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Urologist appointment
waiting in lobby for my first appointment with my urologist since they found this mass in the upper pole of my left kidney. I can say that I am very anxious and dont know what to expect
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low grade pain in loin area
Hi all, I don't know if I am having a psychosomatic pain, but for the last 2 days I have been having a low grade pain/discomfort in my left loin area. Is my tumor potentially growing? On the scan it was bulging out of the lower portion of the kidney. I am worried that it may envelope the fascia or grow through it. Is this…
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To all re: profiles
I would like to ask everyone,including me, to update profiles. There is no faster way to offering bad advice if we can't access some member history. It gets very tiresome especially with the one or two hit people who ask for a personal education in surgery and drug therapy. We get a few line introduction which no one can…
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Lung CT Scan, Chest X-Ray and Bone Scan
I had all three scans done today - and all came back as normal!!!! I go to the doctor next week for the date of my surgery... ready to be at the end of this road!
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Checking In
Wishing everyone a Happy New Years. Just wanted to say hello. I haven't been visiting often these days. I got very bogged down with family issues. Some good. Some not so good. My dad passed in September. My mom was in and out of the hospital for a few weeks and I ended up having to spend several weeks in Tulsa, Oklahoma to…
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Solid 1.8cm
Just found out I have a 1.8 cm tumor in the upper lobe of my right kidney. This was found after complaint of lower ab cramping on left side. Still dont know why cramping. local urologists says with out biopsy 80% sure cancer. But so small just leave it alone and watch it. I am not so sure about this and feel like if they…
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About Sslee723
I have been wondering about Sslee because she was very sick and stopped posting here. I guessed her name and used google to find some gofundme pages and a funeral home page. Search for 'Stephanie Lee West Babylon'. She died on October 17th. Steve.
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Stage IV is only over when the fat lady sings!
And I hope she can't find the music.... Since September, I've had 3 sets of labs, 3 CT's, a brain MRI, almost a biopsy(cancelled once I was fed into the CT machine and she saw the spot), a DXA scan, a mammogram, 2 appts. with my Internist, 3 appts. with the Oncologist or Nurse Pract.; and there's still more to go. The…
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Being paranoid
So I'm sure I am just being hypersensitive... I hope. I am having a dull deep pain in my right leg (thigh) and wonder if I should be concerned. I had a bone scan the day before my surgery (12/5/17) and it came back clear. Am I being paranoid? Could something spring up that fast?
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Ned ;)
Got report for my ct and chest x-ray . The waiting was needless to say "awful"! Happy to say there was no changes from my last scan and I'm ned! Wishing everyone luck with their upcoming scans. Kim
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Please help to understand report
Hello, I am 40 year old male.I have long history kidney stone and incidentally 1.5cmX1.6X1.5 tumour was found during sonography and CT scan.I had partial nephroctomy and was diagnosed with Papiliary renal cell carcinoma type 2 and grade 3. The report is as below. specimen 1.Lower margin of renal lesion -Received 2brown…
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anyone out there with papillary cell?
hello everyone! just wondering if anyone out there has papillary cell renal carcinoma? pretty rare from what we've been told. just wanting to reach out and see how treatment, scans, etc have been going. look forward to hearing from you.
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Question
II's been 3-1/2 weeks after my partial nephrectomy, my urine stream is narrow and it takes about 10 plus munutes to empty my bladder from full, becuaese of it. Dr thnks it's becuase of possible scar tissue fromt the cathater removal and it should sort itself out. I hope so (and I hav e to sit to go becuase the stream does…
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Vitamin B-12
What does the Board think about B-12 as a tumor stimulant? Has anyone heard or read anything to support this theory? Thanks.
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I found this short film very moving and true.
