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Endurance? Or lack there of
So 4 weeks out partial nephrectomy. I’m in no way someone who is in tip top shape. However, I always have been able to just go and go. I wake up I’m good and by mid day I’m running on empty. I shoveled snow yesterday twice; usually a little invigorating. I was ready to go to bed for the rest of the day. Is this how you all…
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Papillary Renal Cell Carcinoma stage 4 type 2
My sister, aged 31 was diagnosed with PRCC type 2 stage 4 5 weeks ago, the day before she gave birth to her beautiful baby girl. She was told that the tumour in her kidney is about 8cm and the only other involvment are the lymph nodes. She has recently started sutent which we have read is always very effective. I would…
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Proper Care of Your Caregiver
Warning: This is going to get pretty dark. Don't read beyond this point if you don't want a "downer". Many of you know my history. I visited the doctor after many years of not visiting the doctor and was eventually found to have stage 4 RCC. As my disease has quickly progressed, I've suffered spinal cord compression, hip…
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Urologist or Oncologist, or both?
Curious at to how many people with low grade RCC only see their urologist. Is it safe? I keep reading that RCC is so tricky and needs to be watched and treated by a specialist. My urology doctor assured me that he "got it all" and declared me NED after surgery in September. I was healing and doing great, feeling better,…
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Path report on husband’s new tumor and adrenal gland: Miracles do happen.
I posted about the 4 cm ish small bowel tumor they found when my husband went for his 4 year follow up scans for his chromophobe kidney cancer diagnosis. The tumor appeared out of nowhere and was not on his CT scan from 9 months ago. We were told to expect ladenocarcinoma or another cancer, metastatic disease was less…
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New to The Board
Good Morning All and greetings from Canada!! This is my first post so please forgive me if I break any rules or protocol I came across this page after researching and looking for answers/direction. To sum up my treatment so far.... I have recently been diagnosed with sarcomatoid metastatic renal cell carcinoma with mets in…
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Pre-Op tomorrow
Newbie here. Diagnosed incidentally first week of November 2017 (3.5cm in size and hilar location). First urologist said laproscopic radical was the way to go. Went for 2nd opinion. They did chest x-ray (clear) and biopsy (papillary renal cell carcinoma, type 1) and suggested partial open. Going with partial open. Meeting…
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Pre-Op visit today
Cleared for Right Robotic partial surgery next Wednesday. NO colon cleanse! Yeah! No special diet, BUT strongly recommended that I do a soft diet Monday and Tuesday. Current medicine directive given. General anesthesia with a nerve block before recovery! SO excited about that too.
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First scan after surgery
I was due for my first post op scan February 5th, but I got it moved up to January 22nd. Just yesterday I got a sudden uncomfortable feeling under my rib cage by my left kidney the only one left. I called the Dr today. It doesn’t hurt just uncomfortable feeling. My anxiety and stress are already through the roof. Every…
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small 3mm Nodule in right lung
Hi Everyone, I have a question. I was stage 1a, 1.2 com, grade 2 rcc and i was told that my chances of recurrence were less than 5%. Yesterday I had my annual scans and I recieved the CT portion back thus far. All blood looks good. CT scan reveals two small 3mm solid nodules in right lung, lower and upper part. I have read…
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Kidney vs Colon surgery
Has anyone here had both and if so which was the most difficult to recover from?
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Craving??
This is getting ridiculous now lol!! I have had the strongest craving for chocolate for around 4 days now. I have eaten it yet the craving will not go away. It is not a typical sugar craving like I want anything (cookies, icecream). It is specifically chocolate. I have craved veggies too and eat those every day. Just…
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Urologist appointment
waiting in lobby for my first appointment with my urologist since they found this mass in the upper pole of my left kidney. I can say that I am very anxious and dont know what to expect
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low grade pain in loin area
Hi all, I don't know if I am having a psychosomatic pain, but for the last 2 days I have been having a low grade pain/discomfort in my left loin area. Is my tumor potentially growing? On the scan it was bulging out of the lower portion of the kidney. I am worried that it may envelope the fascia or grow through it. Is this…
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To all re: profiles
I would like to ask everyone,including me, to update profiles. There is no faster way to offering bad advice if we can't access some member history. It gets very tiresome especially with the one or two hit people who ask for a personal education in surgery and drug therapy. We get a few line introduction which no one can…
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Lung CT Scan, Chest X-Ray and Bone Scan
I had all three scans done today - and all came back as normal!!!! I go to the doctor next week for the date of my surgery... ready to be at the end of this road!
