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Recovery from surgery
I had my left kidney and 11th rib removed 5 weeks ago due to a cancerous tumor encasing most of my kidney. I am still experiening pain and feel as though there is a huge clamp on my left side. Not all of the stitches have dissolved yet and I am having trouble sleeping on anything other than my back. How long before I can…
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5 weeks post op from partial nephrectomy
And having some issues one is I feel dizzy on occasion and I have abdominal pains now and then they are going to do another scan next week of my pelvis and abdomen to make sure nothing's going on. Also had to have a stricture taken care of an in-office procedure now I have to self cath two times a day to keep it clear for…
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Small Chromophobe Renal Cell Carcinoma
Hello, This is my first time posting to this group. I recently had surgery at MD Anderson after a biopsy revealed that I had Chromophobe Renal Cell Carcinoma. I have read as much as I can about this type of cancer but still have questions. I am wondering if others have had genetic testing for Birt-Hogg-Dube Syndrome. Are…
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Deciphering CT scan report
I see the doc tomorrow but my radiology patient portal gives me access to my reports and it became available today. The lungs are stable, yay. It noted stabke on 3 nodules. Before there were 4 and a granuloma. The previous scan wasn't with contrast. The abdominal is confusing. KIDNEYS AND URINARY TRACT: STATUS POST…
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Lung inflammation
Hi, just had a follow up scan on a lung nodule from which they have told me they don’t think it’s a met from rcc and think it’s inflammation! Obviously I’m relieved and am being forwarded to a lung specialist for his thoughts but just wondered if any one knows why inflammation on the lungs occur ?
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Tomorrow is almost here!
Well, I finally have my surgery tomorrow morning. Open partial on my right kidney. Praying they get it all and that is the end of it inside me. I really appreciate all of the information and support from this group. You guys are all awesome. I'll check back in once I'm able to get online and type. Big step into a new…
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Surgery Complete
Hey y'all!! I'm on my way to recovery!! I had my robotic assisted partial nephrectomy on my right kidney on Tuesday. Everything went well and my doctor's were very pleased with the surgery. He said the tumor was actually a little smaller than what was thought according to my scans so that was great. He used a small grape…
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Looking for RCC Stage IV survivors past 5 years
I’m new on here. My husband was diagnosed with Stage IV RCC July 2016. Tumor 11 cm, metastasis up IVC into heart and in lung. Total left nephrectomy, open heart surgery with bypass, and removal of part of the lung. No treatment while waiting to see if there was recurrence, which showed in April 2017 in both lungs and…
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Was just diagnosed
with kidney cancer , 5cm growth on right kidney, meeting with specialist tomorrow for a plan of attack. My general doctor does not think it has spread. Not going to lie. I am scared as heck about this. I am hoping that he only removes bad part and keeps the kidney, as I have read that if you only have one, it could be…
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Surgery tomorrow
Right Robotic Partial. Ready for it to be over. Any words of wisdom?
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Day 1
Just met with the urologist today and he confirmed that he's the mass is probably cancer. Looks like surgery early next week. Glad I found this group I'm sure I'll find a lot of information and real life experiences. So I'm glad to meet all of you but wish it were under better circumstances.
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Emotional
I’ve been through two partial nephrectomys since September and my scans have come back clean. I’m 7 weeks post op from My last surgery but I’m feeling so emotional. I can’t seem to talk about my experience without breaking down and shedding a few tears. Is this normal? Have any of you felt this way? I think maybe I should…
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Just Being Honest
Hi all. I joined the group no one wants to be a part of last fall lol. I have appreciated every comment, positive thought and conversation. A lot of the surgery and recovery info proved to be helpful and true! For all of that, I am thankful. I have to say something I have noticed though. Nobody really talks about mental…
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Lab and scan is done
Now I wait for the results tomorrow. They said my gfr was 89. They said that was pretty good. I just agreed as I’m still new to all of this. Praying for my buddy NED to visit me tomorrow.
