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NED at 5 1/2 years...
just had my 5 year scans and bloodwork, a few months late. So grateful to report that my oncologist has released me and said I’m cured At 5.5 years. I’m a little uneasy about that given the sneakiness of this disease. Still, I AM very grateful for my NED Report & the support this forum has provided to me the past 6 years.…
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New here, My Mom was just diagnosed
Hi all, My Mom was just diagnosed with metatastic spinal tumors aboit a week ago . She thought it was sciatica which is typical for her or maybe a slipped disc. Unfortunately the MRI showed worse. Tumors on L5 & L3. She’s currently in surgery as I’m I’m typing . They also found a mass on her right kidney . We are all in…
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Fatigue
Did/does anyone diagnosed with rcc have extreme fatigue?? For the past 3 mths (before even being diagnosed) I have been completely exhausted. Not a normal stressed or lazy tired.... I mean an "absolutely cannot stay awake" tired. I am not a coffee person, but I now have caffeine every day to try to help and it doesn't even…
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Can't make it through the night without going to the bathroom
I used to be able to hold it now I'm up one or two times a night passing urine and I don't think I'm drinking any more than I did before hopefully this will clear up with time. Also I've had some stomach cramp issues the last few days don't know if it's because of the stomach bug going around or if it's just part of the…
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Kidney Cancer Newbie
Hi , just had a radical nephrectomy for a 9 cm tumour , T3 NO MO, struggling at the minute as they are monitoring a lung nodule and I’m oanicking it’s rcc! Anyone give me any advice on lung nodules? thanks in advance jo just need a friend right now
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Equilibrium
I have I have also noticed since my partial nephrectomy on 12/20 that once in awhile I get a little bit dizzy maybe with equilibrium issue, like if I lean back it tends to happen is this something that any one else has ever heard of? Thanks again this is a wonderful forum Sal
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Surgery scheduled
My surgery is now set for January 26th. Open partial right. I’m relived to have it on the calendar. Nervous about the surgery but excited to get this thing out of my.
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Swelling
Up until this past week all had been fine. Now I wake up with a swollen face and hands. I have cleaned up my diet very well and try to watch salt intake. Do any of you stay away from restaurants? I only go for sushi or Pho Vietnamese soup. The soup is what did me in lastnight. I feel like my whole body is swollen. What do…
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3 months scans
So I go in for my 3 month scan today, since surgery. I had my whole kidney removed, so the doctor is ordering an IV hydration before and after my CT with contrast. I will have a chest and abdominal CT. Is this typical, and I should ask for this everytime I need scans with contrast. Praying and claiming NED result.
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Sorry boatload of questions!
Any type 2 diabetics here? My sugars have been the worst in my life and I know that is bad for healing. How long will I look and feel 6 months pregnant? Have any of you contemplated the genetic component of your cancer? Is it a fluke/ mutation/ect? In the aftermath I’m now feeling like wow I had cancer, I have to worry…
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Political correctness
is wathching the Holiday Bowl with your grandson in his Green and White (Christmas Color) Uniforrm as part of the MSU band. Icemantoo
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2 cm complex renal cyst- is it cancer?
Is a 2.0 cm complex calcified cyst on the kidney cancer? What happens next? Do I see a urologist or a nephrologist?
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Shoulder Pain
Hi question: it could be that a severe pain on my right shoulder could be related to a mass that I have in my left kidney(4.6cm) metastasis Already? The pain is no al the time , if a doing exercise I don’t feel it at all. help
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Kidney cancer that possibly has spread to bone
Hello everyone. I was here before at the same time last year because my husband was newly diagnosed with RCC. He had surgery in January of 2017 and had the whole kidney removed. He was diagnoased as stage 3 aggressive rcc. His scan in April and August was fine. we just went in for scan number 3 and they found a lesion on…
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rcc
rcc was diagnosed after severe abdominal pain. Went to er Oct, 2007, where a Ct was done and found that appendix were about to rupture. Also findings on the Ct was a tumor in left kidney. After having appendectomy to remove appendix, I had an open partial nephrectomy Nov, 2017. In returning for 6 mo Ct follow up a tumor…
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Another New Member :(
Hello Everyone I was just diagnosed on 11/12 with a 10cm renal mass on my right kidney. Followed up with a Urologist who said that it looks to be contained to the kidney. Had a CT scan of my chest done which thankfully showed negative according to the radiologist. I was then scheduled to have a complete nephrectomy on…
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Taste and appetite
Hi I am 6 days post op and food still doesn't taste right, also appetite not there yet, does this sound familar? Just wondering how long these will last. Thank you Sal
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Merry Christmas!
