Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Stage IV Renal Cell Cancer
My mother-in-law was recently diagnosed with stage IV renal cell cancer. She was not experiencing any pain at all. One day, she started getting a very bad headache, was taken to the hospital, and they performed a CT scan. At that time they found 5 tumors in her brain. After doing a bone scan, they stated that she had…
lost ,confused ,just need some one to talk to
Help 13 weeks ago my huspand was being treated for kindney stones he started hurting so bad I took him to emergency room. They diagnosed him with renal carcenomia , stage 4 It has already moved to his lungs and in his back they said there was no hope gave him months to live the drs called hospice in . they just gave up on…
RCC 4th Stage
My father was diagnosed with Stage 4 Kidney cancer that spread to his bones and one lung. He has been batteling it for over a year now. If anyone has any new knowledge of clinical trials going on that would great. We have been working with Sloan-Kettering and Johns-Hopkins. Also if there are any Stage 4 survivors out…
Clear Cell Kidney
Hi my name is Lori and I recently had my left kidney removed because of a 10.7 cm malignant mass stage 2 clear cell with nothing in my lymphnodes, vein or fatty tissue. I underwent a CAT scan on 04/17/09 to find out that I was having an appendicits and the mass on my kidney. AT the time of the CAT scan they said that all…
transitional cell carcinoma
Hi Everyone, My dad has transitional cell cancer which is very rare and uncurable but he is recieving treatment to give comfort. This is so new to us and we get very little info from the doc. His newest treatments has been chemo 2 wks on and 1 off. That has seemed to benefit him a lot rather than 1 every 3 weeks. Now he…
CAT SCAN RESULTS
hi donna-lee and dawn, anybody else who may like to hear some good news. i spoke to the dr. today and my ct scan was fine, good, negative, normal...you know all the good stuff. i am so happy. i called the dr. office because my follow up appt, wasn't till next week and i couldn't wait any longer jumping every time the phone…
After Torisel
My husband has Stage 4 kidney cancer. Had his right kidney out three years ago. A year later they spotted specks in his chest cat-scan. Year of tests before they confirmed kidney cancer in his lungs and lymph nodes. Sutent had no effect. Torisel for four months and a 50% reduction. Hallelujah! He's been off the med since…
CT scan results
Donna-lee how'd it go today? you've been in my prayers. imbkuz
Ablation or chemo for RCC metastasis to pelvis and upper arm
I'm having trouble deciding upon the best mode of treatment. I was diagnosed with RCC in November of 2007 and in December 2008 found to have metastasis to the right pelvis and upper arm. My pelvis erosion has been cemented, my upper arm rodded and each have been radiated. I am still in remission, but my doctor wants to…
CT SCAN NEXT WEEK
hi everybody, i have a question for ya. does everybody use this MUCOMYST when they have their scan. someone mentioned this on an earlier post about helping to flush the contrast out of your kidney if you have one kidney what else do you do to protect it when having the ct scan and contrast. thanks alot everybody.
RCC reaches liver?
Hi, my dad has RCC Stage IV. He was diagnosed on Nov 2005 and has been doing ok with Sorafenib. They performed a nephroectomy of his right kidney and of one of his vertebrae (L3).They also found many nodules on his lungs, which have been shrinking with the medication. Unfortunately they found many tumors on his liver a…
I'm back
65. Since 2003, after rapid unexplained wight loss (16 kg), I struggle my kidney cancer (RCC). May 2005 - partial nephrectomy in order to remove a 5 cm tumor. During operation - contamination under the liver(a cancer cell "ran away" probably with the "help" of an operation instrument). June 2008 - biopsy under CT…
FOLLOW UP TESTS AFTER SURGERY
hi everybody, i posted this question a few weeks ago and i was wondering if anybody else out there might have some info. i had stage 1 rcc diagnosed in nov 08. had a full nephrectomy on left kidney done laparoscopically in dec. 08. the tumor was 4cm. about the size of a walnut. both my urologist and my oncologist have…
Getting diagnosed with Kidney cancer and prior PCV
Prior to my being diagnosed with RCC in 2003, I was diagnosed with idiopathic polycythemia vera(my blood was like sludge) My erythropoietin was normal. My primary tumor made a similar protein that functioned in the same manner but was not close enough to be picked up on the assay. I was wondering if anyone else had this…
does anyone have info on BCG?
My neighbor has kidney cancer and is being treated with a tecnique call BCG? I was told by him that the are intorducing a bacterial into his cancer to destroy it. He's on his third week of treatment with no side effects. Any info in this would be appreciated.
8 years out
