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Recently diagnosed
I was diagnosed with two masses on my left Kidney two weeks ago. I am pretty much a workaholic and since diagnosis have been home awaiting surgery. I dont talk much to the people that are close to me and have found myself sleeping the days away. My surgery is early in August and I have had good and badd days. I have yet to…
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Pain killers
My husband has had a recurrence of kidney cancer which has been diagnosed as stage 4 metastasized cancer. We were completely blind sided by this recurrence as we had been told 4 years ago that it was very unlikely to recur since the cancer was completely encapsulated in the kidney and the kidney was successfully removed.…
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Summer 09 issue of Cure
If you have never seen a issue of Cure, or read it online, here is your chance for more info. My copy arrived on Thursday and there is finally a full article on Kidney Cancer and the drugs that are available. For over 2 years, I have read the mag and bemoaned the fact that just about every other type of cancer was written…
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RCC
Dear Readers, My uncle is going through renal cell carcinoma cancer.The illness is come to know very late.in October 2008 he got problems like blood in urin and pain during the urination.Then the urologist suggested to go for prostate but before prostate he suggested to see a cardiaclogist for through checkup.But…
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Does the size of the tumor matter?
Hello, My wife was diagnosed last May 2008 with a very large tumor which turned out to be kidney cancer. It turned out to be 22 cm in length, 8 cm in width and weighed in at 5 pounds. According to the surgeon - this is a "remarkable" tumor. Because of the size of the tumor, it was declared a stage 3. The cancer had broken…
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New to this network
Hey - I received word on 2-19-2009 that I had a tumor in my left kidney - I had a radical nephrectomy on 3-16-2009 - I was back to work on 4-16-2009! I feel really well, but I have soreness in my belly, along with numbness like a tingling sensation when I touch my belly - some days it's not too bad - but if I do alot of…
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blood tests
i had my surgery almost 3 yrs ago...i had renal cell carconoma stage 1 inclosed in its own bag yet. they removed the tumor which was at the top of my kidney and sitting right against my lung on the left side. i went for my reg checkup in feb.2008 as uausal said i was fine but did blood work. dr called 2 days ago and said…
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3 mths post surgery, Still sore and achy?
New to this site.....Diagnosed with 6cm tumor RCC in left kidney 10/08 and had radical nephrectomy,open surgery, along with removal of gall bladder. My incision runs across my abdomen from left to right. Never had surgery prior to this. I came on this site to search for any discussions regarding how I should be feeling 3…
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Nexavar treatments
My husband is one month into a 12-month regimen of targeted therapy of Nexavar for renal cell carcinoma. He has had many side effects already, some of the quite severe. What can we expect over the next year?
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Stage IV Renal Cell Cancer
My mother-in-law was recently diagnosed with stage IV renal cell cancer. She was not experiencing any pain at all. One day, she started getting a very bad headache, was taken to the hospital, and they performed a CT scan. At that time they found 5 tumors in her brain. After doing a bone scan, they stated that she had…
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lost ,confused ,just need some one to talk to
Help 13 weeks ago my huspand was being treated for kindney stones he started hurting so bad I took him to emergency room. They diagnosed him with renal carcenomia , stage 4 It has already moved to his lungs and in his back they said there was no hope gave him months to live the drs called hospice in . they just gave up on…
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RCC 4th Stage
My father was diagnosed with Stage 4 Kidney cancer that spread to his bones and one lung. He has been batteling it for over a year now. If anyone has any new knowledge of clinical trials going on that would great. We have been working with Sloan-Kettering and Johns-Hopkins. Also if there are any Stage 4 survivors out…
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Clear Cell Kidney
Hi my name is Lori and I recently had my left kidney removed because of a 10.7 cm malignant mass stage 2 clear cell with nothing in my lymphnodes, vein or fatty tissue. I underwent a CAT scan on 04/17/09 to find out that I was having an appendicits and the mass on my kidney. AT the time of the CAT scan they said that all…
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transitional cell carcinoma
Hi Everyone, My dad has transitional cell cancer which is very rare and uncurable but he is recieving treatment to give comfort. This is so new to us and we get very little info from the doc. His newest treatments has been chemo 2 wks on and 1 off. That has seemed to benefit him a lot rather than 1 every 3 weeks. Now he…
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CAT SCAN RESULTS
hi donna-lee and dawn, anybody else who may like to hear some good news. i spoke to the dr. today and my ct scan was fine, good, negative, normal...you know all the good stuff. i am so happy. i called the dr. office because my follow up appt, wasn't till next week and i couldn't wait any longer jumping every time the phone…
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After Torisel
My husband has Stage 4 kidney cancer. Had his right kidney out three years ago. A year later they spotted specks in his chest cat-scan. Year of tests before they confirmed kidney cancer in his lungs and lymph nodes. Sutent had no effect. Torisel for four months and a 50% reduction. Hallelujah! He's been off the med since…
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CT scan results
Donna-lee how'd it go today? you've been in my prayers. imbkuz
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Ablation or chemo for RCC metastasis to pelvis and upper arm
I'm having trouble deciding upon the best mode of treatment. I was diagnosed with RCC in November of 2007 and in December 2008 found to have metastasis to the right pelvis and upper arm. My pelvis erosion has been cemented, my upper arm rodded and each have been radiated. I am still in remission, but my doctor wants to…
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CT SCAN NEXT WEEK
hi everybody, i have a question for ya. does everybody use this MUCOMYST when they have their scan. someone mentioned this on an earlier post about helping to flush the contrast out of your kidney if you have one kidney what else do you do to protect it when having the ct scan and contrast. thanks alot everybody.
