On Pazopanib for 5 years with Stage 4 Renal Cancer
Hi to you all I was wondering if there are other people using Pazopanib for a longer time, my kidney with tumour was removed April 2011 and I was diagnosed stage 4 in December 2012. My oncologist used to ask me for feedback on my side effects to compare with other people in the USA who had been using the drug about 9 months ahead of me. These comparisons helped me with my journey and for the first few years made it easier, I no longer get this comparison information, the oncologist has indicated very few people are in my position. I was hoping I could find a few other people in this forum who are long time users of Pazopanib to compare notes with. Hoping you all have a happier day than the day before.
Comments
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Long term pazopanib
There should be lots of people around. If you don't get responses here, go to Smart Patients. You may find more there. I know several people that have been stable for a long time on this drug, or were stable for a long time on this drug.
Best to you,
Todd
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WoW!
5 years! Wow. Congratulations. I made it 3 years on Votrient at various doses. I don't know if I have anything to add that you don't already know.
But, I remember when I started: reading of other peoples' success with drug (like yours) was an inspiration. I'm sure your story will be blessing for many.
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Long term Pazopanibtodd121 said:Long term pazopanib
There should be lots of people around. If you don't get responses here, go to Smart Patients. You may find more there. I know several people that have been stable for a long time on this drug, or were stable for a long time on this drug.
Best to you,
Todd
Thanks Todd, I have only made a couple of comments over the last five years. I have been reading the progress of others on the site which has helped a lot.
Ken
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Helping without knowing itrhominator said:WoW!
5 years! Wow. Congratulations. I made it 3 years on Votrient at various doses. I don't know if I have anything to add that you don't already know.
But, I remember when I started: reading of other peoples' success with drug (like yours) was an inspiration. I'm sure your story will be blessing for many.
rhominator your suggestions and comments have guided me on occasions over the last couple of years, thank you
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