Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Getting diagnosed with Kidney cancer and prior PCV
Prior to my being diagnosed with RCC in 2003, I was diagnosed with idiopathic polycythemia vera(my blood was like sludge) My erythropoietin was normal. My primary tumor made a similar protein that functioned in the same manner but was not close enough to be picked up on the assay. I was wondering if anyone else had this…
does anyone have info on BCG?
My neighbor has kidney cancer and is being treated with a tecnique call BCG? I was told by him that the are intorducing a bacterial into his cancer to destroy it. He's on his third week of treatment with no side effects. Any info in this would be appreciated.
8 years out
I am eight years out from a having my right kidney removed due to a maliginat tumor of 5cm in size. I went to all of my follow up treatments and all that showed up was a cyst on left kidney and was told that was normal. My cancer was found due to my gastrologist performing an ultra sound. He handed me a prescription for…
Affinitor approved fpr mrcc mon march 31 by the fda
Hi folks, We have new weapon in our battle against mrcc (kidney cancer that has spread). This new drug was known as rad001 when it was in clinical trials and had shown promising results. I don't have the figures to give you at this time, but anything new to help those who's cancer has spread and other targeted thearapy's…
neighbor just diagnosed
I just brought my neighbor into the hospital for his first treatment. he's 72 and has kidney cancer among others. He's going to get some sort of bacterial treatment. Can anyone tell me more about it?
Another Sutent Question
Hi Everyone, I'm new to this site and new to kidney cancer. I was diagnosed with RCC (Clear Cell) on June 20th of this year and had a left radical nephrectomy on July 14th. We weren't wasting any time. I had a 10.5 cm growth on my kidney and 8 cm of growth in 14 lymph nodes. Needless to say my cancer is advanced. The good…
Sutent
Hi,I,am the wife of a older man who has had cancer,first started 27 years ago,Bladder cancer,he had laser surgery,it was gone for over 27 years,it came back 3 years ago,again he had laser surgery,it was gone again for the next 3 years,He went in for a cat scan kidney cancer showed up,we went to the Mayo Clinic in…
FOLLOW UP TESTING SCHEDULE
hi everybody, thank you so much to everyone who posts on this board it has been so helpful to me. MY QUESTION IS WHAT IS YOUR FOLLOW UP PLAN FOR TESTING FOR RECURRENCE? i was stage 1 renal cell carcinoma. had a radical nephrectomy done laparoscopically on dec. 12.the cancer was not found anywhere but in the tumor. my…
SURGERY SCAR
hi everyone, thank you all for posting on this board, i was diagnosed back in nov. 08 and have been on the board many times for information and reassurances. i had a radical nephrectomy (of my left kidney) done laparoscopically on 12/12/08. i have one bigger incision vertical next to my belly button and two smaller ones…
Surgery on 2-18-09
I had a 1-inch tumor on my left kidney that was removed on 2-18-09. I was told they caught it very early and that I have an excellent chance to never have cancer again since it was so small and had not pread within the kidney. I probably will lose my job out of this, and it was a very nice job in Iraq, but at least I get…
surgery on the 2/26/09
Hello everyone, My husband was just told he has RCC a 10 cin tumor that may have spread to lungs (in the chest x ray they saw swollen lympnodes) we are scared to death. I also just lost my job so there is a lot of stress. My sister had her kidney removed 8 years ago and she is doing fine today! Please say a prayer for my…
Kidney Cancer and now Nephrotic Diabetes Insipidus
Hi All, I had a nephrectomy 2 years ago due to Kidney cancer stage I. I went to my Dr complaining that I am always thirsty and I wake up every 2 hours in the night to urinate even when I try not to drink past 3:00pm. I thought I had Diabetes, but he called me today with the results of my blood work and a 24 hr urine test,…
Wilms tumor 1973 late effects
I had my left kedney removed in 1974 at 18 months, the cancer spred to my righ lung, part of my righ main artirie, and then to my brain. All these surgeries were done before the age of 5. Recently I have noticed that my memory is fading. I forget everyday things, or even people I recently met and spoken to in depth. I…
Newly Diagnosed/Awaiting Surgery
I am 3 weeks of being diagnosed with renal carcenoma. Left Kidney has tumor(golf ball size) at the top. I was told by the surgeon that he thinks the Kidney can be saved. I am receiving the robotic surgery. I was 17 years cancer free of female type cancer. Why does radiation not work on Kidney cancers. If you have had this…
Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
Major kidney complications at birth