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RCC reaches liver?
Hi, my dad has RCC Stage IV. He was diagnosed on Nov 2005 and has been doing ok with Sorafenib. They performed a nephroectomy of his right kidney and of one of his vertebrae (L3).They also found many nodules on his lungs, which have been shrinking with the medication. Unfortunately they found many tumors on his liver a…
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I'm back
65. Since 2003, after rapid unexplained wight loss (16 kg), I struggle my kidney cancer (RCC). May 2005 - partial nephrectomy in order to remove a 5 cm tumor. During operation - contamination under the liver(a cancer cell "ran away" probably with the "help" of an operation instrument). June 2008 - biopsy under CT…
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FOLLOW UP TESTS AFTER SURGERY
hi everybody, i posted this question a few weeks ago and i was wondering if anybody else out there might have some info. i had stage 1 rcc diagnosed in nov 08. had a full nephrectomy on left kidney done laparoscopically in dec. 08. the tumor was 4cm. about the size of a walnut. both my urologist and my oncologist have…
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Getting diagnosed with Kidney cancer and prior PCV
Prior to my being diagnosed with RCC in 2003, I was diagnosed with idiopathic polycythemia vera(my blood was like sludge) My erythropoietin was normal. My primary tumor made a similar protein that functioned in the same manner but was not close enough to be picked up on the assay. I was wondering if anyone else had this…
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does anyone have info on BCG?
My neighbor has kidney cancer and is being treated with a tecnique call BCG? I was told by him that the are intorducing a bacterial into his cancer to destroy it. He's on his third week of treatment with no side effects. Any info in this would be appreciated.
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8 years out
I am eight years out from a having my right kidney removed due to a maliginat tumor of 5cm in size. I went to all of my follow up treatments and all that showed up was a cyst on left kidney and was told that was normal. My cancer was found due to my gastrologist performing an ultra sound. He handed me a prescription for…
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Affinitor approved fpr mrcc mon march 31 by the fda
Hi folks, We have new weapon in our battle against mrcc (kidney cancer that has spread). This new drug was known as rad001 when it was in clinical trials and had shown promising results. I don't have the figures to give you at this time, but anything new to help those who's cancer has spread and other targeted thearapy's…
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neighbor just diagnosed
I just brought my neighbor into the hospital for his first treatment. he's 72 and has kidney cancer among others. He's going to get some sort of bacterial treatment. Can anyone tell me more about it?
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Another Sutent Question
Hi Everyone, I'm new to this site and new to kidney cancer. I was diagnosed with RCC (Clear Cell) on June 20th of this year and had a left radical nephrectomy on July 14th. We weren't wasting any time. I had a 10.5 cm growth on my kidney and 8 cm of growth in 14 lymph nodes. Needless to say my cancer is advanced. The good…
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Sutent
Hi,I,am the wife of a older man who has had cancer,first started 27 years ago,Bladder cancer,he had laser surgery,it was gone for over 27 years,it came back 3 years ago,again he had laser surgery,it was gone again for the next 3 years,He went in for a cat scan kidney cancer showed up,we went to the Mayo Clinic in…
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FOLLOW UP TESTING SCHEDULE
hi everybody, thank you so much to everyone who posts on this board it has been so helpful to me. MY QUESTION IS WHAT IS YOUR FOLLOW UP PLAN FOR TESTING FOR RECURRENCE? i was stage 1 renal cell carcinoma. had a radical nephrectomy done laparoscopically on dec. 12.the cancer was not found anywhere but in the tumor. my…