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New member
Hello everyone... I like everyone here was diagonsed with Kidney cancer on Nov 29th 2017. On Dec 5th I had a radical nephrectomy to remove a 13cm tumor. Pathology returned as a T2bNXM0 grade 3 clear cell carcinoma. Although my doctor is convinced he removed everything and I am cancer free my anxiety unfortunately is…
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Timing of Scheduling Scans - Opinions please.
My Dr. diagnosed me on 9/22/17. My surgery was 10/12/17. My first follow-up visit was 11/22/17. My next visit with him is 3/14/18. He gave me scripts for CT of Abdomen & Pelvis with IV contrast and Chest with contrast ( 4 tiny nodes were found In my lungs, 2 on each). My pathology was T1a NX crRCC grade 4. So my question…
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Rookie Question
A quick question about one (of many) things I don't understand: According to the CT scan, my mass is <7cm. The CT scan showed my other organs in the abdomen were "unremarkable" and to the best of my understanding the stuff around the kidney was all good and nothing showed up. I'm assuming (hoping) that means nothing has…
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Thank you
I’m one of those who read this forum daily but don’t post much. So I just want to say thank you to all of you that do post! Jan4you, when you send loving hugs, we all get them! Steve.Adam you always have some practical advice we all need to hear. Foxhd thank you for your insight and encouraging us to post. Donna.lee we all…
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Today's Urologist Visit
First Urologist visit went fine - I did find out he will remove it laproscopically (YAY!). It is a litte bit of hurry up and wait (and worry) before surgery, though. Going in next Tuesday for chest x-rays, lung CT Scan and bone scan. Follow up visit with the doctor again a week after that to set the surgery date (probably…
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Urologist Appt tomorrow
Just got a call from the urologists' office - they had a cancellation so I'm going in tomorrow. I guess we'll discuss the surgery date. Is it possible to be anxious and relieved at the same time???
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New. Waiting. Worried
I just received ultrasound results that show a 3.3cm mass on my left kidney. I go in for a CT soon (it's trying to be scheduled now). Of course, I'm anxious. I know that my mass (as of now) appears to be one of the smaller ones. Does that mean it's less likely to have spread? Do they look ALL over your organs in a CT scan…
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Happy New Year!
Hope everyone has a good 2018! Prayers for all of us.
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Camp lejuene water
the water at camp lejuene was contaminated and the goverment has said that if you were a service member worker or family member that spent at least 30 days on base they except they will reimburse you for your medical bills. If you are a veteran they will grant you dissability. google search it and you will find out all…
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Wound healing
Hi, I had a partial nephrectomy 2 weeks ago just wondering how long before the wounds heal and for the scabs go away also and many of you dealt with itchy scabs as they heal up and for those that did how did you deal with the itching? Thank you Sal
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What does define the stage of a kidney tumor?
the size? if it has spread? I am reading in this forum that people with tumors < 4 cms in stages 3 or 4 i went to my doctor , he already sent me with the urologist, this morning he told me we have to wait to see the urologist to define the stage and therefore the treatment my tumor, according the Ct scan is 5.1 cm and no…
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just diagnosed
Hi, I am new to this forum. I was just diagnosed with a "renal mass" I see the Urologist on the 5th of January. What words of wisdom do you have for me. Thank you.
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So upset
So looking for people to give me more positive stories ! My kidney cancer was T3a NO MO and I had a radical nephrectomy, just had a chest X-ray on a 4mm lung nodule to check for growth ! I had a private message yesterday from a lady saying basically with your pathology report you’ll be lucky if you get 2 years remission !…
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Future Follow Ups
Hi all, A while ago I was comparing the follow up scans you North Americans get to mine here in south east Queensland, Australia. I thought they were going to say good bye and leave any follow up scans to my GP (PCP). But, I was wrong. The urology dept. of my closest hospital (where my nephrectomy was done) will monitor me…
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CT scan ==> nausea / ill feeling / thirsty all the time
I am not sure if is related but after the CT scan/ with contrast (I drank the contrast+IV) I have been nauseas and with some tireness sensation during the last 2 days (CT scan was Jan 5) also my lips are dry all the time. Is this "normal"
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CT Scan Results and Questions
I received my CT scan results today - and I'm in an odd situation where I got them before I spoke with my doctor, so it's me and Dr. Google figuring things out right now. Overall, I don't THINK it looks that bad. The tumor is a little bigger than the ultrasound showed (4.8 cm vs 3.3 cm), but all of the internal organ stuff…
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Ct scan with Contrast
Well. Finally the day arrived of my CT scan. I am here in lobby drinking the contrast . A lot of things are pssing through my head but Im trying to stay possitive . I guess soon I will find out what I against to...
