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Genetic testing
On September 19 my daughter and I will do genetic testing for Kidney cancer. I was diagnosed July 2007 renal clear cell carcinoma and had a right nephrectomy. My daughter was diagnosed with a tumor, "possibly renal cell carcinoma." She had a partial nephrectomy June 2008. Tumor was renal clear cell carcinoma. Her…
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Dad's Fight
Hi Everyone. My dad (53) was recently diagnosed with advanced renal cell carcinoma. It has spread from his kidney to his liver and his lung. Recently he had his left femur removed because the cancer had also spread to his bone and is slowly recovering. He is on Toricel. He has not had his kidney removed as his doctor said…
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Partner of a patient
My name is Jason and my girlfriend and love of my life was diagnosed with kidney cancer 4 months ago. It is the 2nd time. It has spread to her Adrenal glands and the prognosis wasn't good. They told her unless they find a miracle cure it's over. They wouldn't tell her how long. She is and has been on experimental trial…
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"I shall but love you better after death"
On Friday afternoon June 11th, at about 2:20 PM, my mighty Dragon ceased his fearless roar. He went very peacefully to a well deserved rest after fighting the biggest battle of his life. His lady and his very best friend Frank, were by his side. He followed the road to the sun to a much better place. Rest in peace my brave…
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My Michael
Hello, I am new to this board and I feel so lost and sad. My husband has been diagnosed with RCC and spread to his clavicle. The news at the oncologist today was so upsetting to us both, I feel like I am living in a dream.......... Michael is 49,never sick, not one symptom, only a bump on his shoulder which we thought came…
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Percutaneous Cryoablation for Kidney Cancer
I've been reading about the success of Percutaneous Cryoablation in the treatment of RCC . Everything I've read so far says it is and has been limited to tumors up to 7 cm. in diameter. The reason given is that the "ice ball" might damage organs adjacent to the tumor . My question is : is it possible the treatment can be…
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What should I be looking for in test results?
I had a radical nephrectomy of my right kidney in Feb 2008 - Type 1, Stage 2, no infiltration anywhere else. My Dr. said there was no need to check anything until December because he considered me "cured". Being who I am, and not trusting the word "cured" I recently asked my PCP to run blood test to check the remaining…
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how long in hospital
i was wondering how long the doctors kept you in the hospital after a partial nephectomy. my surgery is scheduled for friday june 13th. my doctor is not going for a lap surgery.
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need advise
Dear Memebers, this is my first post here. I have been surfing web for the past 8 hours trying to figure things out. I am writing this post on behalf of my father. He is 61 and while going through his normal physical check up, primary care was not happy happy with his blood report. to make a long story short he had some CT…
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urologist or urologic oncologist?
A friend has been dxd w/ renal cancer; the tumor seems to be contained in one kidney, which will need to be removed shortly. She was referred to a local urologist who can do the surgery, but it has not yet been scheduled. Apparently she would then be referred to an oncologist for follow-up. However, at other hospitals in…
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Sutent
My husband has been on a clinical trial taking Sutent before surgery. He has a tumor on each kidney. One was 10cm and the other 5cm. He had his 1st cat scan after 2 cycles and it has showed a shrinkage of 25%. He has not had a lot of side effects from the drug and will continue for 2 more cycles and then hopefully they…
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other body functions working better?
Guess what no more constipation since my partial kidney neph. My facial complexion looks healthier, and the strangest thing,a finger nail that has been deformed from an accident 47 year ago, is NOW GROWING NORMAL!!!!! I guess this might be a good omen!
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Slurred Speech in terminal patient
My husband is now in hospice care and although he is not in any major pain or discomfort, I noticed that his speech has become slurred a bit, almost like he has had novacaine. Is this common as one nears the end?
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Clinical Trial - Needed?
I was diagnosed with renal cell carcinom/papillary type (7cm tumor on left kidney/ grade 1). I had a radical nephrectomy 5 weeks ago. My Dr. said chem/radiation wasn't necessary; I went for a 2nd opinion (just seemed so strange that chemo/radiation not needed) - the 2nd Dr. said chemo/radiation not necessary, but he wanted…
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Hope?
My darling wife has had Kidney Cancer for over 6 years. She is now only 44 years old. It has been a stuggle, especially the last couple of years. She has had mutiple surgeries, nephorectomy, lymph node removal, vertebrate scraping and metal rod stabalizing, tried numerous clinical trials, special diets, homeopathic…
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gold standard -remove all kidney or parial?
