-
Lab and scan is done
Now I wait for the results tomorrow. They said my gfr was 89. They said that was pretty good. I just agreed as I’m still new to all of this. Praying for my buddy NED to visit me tomorrow.
-
Don't get kidney stone
So Oct 2017, had little lower back pain, and felt dizzy when picking something up. Went to doctor, after CT scan, they said I had kidney stone. Couple days of using the screen to catch it, my urologist said it was to large to pass. He order surgery to remove it, after looking twice in my kidney, he could not find it, he…
-
Diet and Cancer
If you are interested in how a ketogenic diet can help fight cancer, then search youtube for 'Adrienne Scheck'. The video I just watched is 'The Ketogenic Diet for Glioma'. It really is very interesting. Steve.
-
Surgery scheduled
Hi all, Well I saw the Dr. on friday, and the first date he could schedule for the surgery is March 12th. I do not like to have to put it off so long, so I plan on calling his schedular every friday to see if there is an opening.... The mass is in the lower pole of the left kidney, he did not give me an exact measurement I…
-
Missing y’all
I’ve been remiss in making time to come here regularly. The promotion I got while recovering has kept me super busy. We are nearing the end of a big Win 10 upgrade project so soon my world will slow a little and I can get back to normal things. I think of all you wonderful people often and pray for you Daily. I hope…
-
Thank you
I just want to say thank you to everyone on this forum. I have battled anxiety and fear every since my diagnosis. I log in everyday just to catch up and find myself relating to so many of your posts. I am overwhelmed by the unconditional support and love you give to one another and now to me...even though we have never…
-
driving after rsadical nephrectomy
i am 4 weeks removed from my laproscopic radical nephrectomy.....i drive truck regionally for a living.....i am still after 4 weeks having trouble riding in a car without pain.....was curious if there were any other drivers out ther that have gone through this also and could give me some feedback on ther recovery time and…
-
Keloid Scars
all my surgical scars have turned into keloids. I was concerned that 1 would but I don’t anticipate all 5 would go that route. I’m 3 months post op so they may grow a little more based on passed experience with a couple of scars from a bicycle mishap many years ago. Has anyone else developed these type of scars? Ive never…
-
New Here- Please Help
Hi Everyone, I’ve debated posting and figured it would be easier than scouting through all of the posts on here to see if I can relate to any, which is what I normally do. My dad is the person who has CCRCC. It was discovered in September, when my 4 year old son jumped on his side while he was laying down. It’s been a bit…
-
Post Op?
I’m having an open patial on my right kidney on the 26th. Once home, how tough will stairs be? How long before I can shower? Just wondering as I’m trying to plan a few things. Did just buy a really comfy recliner.
-
Here we go - surgery scheduled
Monday, February 19th - radical laproscopic neph. Excited and scared ****less at the same time. What should I expect when I wake up from the surgery?
-
Checking In...
Hi dear peeps, I haven't been on in a long while and I am sorry about that. I am just checking in and wanted to say keep on trucking to all of you lovely warriors and survivors. I just got back from a two week trip to India, it was wonderful. I will do my best to be a more regular presence on here. God bless you all! Deanie
-
First Meeting with Medical Oncologist
Had my first meeting with an oncologist today to review my pathology report. He certainly had some insights that I hadn't heard from the Urologist, nor did I absorb while looking at Path report. First, he said my left kidney had 3 tumors: 4cm, 2cm and a cyst with cancerous cells. He said that one kidney was pretty well…
-
High BP and Perimenopause? After partial nephrectomy due to RCC
I’m 42 year old female status post partial nephrectomy Oct 2017. (Boy was that tougher than I thought it would be. Painful recovery! ) I live very close to Mayo Jacksonville so they manage my care. Ive always had good BP, but following surgery now have difficulty controlling It. Everything I’ve read makes This seem to be…
-
Stricture
One month after surgery and now it looks like I have a urethral stricture ,going into the doctor's tomorrow to see what he can do ugh I don't know how much more I can take Hoping he can repair in office be even if so I'm sure we'll have to have a catheter for a few days ugh Anyone else develop a stricture after the…
-
One Person's Cabo Vacation