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Things have taken a turn for the worse.
In March 2014 I met with Doctor Hans Hammers at John Hopkins University Hospital to discuss treatment options. Doctor Hammers said something to me that I have never forgotten - “That once I stopped treatment, I would be taking the brakes off your cancer”. My March 15th scans revealed a liver lesion in the right posterior…
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Two weeks after surgery
And still having issues when I urinate the stream is narrow and there is pain every once in awhile. I hope it did not damage anything when they took the catheter out going to see the specialist on the 8th for my first follow-up, hopefully this is not a permanent thing and one thing is for certain I sure don't want any…
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Pathology Results Finally
T3aM0N0 spread to renal sinus, Grade 2, Clear Cell, negative margin. Im really bummed. Was hoping for T2b or of course benign. I have read alot today about T3a and it doesn’t seem to be to positive. Not a whole lot on these forums about T3a either. My dad has stage 4 pancreatic cancer and he has beat the odds by surviving…
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Monitoring lung nodule
at the moment I’m being monitored for a lung nodule ! Can anyone tell me what treatment is used if this turns out to be a met from my renal cancer ! thanks in advance
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Is this our Brenda?
is this danbren2? http://www.legacy.com/obituaries/dundalkeagle/obituary.aspx?n=brenda-sue-curlee&pid=1
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Crazy ride.
I'm a 55 yo male. January 2016 underwent a CT scan, they found a mass had completely engulfed my left kidney. Further scans revealed a large mass laying against my trachea and 2 other directly below my lungs. Had my left kidney removed along with lymph nodes nearby. Went to MD Anderson for treatment, they recommended a…
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nivolumab
Hi Everybody, I give you an update. I have being a trial of nivolumab for 2 years which finished end of november 2017. At the start of the trial I had multible lung mets, I had one which was over 2cm which was very close to the bronchical tube and one in the neck. Had PET scan mid December results were lungs all clear. I…
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Post nephrectomy therapy
I remember when I went to my last visit with the oncologist. She mention something about how it was just appoved for patients that had nephrectomy to have some kind of immuntherapy after removal surgery. She wasnt really in agreement and we didnt discuss it any further. But she did mention it. Now i just read something…
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Pathology
So I had my open partial 11/1 and have been recovering like a rockstar for the most part minus a few days here and there. I had my follow up 12/11 and the surgeon went over the pathology report ...my stage 1b changed to stage 3a, Grade 3. I will meet with an oncologist Wednesday, 12/20 to discuss my options but I was…
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Cyberknife vs Regular radiation
My Mom was originally scheduled for Cyberknife on the spine for 1/10 . Last Wed she had severe rib pain , scan showed a fracture & progression since original MRI 3 weeks ago. Her neurosurgeon who removed the L5 tumor suggested radiation start ASAP .We met with radiation last night and he now wants to change her to regular…
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I haven’t been around much...
but I hope each of you had a fantastic holiday season and new year! I am forever thankful for this board and each of you!
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Diet with one Kidney
Has anyone found diet suggestions and "no no's" for people with one remaining kidney? The only obvious things I'v heard are to stay away from too much sodium and protein(but what is too much here?). Thanks for any help. Frank
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Anxious for Pathology Report tomorrow
Had my surgery on 12/21 removing entire left kidney. Doc said the surgery went well and I guess felf like he got it all. No reason yet to expect more elsewhere after surgery and previous CAT scans. Yet I'm anxious to get the pathology report and I guess learn the grade. He said I'm clearly stage 1 and for that of course…