I just wanted to share this story about this boy that was born with major kidney complications. This may bring strength or courage to anyone that is dealing with the same or similar situation.. http://www.youtube.com/watch?v=sDWrSONzYcg
Alternative Tx
I have currently been undergoing tx including Torisel injections for almost a year....I've read all the materials for traditional tx which some seems to be fantastic...but I was wondering if anyone has any information on alternative tx? I've done limited research but I've found it's always easiest to learn from people who…
Genetic testing
On September 19 my daughter and I will do genetic testing for Kidney cancer. I was diagnosed July 2007 renal clear cell carcinoma and had a right nephrectomy. My daughter was diagnosed with a tumor, "possibly renal cell carcinoma." She had a partial nephrectomy June 2008. Tumor was renal clear cell carcinoma. Her…
Dad's Fight
Hi Everyone. My dad (53) was recently diagnosed with advanced renal cell carcinoma. It has spread from his kidney to his liver and his lung. Recently he had his left femur removed because the cancer had also spread to his bone and is slowly recovering. He is on Toricel. He has not had his kidney removed as his doctor said…
Partner of a patient
My name is Jason and my girlfriend and love of my life was diagnosed with kidney cancer 4 months ago. It is the 2nd time. It has spread to her Adrenal glands and the prognosis wasn't good. They told her unless they find a miracle cure it's over. They wouldn't tell her how long. She is and has been on experimental trial…
"I shall but love you better after death"
On Friday afternoon June 11th, at about 2:20 PM, my mighty Dragon ceased his fearless roar. He went very peacefully to a well deserved rest after fighting the biggest battle of his life. His lady and his very best friend Frank, were by his side. He followed the road to the sun to a much better place. Rest in peace my brave…
My Michael
Hello, I am new to this board and I feel so lost and sad. My husband has been diagnosed with RCC and spread to his clavicle. The news at the oncologist today was so upsetting to us both, I feel like I am living in a dream.......... Michael is 49,never sick, not one symptom, only a bump on his shoulder which we thought came…
Percutaneous Cryoablation for Kidney Cancer
I've been reading about the success of Percutaneous Cryoablation in the treatment of RCC . Everything I've read so far says it is and has been limited to tumors up to 7 cm. in diameter. The reason given is that the "ice ball" might damage organs adjacent to the tumor . My question is : is it possible the treatment can be…
What should I be looking for in test results?
I had a radical nephrectomy of my right kidney in Feb 2008 - Type 1, Stage 2, no infiltration anywhere else. My Dr. said there was no need to check anything until December because he considered me "cured". Being who I am, and not trusting the word "cured" I recently asked my PCP to run blood test to check the remaining…
how long in hospital
i was wondering how long the doctors kept you in the hospital after a partial nephectomy. my surgery is scheduled for friday june 13th. my doctor is not going for a lap surgery.
need advise
Dear Memebers, this is my first post here. I have been surfing web for the past 8 hours trying to figure things out. I am writing this post on behalf of my father. He is 61 and while going through his normal physical check up, primary care was not happy happy with his blood report. to make a long story short he had some CT…
urologist or urologic oncologist?
A friend has been dxd w/ renal cancer; the tumor seems to be contained in one kidney, which will need to be removed shortly. She was referred to a local urologist who can do the surgery, but it has not yet been scheduled. Apparently she would then be referred to an oncologist for follow-up. However, at other hospitals in…
Sutent
My husband has been on a clinical trial taking Sutent before surgery. He has a tumor on each kidney. One was 10cm and the other 5cm. He had his 1st cat scan after 2 cycles and it has showed a shrinkage of 25%. He has not had a lot of side effects from the drug and will continue for 2 more cycles and then hopefully they…
other body functions working better?
Guess what no more constipation since my partial kidney neph. My facial complexion looks healthier, and the strangest thing,a finger nail that has been deformed from an accident 47 year ago, is NOW GROWING NORMAL!!!!! I guess this might be a good omen!
Slurred Speech in terminal patient
My husband is now in hospice care and although he is not in any major pain or discomfort, I noticed that his speech has become slurred a bit, almost like he has had novacaine. Is this common as one nears the end?

Kidney Cancer

Discussion List

Discussion Boards