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Broncoscopy biopsy - Part 1
Well, I got initial good news. Doc called and had half of my results back. They had taken five forcip samples and some fluids. They got the fluids' results back, and they were NED. While this is great news, we're still waiting for the results of the hard samples they pulled from my lung nodule. I'm trying to stay positive,…
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Getting past RCC
I had a radical neph for a 3.7 cm mass. I'm trying so hard to get past it all -start functioning like before RCC but I feel so down- like the happiness has been sucked out of me. Anyone been there? any suggestion? Will I ever be myself again-thanks .
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NED !
I had done my scan lab and chest last week ,today I meet with my doctor and its NED !! The doctor moved me to one year scan,,, she said you are stage 1 and after 2years we did every 6 months scan we should move now to one year ...please advise me is this the right guidelines or should I push for another 6 months scan…
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Upcoming scans and bronchoscopy
We're still trying to figure out for sure what these lung nodules are. The needle biopsy in August was inconclusive, and landed me a week in the hospital with a pneumothroax. Liquid biopsy showed a genetic mutaion that, while consistent with RCC, was not also present in the initital tumor. Assumption is that it's likely…
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Insurance Help?
After hours of being referred back and forth between my physician's office, the hospital and my insurance company, I am no closer to understanding how much I will need to pay for my laparoscopic robotic nephrectomy that has a 50/50 chance of being a radical nephrectomy that is scheduled to occur on January 12. I know I…
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New lung nodules
I have been NED for the past 4 years and had been doing every months, then 6 months, and then annually. I was hopefully to stop scans and possibly appointments in January. I had a chest x ray last week ordered by rheumatologist due to coughing and thought my RA meds were causing inflammation and the chest x ray found a 9mm…
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Lone kidney struggling
Had a Dr. appointment with blood test three weeks after surgery for complete removal of my right kidney. Surgeon said it went well and he saw no other issues. Pathology was a 4cm tumor, stage one cancer completely encapsoluted in kidney that was removed. The Blood test three weeks later indicated lone kidney was struggling…
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Scared this time
In May 2012, as I was undergoing my retirement physical, after 22 years in the Army, the doctor found a large tumor on my right kidney by accident. I had no signs or symtoms of any major issues at all. About a week later, I was to undergo a partial nephrectomy on my right kidney. When they went in, they decided to remove…
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Insomnia
One week post surgery for full neph-thank g-d recovery has been great-no pain,appetite, getting round, but I can't sleep. No fatigue and if I fall asleep I toss and turn. Even oxycodon didn't put me to sleep-anyone been there any suggestions-thanks in advance
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UTI.
Anyone had any problems with urinary tract infections post surgery I had my surgery on Sept 21st I was recovering well but three weeks after surgery I started having UTI.s The first one was horrendous.. Spent a day in hospital and a week in bed Get prompt antibiotics every time ... tested with samples and Microbiology…
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See the surgeon tomorrow morning...
Hoping and praying that he schedules surgery asap. Scared like everyone else, but so ready to get this thing out of me! Tired of being tired aka no energy all the time, tired of the pain in my side. No appetite. 2nd CT scan done 11/29 COMPARISON: Magnetic Resonance Imaging of the abdomen without/with contrast of 9/5/2017.…
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The verdict is in....
I have stage 1 kidney cancer, the good news is Dr thinks he can do a partial removal , he also said that it not an aggresive one and no chemo or radiation Trying to get surgey scheduled in the next 2 weeks, as I want it out ASAP This is the best news that I could have hoped for considering the mass was over 5CM Sal
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Pathology report
Surgeon called and stated that I had a 1.9cm RCC all confined to the kidney . T1A GRADE 2.. It will be sent off for Genetic testing. ...Surgeon states that's a great report and I should live to be an old man...I will get set up for scans and things but have not done that yet...The grading is confusing but I hope this is…
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First scan
Had my first scan since my nephrectony and it came back "no evidence of any metastic disease". It is a nice Christmas present as I was really worried. I know I'll be having lots of scans on the future but I'm so relieved and happy at this moment.
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**UPDATED**Had Partial Nephrectomy**- Just Dx'd & weighing tx options
Hi. I've known about my Left Kidney mass since the end of March...when it was incidentally discovered. It's taken this long to finally get an answer as to if it was benign or cancer. Multiple tests, waiting for insurance approvals, 1st Needle Biopsy missed tumor, more tests, waiting, waiting, waiting. So with the 2nd CT…
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Am I rushing things?
