On Pazopanib for 5 years with Stage 4 Renal Cancer

kiwibloke
kiwibloke Member Posts: 5
in Kidney Cancer #1

Hi to you all I was wondering if there are other people using Pazopanib for a longer time, my kidney with tumour was removed April 2011 and I was diagnosed stage 4 in December 2012.  My oncologist used to ask me for feedback on my side effects to compare with other people in the USA who had been using the drug about 9 months ahead of me.  These comparisons helped me with my journey and for the first few years made it easier, I no longer get this comparison information, the oncologist has indicated very few people are in my position.  I was hoping I could find a few other people in this forum who are long time users of Pazopanib to compare notes with.    Hoping you all have a happier day than the day before.

 

Comments

  • todd121
    todd121 Member Posts: 1,448
    #2
    Long term pazopanib

    There should be lots of people around. If you don't get responses here, go to Smart Patients. You may find more there. I know several people that have been stable for a long time on this drug, or were stable for a long time on this drug.

    Best to you,

    Todd

  • rhominator
    rhominator Member Posts: 233
    #3
    WoW!

    5 years! Wow. Congratulations.  I made it 3 years on Votrient at various doses. I don't know if I have anything to add that you don't already know.

    But, I remember when I started: reading of other peoples' success with drug (like yours) was an inspiration. I'm sure your story will be blessing for many.

  • kiwibloke
    kiwibloke Member Posts: 5
    #4
    todd121 said:

    Long term pazopanib

    There should be lots of people around. If you don't get responses here, go to Smart Patients. You may find more there. I know several people that have been stable for a long time on this drug, or were stable for a long time on this drug.

    Best to you,

    Todd

    Long term Pazopanib

    Thanks Todd, I have only made a couple of comments over the last five years.  I have been reading the progress of others on the site which has helped a lot.

    Ken

  • kiwibloke
    kiwibloke Member Posts: 5
    #5
    rhominator said:

    WoW!

    5 years! Wow. Congratulations.  I made it 3 years on Votrient at various doses. I don't know if I have anything to add that you don't already know.

    But, I remember when I started: reading of other peoples' success with drug (like yours) was an inspiration. I'm sure your story will be blessing for many.

    Helping without knowing it

    rhominator your suggestions and comments have guided me on occasions over the last couple of years, thank you

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