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Sutent Side Effect: Epileptic Seizure
My father was diagnosed with RCC about three months ago. Because his affected kidney can't be removed right away, he was put on Sutent prior to the operation. He is on a 4-week on 2 week-off cycle. During the third week of the first cycle, he had an epileptic seizure. He was taken off the medecine for three weeks and fully…
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sutent
I have been diagnosed with both renal cell in the kidney & lungs, & adeno cell in the esophagus. Since March 07 I have had my left kidney removed, then double dose of chemo & radiation followed in August by laproscopic surgery of the esophagus. Then after 5 weeks recovery we started Nexavar for the lungs. When I say we I…
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My dad has RCC, I need information
Hello out there, I 28 yrs old and am new to this forum and new to the topic of cancer. My father was diagnosed with kidney cancer back in November and had a full nephroectomy (done laproscopically). At the time, they said it was the best possible situation...no spreading to any lymph nodes or anything. They said just…
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Kidney tumor removal
This is my first message out here. so..."hello". I had my kidney removed May 31. It was all contained within the kidney.. lymph nodes all negative. Before surgery MRI, Bone Scan, Chest x-ray.. all came back negative. Had a stress test too -- came back fine. My follow up is Sept 12.. Cat Scan and Blood draw. I am anxious,…
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Sister
My sister(she is 37 years old) had her kidney removed because she had RCC last year. They said they got it all. She had a baby 2 months ago. She found out 2 weeks ago that the kidney cancer has come back on her liver and it is two different types (three spots on the liver). Papillary and Clear Cell, it is inoperable. They…
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RCC Kidney Cancer
My sister(she is 37 years old) had her kidney removed because she had RCC last year. They said they got it all. She had a baby 2 months ago. She found out 2 weeks ago that the kidney cancer has come back on her liver and it is two different types (three spots on the liver). Papillary and Clear Cell, it is inoperable. They…
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Hand-Foot Syndrome
Hi - I have thyroid cancer that has metastasized. I am currently in a clinical trial using Sunitinib (Sutent), which is primarily used for kidney cancer. I am suffering from hand-foot syndrome (only on my feet at the moment) and I wondered if anyone had any hints for dealing with it. John
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survivors of kindey cancer without the kidney being removed?
My mom has been diagnosed with kidney cancer about the size of a grapfruit.She is also diebetic and her other kidney isn't functioning all that well. They tell her it is highly unlikely they can take her kidney out. They have said they may only be able to give her medication to comfort her. i'm reading the threads and i…
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renal pelvis cancer+hematuria
Hello. I am 50yr old male who just had a kidney removal. they found out that I had renal pelvis cancer. The thing is that the doctor thinks taht it was in early stage, but I've seen blood in my urine(asymptomatic hematuria) for over a year now... doesn't this mean that the cancer has been there for over a year and…
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KCFighter
Hi KCFighter...I keep checking back but there is still no news from you. I sure hope your tests were clear. I also sent you an email I think, or is it a message from the site. Anyway, I am thinking about you and hoping that all went well. I finally went and had my CT scan and am assuming all is well because I've not heard…
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Treatment?
My mother-in-law was diagnosed with kidney cancer almost 1.5 months ago. The surgeon just put the surgery off AGAIN for another 2 weeks...is that normal procedure?
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Sutent experiences
Three moths ago my brother in law Peter (45 years) was diagnosed with stomach / adenocarcinoma cancer, unfortunately, metastasis at the liver was discovered. Hes been on chemotherapy all this time, after evaluation it was confirmed that the tumor at the stomach is stable; however, the metastasis is spreading even more.…
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Dealing with it twice
Please realize, I am a survivor of kindey cancer twice, even though it did take both kidneys I am a survivor. I went through alot of different treatments, I am here to talk to anyone about it
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Emotional impact of recurrence of renal cell
In 2001, I was had a partial nephrectomy performed on my left kidney for stage I renal cell cancer. In March, 2007 I was informed that a follow-up CT scan indicated that I had another tumor near the renal vein on the left kidney. My doctor says that the tumor is small and I have no signs of cancer at any other locations…
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Nexavar side effects
I have been taking Nexavar for 3 weeks, I had the dosage reduced after about a week and a half due to fatigue. I am now experiencing scalp pain and itching. I have been using Selson Blue for more than a week but the itching is worse. I also have the rash on my face and arms not on my feet and hands. My hair is thinning. So…
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Alternative therapies
My husband who was a healthy 54 year old underwent nephrectomy for kidney cancer in December. At the same time he had a piece removed from a pulmonary artery that had broken off from the tumor growing up his vena cava and lodged in the pulmonay artery. After being sent home he was again hospitalized for 3 weeks with an…
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-ie; stem cells, which could very well bring the cure to all cancer. The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500 even…
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renal cell reaches brain (?)
