Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Clinical Trial - Needed?
I was diagnosed with renal cell carcinom/papillary type (7cm tumor on left kidney/ grade 1). I had a radical nephrectomy 5 weeks ago. My Dr. said chem/radiation wasn't necessary; I went for a 2nd opinion (just seemed so strange that chemo/radiation not needed) - the 2nd Dr. said chemo/radiation not necessary, but he wanted…
Hope?
My darling wife has had Kidney Cancer for over 6 years. She is now only 44 years old. It has been a stuggle, especially the last couple of years. She has had mutiple surgeries, nephorectomy, lymph node removal, vertebrate scraping and metal rod stabalizing, tried numerous clinical trials, special diets, homeopathic…
gold standard -remove all kidney or parial?
I went with a partial (6.6 cm. right kidney stage I, grade 2 clear cell carcinoma) Went to Memorial Sloan Kettering, Dr. Coleman advices partial, due to a 22% occurance of kidney failure down the road.All margins clear, 9 weeks into recovery, no chemo needed. Other drs. wanted to remove the entire kidney. Hope I made the…
Was told July 14th of a 12cm mass...
June 28th I had very bloody urine when I went to void... 3 hrs later it happened again... I went to Urgent Care that evening. They took a urine sample and it was clean. June 29th 30 hours later, another bloody urine... none since. They set me up to see a Urologist. I went there gave another urine sample, once again clean.…
Renal Cell Carcer
I am a 60 year old , married 38 years, 3 girls and 5 grandchildren. I had my right kidney removed November 26, 2001. It has been 5 months and I still feel tired and worry everyday that it (Cancer) is coming back. If there is anyone who would like to be in a message group with me I would appreciate it as I feel very alone…
Hello - first time
Greetings - been a bit of a lurker but do want to post. As an otherwise healthy 53 year old guy, I had a Stage I tumor discoverd by accident (3.5 cm) in my left kidney when getting a sonogram for my gall bladder. My left kidney was removed at Georgetown University Hospital in DC and was told by more than one specialist…
Why keep the kidney?
Hello everyone. Hoping to get some information/opinions. When a malignant tumor is found on the kidney (stage 1, no matistiss), why wouldn't you want to completely remove the kidney if you have another healthy one? Is there a benefit to keeping a portion of it? My thought is to "get that thing out ~ we don't want the…
One more post to the one below
I had a six month screening with MRI contrast of the abdomen and chest xray - clear. I was told not have CT with contrast since the contrast agent is harmful to kidneys and my creatinine is a tiny bit high with the remaining kidney. After that, I was told I would need a scan only once every year. I had the one year one…
Sutent Side Effect: Epileptic Seizure
My father was diagnosed with RCC about three months ago. Because his affected kidney can't be removed right away, he was put on Sutent prior to the operation. He is on a 4-week on 2 week-off cycle. During the third week of the first cycle, he had an epileptic seizure. He was taken off the medecine for three weeks and fully…
sutent
I have been diagnosed with both renal cell in the kidney & lungs, & adeno cell in the esophagus. Since March 07 I have had my left kidney removed, then double dose of chemo & radiation followed in August by laproscopic surgery of the esophagus. Then after 5 weeks recovery we started Nexavar for the lungs. When I say we I…
My dad has RCC, I need information
Hello out there, I 28 yrs old and am new to this forum and new to the topic of cancer. My father was diagnosed with kidney cancer back in November and had a full nephroectomy (done laproscopically). At the time, they said it was the best possible situation...no spreading to any lymph nodes or anything. They said just…
Kidney tumor removal
This is my first message out here. so..."hello". I had my kidney removed May 31. It was all contained within the kidney.. lymph nodes all negative. Before surgery MRI, Bone Scan, Chest x-ray.. all came back negative. Had a stress test too -- came back fine. My follow up is Sept 12.. Cat Scan and Blood draw. I am anxious,…
Sister
My sister(she is 37 years old) had her kidney removed because she had RCC last year. They said they got it all. She had a baby 2 months ago. She found out 2 weeks ago that the kidney cancer has come back on her liver and it is two different types (three spots on the liver). Papillary and Clear Cell, it is inoperable. They…
RCC Kidney Cancer
My sister(she is 37 years old) had her kidney removed because she had RCC last year. They said they got it all. She had a baby 2 months ago. She found out 2 weeks ago that the kidney cancer has come back on her liver and it is two different types (three spots on the liver). Papillary and Clear Cell, it is inoperable. They…