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Checking In
Wishing everyone a Happy New Years. Just wanted to say hello. I haven't been visiting often these days. I got very bogged down with family issues. Some good. Some not so good. My dad passed in September. My mom was in and out of the hospital for a few weeks and I ended up having to spend several weeks in Tulsa, Oklahoma to…
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Solid 1.8cm
Just found out I have a 1.8 cm tumor in the upper lobe of my right kidney. This was found after complaint of lower ab cramping on left side. Still dont know why cramping. local urologists says with out biopsy 80% sure cancer. But so small just leave it alone and watch it. I am not so sure about this and feel like if they…
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About Sslee723
I have been wondering about Sslee because she was very sick and stopped posting here. I guessed her name and used google to find some gofundme pages and a funeral home page. Search for 'Stephanie Lee West Babylon'. She died on October 17th. Steve.
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Stage IV is only over when the fat lady sings!
And I hope she can't find the music.... Since September, I've had 3 sets of labs, 3 CT's, a brain MRI, almost a biopsy(cancelled once I was fed into the CT machine and she saw the spot), a DXA scan, a mammogram, 2 appts. with my Internist, 3 appts. with the Oncologist or Nurse Pract.; and there's still more to go. The…
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Being paranoid
So I'm sure I am just being hypersensitive... I hope. I am having a dull deep pain in my right leg (thigh) and wonder if I should be concerned. I had a bone scan the day before my surgery (12/5/17) and it came back clear. Am I being paranoid? Could something spring up that fast?
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Ned ;)
Got report for my ct and chest x-ray . The waiting was needless to say "awful"! Happy to say there was no changes from my last scan and I'm ned! Wishing everyone luck with their upcoming scans. Kim
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Please help to understand report
Hello, I am 40 year old male.I have long history kidney stone and incidentally 1.5cmX1.6X1.5 tumour was found during sonography and CT scan.I had partial nephroctomy and was diagnosed with Papiliary renal cell carcinoma type 2 and grade 3. The report is as below. specimen 1.Lower margin of renal lesion -Received 2brown…
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anyone out there with papillary cell?
hello everyone! just wondering if anyone out there has papillary cell renal carcinoma? pretty rare from what we've been told. just wanting to reach out and see how treatment, scans, etc have been going. look forward to hearing from you.
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Question
II's been 3-1/2 weeks after my partial nephrectomy, my urine stream is narrow and it takes about 10 plus munutes to empty my bladder from full, becuaese of it. Dr thnks it's becuase of possible scar tissue fromt the cathater removal and it should sort itself out. I hope so (and I hav e to sit to go becuase the stream does…
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Vitamin B-12
What does the Board think about B-12 as a tumor stimulant? Has anyone heard or read anything to support this theory? Thanks.
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I found this short film very moving and true.
It's called "Backstory" directed by Joschka Laukeninks can be watched on youtube
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Packing wound that won’t heal
3 weeks out from partial nephrectomy. Incisions 4 healing on right side, 1 healing right side middle. The one on left side is a hole shy of inch long and 3/4 inch spread apart. Was infected so just finished Keflex. Now they have me packing it and covering with bandaid. Adhesive allergy is causing a bit of a challenge.…
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secondary hypertention and rcc
I have chronic stage 3 rcc chromophobe with secondary hypertention that my Dr is trying hard to get under control. Very fatigued. Anyone else?
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Stage 4 Bone Mets ( Mom )
Hi all, My Mom was just diagnosed Dec 4th , Stage 4 mets to Spine & lower left rib. She just had spinal surgery to remove the L5 replaced with rods & cement . She’s in rehab and just started having severe pain on the rib / upper back. We are waiting for another MRI. She was scheduled for Cyberknife radiation 1.10, but they…