Hi. First time poster here, and in all likelihood I won't be back regularly. But I did want to share my experience. Back in June of last year I was diagnosed with stage 4 renal cancer with numerous bone mets. After the initial panic, I started to use this board as a research tool. Then treatment started. I had one very…
-
Surgical Biopsy tomorrow
I've been a little lax here lately. Work has been extra stressful, and by the end of the day, I just haven't had the energy to read and respond. And now I'm back in the thick of "adventures in diagnostics." After three inconclusive, minimally invasive attempts to identify my lung nodules, tomorrow I go in to have a couple…
-
Endurance? Or lack there of
So 4 weeks out partial nephrectomy. I’m in no way someone who is in tip top shape. However, I always have been able to just go and go. I wake up I’m good and by mid day I’m running on empty. I shoveled snow yesterday twice; usually a little invigorating. I was ready to go to bed for the rest of the day. Is this how you all…
-
Papillary Renal Cell Carcinoma stage 4 type 2
My sister, aged 31 was diagnosed with PRCC type 2 stage 4 5 weeks ago, the day before she gave birth to her beautiful baby girl. She was told that the tumour in her kidney is about 8cm and the only other involvment are the lymph nodes. She has recently started sutent which we have read is always very effective. I would…
-
Proper Care of Your Caregiver
Warning: This is going to get pretty dark. Don't read beyond this point if you don't want a "downer". Many of you know my history. I visited the doctor after many years of not visiting the doctor and was eventually found to have stage 4 RCC. As my disease has quickly progressed, I've suffered spinal cord compression, hip…
-
Urologist or Oncologist, or both?
Curious at to how many people with low grade RCC only see their urologist. Is it safe? I keep reading that RCC is so tricky and needs to be watched and treated by a specialist. My urology doctor assured me that he "got it all" and declared me NED after surgery in September. I was healing and doing great, feeling better,…
-
Path report on husband’s new tumor and adrenal gland: Miracles do happen.
I posted about the 4 cm ish small bowel tumor they found when my husband went for his 4 year follow up scans for his chromophobe kidney cancer diagnosis. The tumor appeared out of nowhere and was not on his CT scan from 9 months ago. We were told to expect ladenocarcinoma or another cancer, metastatic disease was less…
-
New to The Board
Good Morning All and greetings from Canada!! This is my first post so please forgive me if I break any rules or protocol I came across this page after researching and looking for answers/direction. To sum up my treatment so far.... I have recently been diagnosed with sarcomatoid metastatic renal cell carcinoma with mets in…
-
Pre-Op tomorrow
Newbie here. Diagnosed incidentally first week of November 2017 (3.5cm in size and hilar location). First urologist said laproscopic radical was the way to go. Went for 2nd opinion. They did chest x-ray (clear) and biopsy (papillary renal cell carcinoma, type 1) and suggested partial open. Going with partial open. Meeting…
-
Pre-Op visit today
Cleared for Right Robotic partial surgery next Wednesday. NO colon cleanse! Yeah! No special diet, BUT strongly recommended that I do a soft diet Monday and Tuesday. Current medicine directive given. General anesthesia with a nerve block before recovery! SO excited about that too.
-
First scan after surgery
I was due for my first post op scan February 5th, but I got it moved up to January 22nd. Just yesterday I got a sudden uncomfortable feeling under my rib cage by my left kidney the only one left. I called the Dr today. It doesn’t hurt just uncomfortable feeling. My anxiety and stress are already through the roof. Every…
-
small 3mm Nodule in right lung
Hi Everyone, I have a question. I was stage 1a, 1.2 com, grade 2 rcc and i was told that my chances of recurrence were less than 5%. Yesterday I had my annual scans and I recieved the CT portion back thus far. All blood looks good. CT scan reveals two small 3mm solid nodules in right lung, lower and upper part. I have read…
-
Kidney vs Colon surgery
Has anyone here had both and if so which was the most difficult to recover from?
-
Craving??
This is getting ridiculous now lol!! I have had the strongest craving for chocolate for around 4 days now. I have eaten it yet the craving will not go away. It is not a typical sugar craving like I want anything (cookies, icecream). It is specifically chocolate. I have craved veggies too and eat those every day. Just…
-
Urologist appointment
waiting in lobby for my first appointment with my urologist since they found this mass in the upper pole of my left kidney. I can say that I am very anxious and dont know what to expect