Hand-Foot Syndrome
Hi - I have thyroid cancer that has metastasized. I am currently in a clinical trial using Sunitinib (Sutent), which is primarily used for kidney cancer. I am suffering from hand-foot syndrome (only on my feet at the moment) and I wondered if anyone had any hints for dealing with it. John
survivors of kindey cancer without the kidney being removed?
My mom has been diagnosed with kidney cancer about the size of a grapfruit.She is also diebetic and her other kidney isn't functioning all that well. They tell her it is highly unlikely they can take her kidney out. They have said they may only be able to give her medication to comfort her. i'm reading the threads and i…
renal pelvis cancer+hematuria
Hello. I am 50yr old male who just had a kidney removal. they found out that I had renal pelvis cancer. The thing is that the doctor thinks taht it was in early stage, but I've seen blood in my urine(asymptomatic hematuria) for over a year now... doesn't this mean that the cancer has been there for over a year and…
KCFighter
Hi KCFighter...I keep checking back but there is still no news from you. I sure hope your tests were clear. I also sent you an email I think, or is it a message from the site. Anyway, I am thinking about you and hoping that all went well. I finally went and had my CT scan and am assuming all is well because I've not heard…
Treatment?
My mother-in-law was diagnosed with kidney cancer almost 1.5 months ago. The surgeon just put the surgery off AGAIN for another 2 weeks...is that normal procedure?
Sutent experiences
Three moths ago my brother in law Peter (45 years) was diagnosed with stomach / adenocarcinoma cancer, unfortunately, metastasis at the liver was discovered. Hes been on chemotherapy all this time, after evaluation it was confirmed that the tumor at the stomach is stable; however, the metastasis is spreading even more.…
Dealing with it twice
Please realize, I am a survivor of kindey cancer twice, even though it did take both kidneys I am a survivor. I went through alot of different treatments, I am here to talk to anyone about it
Emotional impact of recurrence of renal cell
In 2001, I was had a partial nephrectomy performed on my left kidney for stage I renal cell cancer. In March, 2007 I was informed that a follow-up CT scan indicated that I had another tumor near the renal vein on the left kidney. My doctor says that the tumor is small and I have no signs of cancer at any other locations…
Nexavar side effects
I have been taking Nexavar for 3 weeks, I had the dosage reduced after about a week and a half due to fatigue. I am now experiencing scalp pain and itching. I have been using Selson Blue for more than a week but the itching is worse. I also have the rash on my face and arms not on my feet and hands. My hair is thinning. So…
Alternative therapies
My husband who was a healthy 54 year old underwent nephrectomy for kidney cancer in December. At the same time he had a piece removed from a pulmonary artery that had broken off from the tumor growing up his vena cava and lodged in the pulmonay artery. After being sent home he was again hospitalized for 3 weeks with an…
The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500 even…
renal cell reaches brain (?)
sister is in 27th day of chemo-full body mri shows cancer has reached brain--can anyone tell me what to expect-entire family heartbroken-any info will help us
Kidney-Onc Mailing list
Folks, not to take anything away from this wonderfully helpful site, but if you have questions specifically about RCC, I urge you to go here: http://listserv.acor.org/archives/kidney-onc.html and sign up for the kidney-onc mailing list. You'll find that it's filled with knowledgable people and you can often get a response…
Post Renal Cell Carcinoma Test
My husband had RCC in the left kidney back in March and they did a left nephrectomy,and so he has been going for blood work and chest x rays every 3 months and yesterday was his second set of 3 month check up and they did the blood work and all,and he said the chest x rays looked good,but the nurse called back this morning…
Renal Cell Carcanoma
Sister's cancer returned with a vengeance after four years - dr put her on Sunitinib--anyone taking this that can share their experience? If she doesn't respond she only has a few months left. Any info would be greatly appreciated
renal cell carcinoma
My spouse was diagnosed with RCC in March of 2006. Started taking Nexavar which shrank the tumers slightly in lungs, but nowhere else in the first 6 months(it has spread to the lungs,lympnodes and bones) We went to the Dr for leg pain only to find that the RCC had eaten most of the bone in the leg requiring to have a metal…

Kidney Cancer

Discussion List

Discussion Boards