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High calcium or vitamin b12 levels
Has anyone had high levels of vitamin b12 or high labels of calcium in blood? Looking for support and any information you may have of what your symptoms were and what diagnosis was made. Thank you am desperate to connect with others. Feeling so alone and no one can give me answers or hope.
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32 yrs old diagnosed with LGLL. anyone else out there?
Just found out a few days ago I have LGLL. It's devastating for me because I just turned 32. I was feeling extremely healthy other then some on and off anxiety issues...now more then ever I'm feeling super anxious..apparently it's very rare and a chronic form. Anyone else been diagnosed? Feeling very overwhelmed but trying…
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cll
I was dignosed in December with cll. I have had ct scans and shceduled for pet scan in June. My dr was going to start chemo last week but since I'm still feeling ok decided to wait.
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newly dx'd
Hey, I am newly diagnosed with CLL and the funny thing is I don't feel "sick" but haven't felt well for a long time. My PCP gave me a dx of Chronic Fatigue several months ago, but looking back on it, I think it was CLL all along. This past winter I stayed sick. Started with sinus, then the flu, then bronchitis, then…
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BMA versus BMB result
Hi, please, can you give me explanation-bone marrow aspiration twice showed hypercellular bone marrow with overgrowth of WBC and megakariocytes with all stages of maturing including micromegakariocytes. But the same time as second BMA made bone marrow biopsy showed normocellular bone marrow. Is something like that possible…
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Looking for LTS support groups in South Jersey/Philly Area
Hello everyone, My name is Matthew. I am 38 years old and a survivor of ALL Leukemia and Non-Hodgkin's lymphoma, dx'd when I was 5 and in remission since age 8. I also contracted Hepatitis-C via transfusions (though I am doing well with that, and about to begin treatment--something I have been dreaming of for more than a…
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CLL immunoglobulin treatment questions
Last June I was diagnosed with CLL, I was told they caught it early and since I am only 37, my dr assumed I would be fine for years to come. I quickly moved to a stage 1 and my last blood work showed that my immunoglobulins have dropped significantly. My new oncologist says that if this trend continues I will have to be on…
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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AML Older Survivors
Hello, my mother (59 years old) was diagnosed with AML (intermediate risk type) this past February. I am unsure if this is the correct place to ask, but is it possible for me to find someone who is around my mother's age who has also had her condition and survived? I ask this because I've read that the survival rate is not…
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aml with flt3 marker
diagnosed wih aml with flt3 marker in june 2011. had 2 rounds of induction and then another round before dual unit cord blood transplant in august. hoping to meet other ducbt survivors.
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11 year old with ALL
My daughter had ALL and we just finished the first month. We have not found out the results of the last BM but doctors have send her leukemia is agressive. I don't know what to expect and very scared. Are there any online support groups that are live so I may speak with others?
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CML - Tasigna
I took Gleevec for almost four years, recently switched to Tasigna, and I'm wondering if anyone out there has been taking it for awhile and is experiencing a sensitivity to sunlight. It isn't on the official website as a side effect but I've found information on the web that suggests it is for others. It could easily be…
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Free Educational Conference in Phila, PA 11/18/2016
I wanted to share the following information with all who may be in the Philadelphia, PA area and interested in attending in person (or via livestream for those not in the area or not able to attend in person): OPEN TO THE PUBLIC: FREE Educational Conference - Focus on Leukemia, Lymphoma, Myeloma, and Bone Marrow/Stem Cell…
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AML- prepping for SCT
Hello- I'm new to this forum-- finally just had time to sign up! I was diagnosed with AML 2/6/2016 and immediately put inpatient, ended up being there for 7 weeks, 3 rounds of chemo, and still not in remission. I was told relatively soon in the process I have several chromosomal abnormalities (one I know for sure is…
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CLL
Hi there, For anyone who has the same CLL First time on site and after reading some of your letters I thought I would join. My husband has CLL diagnosed in 2009 and after wait and see from specialist he started his first round of chemo on 6/2015. Dr said lymp nodes very enlarrged, white cells were 145,000 and he has a…
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Just Diagnosed with CML at age 34
On March 11th 2009 I went to see a Dr. for some strange symptoms I was having, she wanted me to have blood work done, which I did the next day...a few hours later I got an alarming call from her saying that I needed to see a certain Dr. right away, an oncologist. She informed me that this Dr. wanted to see me THAT day. So…
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Black tonic effects/sucess with older leukemia victims.