It's called "Backstory" directed by Joschka Laukeninks can be watched on youtube
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Packing wound that won’t heal
3 weeks out from partial nephrectomy. Incisions 4 healing on right side, 1 healing right side middle. The one on left side is a hole shy of inch long and 3/4 inch spread apart. Was infected so just finished Keflex. Now they have me packing it and covering with bandaid. Adhesive allergy is causing a bit of a challenge.…
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secondary hypertention and rcc
I have chronic stage 3 rcc chromophobe with secondary hypertention that my Dr is trying hard to get under control. Very fatigued. Anyone else?
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Stage 4 Bone Mets ( Mom )
Hi all, My Mom was just diagnosed Dec 4th , Stage 4 mets to Spine & lower left rib. She just had spinal surgery to remove the L5 replaced with rods & cement . She’s in rehab and just started having severe pain on the rib / upper back. We are waiting for another MRI. She was scheduled for Cyberknife radiation 1.10, but they…
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New member
Hello everyone... I like everyone here was diagonsed with Kidney cancer on Nov 29th 2017. On Dec 5th I had a radical nephrectomy to remove a 13cm tumor. Pathology returned as a T2bNXM0 grade 3 clear cell carcinoma. Although my doctor is convinced he removed everything and I am cancer free my anxiety unfortunately is…
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Timing of Scheduling Scans - Opinions please.
My Dr. diagnosed me on 9/22/17. My surgery was 10/12/17. My first follow-up visit was 11/22/17. My next visit with him is 3/14/18. He gave me scripts for CT of Abdomen & Pelvis with IV contrast and Chest with contrast ( 4 tiny nodes were found In my lungs, 2 on each). My pathology was T1a NX crRCC grade 4. So my question…
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Rookie Question
A quick question about one (of many) things I don't understand: According to the CT scan, my mass is <7cm. The CT scan showed my other organs in the abdomen were "unremarkable" and to the best of my understanding the stuff around the kidney was all good and nothing showed up. I'm assuming (hoping) that means nothing has…
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Thank you
I’m one of those who read this forum daily but don’t post much. So I just want to say thank you to all of you that do post! Jan4you, when you send loving hugs, we all get them! Steve.Adam you always have some practical advice we all need to hear. Foxhd thank you for your insight and encouraging us to post. Donna.lee we all…
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Today's Urologist Visit
First Urologist visit went fine - I did find out he will remove it laproscopically (YAY!). It is a litte bit of hurry up and wait (and worry) before surgery, though. Going in next Tuesday for chest x-rays, lung CT Scan and bone scan. Follow up visit with the doctor again a week after that to set the surgery date (probably…
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Urologist Appt tomorrow
Just got a call from the urologists' office - they had a cancellation so I'm going in tomorrow. I guess we'll discuss the surgery date. Is it possible to be anxious and relieved at the same time???
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New. Waiting. Worried
I just received ultrasound results that show a 3.3cm mass on my left kidney. I go in for a CT soon (it's trying to be scheduled now). Of course, I'm anxious. I know that my mass (as of now) appears to be one of the smaller ones. Does that mean it's less likely to have spread? Do they look ALL over your organs in a CT scan…
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Happy New Year!
Hope everyone has a good 2018! Prayers for all of us.
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Camp lejuene water
the water at camp lejuene was contaminated and the goverment has said that if you were a service member worker or family member that spent at least 30 days on base they except they will reimburse you for your medical bills. If you are a veteran they will grant you dissability. google search it and you will find out all…
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Wound healing
Hi, I had a partial nephrectomy 2 weeks ago just wondering how long before the wounds heal and for the scabs go away also and many of you dealt with itchy scabs as they heal up and for those that did how did you deal with the itching? Thank you Sal
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What does define the stage of a kidney tumor?
the size? if it has spread? I am reading in this forum that people with tumors < 4 cms in stages 3 or 4 i went to my doctor , he already sent me with the urologist, this morning he told me we have to wait to see the urologist to define the stage and therefore the treatment my tumor, according the Ct scan is 5.1 cm and no…
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just diagnosed
Hi, I am new to this forum. I was just diagnosed with a "renal mass" I see the Urologist on the 5th of January. What words of wisdom do you have for me. Thank you.