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Kidney Cancer

over the counter painkillers
I have recently been diagnosed with renal cell carcinoma, luckily only 2Cm. Will be getting it removed in April. In January, I had major shoulder surgery and am now starting PT on that. After reading, I asked my GP if I should stop Acetaminophen (which I'd been taking about 3000 mg for a long time since an accident in…
Uncle NED on vacation?
So its gonna be kinda a long post so here it goes... I had my first set of post op scans on Friday coupled with my yearly mammogram and the results are in.......... My mammogram showed a cyst that we are just going to monitor and do another ultrasound in 6 months. My chest xrays and bloodwork are good. My CT scans on my…
Did anyone experience pain before diagnosis?
Hi, I'm wondering if anyone experienced pain before being diagnosed with kidney cancer. If so, can you please describe the pain and where you felt it? Thanks so much.
Opinions about Scan Frequency
My husband just had another set of 3 month scans and they were NED. It will be a year tomorrow since he had his kidney removed. It was stage 3 due to one area of microscopic outer fat invasion, no other areas contained cancer. The doctor was ultimately able to achieve a large clear margin with a radical nephrectomy. His…
lenvatinib
I continue to fight my fight with 4th stage kidney cancer plus initially extensive bone mets. I have never had a comprised kidney function, or had an actual kidney tumor. Only extenstive bones mets that bioposied at kidney cancer which ofcourse if unique. I used Sutent, and an immunatherapy over the course of the first…
Checking In
Sorry for the long delay in posting. I know how important these posts are for all that have had the unfortunate need to seek out this website. As an update, I am still working full time and I am at the 6 year stage 4 RCC mile marker. Still on 800mg of Votrient daily. Medicine has kept my lung nodules relatively steady yet…
Question in regards to pathologic stage
Hey there! I found my pathology report and it said rcc stage 1 grade 2 T1a and NX. I was wondering if anyone had some info on "NX".. I know it means lymph nodes cannot be assessed. Is that because my lovely tumor wasn't near a lymph node or they just didn't biopsy it. Or however it works. I was just curious. . Thank you!…
Newbie 1.3cm CCRCC? Wait? Biopsy? Get 3rd opinion?
Dear all, Firstly, thank you all for your candor and gentleness on this forum. Through the past weeks I've been using the forum to help me make decisions, especially on a doc who I had my first consult with two days ago. Need advice and information from you all, as I believe you are experts just as the doctors are in this…
The mountains.
I'm going to the mountains this weekend with my family. I'm very happy. This is my healing place. Clean air, cold streams maybe a bear or two. Maybe a beer or two. Clear my mind on a mindless trail and nothing else will matter.
Scans this morning
Going to get my first set of scans since PLN in November. I pray all is well- NED please! A little nervous, could not sleep well. Starting over on my deductible. How does everyone pay all the Bills that go along with this ride? It always trying to get at me- mentality , emotionally, financially--WOW ALWAYS something ! I am…
New here...in pain and worried.
Good morning everyone, In January of 2017, an incidental 'mass' was found during a CT for abdominal pain. It measured 9mm in the right renal pelvis. It was noted as hypodense, Hounsfield 22, and NOT a simple cyst. The urologist stated that although it was in a 'bad place', he just wanted to follow it unless I started to…
Shook up a little- 4mm nodule
I received my 3 month scan report. Urologist states no evidence of spread but I do have a 4mm nodule on my lung that the report says does not require any follow up? I'M LOST...Base line scan's CT of Pelvis and abdomen and xray of chest..I did not get the xray yet and this soot was found on what little part of my lung was…
Super scanxiety! Pain 6 months after surgery
Havent been back since hubbies diagnosis 6 months ago.. we are 26 imagine the shock ... still hard to believe. complete kidney removal in the end of July 2017.. we had 6 month follow up and hubby tells doc he is still having low back and hip pain which is definitely cause for concern. He was clear on pet scan after…
BP: How high is concerning?
Had four doses of Votrient so far (started Saturday) and was a bit surprised to see my BP jump so quickly. (I've looked at past threads here and seen that it can be an indicator that it's working, but still needs to be closely monitored.) Yesterday, my best reading was 136/94 with HR of 94, with other readings showing…
