemia
Hi, I am trying to find out what was it that made you get tested to be diagnosed? I have had 3 blood test done and have spoken over the phone with a doctor that seems to be as concerned as I am. I have all the symptoms of leukemia and my blood test results have been adnormal in sorts it shows it might be leukemia. I am 32…
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under 50 with CLL
Anyone else out there under 50 w/CLL? Anyone with CLL and young kids? I'm in both categories, recently diagnosed and having a lot of ups and downs. Would like to hear from others out there especially w/r/to thoughts on treatment and stem cell transplants
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New to this Forum
I am a member who has been on the Colon Cancer forum. I went through treatment for that last year (surgery followed by chemotherapy) and thought I was doing well. My WBC started rising in April of this year and by September is was very high. In the middle of all this, I lost my job and insurance and had to change to a new…
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57 year old women diagnoses with ALL
my mother was diagnosis from ALL . Now she had 3 round of chemo after 3rd chemo she got blood clot in her neck and having feber daily. Today fever goes to 102.7. She feels very weak all the time. I am giving medicine for fever but after every 6 hours fever come back. Is this thing happen with someone else also. She will be…
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CAR T Therapy Breakthrough for Leukemia and other cancers
This is in the latest edition of Time Magazine. http://time.com/4895010/cancers-newest-miracle-cure/?xid=homepage
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Losing heart in this fight
A year ago I was diagnosed with AML. At the age of 20 I was in remission and a year later it re-occured. Now at the age of 21 I am up for a autologous transplant due to the fact that I am unable to find a donor match. In a few weeks they plan to begin the withdrawal of my stem cells and in a month begin the transplant. I…