-
Does it always come back?
The stats say 1 thing but all I ever read is that it came back , no matter the size, grade or stage!! It makes a person wonder if the stats are just to give hope and not based on real life..I'm 14 weeks out from Left open partial and doing pretty good but already sick of waiting for my bad news! Is it that people that are…
-
Joint replacement
I am a 5 year stage 4 kidney cancer survivor. I have a Knee that needs to be replaced. I cannot walk or stand more than 15-20 minutes could hardley get in or out of car. I am on Sutent(chemo) for 3.5 years my oncologist said that should not be a problem. I have tried a few "Good Doctors at major hospitals in the East"…
-
Any long-time Stage 3 survivors?
-
Nodules in the Lung
My main question has anyone here had a resection of the lung and what was the surgery and recovery like? My backstory is that i had an 11-12 CM stage 3C tumor remover in October 2016. I had one year of NED CT scans and life returned to normal. Januarys scan revealed to very small nodules in the left lower lobe. 4mm and…
-
Bowel Perforation from Sutent or Votrient ANYONE??
-
Stent removed!
Had an open partial neph on my right kidney on 1/26. During the procedure, my ureter was cut. My surgeon repaired it and put in a stent. It irritated me over the last month, but not horrible. I had it removed today. Wow. That wasn’t fun. How long does the burn last during urination? I burns the same as the stem being…
-
Well, this has been INTERESTING!
So, I go in this past Monday (2/19) for a radical neph via laproscopy. Two or three hours then done. After about five or six hours, my loved ones started getting a bit concerned. The doctor finally come out an tells them he opened up an artery and could not get to it to clamp it shut - so I started bleeding out profusely.…
-
Scared to death about CT scan and kidney mass
Hello, I just received a call from my doctor today after having a CT scan of the abdoman, and pelvis (I'm having a lumbar spine CT next week). I have a 1.5 centimeter mass in the right kidney. I've had back and hip pain and mild dizziness for the last year and a half. At night, I have pain that is not relieved by advil or…
-
Who had robotic partial nephrectomy?
I am finding it hard to receive a recommendation of doctors that did robotic partial nephrectomy. Did any of you undergo this procedure? where and by which doctor? how was it?
-
I'm looking for o
-
Update on my son-in-law
I've been lurking for quite some time and haven't posted for ages, however I have to share some continuing good news. For those of you who have recently joined the 'club' that nobody wants to join...John has stage 4, grade 4, 60% sarcomatoid cancer. He was dx'ed about 18 months ago. He had a 13cm tumor and a total left…
-
Bent over to change a diaper, now in pain.
I am almost 5 weeks post op from my open partial nephrectomy on my right kidney. Yesterday I was changing my 2 year olds diaper on the bed and I got a sharp stabbing pain in where the incision site is. Almost like a punch. Ever since then my whole right abdomen has been in pain, especially on top of the incision site. My…
-
Genetic Testing
Genetic's nurse called today and said I did not test postive for any of the 24 known cells for cancer. I was worried about the VHL thing!!! Thank the lord, I feel this is great news!
-
Is there a Doctor in the House
preferly one experienced in Renal Cancer you would think one would be lurking somewhere..not that I would wish this on anyone But an second opinion now and again would be amazing And yes I am aware of the issues/problems Annie
-
NED
Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor. I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist…
-
Other cysts after diagnosis
I have a cyst on my left ovary, that has been there since last year. It was noted on the scans, but we were more worried about the kidney tumor and put the cyst to the backburner. It wasn't causing me pain or issues, and my GYN told me its normal for women to have cysts. Now all the sudden I am having issues. I had 2…
-
Is this normal??
So I have my first set of scans coming up next week and besides my anxiety being through the roof... I have noticed that my Dr has ordered a CT SCAN of my abdomen and pelvis with barium not IV contrast and a chest xray not CT?? He has ordered bloodwork before probably to check function of kidney...just wondering if this…
-
Scan Results
Hello CSN Friends...I had my annual scans at MD Anderson on Feb 12th. My chest x-ray was clear. But the MRI found a 6mm indeterminate enhancing lesion on the lumbar region of my spine. It says it is isointense on the precontrast T1 W images. (I don't understand MRI terminology). They said it was too small to know for sure.…
-
Scheduled
Well my surgery is finally scheduled. I am having a robotic partial Neph on my left kidney on March 21st. I really wanted to do it sooner but this is when they can fit me in. My question is to others that have had a robotic partial.. what can I expect? I had a robotic partial hysterectomy on Dec. 20th, but I think this…
-
Renal cyst
So after an ultrasound I was found to have a 6.8cm mildly complex Left lower pole septated cyst.....being sent for a cat scan...Was wondering if anyone knows the likely outcome because of the size...Thanks
-
Tomorrow is the Day
Surgery tomorrow at noon - a radical neph via laproscopy. Anxeity level right now is an easy 9.5 out of 10. Thanks to everyone here that has shared their stories because reading them has definitely made waiting for this a bit easier. I'm going to be so glad when i wake up tomorrow afternoon and the waiting is behind…
-
my recent obsevations/thoughts
As sick as I get on occaision, it's incredible what I can tolerate. I'm still here despite some serious hits. I have gotten pretty damn good at identifying variances from my new normal and making adjustments so things do not get acutely out of control. Every day I need to adjust BP meds. I bottom out often but go off the…
-
Catheter Question
I've had surgeries, but never needed a catheter. Are they put in under sedation? After I'm knocked out for surgery? Before with drugs? Or before without? Just curious as to how this works. Thanks!!
-
Red spots
After my surgery I have noticed some red spots in my pee. It's that normal? Please advice
-
updated * New spinal Mets stage IV Clear cell & Cabo
Hi All, My Mom was diagnosed with stage IV Clear cell on Dec 5th. She had bone mets to spine left rib & hips.Jan 30th she finished her radiation ,15 treatments. For the past couple of weeks she’s had stiff neck and shoulder pain & now pain on her right side /rib cage. These were not areas that were treated. Could this…
-
Grade 2 clean margins
After my open partial left nefhro, they reomve a turmor with type 2 cancer, the dr told she reomved all . Also she mentioned somehing about clean margins Ok i was half sleep when she told me this and she is coming back today to give a better explanation do anybody knows what does she mean?
-
cycstoscopy
So they did my csytoscopy on the 8th. Everything with my bladder looks good but there is still blood in my urine. They thought I had a UTI and I don't know about ya'll but when I have UTI I KNOW I have one before I ever go to the doctor. I never felt like I had one. After the antibiotics I went back and there is still…
-
I'm a newbie ...
What is NED? I see it in different posts and don't know what it means haha Thanks, Stephanie
-
3 weeks post-op yesterday
3 weeks post-op yesterday. Went to surgeon for check up. Scheduled CT scan mid-May to make sure right kidney is healing and working properly as well as to see what the tumor on my left side is doing. Growing means another surgery asap. No to little change, we will discuss best option. Still on pain meds 2x per 24 hrs, so,…
-
Pins and Needles
I had an open partial of my right kidney on 1/26. My incision is healing up nicely, but sore. I knew I would have nerve issues at the incision. My question is about my right thigh. From my hip to my knee, it feels like my leg is falling asleep. Pins and needles feeling. Sounds like possible nerve compression. Anyone…