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Surgery ==Monday
Well, my sugery will be monday and I have had some ups and downs. Today I felt, physically, great..even I played soccer for 2 hour . The problem starts when I have time to think....What's going to happen next monday ?? My tumor is 5.1 cms and I have ZERO symptons. It was discovery by accident . All my analisys came back…
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Anyone with papillary type 2
Hi is there anyone with papillary type 2 with stage 1 and NED for more than 5 years Thanks
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Weird
Ok so I had my left kidney removed 9 weeks ago but for the last two weeks or so I have had a pain in my ribs/Back on right side. Went to the Dr she said I had a rib out. However the pain is lower now and located on my side at the bottom of my ribcage. When you run your hand firmly across it the feeling is very bumpy under…
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Nerve Pain
I had my surgical wedge biopsy a month ago today, and I still have some risidual nerve pain. Saw surgeon last week and he said it looks normal to him and that this is just part of the process - says some people it goes away faster than others. (It was a lung biopsy, so they went in through my right side, just below the…
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Oh gosh
So Appt at dermotology today resulted in a biopsy to the nose that hurt like a bad word! Sent off for pathology but Dr is pretty confident its Basal Cell. Oh man..... also I actually printed off my pathology report on my kidney tumor and here is what it says pT2B grade 3 Tumor 13.3 cm Confined to kidney No capsular…
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Second surgery complete - pathology back
Next up - robotic partial left nephrectomy on 1/22/18. Had abdominal and pelvis CT last week...NED. Blood work and urine both normal...good stuff right there. The mass on the left kidney is still not enhancing fully with IV contrast. It's measuring just under 2cm and there's a chance that it's not cancer. Doc said if I was…
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Tumeric
I have been hearing a lot about adding tumeric to my diet. Is this safe with one kidney? Also I am considering acupuncture for my anxiety.. anyone have any experience on this?
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Abunai update
I should have thought of having just one thread for myself to keep updated as my journey progressed, but I must have had other things on my mind when I first joined this forum. After being dxed in Sept. of 2016, I had a radical nephrectomy to remove an 11.5 cm tumor on my left kidney. Several other mets were missed and/or…
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Frankinscense ??
Has anyone used frankinscense oil for a supplement to help fight recurrence, or as treatment. I have read it has some benefits. Any thoughts?
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RCC Recurrence Prevention? Is there one?
Hi! Dear All, This is the most important question and most of us looking for it. After spending hours and reading on the internet and others resources. At this moment, the only positive diet is low carbs + plant based diet and which is almost similar ketogenic diet might able to prevent or delay recurrence. But somehow it…
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How to switch off your brain
Hi everyone I had my LPN in September 2017 The operation went well and my pathology was very good as it was a 4.4 cm chromophobe renal carnicoma stage 1b with complete excision and a 5 mm positive margin However the past two months I have suffered continually with headaches, dizziness, swelling in the hands and fingers…
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Gratitude
One and a half years today since partial nephrectomy on my solitary kidney. Took my wife for a meal at a very nice place. How would I have borne all this without my Sweetie? Thank God for all those who have walked alongside us through it all. I hope you have those people in your lives. Take care everyone.
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Large kidney cyst.
Hello everybody, im new here. 32 years old. Im sorry in advanc if my english is bad. So here is my story. About two years ago i had pain on my left banc side under the ribs. Flank pain. I was lifting weights so i thought is related to exercise. I went to my gp and soon i made my first abdominal ultrasound. This showed…
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One Step Back
Well...that didn't work out as I had planned lol! I thought I was ready to go back to work at 7 wks out from surgery. I lasted until last Saturday then had to call it quits. Sure, I still get sore in the area around my largest incision, but it was the mental thing I wasn't prepared for. My job is beyond stressful and I…
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Kidney Lession
Hi, I am very concerned with a CT with this impression: ” small low attenuatiion left kidney lession towards the lower pole with mild enhancement measuring 3cm”. Dr. was not so happy and I need to wait a week for an MRI.
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Stranding
Does anyone know what this means on a CT report. I am only being seen by a urologist and haven't seen an oncologist. My urolgist said he got it all and there was no need for further treatment. I've been having recurring uti symptoms and pain in my left side so it worries me some that they might be missing something. My…
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Worrisome
Since my surgery in Dec I have had several aches and pains which I assume are normal however I have pain in my right thigh and ribs/ back on the right side as well. I'm trying not to be paranoid since I feel I am at that "everything is a thing phase" even though pre surgery bone scans and CT scans were all clear. It just…
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What to expect?