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Don't get kidney stone
So Oct 2017, had little lower back pain, and felt dizzy when picking something up. Went to doctor, after CT scan, they said I had kidney stone. Couple days of using the screen to catch it, my urologist said it was to large to pass. He order surgery to remove it, after looking twice in my kidney, he could not find it, he…
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Diet and Cancer
If you are interested in how a ketogenic diet can help fight cancer, then search youtube for 'Adrienne Scheck'. The video I just watched is 'The Ketogenic Diet for Glioma'. It really is very interesting. Steve.
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Surgery scheduled
Hi all, Well I saw the Dr. on friday, and the first date he could schedule for the surgery is March 12th. I do not like to have to put it off so long, so I plan on calling his schedular every friday to see if there is an opening.... The mass is in the lower pole of the left kidney, he did not give me an exact measurement I…
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Missing y’all
I’ve been remiss in making time to come here regularly. The promotion I got while recovering has kept me super busy. We are nearing the end of a big Win 10 upgrade project so soon my world will slow a little and I can get back to normal things. I think of all you wonderful people often and pray for you Daily. I hope…
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Thank you
I just want to say thank you to everyone on this forum. I have battled anxiety and fear every since my diagnosis. I log in everyday just to catch up and find myself relating to so many of your posts. I am overwhelmed by the unconditional support and love you give to one another and now to me...even though we have never…
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driving after rsadical nephrectomy
i am 4 weeks removed from my laproscopic radical nephrectomy.....i drive truck regionally for a living.....i am still after 4 weeks having trouble riding in a car without pain.....was curious if there were any other drivers out ther that have gone through this also and could give me some feedback on ther recovery time and…
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Keloid Scars
all my surgical scars have turned into keloids. I was concerned that 1 would but I don’t anticipate all 5 would go that route. I’m 3 months post op so they may grow a little more based on passed experience with a couple of scars from a bicycle mishap many years ago. Has anyone else developed these type of scars? Ive never…
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New Here- Please Help
Hi Everyone, I’ve debated posting and figured it would be easier than scouting through all of the posts on here to see if I can relate to any, which is what I normally do. My dad is the person who has CCRCC. It was discovered in September, when my 4 year old son jumped on his side while he was laying down. It’s been a bit…
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Post Op?
I’m having an open patial on my right kidney on the 26th. Once home, how tough will stairs be? How long before I can shower? Just wondering as I’m trying to plan a few things. Did just buy a really comfy recliner.
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Here we go - surgery scheduled
Monday, February 19th - radical laproscopic neph. Excited and scared ****less at the same time. What should I expect when I wake up from the surgery?
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Checking In...
Hi dear peeps, I haven't been on in a long while and I am sorry about that. I am just checking in and wanted to say keep on trucking to all of you lovely warriors and survivors. I just got back from a two week trip to India, it was wonderful. I will do my best to be a more regular presence on here. God bless you all! Deanie
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First Meeting with Medical Oncologist
Had my first meeting with an oncologist today to review my pathology report. He certainly had some insights that I hadn't heard from the Urologist, nor did I absorb while looking at Path report. First, he said my left kidney had 3 tumors: 4cm, 2cm and a cyst with cancerous cells. He said that one kidney was pretty well…
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High BP and Perimenopause? After partial nephrectomy due to RCC
I’m 42 year old female status post partial nephrectomy Oct 2017. (Boy was that tougher than I thought it would be. Painful recovery! ) I live very close to Mayo Jacksonville so they manage my care. Ive always had good BP, but following surgery now have difficulty controlling It. Everything I’ve read makes This seem to be…
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Stricture
One month after surgery and now it looks like I have a urethral stricture ,going into the doctor's tomorrow to see what he can do ugh I don't know how much more I can take Hoping he can repair in office be even if so I'm sure we'll have to have a catheter for a few days ugh Anyone else develop a stricture after the…
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One Person's Cabo Vacation
Hi. First time poster here, and in all likelihood I won't be back regularly. But I did want to share my experience. Back in June of last year I was diagnosed with stage 4 renal cancer with numerous bone mets. After the initial panic, I started to use this board as a research tool. Then treatment started. I had one very…
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Surgical Biopsy tomorrow
I've been a little lax here lately. Work has been extra stressful, and by the end of the day, I just haven't had the energy to read and respond. And now I'm back in the thick of "adventures in diagnostics." After three inconclusive, minimally invasive attempts to identify my lung nodules, tomorrow I go in to have a couple…