sister is in 27th day of chemo-full body mri shows cancer has reached brain--can anyone tell me what to expect-entire family heartbroken-any info will help us
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Kidney-Onc Mailing list
Folks, not to take anything away from this wonderfully helpful site, but if you have questions specifically about RCC, I urge you to go here: http://listserv.acor.org/archives/kidney-onc.html and sign up for the kidney-onc mailing list. You'll find that it's filled with knowledgable people and you can often get a response…
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Post Renal Cell Carcinoma Test
My husband had RCC in the left kidney back in March and they did a left nephrectomy,and so he has been going for blood work and chest x rays every 3 months and yesterday was his second set of 3 month check up and they did the blood work and all,and he said the chest x rays looked good,but the nurse called back this morning…
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Renal Cell Carcanoma
Sister's cancer returned with a vengeance after four years - dr put her on Sunitinib--anyone taking this that can share their experience? If she doesn't respond she only has a few months left. Any info would be greatly appreciated
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renal cell carcinoma
My spouse was diagnosed with RCC in March of 2006. Started taking Nexavar which shrank the tumers slightly in lungs, but nowhere else in the first 6 months(it has spread to the lungs,lympnodes and bones) We went to the Dr for leg pain only to find that the RCC had eaten most of the bone in the leg requiring to have a metal…
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Post Renal Cell Cracinoma Surgery Pain
I had my left kidney removed in 2002 ( full left radical nephrectomy ) and ever since I have had pain at incision site, low back pain, pain in groin area, and pain in left leg. I have had steroid injections and am taking pain meds. with little relief from pain. If anyone has had or is still having pain similar to mine…
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Goji Juice/Berries
Does anyone have experience with this product? Apparently it as it's origins in China, and it's english name is Barbary Wolfberry Fruit, or Fructus lycii. Research indicates that it is esp. beneficial to the liver and the kidney. See http://www.herbasin.com/database/gouqizi.htm
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kidney cancer
i had cancer of the cervix and then after extensive surgery three months later kidney cancer. I have a colostomy and a neo bladder and find it very hard to be around people because of this. It has now been two years and i still panic when i have to leave my home to go to any event
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renal cell , return report Nexavar
I joined in june and reported my husband going on Nexavar. He did react with a terrible rash and had to half the amount of Nexavar. Takes a benedryl 1/2 hour before taking pills. Is doing very very well AND the catscan showed he still had all his nodules in his lungs but ALL WERE SHRINKING !!!!!!!! We know the primary…
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Is Side / Flank Pain 4 Months Post-Op Normal?
July 2nd will be 4 months since I had a laparoscopic nephrectomy surgery to remove my right kidney. I've been recovering well but have been noticing that the same side pain I had gone into the doctor complaining about before they diagnosed me has returned (text books call the side pain "flank pain"). It's a dull ache on my…
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Kidney removal surgery
I had bladder cancer in 2004 had my bladder removed now on June 26 have to have my left ureter and left kidney removed due to cancer tumors. I am very nervous about having the surgery and only one kidney. I heard it is a painful operation. Does anyone have any suggestions to get through the surgery so I can fight this…
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First year tests down...life to go?
I am glad to say that my anxiety level has just gone down with good news from my first year test results. My liver enzymes have elevated but my doc says not related to cancer but rather fatty liver problem?? So, from the kidney on now to the liver. I'm sure I'll be dieting here shortley after my celebration this weekend.
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need someone to talkk to
I have so many questions to others that have gone through the kidney cancer ordeal. I have gone back and read other inquires but still need someone to chat with. Any takers?