I have used black salve and black tonic successfully a variety of times. A 57 year old friend of mine has just started chemo for leukemia. I have not had any experience with black tonic and this particuliar ailment. Can anyone fill me in before I attempt to bring the regimen to him ? Thanks so much.
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Hairy Cell Leukemia
Has anyone had experience with HCL? My dad is currently undergoing the 7 day/24 hour leustatin treatment in hospital. We were wondering what side effects to expect and what results you encountered by the same treatment. Today is day one in treatment. Yankees
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Hairy Cell Leukemia in 45 year old woman
A dear friend was diagnosed with HCL a week ago and started chemo (2 kinds) on Monday. She's having daily chemo. She'd been feeling bad for months and had a colonoscopy a few months ago because of feeling bloated all the time. Now she knows it was an enlarged spleen and not something else. She did have some pre cancerous…
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Hairy Cell Leukemia
My dh was diagnosed with HCL almost two months ago and he will start chemo soon if his counts are appropriate. We have three children (8, 5, & 4) and I know I should be strong, but I feel so weak and fragile inside. I have to keep it together for the kids and I don't want to scare him, but I am very scared! I am so…
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Myelofibrosis and CML 190
My husband Joe has both of these rare blood marrow cancers. Anyone know about Leukemia 190? I can't find much about it. My husband is on Gleevec and it decreased the size of the spleen, but now it is back to its original size. Any comments about bone marrow transplants? They have suggested this at some point in time. So…
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Leukemia
My 70 yr old husband was just diagnosed with ALL and wondering if any members out there have had to deal with this disease and if remission has happened. He is treated with Cyclophospamide and daunorubicin and they also started him on Rituxan. They give him shots of Neupogen, so far not too many side effects but only on…
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Decreased platelets counts post 60 days stem cell transplant
My nephew who is suffering from ALL. He underwent 3 years of standard protocol but ALL relapsed after 3 years. Hence he went through stem cell transplant with father who was 50% match. He had very minor GVHD on skin but apart from that no infection or GVHD till 70 days. Today doctor performed CBC report on Day 73 and found…
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I need your help please - Words of Inspiration Needed
Hello!! I come from the breast cancer forum, dx at the age of 32. I want to reach out to all of you because I'm working on a project for my aunt, who was diagnosed with AML (leukemia) at the age of 46. She means a lot to me because she has been like a mother to me. She is having a hard time with support and health care.…
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free home cleaning for my father in the Dayton area?
My father has been fighting CML now for almost 2 years, went into remission for a few months but it is already back. He lives alone in Dayton and is 73 years ago, I live in Connecticut. Along with the CML, he's diabetic and is dyslexic and illiterate. He cognitively doesn't doesn't realize how bad his house needs to be…
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Lgl
Diagnosed with stills disease 4 years ago, feeling like crap lately and now have low platelets and large granular lymphocytes. Being referred to hematoloigst from my internal med Doctor no one is saying much should I be worried?
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Prostate canccer survivor - now have Myelodysplastic Syndrome (MDS)
I was treated with High Dose Rate Brachytherapy for prostate cancer and at the time they said there was a small chance the radiation could cause a second cancer. My doctors now think the MDS I have was caused by the radiation. Looking at a 30% chance of cure with a stem cell transplant. Has anyone else had similar…
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B cell chronic lymphocytic leukemia
My grandfather has had two burn like skin patches on his shoulder. Those patches where biopsies. Biopsy came back today as Cuteanous involvment by B cell chronic lymphocytic leukemia. nothing on the biopsy says stage or ifs is aggressive or slow growing. What surprises me is that his wbc was normal and so was his…
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Chronic Lymphocytic Leukemia
I've read several messages on this web site posted by fellow CLLers. I hope all of you will check out www.clltopics.org It will save your life if you find yourself in the hands of an oncologist/hematologist who hasn't kept up with the latest information about this disease. I've had CLL for a year. Prognostic indicators are…
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Just been told CLL
I was told this morning I have Chronic Lymphocytic Leukemia. My white boold count is 13,800 and my doctor told me thst's low. he's refering me to a blood specialist. However I'm in shock right now after readying info online and posts here. I'm 67, four months shy of 68. Poppycat