To all who celebrate. And to those that don't celebrate Christmas, respectfully, I wish you Happy Holidays of your choice. For those that don't celebrate any, please disregard this post. Nevertheless, I wish you all well and please know that I keep all of you in my daily prayers. Donna~
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Diagnosed 8/2017
I’ve been following this board since I was diagnosed 8/2017 with full right nephrectomy. Mass was 4cm, PT1a. Urologist recommendation is 1 year ct scan and chest X-ray. I am concerned about waiting 1 year, just wanted to get advice from all of the experienced “RCCers” !! Thank you!
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Very scared
as many of you, I found a mass in my left kidney (4.6 cm) during a rutine checkup for my liver. Waiting for a CT scan but am I very scared already. No symptons , just occasionally pain in my right shoulder and right shoulder plate . Not sure is this is related help
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Kidney cancer with metastasis to the lung and pelvic bone
My partner was diagnosed with kidney cancer with metastasis to the lung and pelvic bone. We have not yet been consulted with the oncologist so we do not have the stage of the disease as well as the treatments. I would like to know what we should expect and what are your recommendations? Thank you.
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Repost for newbies
I am repoting this from earlier this year. One of the frustrations of those of us who reply to your questions is not knowing enough about your diagnosis to reply apprporriately. Please fill in your CSN Space and detail your diagnosis with your questions. We would like to be able to assure thise of you who have a routine…
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Good Health
Season's greetings to all. Now that our big feast day is over, and I hope you all enjoyed it, here is a very good talk on staying healthy in modern times. Hmm... I can't paste the link, so search youtube for:- Ivor Cummins Ketofest 2017 It is potentially life changing. Steve.
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Successful removal of a 6cm tumor - Partial Nephrectomy
Does anyone have any success stories to share, who had a succesful partial nephrectomy to remove a 6cm tumor? I'm scheduled to have this surgery in Dec...and would like to know the success & recovery time..also any chemo or radiation? Due to the 6cm size there seems to be more of a risk...& chance of the tumor being…
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Catheter removal
Hi, I just had my kidney surgery on Wednesday and they took the catheter out on Friday and I'm having a little bit of pain going but the stream is kind of narrow just hoping that this clears up by itself and hoping there's no blockage or anything anybody else having or have had these issues? And oh boy did it hurt when…
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New Member
Hey all; I was just diagnosed with Kidney Cancer last Friday; however, the CAT scan wasn't conclusive as to whether or not it was Renal Cell or the more dreaded Transitional. My tumor is 5 cm and is protruding (appears to be) into the Ureter. It has been a whirlwind weekend to say the least and my emotions have been all…
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Forgive me if this is a repeat
I have read that many of you had a variable appetite. I’m day 6 post op Partial nephrectomy. No appetite, but I cannot get enough water! I am so thirsty all the time and then Extra bloated from drinking. Did anyone have this? I know kidneys work on fluid balance. Are they freaking out? Sorry if this is repeat, I looked and…
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Can someone explain margins?
I had my partial neph last Thursday - recovery hasn't been too bad, except the dredded constipation - UGH One thing my Dr said was that he was worried about the margins - the pathology report said they were negative, but some thing else is making him concerned they are more in the positive range. I have my followup in 2…
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Concerning Results
So I had bloodwork today and here are the results.. Blood Creatinine High at 130 (norm 50-100) Urine Creatinine Low at 2.0 (norm 2.5-20.0) eGFR Low at 45 Gamma Glutamyl Transferase Low at 8 (norm 12-37) As you may have read I have had horrible nausea for 6 wks since surgery. I read this is a symptom of high creatinine.…
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Surgery tomorrow @ 11
I got moved up from 1 P.M. Nervous as hell about it. Hope all he has to take is just the bad part. He thinks that is what he will be able to do. Sal