Hi all, With just over a month to go before my surgery, I am wondering what to expect. I do know there will be a bowel prep. I have a pre-op physical this Thursday with my GP. What questions should I ask her? Also, I will have to have pre-op chest x-ray, EKG, and labs drawn prior to surgery. Wondering when would the best…
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World cancer day
Today is 4th February, the world cancer day We all have experienced the effects of cancer as survivors or caregivers. On this special day, I thank you all because of supporting each other. I also Thank caregivers, health care providers, CSN team & researchers working to develop new treatments. We are alive and that's what…
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Pathology report
Surgeon called this afternoon. Gave brief highlight of report. Will get full report at 2 week check next week. T1a, N0, M0. Clear Cell Renal Cell Carcinoma. Margins clear. Very tightly encapsulated. He's happy. Been a very rough recovery however. Thankfully NO issues with gas pain and minor issues getting bowels working.…
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Done and Home!
Well, had my surgery on 1/26. Finally got home yesterday after a week. Open partial of right kidney. As for the tumor, they got it. Path report showed 2cm, Stage 1, Grade 1, RCC with clear margins. The 2 hour surgery turned into 3 1/2 though as my ureter was cut, so they had to repair with a stent. I'll get that removed…
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A good report
PET/CT results #10. Opdivo and radiation seem to be working. Thank you Jesus. IMPRESSION: 1. There has been interval improvement of radiated bone metastases in the spine. The remaining small bone metastases and soft tissue metastasis adjacent to the heart are stable. No new metastases are seen. Details are as follows: 2.…
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Pathology Report
I just got back from my first follow-up appointment since surgery. Several people have asked about my pathology report. They gave it to me today as follows. Right renal mass, enucleation: -Renal cell carcinoma, clear cell type, 1.5cm,Fuhrman grade 2 -Tumor is organ-confined. -Margins negative for tumor -Overlying adipose…
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Diet and Recurrence
Search youtube for Dawn Lemanne and you'll find her talk on carbohydrate restriction and cancer. We have discussed this in other threads, but none of us are experts. Anyone who is interested should watch this talk by a real expert. Diabetes is a simple disease and easy to treat but cancer has no easy answers. Anything that…
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I'm home
Hello!!! I got home yesterday evening. Open partial neph has left me with a 12 inch zipper looking scar going across my left side and is highly painful! I'm up walking around regularly and takin a perksort mixed with Tylenol for pain every 4 hours. Surgeon states that the surgery went well and I only lost 10 percent or so…
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Complex kidney cyst
I recently was diagnosed with a complex renal cyst and the doctor told me 90% that it was cancer. Scheduled for ultrasound (found cyst during a belly pain MRI). What to expect as I have been told that a partial nephrectomy will be done soon. Pain out of surgery? Fill me in. I can take it! I am new to this discussion board.…
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New MRI/CAT Scan Results
A few weeks ago during my first visit with my new Oncologist, he told me that they spotted a lesion on my liver and he ordered an MRI of abdomen and lungs and a CAT scan of lungs. MRI had dye and was completed this past Sunday. I have been worried as sick about this and just what else they'll find. He reported to me today…
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Chronic Diahrrea
I am 62 years old, I had a Wilm's tumor removed when I was 2. I had a reaccurance of cancer when I was 12 and had 2 ribs removed. I also had my appentix removed at age 12. I had 2 miscarrages and had a 2 month premature baby at age 26. I started having diahrrea when I was around 40. Over the last 5 years it has become…
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Mild Back Pain and Sensations Following Partial Nephrectomy
I was diagnosed with a 3cm tumor which turned out to be clear cell renal cell carcinoma back in September on my 26th birthday. Crappy birthday let me tell you, but I had a partial nephrectomy about a month later which was robotically assisted. I was going strong six weeks later and recovery was pretty simple. I'm back to…
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Accupuncture?
anyone try this out? I have always had bad anxiety and depression but this cancer diagnosis has sent my nerves into over drive. I am on medication to help control the panic attacks but eventually I want to get off all the meds and go back to living my normal life. So I am giving accupuncture a try. I love it so far. It’s…