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I'm looking for o
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Update on my son-in-law
I've been lurking for quite some time and haven't posted for ages, however I have to share some continuing good news. For those of you who have recently joined the 'club' that nobody wants to join...John has stage 4, grade 4, 60% sarcomatoid cancer. He was dx'ed about 18 months ago. He had a 13cm tumor and a total left…
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Bent over to change a diaper, now in pain.
I am almost 5 weeks post op from my open partial nephrectomy on my right kidney. Yesterday I was changing my 2 year olds diaper on the bed and I got a sharp stabbing pain in where the incision site is. Almost like a punch. Ever since then my whole right abdomen has been in pain, especially on top of the incision site. My…
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Genetic Testing
Genetic's nurse called today and said I did not test postive for any of the 24 known cells for cancer. I was worried about the VHL thing!!! Thank the lord, I feel this is great news!
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Is there a Doctor in the House
preferly one experienced in Renal Cancer you would think one would be lurking somewhere..not that I would wish this on anyone But an second opinion now and again would be amazing And yes I am aware of the issues/problems Annie
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NED
Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor. I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist…
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Other cysts after diagnosis
I have a cyst on my left ovary, that has been there since last year. It was noted on the scans, but we were more worried about the kidney tumor and put the cyst to the backburner. It wasn't causing me pain or issues, and my GYN told me its normal for women to have cysts. Now all the sudden I am having issues. I had 2…
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Is this normal??
So I have my first set of scans coming up next week and besides my anxiety being through the roof... I have noticed that my Dr has ordered a CT SCAN of my abdomen and pelvis with barium not IV contrast and a chest xray not CT?? He has ordered bloodwork before probably to check function of kidney...just wondering if this…
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Scan Results
Hello CSN Friends...I had my annual scans at MD Anderson on Feb 12th. My chest x-ray was clear. But the MRI found a 6mm indeterminate enhancing lesion on the lumbar region of my spine. It says it is isointense on the precontrast T1 W images. (I don't understand MRI terminology). They said it was too small to know for sure.…
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Scheduled
Well my surgery is finally scheduled. I am having a robotic partial Neph on my left kidney on March 21st. I really wanted to do it sooner but this is when they can fit me in. My question is to others that have had a robotic partial.. what can I expect? I had a robotic partial hysterectomy on Dec. 20th, but I think this…
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Renal cyst
So after an ultrasound I was found to have a 6.8cm mildly complex Left lower pole septated cyst.....being sent for a cat scan...Was wondering if anyone knows the likely outcome because of the size...Thanks
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Tomorrow is the Day
Surgery tomorrow at noon - a radical neph via laproscopy. Anxeity level right now is an easy 9.5 out of 10. Thanks to everyone here that has shared their stories because reading them has definitely made waiting for this a bit easier. I'm going to be so glad when i wake up tomorrow afternoon and the waiting is behind…
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my recent obsevations/thoughts
As sick as I get on occaision, it's incredible what I can tolerate. I'm still here despite some serious hits. I have gotten pretty damn good at identifying variances from my new normal and making adjustments so things do not get acutely out of control. Every day I need to adjust BP meds. I bottom out often but go off the…
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Catheter Question
I've had surgeries, but never needed a catheter. Are they put in under sedation? After I'm knocked out for surgery? Before with drugs? Or before without? Just curious as to how this works. Thanks!!
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Red spots
After my surgery I have noticed some red spots in my pee. It's that normal? Please advice
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updated * New spinal Mets stage IV Clear cell & Cabo
Hi All, My Mom was diagnosed with stage IV Clear cell on Dec 5th. She had bone mets to spine left rib & hips.Jan 30th she finished her radiation ,15 treatments. For the past couple of weeks she’s had stiff neck and shoulder pain & now pain on her right side /rib cage. These were not areas that were treated. Could this…
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Grade 2 clean margins
After my open partial left nefhro, they reomve a turmor with type 2 cancer, the dr told she reomved all . Also she mentioned somehing about clean margins Ok i was half sleep when she told me this and she is coming back today to give a better explanation do anybody knows what does she mean?
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cycstoscopy
So they did my csytoscopy on the 8th. Everything with my bladder looks good but there is still blood in my urine. They thought I had a UTI and I don't know about ya'll but when I have UTI I KNOW I have one before I ever go to the doctor. I never felt like I had one. After the antibiotics I went back and there is still…
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I'm a newbie ...
What is NED? I see it in different posts and don't know what it means haha Thanks, Stephanie
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3 weeks post-op yesterday
3 weeks post-op yesterday. Went to surgeon for check up. Scheduled CT scan mid-May to make sure right kidney is healing and working properly as well as to see what the tumor on my left side is doing. Growing means another surgery asap. No to little change, we will discuss best option. Still on pain meds 2x per 24 hrs, so,…
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Pins and Needles
I had an open partial of my right kidney on 1/26. My incision is healing up nicely, but sore. I knew I would have nerve issues at the incision. My question is about my right thigh. From my hip to my knee, it feels like my leg is falling asleep. Pins and needles feeling. Sounds like possible nerve compression. Anyone…
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Thoughts?
So I have had a couple of people say to me.. you know cancer runs in three's... I have never heard this but I have to tell you now that I have had kidney cancer and now skin cancer... I am kinda concerned. I do have my first scans in two weeks but would those scans pick up anything else that might be lurking?? Cin
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3 weeks post op
Just wanted to update my situation in hopes that it may help Future robotic partial patients after surgery. So, I'm 3 weeks and 4 days post op and I'm nearly back to normal strength. I do get tired very easy I've noticed. I've driven by myself several times and did a two hour solo round trip yesterday. I feel pretty good…
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Denied cat scan
I had scans every 6 months for two years, so I had the one that diagnosed it then one I think a month after my neph and then I had them every six months, so I had 6 total up to that point. then we went to every year. I had that first yearly scan last year. I was supposed to have my yearly scan next week but Aetna refused…
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Happy Birthday you have cancer
yea, if you can tell by the title I was diagnosed on January 2nd which was my 43rd birthday. Long story short I had a hysterectomy on Dec. 20th. They did a CT scan on Jan. 2nd and informed me of a mass on my left Kidney. I have now seen 2 urologists (didnt care for the first guy at all) and now waiting on a follow up…
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Translocation renal cell?
I am 30 years old. Got diagnosed with kidney cancer during my pregnancy. I am two weeks post op From partial nephrectomy. We were thinking clear cell the whole time. Pathology sent The tumor to MD Anderson because the pathologist locally couldn’t determine between papillary cell or translocation. Based off what I’ve seen…
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The weekend
So I have decided to put on my dancing shoes tonight and have gathered a bunch of my friends and my oldest daughter and son in law to go with me and my husband for a night on the town! Now if you could see the town I live in you would laugh because it is so small..however it should be a good time. Time to let go of some of…
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Surgery ==Monday
Well, my sugery will be monday and I have had some ups and downs. Today I felt, physically, great..even I played soccer for 2 hour . The problem starts when I have time to think....What's going to happen next monday ?? My tumor is 5.1 cms and I have ZERO symptons. It was discovery by accident . All my analisys came back…
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Anyone with papillary type 2
Hi is there anyone with papillary type 2 with stage 1 and NED for more than 5 years Thanks
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Weird
Ok so I had my left kidney removed 9 weeks ago but for the last two weeks or so I have had a pain in my ribs/Back on right side. Went to the Dr she said I had a rib out. However the pain is lower now and located on my side at the bottom of my ribcage. When you run your hand firmly across it the feeling is very bumpy under…