I know everyone is different and I’ve read people’s posts about recovery, so that leads me to believe I might be rushing back into things after surgery. I had a right radical nephrectomy on 11/6/17. I was released/went back to work on 11/28/17. I’m back to walking 4 miles a day and my appetite came back with in a week.…
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beware cellect hoax
https://www.mskcc.org/cancer-care/integrative-medicine/herbs/cellect
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Finally home
I was finally released from the hospital, yesterday, after having a partial hand assisted lapro as well as my gallbladder removed on the 22nd of November. It was not pleasant at all. While I was in the hospital I had trouble with my blood pressure being too low so I couldn't get the pain medicine I needed until that was…
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RCC, scans, and lung nodule
Hey everyone! I'm 35 and had my left kidney removed in July after discovery of 8.5 cm mass on it. My lymphnodes in my neck were swollen and I had a pain in my left side. Thought I had strep or had been bitten by a tick. Pathology came back stage 3 cystic clear cell renal cell carcinoma grade 1. It had grown into my…
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Report today!
2.8cm Clear Cell RCC. Lost the kidney because the tumor was in the collecting ducts. pT1a N0 M0 Stage 1 grade 2. Was confined to kidney and they got it all. NOW it is all starting to settle :-(
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Looking for guidance
In May 2017, I had a 1.2 cm right kidney tumor removed. The docs had been watching it for 1.5 years with no change. Finally, the anxiety was too much and I had it removed. The path report showed it as a 1.2 cm clear cell Furhman grade 1, stage 1 pt1a. It was cut out using hand sssisted laposcopic procedure. my urologist…
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Sending NED on its way to visit many others!
Just wanted to pass on the good news! Had my 3 year scan today and was NED. Very happy and sending him on his way to visit many others! I have been more off than on here lately for many personal reasons but this network is VERY dear to me and so are many of you. You helped me go thru very scary moments, you made me laugh…
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Hi
Just checking back in. It's been a while since I've been here. Just had my yearly scans and everything looks great. 3 years now. So, yay me. I still have a larger, funkyish cyst that we are watching in my remaining kidney, but that has not changed, so yay again. Only new development is some funky labs. Not awful, but…
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***Update*** New here.
Waiting impatiently. Went to Doctor May 11th with UTI. Dr found blood in urine culture. Not uncommon. Antibiotics for 2 weeks. Went back for 2 week check. Still blood. Scheduled ultrasound 6/1. Found some unremarkable issues, but Doctor wanted me to see a Urologist. He thought it was just a bad infection. Put me on…
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PTH labs and blood pressure
Hi Everyone, I have an appointment with my nephrologist Thursday. Blood pressure has been rising in the past few months – she had been watching it since surgery 08/27/2016 (open partial nephrectomy on my solitary kidney) and it was doing all right but now is hitting 150s and 160s over 90s and 100s at times– yet other days…
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First scan
Well I just had my first scan since surgery. Hoping that they find nothing new. Waiting is hard!
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open partial nephrectomy bloat?
I have read quite a few posts and some horor stories and all that but to be honest I am tired, and finally decided to just post my issue and see what help I can get. I had open partial nephrectomy removed part on the right side. after reading I feel lucky to only have a 9 inch incision site. This was done back on Jan 8th…
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hand assisted radical laproscopic nephrectomy
Hello Im scheduled for surgery tomorrow. my kidney mass is 4.7 cm and im scheduled for a hand assisted laproscopic nephrectomy. i just wanted to know if anybody was torn between this approach and a robotic partial. Ive seen two surgeons and they have slightly different opinions. According to my ct scan my mass is centrally…
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Presentation, my dad cancer is back... again
Hi, Let this message serve as a presentation and to apologize if my english is not so good. My father was diagnosed with a RCC back in 2012. It seemed to be confined to one kidney and so it was removed. There was one still functioning well. This year, almost 5 later, two new small spots were detected on the other kidney.…
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The good and the bad of CT's
Well....if there is anything good that comes out of Ct scans, I guess I have to say they do find interesting diagnoses. After the first biggie surgery in 2006, they did find recurrences in nodes in both 2007 and 2008, and both were positive for mets of RCC. They caught the enlarging thyroid in about 2013 and the biopsy was…