I am eight years out from a having my right kidney removed due to a maliginat tumor of 5cm in size. I went to all of my follow up treatments and all that showed up was a cyst on left kidney and was told that was normal. My cancer was found due to my gastrologist performing an ultra sound. He handed me a prescription for…
Affinitor approved fpr mrcc mon march 31 by the fda
Hi folks, We have new weapon in our battle against mrcc (kidney cancer that has spread). This new drug was known as rad001 when it was in clinical trials and had shown promising results. I don't have the figures to give you at this time, but anything new to help those who's cancer has spread and other targeted thearapy's…
neighbor just diagnosed
I just brought my neighbor into the hospital for his first treatment. he's 72 and has kidney cancer among others. He's going to get some sort of bacterial treatment. Can anyone tell me more about it?
Another Sutent Question
Hi Everyone, I'm new to this site and new to kidney cancer. I was diagnosed with RCC (Clear Cell) on June 20th of this year and had a left radical nephrectomy on July 14th. We weren't wasting any time. I had a 10.5 cm growth on my kidney and 8 cm of growth in 14 lymph nodes. Needless to say my cancer is advanced. The good…
Sutent
Hi,I,am the wife of a older man who has had cancer,first started 27 years ago,Bladder cancer,he had laser surgery,it was gone for over 27 years,it came back 3 years ago,again he had laser surgery,it was gone again for the next 3 years,He went in for a cat scan kidney cancer showed up,we went to the Mayo Clinic in…
FOLLOW UP TESTING SCHEDULE
hi everybody, thank you so much to everyone who posts on this board it has been so helpful to me. MY QUESTION IS WHAT IS YOUR FOLLOW UP PLAN FOR TESTING FOR RECURRENCE? i was stage 1 renal cell carcinoma. had a radical nephrectomy done laparoscopically on dec. 12.the cancer was not found anywhere but in the tumor. my…
SURGERY SCAR
hi everyone, thank you all for posting on this board, i was diagnosed back in nov. 08 and have been on the board many times for information and reassurances. i had a radical nephrectomy (of my left kidney) done laparoscopically on 12/12/08. i have one bigger incision vertical next to my belly button and two smaller ones…
Surgery on 2-18-09
I had a 1-inch tumor on my left kidney that was removed on 2-18-09. I was told they caught it very early and that I have an excellent chance to never have cancer again since it was so small and had not pread within the kidney. I probably will lose my job out of this, and it was a very nice job in Iraq, but at least I get…
surgery on the 2/26/09
Hello everyone, My husband was just told he has RCC a 10 cin tumor that may have spread to lungs (in the chest x ray they saw swollen lympnodes) we are scared to death. I also just lost my job so there is a lot of stress. My sister had her kidney removed 8 years ago and she is doing fine today! Please say a prayer for my…
Kidney Cancer and now Nephrotic Diabetes Insipidus
Hi All, I had a nephrectomy 2 years ago due to Kidney cancer stage I. I went to my Dr complaining that I am always thirsty and I wake up every 2 hours in the night to urinate even when I try not to drink past 3:00pm. I thought I had Diabetes, but he called me today with the results of my blood work and a 24 hr urine test,…
Wilms tumor 1973 late effects
I had my left kedney removed in 1974 at 18 months, the cancer spred to my righ lung, part of my righ main artirie, and then to my brain. All these surgeries were done before the age of 5. Recently I have noticed that my memory is fading. I forget everyday things, or even people I recently met and spoken to in depth. I…
Newly Diagnosed/Awaiting Surgery
I am 3 weeks of being diagnosed with renal carcenoma. Left Kidney has tumor(golf ball size) at the top. I was told by the surgeon that he thinks the Kidney can be saved. I am receiving the robotic surgery. I was 17 years cancer free of female type cancer. Why does radiation not work on Kidney cancers. If you have had this…
Survey
Hey everyone, my name is Paul Hogan and I am currently a psychology student at the California State University in Fresno. I am currently conducting research on the life outlooks of cancer survivors. If you could spare 10 minutes of your time to take a survey, I would greatly appreciate it. I myself am a past cancer…
Major kidney complications at birth
I just wanted to share this story about this boy that was born with major kidney complications. This may bring strength or courage to anyone that is dealing with the same or similar situation.. http://www.youtube.com/watch?v=sDWrSONzYcg
Alternative Tx
I have currently been undergoing tx including Torisel injections for almost a year....I've read all the materials for traditional tx which some seems to be fantastic...but I was wondering if anyone has any information on alternative tx? I've done limited research but I've found it's always easiest to learn from people who…

Kidney Cancer

Discussion List

Discussion Boards