I went with a partial (6.6 cm. right kidney stage I, grade 2 clear cell carcinoma) Went to Memorial Sloan Kettering, Dr. Coleman advices partial, due to a 22% occurance of kidney failure down the road.All margins clear, 9 weeks into recovery, no chemo needed. Other drs. wanted to remove the entire kidney. Hope I made the…
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Was told July 14th of a 12cm mass...
June 28th I had very bloody urine when I went to void... 3 hrs later it happened again... I went to Urgent Care that evening. They took a urine sample and it was clean. June 29th 30 hours later, another bloody urine... none since. They set me up to see a Urologist. I went there gave another urine sample, once again clean.…
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Renal Cell Carcer
I am a 60 year old , married 38 years, 3 girls and 5 grandchildren. I had my right kidney removed November 26, 2001. It has been 5 months and I still feel tired and worry everyday that it (Cancer) is coming back. If there is anyone who would like to be in a message group with me I would appreciate it as I feel very alone…
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Hello - first time
Greetings - been a bit of a lurker but do want to post. As an otherwise healthy 53 year old guy, I had a Stage I tumor discoverd by accident (3.5 cm) in my left kidney when getting a sonogram for my gall bladder. My left kidney was removed at Georgetown University Hospital in DC and was told by more than one specialist…
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Why keep the kidney?
Hello everyone. Hoping to get some information/opinions. When a malignant tumor is found on the kidney (stage 1, no matistiss), why wouldn't you want to completely remove the kidney if you have another healthy one? Is there a benefit to keeping a portion of it? My thought is to "get that thing out ~ we don't want the…
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One more post to the one below
I had a six month screening with MRI contrast of the abdomen and chest xray - clear. I was told not have CT with contrast since the contrast agent is harmful to kidneys and my creatinine is a tiny bit high with the remaining kidney. After that, I was told I would need a scan only once every year. I had the one year one…
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Sutent Side Effect: Epileptic Seizure
My father was diagnosed with RCC about three months ago. Because his affected kidney can't be removed right away, he was put on Sutent prior to the operation. He is on a 4-week on 2 week-off cycle. During the third week of the first cycle, he had an epileptic seizure. He was taken off the medecine for three weeks and fully…
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sutent
I have been diagnosed with both renal cell in the kidney & lungs, & adeno cell in the esophagus. Since March 07 I have had my left kidney removed, then double dose of chemo & radiation followed in August by laproscopic surgery of the esophagus. Then after 5 weeks recovery we started Nexavar for the lungs. When I say we I…
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My dad has RCC, I need information
Hello out there, I 28 yrs old and am new to this forum and new to the topic of cancer. My father was diagnosed with kidney cancer back in November and had a full nephroectomy (done laproscopically). At the time, they said it was the best possible situation...no spreading to any lymph nodes or anything. They said just…
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Kidney tumor removal
This is my first message out here. so..."hello". I had my kidney removed May 31. It was all contained within the kidney.. lymph nodes all negative. Before surgery MRI, Bone Scan, Chest x-ray.. all came back negative. Had a stress test too -- came back fine. My follow up is Sept 12.. Cat Scan and Blood draw. I am anxious,…
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Sister
My sister(she is 37 years old) had her kidney removed because she had RCC last year. They said they got it all. She had a baby 2 months ago. She found out 2 weeks ago that the kidney cancer has come back on her liver and it is two different types (three spots on the liver). Papillary and Clear Cell, it is inoperable. They…
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RCC Kidney Cancer
My sister(she is 37 years old) had her kidney removed because she had RCC last year. They said they got it all. She had a baby 2 months ago. She found out 2 weeks ago that the kidney cancer has come back on her liver and it is two different types (three spots on the liver). Papillary and Clear Cell, it is inoperable. They…
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Hand-Foot Syndrome
Hi - I have thyroid cancer that has metastasized. I am currently in a clinical trial using Sunitinib (Sutent), which is primarily used for kidney cancer. I am suffering from hand-foot syndrome (only on my feet at the moment) and I wondered if anyone had any hints for dealing with it. John
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survivors of kindey cancer without the kidney being removed?
My mom has been diagnosed with kidney cancer about the size of a grapfruit.She is also diebetic and her other kidney isn't functioning all that well. They tell her it is highly unlikely they can take her kidney out. They have said they may only be able to give her medication to comfort her. i'm reading the threads and i…
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renal pelvis cancer+hematuria
Hello. I am 50yr old male who just had a kidney removal. they found out that I had renal pelvis cancer. The thing is that the doctor thinks taht it was in early stage, but I've seen blood in my urine(asymptomatic hematuria) for over a year now... doesn't this mean that the cancer has been there for over a year and…