Pathology
Left renal mass Renal cell carcinoma, conventional clear type Surgical parenchymal margin is negative for carcinoma Tumor size 5 x 4.5 x 4 cm , 45.5 gr margins uninvolved by invasive carcinoma Fuhrman nuclear grade 2; G2 , Nuclei slightly irregular, approximately 15µm , nucleoli conspicous and eosinophilic at 400x…
Just hit five years post-nephrectomy
I have not been active on this board for some time, but the support I received early on in my journey was crucial. I wanted to give an update and to also ask for some guidance. After minimizing the significance of blood in my urine for WAY too long, I was diagnosed with a tumour in my right kidney. I was scheduled for a…
Advice/Confused Age 35
Hey there, I'm beyond grateful the forum is here! Confused is an understatement! Here's an outline of pass events... Aug 28th - burning when I pee - called one of those "MDLive" doctors said I had a UTI so she called meds in for 5 days. Sept 1st - still burns - went to my PCP doctor urine test came back NEG. Sept 6th -…
Swelling
Hey all!!! I am 3 mths out from my radical nephrectomy (laparoscopic). The dr obviously did a lot of digging during the surgery to remove my kidney and check all of my other organs. I know swelling is normal, but I am wondering how long I can expect it to happen. It isn't every day. I mostly notice it after I do sit ups (I…
Blood Found in Urine
Hi All, For the past month or so, I have been having pain in my right side that comes and goes. Thinking it was kidney stones, I went to see my internalist that sent me for an ultrasound, urine analysis and blood work. He stated that they found nothing in the sonogram, liver was good, no stones in kidney or gallbladder, no…
Difference Type vs Grade
anybody??
RCC Warriors
Ok the line up for my week is as follows... ~ Today.. Mentally prepare for the rest of the week. ~ Wednesday... 8 AM surgery to remove skin cancer from my nose and skin graft from my ear to my nose followed by pre scan bloodwork. ~ Thursday... Try not to dwell on what my face looks like. SCANXIETY!!!!!!!!!!!!!!!!!!! ~…
Does it always come back?
The stats say 1 thing but all I ever read is that it came back , no matter the size, grade or stage!! It makes a person wonder if the stats are just to give hope and not based on real life..I'm 14 weeks out from Left open partial and doing pretty good but already sick of waiting for my bad news! Is it that people that are…
Joint replacement
I am a 5 year stage 4 kidney cancer survivor. I have a Knee that needs to be replaced. I cannot walk or stand more than 15-20 minutes could hardley get in or out of car. I am on Sutent(chemo) for 3.5 years my oncologist said that should not be a problem. I have tried a few "Good Doctors at major hospitals in the East"…
Any long-time Stage 3 survivors?
Nodules in the Lung
My main question has anyone here had a resection of the lung and what was the surgery and recovery like? My backstory is that i had an 11-12 CM stage 3C tumor remover in October 2016. I had one year of NED CT scans and life returned to normal. Januarys scan revealed to very small nodules in the left lower lobe. 4mm and…
Bowel Perforation from Sutent or Votrient ANYONE??
Stent removed!
Had an open partial neph on my right kidney on 1/26. During the procedure, my ureter was cut. My surgeon repaired it and put in a stent. It irritated me over the last month, but not horrible. I had it removed today. Wow. That wasn’t fun. How long does the burn last during urination? I burns the same as the stem being…
Well, this has been INTERESTING!
So, I go in this past Monday (2/19) for a radical neph via laproscopy. Two or three hours then done. After about five or six hours, my loved ones started getting a bit concerned. The doctor finally come out an tells them he opened up an artery and could not get to it to clamp it shut - so I started bleeding out profusely.…
Scared to death about CT scan and kidney mass
Hello, I just received a call from my doctor today after having a CT scan of the abdoman, and pelvis (I'm having a lumbar spine CT next week). I have a 1.5 centimeter mass in the right kidney. I've had back and hip pain and mild dizziness for the last year and a half. At night, I have pain that is not relieved by advil or…
Who had robotic partial nephrectomy?
I am finding it hard to receive a recommendation of doctors that did robotic partial nephrectomy. Did any of you undergo this procedure? where and by which doctor? how was it?

Kidney Cancer

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